Feeling sad and depressed now....

[Guest guest]

: I don't think you ever get over your feelings of being overwhelmed,

or worried, etc. They say there are steps you go through, I go through them

rotating on a weekly basis. One week I am optimistic, one week not so

optimistic, one week saddened and disappointed, the next cheerful and so on...

My

son has PDD NOS and Apraxia. I love my son so much and he is such a good boy.

I have found one thing that helps is to keep a log or journal of all the

good things your child has accomplished. It is hard when you feel tired and you

know you need to do things to help your child. I am so blessed to have my

son, he is a joy, I would not want another son, but there are days when I feel

sad too, just that he has to go through this and he has to try so hard to

learn to speak. Know you are not alone, take one day at a time and be good to

yourself. Years into the future your daughter may surprise you at all she can

do, enjoy your time with her, she will just be this age once. Jen

**************Get fantasy football with free live scoring. Sign up for

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[Guest guest]

Hi all, I know you all have probably gone through this, and may still

now and then, but I am becoming overwhelmed with all of the stuff that

is " wrong " with my beautiful smart little princess. At first, all she

had was Duane's Syndrome, which was very manageable in our opinion.

Now she has probable speech apraxia and sensory integration issues. I

just feel so SAD for her! I know she can have a fairly " normal " life,

but it is going to take so much work to get her there. I also worry

all of the time about her being made fun of when she gets into

school. I know that we can't protect our kids from everything, but

being made fun of can really compound any feelings of low self-esteem

she may already have.

I want to do all that I can for my daughter, but I feel guilty that I

come home from work and am exhausted and really don't want to do

anything but sit and relax when I need to work with her! I am also

overwhelmed with all of the information that I am reading. What to do

when and how and where and why......Whew! It's a bit of an

informational overload!

I guess that I just need a pep talk. You have all been where I am

now. What did you do and how did you feel when you first found out

about your child(ren)? I thought I was OK with everything, but I

don't think that I really have gone through all of the emotional steps

yet.

Thanks so much,

in Ohio

[Guest guest]

, I echo EVERYTHING Jen just wrote in her email. My emotions kind of

rotate as well. My son has PDD-NOS and apraxia and there are weeks that I

go through where I feel incredibly optimistic and weeks, like this one! that

I feel overwhelmed and very sad and very pessimistic. I am not sure what is

going on this week, but I have been struggling so very much. I love my son

so incredibly much and wouldn’t want to have any other son but the one I

have. When I look back on a year ago and all he was saying is “ehhhh” for

everything and hear him now saying some words and some two and three word

sentences I realize how far we have come. I am learning it isn’t a sprint,

it is a marathon, at least for us. We still have a long ways to go, but I

have to remind myself that he is moving forward and making progress, not

backward.

Hang in there. You are not alone.

Ann

[ ] Feeling sad and depressed now....

Hi all, I know you all have probably gone through this, and may still

now and then, but I am becoming overwhelmed with all of the stuff that

is " wrong " with my beautiful smart little princess. At first, all she

had was Duane's Syndrome, which was very manageable in our opinion.

Now she has probable speech apraxia and sensory integration issues. I

just feel so SAD for her! I know she can have a fairly " normal " life,

but it is going to take so much work to get her there. I also worry

all of the time about her being made fun of when she gets into

school. I know that we can't protect our kids from everything, but

being made fun of can really compound any feelings of low self-esteem

she may already have.

I want to do all that I can for my daughter, but I feel guilty that I

come home from work and am exhausted and really don't want to do

anything but sit and relax when I need to work with her! I am also

overwhelmed with all of the information that I am reading. What to do

when and how and where and why......Whew! It's a bit of an

informational overload!

I guess that I just need a pep talk. You have all been where I am

now. What did you do and how did you feel when you first found out

about your child(ren)? I thought I was OK with everything, but I

don't think that I really have gone through all of the emotional steps

yet.

