Re: MRI and interesting info from anesth. doc

[Guest guest]

Thank you for sharing Lori.  I'm glad nothing major to worry about showed up,

that's what we'd all hope to see. Yes it helps many of us I think to understand

what some of the issues may be not just with anesthesia but what the findings

might look like. I know every child is different but you hear enough stories and

you see where your child might fit, helps you make a better guess as to what

needs to be done and what an MRI might reveal or not. 

We opted not to do it--our daughter was born with deformational palgiocephaly

(head pushed in from the back right--pre-birth, bumped up in the front right,

and flattened in the front left, with slightly asymmetrical and differently

positioned ears)  All pretty typical for plagiocephaly from the womb, due most

likely to lower than normal amniotic fluid, but not enough to cause alarm, just

enough for her head to have been stuck in my pelvic bone for several months

prior to birth it seems.  Anyway, it's hard to know what caused the apraxia in

her case as she is also gluten/casein corn/soy intolerant and has other obvious

metabolic issues that are so common in these kids with apraxia and the soft

markers slight SID slight toe walking on and off--but is otherwise a very

healthy happy child and we've not done any genetic testing but there is no real

reason to pursue that aspect yet either.  No suspicion of any particular

disorder that is.  So we've

wondered what the MRI would show and more importantly what we'd do about it. 

At this point we've opted to skip it since the likelihood of it impacting

treatment is very low given that she has no other really serious symptoms other

than the speech apraxia. But I guess we'll always wonder. 

Thanks again and all the best to you and yours.

-Elena

From: lorirosen@... <lorirosen@...>

Subject: [ ] MRI and interesting info from anesth. doc

Date: Wednesday, July 30, 2008, 11:13 AM

Hi,

I mostly lurk here and have posted just a few times in the past. My

daughter, who is 3 and a twin, is a former 27 week preemie just had her MRI

done

last week. I wanted to share some information that I learned with the group.

Hannah suffered some significant respiratory distress after she was born

which we all suspected affected her brain, thus leading to her issues with

motor

planning/apraxia. ANyway, I cancelled her first MRI after reading here

about the affects of anesthesia and regression. Her neuro really pressured me

to do the MRI, in order to rule out metabolic disorders, stroke in utero,

brain disease etc, etc, the whole gamut that may be the cause of her motor

planning issues. After just freaking out about this, I talked to our preemie

doc

who said that that is what neuros do, they come up with a list of things and

then rule them out. However, she felt that my daughter's issues were

prematurity related and offered to review the MRI as well. Now, I asked both

the

neuro and the neonatologist about the anesthesia issues and they both said no

link to regression. So, my husband and I decided that it would be best to do

the MRI just to be sure there were no hidden surprises down the road. I spoke

with the anesth. doc before the procedure. Due to the fact that she was

going to have two different types of scans, she had to be sedated no matter

what.

I told him what I had read about regression and was it true? To my

surprise, he said, yes it can happen. He said while its rare, there are

certain types

of anesthesia that can cause regression, and that it seems to affect the

population of kids who are more involved (he meant kids who have significant

disabilities). So, he decided that he would use gas to help Hannah fall

asleep,

then use a particular type of anesthesia to be delivered via IV. This type

he said was quick to wear off and would not affect her neurologically. I

felt relieved that he listened to our concerns and acknowledged the real

possibility of regression. After the MRI, my daughter did in fact recover

very

quickly and was back to herself within an hour. Compared to her being groggy

and

sleeping all day after her anesthesia for having her adenoids removed a year

ago (we did not know about the issue of regression at that time), this was a

very smooth experience for us.

In case you were interested, we received the results of her MRI the next

day. Basically, her brain is typical of a former preemie, I won't go into

all

the details here since it does not relate to most of you, but the one thing

that they did note was that there were some subtle and mild scarring in the

area

of her cerebellum that affects balance, which explains why she has issues

with motor planning, hence her apraxia. Don't know if that helps any of

you

parents out there, but it helped us and we obviously are continuing with the

PT, OT and speech to help her overcome this.

Lori

**************Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

[Guest guest]

Lori,

Thanks for the info. My kid had a reaction as did 2 others I know and

those kids were far more mildly affected than mine. Nice to know there

are options. Best wishes to your little gitl.

