Re: Re: Malabsorption tests results, diseases of the small intestine, and general anesthesia for more testing

[Guest guest]

Thank you very much ! I am printing everything. I need to " digest " so much

information! I will probably get back to you with more details and questions.

THANK YOU VERY MUCH!  I will definitely look into this Metametrix panel also.

One thing my husband and I have decided is to find another Gastroenterologist

for more opinions. We now doubt about the way the lactose H2 exam was performed.

We have 1000 questions in our heads and will not do en endoscopy without being

sure it is really necessary. Again, I may get back to you and the group in

general with more questions. Take care!

Laimi

From: <creilly@...>

Subject: [ ] Re: Malabsorption tests results, diseases of the

small intestine, and general anesthesia for more testing

Date: Sunday, July 27, 2008, 3:17 PM

I am also dealing with malabsorbtion and other issues as well here. A

comprehensive stool analysis showed a low stool pH, undigested food,

no yeast, no bacteria, etc. etc. It was a Metametrix panel.

As a parent of a child that has a hard time with being under general

anthesia and has to be watched very closely - I hate MRIs, scopes,

etc. I probably also lean toward using the move conversative

approaches first. What are they looking for - are there other ways to

find this? If they are just doing a " look see " have nothing specific,

etc. then I would ask if there are other tests that are less invasive

that can be done first to rule things out.

Combining it with another surgery or procedure isn't a bad idea - but

keep in mind that the clean out for a biopsy can be hard on a kid

with gut issues (or anyone) - combining it with surgery may not be

recommended. There are sometimes loss of mineral issues or stirring

up pathogen issues.

Have to run - just my opinion - I don't know much about your

situation. I just thought about what I would think

>

> Hello all!

> I think we are getting to the real cause for ’ growth and

developmental delays and lack of weight. He had a Lactose H2

(hydrogen) Breath test. It was pretty high all the time and this is

usually linked to overgrowth of bacteria in the small intestine

related to malabsorption.

> We previously had blood exams showing a deficiency in Vitamins A

and D in plasma. Vitamin E may be low too. We know that vit E levels

in plasma may be OK, but it may not be reaching the organs.

> I had also written down what ate during 5 days, even weighing

food. It was a very detailed report and, according to the

nutritionist who analyzed my report, he was getting enough of these

vitamins. So, for some reason, his body is not processing them.

Vitamin K seems to be fine. He has not had any bleeding problems

during his surgeries.

> His cholesterol is a little bit high, but the truth is that we have

been giving him lots of greasy foods trying to make him gain weight

before the surgeries. High cholesterol could also be the result of

repeated surgeries and inflammatory processes I think. We are

obviously opting for healthier meals now.

> His Gastroenterologist wants to do a biopsy of the small intestine

to check its lining. The procedure would take 10 minutes but he needs

general anesthesia. We would like to combine this with the next

surgery for the spine to avoid extra anesthesia but we may end up

having the next surgery at Shriners Philadelphia. I think this may be

a problem because, if I am not mistaken, Shriners in Philly is purely

for orthopedics and the hospital does not charge a cent to the

insurance companies.

> I am not concerned about the biopsy of the intestine itself since

it is not painful. We are not looking for cancer, which would kill

me. However, I know there are a few diseases of the intestines out

there that can be very difficult to deal with and can also lead to

death. Does anyone here know about these? Has anyone here been in

need or able to combine procedures at a Shriners Hospital? ANY HELP,

COMMENTS, OR EXPERIENCES ABOUT THIS WILL BE VERY, VERY APPRECIATED.

> Laimi

>

[Guest guest]

Hi Colleen, Elena, and ,

Milk is something I would wait to eliminate from ' diet until I am sure it

is affecting him. He was born with 3 vertebrae missing parts. This is the reason

for his spine problems. We need strong bones for the metal rods to stay

attached. If milk is the reason for the malabsorption, then " good bye milk " and

we will try to get calcium from somewhere else, but I would need to be sure.

One more thing, remember started talking in March and is saying 2 and 3

word sentences already. Awful pronunciation though. But he got ear tubes in

November and since then, his progress has been great. His speech therapist does

not think he has Apraxia anymore because an apraxic child would go so fast in a

4 month period (well... this is what she told me. Is this true?)

