Re: Re:Was swinging question/vestibular system/spinning NOW new NACD program

[Guest guest]

Okay you all,

We had a wonderful appointment at NACD last Wednesday. While I still dream of

leasing a horse or finding 'hippotherapy' somewhere in my locale.... I have to

be realistic about Alberta, Canada! Also, I have an infared sauna to

purchase.....

I had been wondering if Mark's vision was still off. I just felt that when he

was moving, he was still doing something 'wonky' with his eyes esp. when playing

sports. Now, his vision is 100% improved, let me tell you, the kid couldn't

walk around the block 2 years ago without getting lost but something is just not

quite right..... you know?

So, I spoke of this to Alison and she put him through the drills and in the end,

all vision was clear. YEAH! But she feels that he still has slight

proprioception issues which makes sense to me since they are both

intertwined.....

Advanced proprioception recipe? Okay, you're going to laugh now..... 15 minutes

of Dance Dance Revolution per day! You should have heard Mark groan..... " Oh, I

HATE that game " meanwhile my 'sort-of' stepson said at the same time, " Oh, I

LOVE that game! " I just about laughed my head off..... you know they need it

when they hate it. Perhaps they can play together and learn to love it....

Speaking of laughing..... , if you're out there, please tell your sister

that she is amazing! I cannot imagine ever getting a child who suffers from

severe fine motor issues to engage in berry picking! (It is a great idea.....

and I am sure those fingers work now!) There is no way I could get Mark to do

that! (But I shall certainly keep it in the back of my head......) Something

similiar that I do get him to help me with is weed pulling and that really tires

his hands out. He usually manages to get out of this job after about 5-10

minutes...... sneak. He is actually done a reasonable job in potato peeling

(though there is not much of the potato left when he is through).

I tried to do oragami with him a couple of times, starting with simple paper

airplanes. It was an exercise of my patience but we managed to stumble through

a few sheets of paper and make a couple of planes. But once left on his own,

Mark wouldn't even try it. Folding paper is really a great work out for the

hand-eye connection as well as visual pattern processing. This is another area

that you would want to work on at a young age. The younger, the better for the

global dyspraxic since we really want to work as many different neural

connections as possible. We also want to try to identify areas that are an

issue so that we can come up with an action plan to get the different body parts

working effectively.

This is where I am going to have to get firm and really push. The hands are a

nightmare or at least they have been throughout Mark's history and he needs to

work them CONSTANTLY in order to make them whole. I have a tendency to baby him

and to 'do' for him way too much. This is changing but is tough for me. I have

spent the last 13 years with one hand always stretch out ready to grab my boy

and prevent him from falling, from bashing his head against a wall or an object,

or preventing him from using that sharp knife since I knew he would probably

slice off a finger.

Today, I sent him to school with a glue gun. I warned him about burning himself

and I am just gritting my teeth..... wondering if he will come home with red

swollen hands or if he will be unscathed. (If he is completely unscathed, then

I know he got his partner to do all of the work!) But I must let him go because

he is ready now. Before he wasn't but now he is, even if he is not 'perfectly'

there.... he is close enough to survive.

So..... we are going to intensely work those hands non-stop this go round with

my NACD and then perhaps we will be done? I always believe that the end is just

around the corner..... the light is casting it's shadow over me and then 'BAM'

something new hits in the global dyspraxia realm and I get smashed down to the

floor once more..... I'm afraid to count on the end.

BUT..... we have crossed the line from being neurodevelopmentally delayed to

neurotypical now. So, although we are not done with a couple of items with the

hands, coordination and some minor oral-nasal stuff, we are absolutely and most

gloriously FREE of the worst of it! Alison at NACD wants me to write up Mark's

story for the newsletter......

Janice

Mother of Mark, 13

[sPAM][ ] Re: swinging question/vestibular

system/spinning

'Spinning' is one of our NACD programs - my child tends to use

periferal vision more so than central vision. Spinning and pinhole

glasses help with this. If you notice, there are some kids who can

spin around in circles almost endlessly and not get dizzy - and then

there are those who appear 'drunk' and wobble around after spinning.

My child, with the vision issues doesn't get 'spin drunk'. Glad to

hear your OT is on to this.

Good Luck!

Stephanee

disclaimer - I said 'my' child and 'some' kids, so the reference would

be my family, chapter 6, page, oh, I don't know, 106. additional

reference would be school playground/public park.

>

> OT just told me that kids who have poor visual processing, appear to

> benefit from a " spinning " protocol. Apparently new research indicates

> that the vestibular development also triggers the OPTIC nerve

> development. I will try and keep everyone posted as we just started a

> spinning protocol for my apraxic child. If this is true, I am not

> surprised as I know his vestibular sense never developed correctly.

>

>

> ---

>

[Guest guest]

Janice,

What are the advantges of using a infra red sauna?