Liz

[Guest guest]

We did an MRI when Mark was little to rule out Muscular Dystrophy or any other

type of neurodegenerative disorder. MS presents in a very similiar manner to

dyspraxia with the exception that it is degenerative and dyspraxia is not.

This was the sole reasoning behind the MRI; to check to see if the brain itself

was healthy and normal. It was.

Janice

[ ] MRI and interesting info from anesth. doc

Date: Wednesday, July 30, 2008, 11:13 AM

Hi,

I mostly lurk here and have posted just a few times in the past. My

daughter, who is 3 and a twin, is a former 27 week preemie just had her MRI

done

last week. I wanted to share some information that I learned with the group.

Hannah suffered some significant respiratory distress after she was born

which we all suspected affected her brain, thus leading to her issues with

motor

planning/apraxia. ANyway, I cancelled her first MRI after reading here

about the affects of anesthesia and regression. Her neuro really pressured me

to do the MRI, in order to rule out metabolic disorders, stroke in utero,

brain disease etc, etc, the whole gamut that may be the cause of her motor

planning issues. After just freaking out about this, I talked to our preemie

doc

who said that that is what neuros do, they come up with a list of things and

then rule them out. However, she felt that my daughter's issues were

prematurity related and offered to review the MRI as well. Now, I asked both

the

neuro and the neonatologist about the anesthesia issues and they both said no

link to regression. So, my husband and I decided that it would be best to do

the MRI just to be sure there were no hidden surprises down the road. I spoke

with the anesth. doc before the procedure. Due to the fact that she was

going to have two different types of scans, she had to be sedated no matter

what.

I told him what I had read about regression and was it true? To my

surprise, he said, yes it can happen. He said while its rare, there are

certain types

of anesthesia that can cause regression, and that it seems to affect the

population of kids who are more involved (he meant kids who have significant

disabilities). So, he decided that he would use gas to help Hannah fall

asleep,

then use a particular type of anesthesia to be delivered via IV. This type

he said was quick to wear off and would not affect her neurologically. I

felt relieved that he listened to our concerns and acknowledged the real

possibility of regression. After the MRI, my daughter did in fact recover

very

quickly and was back to herself within an hour. Compared to her being groggy

and

sleeping all day after her anesthesia for having her adenoids removed a year

ago (we did not know about the issue of regression at that time), this was a

very smooth experience for us.

In case you were interested, we received the results of her MRI the next

day. Basically, her brain is typical of a former preemie, I won't go into

all

the details here since it does not relate to most of you, but the one thing

that they did note was that there were some subtle and mild scarring in the

area

of her cerebellum that affects balance, which explains why she has issues

with motor planning, hence her apraxia. Don't know if that helps any of

you

parents out there, but it helped us and we obviously are continuing with the

PT, OT and speech to help her overcome this.

Lori

**************Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

[Guest guest]

I know what you mean about always wondering with regards to the

decision to getting an MRI.

My fourth was born with missing fingers and nubbins for the fingers

he had and hypospadia (opening for urine to exit in the wrong spot).

As he got older we realized he has Apraxia and SID. Some doctors feel

he is PDD-NOS and others do not. He's developmentally delayed for

sure.

The MRI showed us nothing. It came back " within normal range " . My son

has also had blood tests, allergy tests, x-rays, genetic testing

(nothing missing) and nothing ever tells us anything!?! My son is

just like his siblings save his physical birth defects according to

all the testing yet something is definately different.

We treat my son's Apraxia at this point since it impacts his life the

most. Thankfully speech therapy is working. Best wishes to you and

your family.

> From: lorirosen@... <lorirosen@...>

> Subject: [ ] MRI and interesting info from

anesth. doc

>

> Date: Wednesday, July 30, 2008, 11:13 AM

>

> Hi,

> I mostly lurk here and have posted just a few times in the past.

My

> daughter, who is 3 and a twin, is a former 27 week preemie just had

her MRI

> done

> last week. I wanted to share some information that I learned with

the group.