Malabsorption? Yes he definitely suffers from Malabsorption. Could it be due to

all the antibiotics he had after each surgery? Was the Lactose H2 Breath Test

properly performed? I have my doubts. I have reconsidered the endoscopy after

all I have read. Thank you very much, BTW. I will ask our Gastro what she is

looking for but I think I will wait. I want to repeat the breath test and blood

exams in 2-4 months and supplement in the meantime.

What do you think about this? Any recommendations for a biomed doc in South FL?

Thank you very much, guys. This is really helping!

Laimi

From: kiddietalk <kiddietalk@...>

Subject: [ ] Re: for Elena- Malabsorption tests results,

diseases of the small intestine, and general anesthesia for more testing

Date: Tuesday, July 29, 2008, 1:52 AM

Colleen I understand this may be necessary for some who have children

that don't respond to other methods like therapy and fish oils alone,

but all the parents that are in this group live with 'it' in some way

and most never have to eliminate dairy. I know this is a hot

debate here because some feel strongly against dairy but again as

I've posted the studies there is a rise in overweight short children

with the brittle weak bones of an elderly person due directly to

parents that stop dairy without the advice and supervision of a

medical doctor. Not to be blunt but short, fat with weak brittle

bones and dietary limitations doesn't go well with trying to get a

speech impaired child accepted by peers.

We drink raw milk and use some other raw dairy in our home like

butter but we are not fanatic about it. Our kids eat Dannon or

Yoplait yogurt and we go for ice cream cones in the summer just like

anyone else. And...and this is a huge and -we notice absolutely no

difference in either of our boys or me or Glenn when we do eat

dairy.

The no dairy route for a child that has no known allergies could be for

those rare children that don't respond to the basics of therapy

and fish oils if under supervision by a doc. And BTW this is coming from a

former child that was diagnosed celiac as an infant who spent years

in an out of hospitals who had to grow up on a special diet. I never

thought that those days would come back to haunt me because up till

more recently it didn't come up here...and yet our success rate as a

group has always been high before all these talks of special diets.

Oh and about calcium and other sources -history says you can eat soft

bones but I'll stick with milk thanks.

" Yet it is possible to attain optimal health without dairy foods.

Price discovered groups using no dairy foods that had complete

resistance to dental decay and chronic disease; their diets

invariably included other rich sources of animal fats, calcium and

other minerals. The soft ends of long bones were commonly chewed, and

the shafts and other bones were used in soups. "

http://www.realmilk .com/healthbenef its.html

" Since calcium plays such a crucial role in so many areas of our

physiology, I'll just list the major ones here. Aside from the

obvious contribution to teeth and bones, it figures heavily in muscle

contraction, nerve impulse transmission, heartbeat regulation, blood

clotting, enzyme activation, even fluid balance in our cells.

To get the most of it from our food, a number of conditions have to

be just so. For instance, vitamin D is needed for proper calcium

absorption. So is adequate amounts of the amino acid lysine. Also

critical is the presence of phosphorus. A calcium to phosphorus ratio

(Ca/P) of from 2:1 to 1:1 has been shown to promote the highest

levels of absorption.

The ratio in raw milk is approximately 1.3:1 which falls nicely

within the optimum range. When the dietary Ca/P ratio moves the other

way, toward, say, 1:2, as it might with high-protein diets or heavy

consumption of carbonated soft drinks, calcium loss is elevated.

Other factors in foods can block the absorption of calcium or cause

its unwanted secretion as well. For instance, sodium and caffeine

both elevate calcium levels in the urine. Every cuppa (equivalent to

150 mg of caffeine), can cause the loss of 5mg of calcium. Foods that

contain oxalic and phytic acids, such as rhubarb, spinach and

soybeans, can block the absorption of calcium and other key

nutrients. " Chart here too

http://www.raw- milk-facts. com/calcium. html

=====

[Guest guest]

My reccommendation is Dorfman www.kellydorfman.com. She is in MD but

does phone consults and knows just as much as a DAN!