Thanks so much,

in Ohio

[Guest guest]

Hi jenny I don't post much but you said your son has PDD-NOS and Apraxia. I was

wondering how you would describe a child that has PDD-NOS and Apraxia. We are

still in the trying to get the right diagnosis stage. We are going to see a

neurologist on Monday so I hope to find out some more info. Thank you for your

time.

 

Brittainy

(Noah 3.5 and still not sure what he has)

Re: [ ] Feeling sad and depressed now....

: I don't think you ever get over your feelings of being overwhelmed,

or worried, etc. They say there are steps you go through, I go through them

rotating on a weekly basis. One week I am optimistic, one week not so

optimistic, one week saddened and disappointed, the next cheerful and so on...

My

son has PDD NOS and Apraxia. I love my son so much and he is such a good boy.

I have found one thing that helps is to keep a log or journal of all the

good things your child has accomplished. It is hard when you feel tired and you

know you need to do things to help your child. I am so blessed to have my

son, he is a joy, I would not want another son, but there are days when I feel

sad too, just that he has to go through this and he has to try so hard to

learn to speak. Know you are not alone, take one day at a time and be good to

yourself. Years into the future your daughter may surprise you at all she can

do, enjoy your time with her, she will just be this age once. Jen

************ **Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020)

[Guest guest]

, I totally understand your thoughts/feelings. Even

while " playing " with your daughter, you are " working " with her (and in

a way she'll like!) My son loves to read stories, yes I get tired of

reading the same stories, but he loves the repetition of them, so we

read them over and over and he repeats the words and will even practice

some sounds while saying those words. He also loves Rescue Hero's

(thank goodness for eBay and garage sales!) We play them while the

girls play barbies. Many times he'll carry out both sides of the play

scenario. We've only been going through this (apraxia) for about a

year and a half now, every once in a while I'll feel sad for my son (I

think that's totally normal!), but then I think of all the things he

can do (and do so well!). One positive - he got the potty training

down before 2 of his " typical " peers did (they just don't get it yet)

woo-hoo!!!

We're in Ohio too (a bit south of the Football Hall of Fame).

Take care,

Bonnie (Garret's mom, and Sydney and andra, too )

[Guest guest]

Hi Bonnie!

 

Much thanks to you and everyone elso who has posted helpful words!  I think that

I am just " newly overwhelmed " and will come to terms with things. 

 

On a side note...Abby (DD) found the dive sticks that I had set aside to put in

her give-aways for her Bday party and she wouldn't let them out of her site. 

She sat CALMLY on the couch and chewed on them for the duration of a half-hour

show and seemed very content...she was actually contect the entire

evening...could this be behavior along the lines of wht I have seen called

" chewelry " ?  Plastic bracelets for kids to chew on if they need to?  It was just

interesting to watch how she was totally calm.

 

By the way, I am in Coshocton County...just south of you!

 

in Ohio

From: bault123 <kault@...>

Subject: [ ] Re: Feeling sad and depressed now....

Date: Friday, July 25, 2008, 10:24 AM

, I totally understand your thoughts/feelings. Even

while " playing " with your daughter, you are " working " with her (and in

a way she'll like!) My son loves to read stories, yes I get tired of

reading the same stories, but he loves the repetition of them, so we

read them over and over and he repeats the words and will even practice

some sounds while saying those words. He also loves Rescue Hero's

(thank goodness for eBay and garage sales!) We play them while the

girls play barbies. Many times he'll carry out both sides of the play

scenario. We've only been going through this (apraxia) for about a

year and a half now, every once in a while I'll feel sad for my son (I

think that's totally normal!), but then I think of all the things he

can do (and do so well!). One positive - he got the potty training

down before 2 of his " typical " peers did (they just don't get it yet)

woo-hoo!!!

We're in Ohio too (a bit south of the Football Hall of Fame).

Take care,

Bonnie (Garret's mom, and Sydney and andra, too )

[Guest guest]

Jen,

This is such sound advice. Each kid is so precious. Improvements aside

my son has changed in the past year. I look at him and think, where did

the time go.

L