> Hannah suffered some significant respiratory distress after she was

born

> which we all suspected affected her brain, thus leading to her

issues with

> motor

> planning/apraxia. ANyway, I cancelled her first MRI after

reading here

> about the affects of anesthesia and regression. Her neuro really

pressured me

>

> to do the MRI, in order to rule out metabolic disorders, stroke in

utero,

> brain disease etc, etc, the whole gamut that may be the cause of

her motor

> planning issues. After just freaking out about this, I talked to

our preemie

> doc

> who said that that is what neuros do, they come up with a list of

things and

> then rule them out. However, she felt that my daughter's issues

were

> prematurity related and offered to review the MRI as well. Now,

I asked both

> the

> neuro and the neonatologist about the anesthesia issues and they

both said no

> link to regression. So, my husband and I decided that it would be

best to do

> the MRI just to be sure there were no hidden surprises down the

road. I spoke

>

> with the anesth. doc before the procedure. Due to the fact that

she was

> going to have two different types of scans, she had to be sedated

no matter

> what.

> I told him what I had read about regression and was it true? To

my

> surprise, he said, yes it can happen. He said while its rare,

there are

> certain types

> of anesthesia that can cause regression, and that it seems to

affect the

> population of kids who are more involved (he meant kids who have

significant

> disabilities). So, he decided that he would use gas to help

Hannah fall

> asleep,

> then use a particular type of anesthesia to be delivered via IV.

This type

> he said was quick to wear off and would not affect her

neurologically. I

> felt relieved that he listened to our concerns and acknowledged

the real

> possibility of regression. After the MRI, my daughter did in fact

recover

> very

> quickly and was back to herself within an hour. Compared to her

being groggy

> and

> sleeping all day after her anesthesia for having her adenoids

removed a year

> ago (we did not know about the issue of regression at that time),

this was a

> very smooth experience for us.

> In case you were interested, we received the results of her MRI the

next

> day. Basically, her brain is typical of a former preemie, I won't

go into

> all

> the details here since it does not relate to most of you, but the

one thing

> that they did note was that there were some subtle and mild

scarring in the

> area

> of her cerebellum that affects balance, which explains why she has

issues

> with motor planning, hence her apraxia. Don't know if that helps

any of

> you

> parents out there, but it helped us and we obviously are continuing

with the

> PT, OT and speech to help her overcome this.

> Lori

>

>

>

> **************Get fantasy football with free live scoring. Sign up

for

> FanHouse Fantasy Football today.

> (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

>

>

>

[Guest guest]

Yes, we had mixed feelings about having it done, but now I am glad we

did it, knowing that there were no significant/debilitating disease

that was causing the apraxia/motor planning issues. We also go to

the apraxia clinic at the children's hospital here, they are doing a

lot of research on apraxia, and I know they are reviewing all of the

MRIS of kids who have had them done. It would be interesting to see

what their research ultimately shows about apraxia and the brain.

-- In , Elena Danaila

<edanaila@...> wrote:

>

> Thank you for sharing Lori.  I'm glad nothing major to worry about

showed up, that's what we'd all hope to see. Yes it helps many of us

I think to understand what some of the issues may be not just with

anesthesia but what the findings might look like. I know every child

is different but you hear enough stories and you see where your child

might fit, helps you make a better guess as to what needs to be done

and what an MRI might reveal or not. 

>

> We opted not to do it--our daughter was born with deformational

palgiocephaly (head pushed in from the back right--pre-birth, bumped

up in the front right, and flattened in the front left, with slightly

asymmetrical and differently positioned ears)  All pretty typical for

plagiocephaly from the womb, due most likely to lower than normal

amniotic fluid, but not enough to cause alarm, just enough for her

head to have been stuck in my pelvic bone for several months prior to

birth it seems.  Anyway, it's hard to know what caused the apraxia in

her case as she is also gluten/casein corn/soy intolerant and has

other obvious metabolic issues that are so common in these kids with

apraxia and the soft markers slight SID slight toe walking on and off-

-but is otherwise a very healthy happy child and we've not done any

genetic testing but there is no real reason to pursue that aspect yet

either.  No suspicion of any particular disorder that is.  So we've

> wondered what the MRI would show and more importantly what we'd do

about it.  At this point we've opted to skip it since the likelihood

of it impacting treatment is very low given that she has no other

really serious symptoms other than the speech apraxia. But I guess

we'll always wonder. 

> Thanks again and all the best to you and yours.

> -Elena

>

>

> From: lorirosen@... <lorirosen@...>

> Subject: [ ] MRI and interesting info from

anesth. doc

>

> Date: Wednesday, July 30, 2008, 11:13 AM

>

> Hi,

> I mostly lurk here and have posted just a few times in the past.