[ ] Re: for Elena- Malabsorption tests results,

diseases of the small intestine, and general anesthesia for more testing

<mailto: %40>

Date: Tuesday, July 29, 2008, 1:52 AM

Colleen I understand this may be necessary for some who have children

that don't respond to other methods like therapy and fish oils alone,

but all the parents that are in this group live with 'it' in some way

and most never have to eliminate dairy. I know this is a hot

debate here because some feel strongly against dairy but again as

I've posted the studies there is a rise in overweight short children

with the brittle weak bones of an elderly person due directly to

parents that stop dairy without the advice and supervision of a

medical doctor. Not to be blunt but short, fat with weak brittle

bones and dietary limitations doesn't go well with trying to get a

speech impaired child accepted by peers.

We drink raw milk and use some other raw dairy in our home like

butter but we are not fanatic about it. Our kids eat Dannon or

Yoplait yogurt and we go for ice cream cones in the summer just like

anyone else. And...and this is a huge and -we notice absolutely no

difference in either of our boys or me or Glenn when we do eat

dairy.

The no dairy route for a child that has no known allergies could be for

those rare children that don't respond to the basics of therapy

and fish oils if under supervision by a doc. And BTW this is coming from a

former child that was diagnosed celiac as an infant who spent years

in an out of hospitals who had to grow up on a special diet. I never

thought that those days would come back to haunt me because up till

more recently it didn't come up here...and yet our success rate as a

group has always been high before all these talks of special diets.

Oh and about calcium and other sources -history says you can eat soft

bones but I'll stick with milk thanks.

" Yet it is possible to attain optimal health without dairy foods.

Price discovered groups using no dairy foods that had complete

resistance to dental decay and chronic disease; their diets

invariably included other rich sources of animal fats, calcium and

other minerals. The soft ends of long bones were commonly chewed, and

the shafts and other bones were used in soups. "

http://www.realmilk .com/healthbenef its.html

" Since calcium plays such a crucial role in so many areas of our

physiology, I'll just list the major ones here. Aside from the

obvious contribution to teeth and bones, it figures heavily in muscle

contraction, nerve impulse transmission, heartbeat regulation, blood

clotting, enzyme activation, even fluid balance in our cells.

To get the most of it from our food, a number of conditions have to

be just so. For instance, vitamin D is needed for proper calcium

absorption. So is adequate amounts of the amino acid lysine. Also

critical is the presence of phosphorus. A calcium to phosphorus ratio

(Ca/P) of from 2:1 to 1:1 has been shown to promote the highest

levels of absorption.

The ratio in raw milk is approximately 1.3:1 which falls nicely

within the optimum range. When the dietary Ca/P ratio moves the other

way, toward, say, 1:2, as it might with high-protein diets or heavy

consumption of carbonated soft drinks, calcium loss is elevated.

Other factors in foods can block the absorption of calcium or cause

its unwanted secretion as well. For instance, sodium and caffeine

both elevate calcium levels in the urine. Every cuppa (equivalent to

150 mg of caffeine), can cause the loss of 5mg of calcium. Foods that

contain oxalic and phytic acids, such as rhubarb, spinach and

soybeans, can block the absorption of calcium and other key

nutrients. " Chart here too

http://www.raw- milk-facts. com/calcium. html

=====

[Guest guest]

Hi Jeanne,

First I want to thank you for taking the time to answer to my call. I do not

plan to stop giving him milk with all the problems he has with his bones.

Regarding the bio, I just want to get more information about it.

Laimi

From: jbmistletoe <jbmistletoe@...>

Subject: [ ] Re: Malabsorption tests results, diseases of the

small intestine, and general anesthesia for more testing

Date: Tuesday, July 29, 2008, 10:44 PM

Laimi,

Jeanne here, I have one child with autism, one with apraxia. I am one of the

moderators in this group and have run a non profit organization in NJ for 8

years where there are many autistic and apraxic children. We meet in person 4

times a year. It sounds like you are seeing some medical doctors so why do you

want a bio who may nor may not know anything. From all the parents over the

years I have talked to most didn't try and few that did try had any success with

these expensive possibly risky bio medical treatments. It was a waste of time

and money overall.