My

> daughter, who is 3 and a twin, is a former 27 week preemie just had

her MRI

> done

> last week. I wanted to share some information that I learned with

the group.

> Hannah suffered some significant respiratory distress after she was

born

> which we all suspected affected her brain, thus leading to her

issues with

> motor

> planning/apraxia. ANyway, I cancelled her first MRI after

reading here

> about the affects of anesthesia and regression. Her neuro really

pressured me

>

> to do the MRI, in order to rule out metabolic disorders, stroke in

utero,

> brain disease etc, etc, the whole gamut that may be the cause of

her motor

> planning issues. After just freaking out about this, I talked to

our preemie

> doc

> who said that that is what neuros do, they come up with a list of

things and

> then rule them out. However, she felt that my daughter's issues

were

> prematurity related and offered to review the MRI as well. Now,

I asked both

> the

> neuro and the neonatologist about the anesthesia issues and they

both said no

> link to regression. So, my husband and I decided that it would be

best to do

> the MRI just to be sure there were no hidden surprises down the

road. I spoke

>

> with the anesth. doc before the procedure. Due to the fact that

she was

> going to have two different types of scans, she had to be sedated

no matter

> what.

> I told him what I had read about regression and was it true? To

my

> surprise, he said, yes it can happen. He said while its rare,

there are

> certain types

> of anesthesia that can cause regression, and that it seems to

affect the

> population of kids who are more involved (he meant kids who have

significant

> disabilities). So, he decided that he would use gas to help

Hannah fall

> asleep,

> then use a particular type of anesthesia to be delivered via IV.

This type

> he said was quick to wear off and would not affect her

neurologically. I

> felt relieved that he listened to our concerns and acknowledged

the real

> possibility of regression. After the MRI, my daughter did in fact

recover

> very

> quickly and was back to herself within an hour. Compared to her

being groggy

> and

> sleeping all day after her anesthesia for having her adenoids

removed a year

> ago (we did not know about the issue of regression at that time),

this was a

> very smooth experience for us.

> In case you were interested, we received the results of her MRI the

next

> day. Basically, her brain is typical of a former preemie, I won't

go into

> all

> the details here since it does not relate to most of you, but the

one thing

> that they did note was that there were some subtle and mild

scarring in the

> area

> of her cerebellum that affects balance, which explains why she has

issues

> with motor planning, hence her apraxia. Don't know if that helps

any of

> you

> parents out there, but it helped us and we obviously are continuing

with the

> PT, OT and speech to help her overcome this.

> Lori

>

>

>

> **************Get fantasy football with free live scoring. Sign up

for

> FanHouse Fantasy Football today.

> (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

>

>

>

[Guest guest]

One more thing I forgot to share with the group, we had visited the

apraxia clinic 3 days prior to the MRI. We met with the neuro who runs

the clinic there (separate from ourdaughter's neuro). I asked her if it

was true that apraxia is on the rise. She said " that seems to be the

rumor around here. " So then I said, well, is it because of better

diagnosis? She said " yes, most of the kids in the past had been

labeled has having articulation disorders but now its a separate

diagnosis so we're seeing " more kids with apraxia. " I don't

necessarily agree with her but thought I'd share here what she said.

She is leaving to start up an apraxia clinic at children's up in

Columbus in case anyone is interested.

Lori

>

> Lori,

>

> Thanks for the info. My kid had a reaction as did 2 others I know and

> those kids were far more mildly affected than mine. Nice to know

there

> are options. Best wishes to your little gitl.

>

>

> Liz

>

[Guest guest]

My take is the MRI will always be there and I can do it later when no

anesthesia required if warranted. Unless the current delays signalled

an urgent need for something that would change a course of action that

was my take.

Elena, what would thermography offer?

[Guest guest]

Lori,

 

Columbus where?  Ohio? 

 

in Ohio

From: seeramona <lorirosen@...>

Subject: [ ] Re: MRI and interesting info from anesth. doc

Date: Thursday, July 31, 2008, 5:00 PM

One more thing I forgot to share with the group, we had visited the

apraxia clinic 3 days prior to the MRI. We met with the neuro who runs

the clinic there (separate from ourdaughter' s neuro). I asked her if it

was true that apraxia is on the rise. She said " that seems to be the

rumor around here. " So then I said, well, is it because of better

diagnosis? She said " yes, most of the kids in the past had been

labeled has having articulation disorders but now its a separate

diagnosis so we're seeing " more kids with apraxia. " I don't

necessarily agree with her but thought I'd share here what she said.

She is leaving to start up an apraxia clinic at children's up in

Columbus in case anyone is interested.

Lori

>

> Lori,

>

> Thanks for the info. My kid had a reaction as did 2 others I know and

> those kids were far more mildly affected than mine. Nice to know

there

> are options. Best wishes to your little gitl.

>

>

> Liz

>

[Guest guest]

-Hi,

Interesting, my son's MRI showed a " smallish " vernis which is in the cerebellum,

and

apparently affects balance. He has oral apraxia, is hypotonic, and is gross

motor delayed.

Nadine

-- In , " seeramona " <lorirosen@...> wrote:

>

> One more thing I forgot to share with the group, we had visited the

> apraxia clinic 3 days prior to the MRI. We met with the neuro who runs

> the clinic there (separate from ourdaughter's neuro). I asked her if it

> was true that apraxia is on the rise. She said " that seems to be the

> rumor around here. " So then I said, well, is it because of better

> diagnosis? She said " yes, most of the kids in the past had been

> labeled has having articulation disorders but now its a separate

> diagnosis so we're seeing " more kids with apraxia. " I don't

> necessarily agree with her but thought I'd share here what she said.

> She is leaving to start up an apraxia clinic at children's up in

> Columbus in case anyone is interested.

> Lori

>

>

> >

> > Lori,

> >

> > Thanks for the info. My kid had a reaction as did 2 others I know and

> > those kids were far more mildly affected than mine. Nice to know

> there

> > are options. Best wishes to your little gitl.

> >

> >

> > Liz

> >

>

[Guest guest]

Yes, Columbus Ohio. I've been told that she is going there to start

up an Apraxia clinic there at Children's.

> >

> > Lori,

> >

> > Thanks for the info. My kid had a reaction as did 2 others I know

and

> > those kids were far more mildly affected than mine. Nice to know

> there

> > are options. Best wishes to your little gitl.

> >

> >

> > Liz

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Nadine,

Thats EXACTLY what our neuro said about Hannah's MRI. She too has

hypotonia, has some gross motor delays and apraxia. Very interesting.

Lori

> >

> > One more thing I forgot to share with the group, we had visited

the

> > apraxia clinic 3 days prior to the MRI. We met with the neuro

who runs

> > the clinic there (separate from ourdaughter's neuro). I asked her

if it

> > was true that apraxia is on the rise. She said " that seems to be

the

> > rumor around here. " So then I said, well, is it because of

better

> > diagnosis? She said " yes, most of the kids in the past had been

> > labeled has having articulation disorders but now its a separate

> > diagnosis so we're seeing " more kids with apraxia. " I don't

> > necessarily agree with her but thought I'd share here what she

said.

> > She is leaving to start up an apraxia clinic at children's up in

> > Columbus in case anyone is interested.

> > Lori

> >

> >

>

[Guest guest]

That is WONDERFUL! We are just East of Columbus!

in Ohio

>

> Yes, Columbus Ohio. I've been told that she is going there to start

> up an Apraxia clinic there at Children's.

>

[Guest guest]

hi, we recently have some balance issues, and have just had our first visit with

a ped. neuro. in your case, in the scans, did they find any issues with the

vistibular system in the brain??-darcy

-------------- Original message --------------

From: lorirosen@...

Hi,

I mostly lurk here and have posted just a few times in the past. My

daughter, who is 3 and a twin, is a former 27 week preemie just had her MRI done

last week. I wanted to share some information that I learned with the group.

Hannah suffered some significant respiratory distress after she was born

which we all suspected affected her brain, thus leading to her issues with motor

planning/apraxia. ANyway, I cancelled her first MRI after reading here

about the affects of anesthesia and regression. Her neuro really pressured me

to do the MRI, in order to rule out metabolic disorders, stroke in utero,

brain disease etc, etc, the whole gamut that may be the cause of her motor

planning issues. After just freaking out about this, I talked to our preemie doc

who said that that is what neuros do, they come up with a list of things and

then rule them out. However, she felt that my daughter's issues were

prematurity related and offered to review the MRI as well. Now, I asked both the

neuro and the neonatologist about the anesthesia issues and they both said no

link to regression. So, my husband and I decided that it would be best to do

the MRI just to be sure there were no hidden surprises down the road. I spoke

with the anesth. doc before the procedure. Due to the fact that she was

going to have two different types of scans, she had to be sedated no matter

what.