Please don't put him thru something expensive like this, when the money could be

used for better educational or after school things like swimming or karate

classes. Don't feel guilty about not doing everything that someone mentions and

try to get to an in person support group. Personally,I think it would be doing

more harm than good by not giving a growing child milk unless there is an

allergy. Milk has alot more good qualities than we will ever know. Why put your

child at risk for weak bone problems and other issues? Your child sounds like

he's on a good path. I believe a phrase comes to mind " if it ain't broke don't

fix it " , regarding your sons speech and putting him through risky bio medical

treatments.

>

> From: kiddietalk <kiddietalk@ ...>

> Subject: [childrensapraxiane t] Re: for Elena- Malabsorption tests

results, diseases of the small intestine, and general anesthesia for

more testing

> @groups. com

> Date: Tuesday, July 29, 2008, 1:52 AM

>

>

>

>

>

>

> Colleen I understand this may be necessary for some who have

children

> that don't respond to other methods like therapy and fish oils

alone,

> but all the parents that are in this group live with 'it' in some

way

> and most never have to eliminate dairy. I know this is a hot

> debate here because some feel strongly against dairy but again as

> I've posted the studies there is a rise in overweight short

children

> with the brittle weak bones of an elderly person due directly to

> parents that stop dairy without the advice and supervision of a

> medical doctor. Not to be blunt but short, fat with weak brittle

> bones and dietary limitations doesn't go well with trying to get a

> speech impaired child accepted by peers.

>

> We drink raw milk and use some other raw dairy in our home like

> butter but we are not fanatic about it. Our kids eat Dannon or

> Yoplait yogurt and we go for ice cream cones in the summer just

like

> anyone else. And...and this is a huge and -we notice absolutely no

> difference in either of our boys or me or Glenn when we do eat

> dairy.

>

> The no dairy route for a child that has no known allergies could be

for

> those rare children that don't respond to the basics of therapy

> and fish oils if under supervision by a doc. And BTW this is coming

from a

> former child that was diagnosed celiac as an infant who spent years

> in an out of hospitals who had to grow up on a special diet. I

never

> thought that those days would come back to haunt me because up till

> more recently it didn't come up here...and yet our success rate as

a

> group has always been high before all these talks of special diets.

>

> Oh and about calcium and other sources -history says you can eat

soft

> bones but I'll stick with milk thanks.

>

> " Yet it is possible to attain optimal health without dairy foods.

> Price discovered groups using no dairy foods that had complete

> resistance to dental decay and chronic disease; their diets

> invariably included other rich sources of animal fats, calcium and

> other minerals. The soft ends of long bones were commonly chewed,

and

> the shafts and other bones were used in soups. "

> http://www.realmilk .com/healthbenef its.html

>

> " Since calcium plays such a crucial role in so many areas of our

> physiology, I'll just list the major ones here. Aside from the

> obvious contribution to teeth and bones, it figures heavily in

muscle

> contraction, nerve impulse transmission, heartbeat regulation,

blood

> clotting, enzyme activation, even fluid balance in our cells.

>

> To get the most of it from our food, a number of conditions have to

> be just so. For instance, vitamin D is needed for proper calcium

> absorption. So is adequate amounts of the amino acid lysine. Also

> critical is the presence of phosphorus. A calcium to phosphorus

ratio

> (Ca/P) of from 2:1 to 1:1 has been shown to promote the highest

> levels of absorption.

>

> The ratio in raw milk is approximately 1.3:1 which falls nicely

> within the optimum range. When the dietary Ca/P ratio moves the

other

> way, toward, say, 1:2, as it might with high-protein diets or heavy

> consumption of carbonated soft drinks, calcium loss is elevated.

>

> Other factors in foods can block the absorption of calcium or cause

> its unwanted secretion as well. For instance, sodium and caffeine

> both elevate calcium levels in the urine. Every cuppa (equivalent

to

> 150 mg of caffeine), can cause the loss of 5mg of calcium. Foods

that

> contain oxalic and phytic acids, such as rhubarb, spinach and

> soybeans, can block the absorption of calcium and other key

> nutrients. " Chart here too

> http://www.raw- milk-facts. com/calcium. html

>

> =====

>