I told him what I had read about regression and was it true? To my

surprise, he said, yes it can happen. He said while its rare, there are certain

types

of anesthesia that can cause regression, and that it seems to affect the

population of kids who are more involved (he meant kids who have significant

disabilities). So, he decided that he would use gas to help Hannah fall asleep,

then use a particular type of anesthesia to be delivered via IV. This type

he said was quick to wear off and would not affect her neurologically. I

felt relieved that he listened to our concerns and acknowledged the real

possibility of regression. After the MRI, my daughter did in fact recover very

quickly and was back to herself within an hour. Compared to her being groggy and

sleeping all day after her anesthesia for having her adenoids removed a year

ago (we did not know about the issue of regression at that time), this was a

very smooth experience for us.

In case you were interested, we received the results of her MRI the next

day. Basically, her brain is typical of a former preemie, I won't go into all

the details here since it does not relate to most of you, but the one thing

that they did note was that there were some subtle and mild scarring in the area

of her cerebellum that affects balance, which explains why she has issues

with motor planning, hence her apraxia. Don't know if that helps any of you

parents out there, but it helped us and we obviously are continuing with the

PT, OT and speech to help her overcome this.

Lori

**************Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

[Guest guest]

Darcy,

There was no mention of the vestibular system in the brain, just that

in the area of the cerebellum, that part of the brain that controls

balance had some very mild scarring, hence the issues with motor

planning. I know the vestibular system affects balance as well, but

isn't that via the ears? It seems that there are a number of kids

that I am encountering who have apraxia that also have this area of

the cerebellum affected.

Lori

>

> hi, we recently have some balance issues, and have just had our

first visit with a ped. neuro. in your case, in the scans, did they

find any issues with the vistibular system in the brain??-darcy

>

> -------------- Original message --------------

> From: lorirosen@...

> Hi,

> I mostly lurk here and have posted just a few times in the past. My

> daughter, who is 3 and a twin, is a former 27 week preemie just had

her MRI done

> last week. I wanted to share some information that I learned with

the group.

> Hannah suffered some significant respiratory distress after she was

born

> which we all suspected affected her brain, thus leading to her

issues with motor

> planning/apraxia. ANyway, I cancelled her first MRI after reading

here

> about the affects of anesthesia and regression. Her neuro really

pressured me

> to do the MRI, in order to rule out metabolic disorders, stroke in

utero,

> brain disease etc, etc, the whole gamut that may be the cause of

her motor

> planning issues. After just freaking out about this, I talked to

our preemie doc

> who said that that is what neuros do, they come up with a list of

things and

> then rule them out. However, she felt that my daughter's issues

were

> prematurity related and offered to review the MRI as well. Now, I

asked both the

> neuro and the neonatologist about the anesthesia issues and they

both said no

> link to regression. So, my husband and I decided that it would be

best to do

> the MRI just to be sure there were no hidden surprises down the

road. I spoke

> with the anesth. doc before the procedure. Due to the fact that she

was

> going to have two different types of scans, she had to be sedated

no matter what.

> I told him what I had read about regression and was it true? To my

> surprise, he said, yes it can happen. He said while its rare, there

are certain types

> of anesthesia that can cause regression, and that it seems to

affect the

> population of kids who are more involved (he meant kids who have

significant

> disabilities). So, he decided that he would use gas to help Hannah

fall asleep,

> then use a particular type of anesthesia to be delivered via IV.

This type

> he said was quick to wear off and would not affect her

neurologically. I

> felt relieved that he listened to our concerns and acknowledged the

real

> possibility of regression. After the MRI, my daughter did in fact

recover very

> quickly and was back to herself within an hour. Compared to her

being groggy and

> sleeping all day after her anesthesia for having her adenoids

removed a year

> ago (we did not know about the issue of regression at that time),

this was a

> very smooth experience for us.

> In case you were interested, we received the results of her MRI the

next

> day. Basically, her brain is typical of a former preemie, I won't

go into all

> the details here since it does not relate to most of you, but the

one thing

> that they did note was that there were some subtle and mild

scarring in the area

> of her cerebellum that affects balance, which explains why she has

issues

> with motor planning, hence her apraxia. Don't know if that helps

any of you

> parents out there, but it helped us and we obviously are continuing

with the

> PT, OT and speech to help her overcome this.

> Lori

>

> **************Get fantasy football with free live scoring. Sign up

for

> FanHouse Fantasy Football today.

> (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

>

>

[Guest guest]

Lori,

I actually have found that my son really has profound issues with his ears and

auditory processing. I don't know how this is connected to the brain but the

exercises we do basicly 'work' those neural connections. Also with any OT that

you do, you are working motor memory. I don't know that the sensory motor

cortex is located in the cerebellum though..... isn't it lower? (definately NOT

a neuro scientist but have read Kandel however the physical aspect of the

brain.... is definately out of my league!!)

At any rate it would make sense that at some point the dendrite would be weak

illustrating a weaker connection between the sense and the brain thus affecting

output.

Janice

[sPAM][ ] Re: MRI and interesting info from anesth.

doc

Darcy,

There was no mention of the vestibular system in the brain, just that

in the area of the cerebellum, that part of the brain that controls

balance had some very mild scarring, hence the issues with motor

planning. I know the vestibular system affects balance as well, but

isn't that via the ears? It seems that there are a number of kids

that I am encountering who have apraxia that also have this area of

the cerebellum affected.

Lori

>

> hi, we recently have some balance issues, and have just had our

first visit with a ped. neuro. in your case, in the scans, did they

find any issues with the vistibular system in the brain??-darcy

>

> -------------- Original message --------------

> From: lorirosen@...

> Hi,

> I mostly lurk here and have posted just a few times in the past. My

> daughter, who is 3 and a twin, is a former 27 week preemie just had

her MRI done

> last week. I wanted to share some information that I learned with

the group.

> Hannah suffered some significant respiratory distress after she was

born

> which we all suspected affected her brain, thus leading to her

issues with motor

> planning/apraxia. ANyway, I cancelled her first MRI after reading

here

> about the affects of anesthesia and regression. Her neuro really

pressured me

> to do the MRI, in order to rule out metabolic disorders, stroke in

utero,

> brain disease etc, etc, the whole gamut that may be the cause of

her motor

> planning issues. After just freaking out about this, I talked to

our preemie doc

> who said that that is what neuros do, they come up with a list of

things and

> then rule them out. However, she felt that my daughter's issues

were

> prematurity related and offered to review the MRI as well. Now, I

asked both the

> neuro and the neonatologist about the anesthesia issues and they

both said no

> link to regression. So, my husband and I decided that it would be

best to do

> the MRI just to be sure there were no hidden surprises down the

road. I spoke

> with the anesth. doc before the procedure. Due to the fact that she

was

> going to have two different types of scans, she had to be sedated

no matter what.

> I told him what I had read about regression and was it true? To my

> surprise, he said, yes it can happen. He said while its rare, there

are certain types

> of anesthesia that can cause regression, and that it seems to

affect the

> population of kids who are more involved (he meant kids who have

significant

> disabilities). So, he decided that he would use gas to help Hannah

fall asleep,

> then use a particular type of anesthesia to be delivered via IV.

This type

> he said was quick to wear off and would not affect her

neurologically. I

> felt relieved that he listened to our concerns and acknowledged the

real

> possibility of regression. After the MRI, my daughter did in fact

recover very

> quickly and was back to herself within an hour. Compared to her

being groggy and

> sleeping all day after her anesthesia for having her adenoids

removed a year

> ago (we did not know about the issue of regression at that time),

this was a

> very smooth experience for us.

> In case you were interested, we received the results of her MRI the

next

> day. Basically, her brain is typical of a former preemie, I won't

go into all

> the details here since it does not relate to most of you, but the

one thing

> that they did note was that there were some subtle and mild

scarring in the area

> of her cerebellum that affects balance, which explains why she has

issues

> with motor planning, hence her apraxia. Don't know if that helps

any of you

> parents out there, but it helped us and we obviously are continuing

with the

> PT, OT and speech to help her overcome this.

> Lori

>

> **************Get fantasy football with free live scoring. Sign up

for

> FanHouse Fantasy Football today.

> (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

>

>