Vinutha Shekar

[Guest guest]

I was going to suggest to you our cheap hippotherapy (riding on Mommy's

back while you are all fours) but I guess Mark is a little big for

that.LOL

About my nephew doing the berry picking, he gets paid to do it so it

quite an incentive. The pottery thing he likes but it doesn't require to

much from him

Janice wrote:

> Okay you all,

>

> We had a wonderful appointment at NACD last Wednesday. While I still dream of

leasing a horse or finding 'hippotherapy' somewhere in my locale.... I have to

be realistic about Alberta, Canada! Also, I have an infared sauna to

purchase.....

>

> I had been wondering if Mark's vision was still off. I just felt that when he

was moving, he was still doing something 'wonky' with his eyes esp. when playing

sports. Now, his vision is 100% improved, let me tell you, the kid couldn't

walk around the block 2 years ago without getting lost but something is just not

quite right..... you know?

>

> So, I spoke of this to Alison and she put him through the drills and in the

end, all vision was clear. YEAH! But she feels that he still has slight

proprioception issues which makes sense to me since they are both

intertwined.....

>

> Advanced proprioception recipe? Okay, you're going to laugh now..... 15

minutes of Dance Dance Revolution per day! You should have heard Mark

groan..... " Oh, I HATE that game " meanwhile my 'sort-of' stepson said at the

same time, " Oh, I LOVE that game! " I just about laughed my head off..... you

know they need it when they hate it. Perhaps they can play together and

learn to love it....

>

> Speaking of laughing..... , if you're out there, please tell your sister

that she is amazing! I cannot imagine ever getting a child who suffers from

severe fine motor issues to engage in berry picking! (It is a great idea.....

and I am sure those fingers work now!) There is no way I could get Mark to do

that! (But I shall certainly keep it in the back of my head......) Something

similiar that I do get him to help me with is weed pulling and that really tires

his hands out. He usually manages to g

> et out of this job after about 5-10 minutes...... sneak. He is actually done

a reasonable job in potato peeling (though there is not much of the potato left

when he is through).

>

> I tried to do oragami with him a couple of times, starting with simple paper

airplanes. It was an exercise of my patience but we managed to stumble through

a few sheets of paper and make a couple of planes. But once left on his own,

Mark wouldn't even try it. Folding paper is really a great work out for the

hand-eye connection as well as visual pattern processing. This is another area

that you would want to work on at a young age. The younger, the better for the

global dyspraxic since we really want to

> work as many different neural connections as possible. We also want to try

to identify areas that are an issue so that we can come up with an action plan

to get the different body parts working effectively.

>

> This is where I am going to have to get firm and really push. The hands are a

nightmare or at least they have been throughout Mark's history and he needs to

work them CONSTANTLY in order to make them whole. I have a tendency to baby him

and to 'do' for him way too much. This is changing but is tough for me. I have

spent the last 13 years with one hand always stretch out ready to grab my boy

and prevent him from falling, from bashing his head against a wall or an object,

or preventing him from using that

> sharp knife since I knew he would probably slice off a finger.

>

> Today, I sent him to school with a glue gun. I warned him about burning

himself and I am just gritting my teeth..... wondering if he will come home with

red swollen hands or if he will be unscathed. (If he is completely unscathed,

then I know he got his partner to do all of the work!) But I must let him go

because he is ready now. Before he wasn't but now he is, even if he is not

'perfectly' there.... he is close enough to survive.

>

> So..... we are going to intensely work those hands non-stop this go round with

my NACD and then perhaps we will be done? I always believe that the end is just

around the corner..... the light is casting it's shadow over me and then 'BAM'

something new hits in the global dyspraxia realm and I get smashed down to the

floor once more..... I'm afraid to count on the end.

>

> BUT..... we have crossed the line from being neurodevelopmentally delayed to

neurotypical now. So, although we are not done with a couple of items with the

hands, coordination and some minor oral-nasal stuff, we are absolutely and most

gloriously FREE of the worst of it! Alison at NACD wants me to write up Mark's

story for the newsletter......

>

> Janice

> Mother of Mark, 13

>

>

>

>

>

>

>

> [sPAM][ ] Re: swinging question/vestibular

system/spinning

>

>

> 'Spinning' is one of our NACD programs - my child tends to use

> periferal vision more so than central vision. Spinning and pinhole

> glasses help with this. If you notice, there are some kids who can

> spin around in circles almost endlessly and not get dizzy - and then

> there are those who appear 'drunk' and wobble around after spinning.

> My child, with the vision issues doesn't get 'spin drunk'. Glad to

> hear your OT is on to this.

> Good Luck!

> Stephanee

>

> disclaimer - I said 'my' child and 'some' kids, so the reference would

> be my family, chapter 6, page, oh, I don't know, 106. additional

> reference would be school playground/public park.

>

>

> >

> > OT just told me that kids who have poor visual processing, appear to

> > benefit from a " spinning " protocol. Apparently new research indicates

> > that the vestibular development also triggers the OPTIC nerve

> > development. I will try and keep everyone posted as we just started a

> > spinning protocol for my apraxic child. If this is true, I am not

> > surprised as I know his vestibular sense never developed correctly.

> >

> >

> > ---

> >

>

>

>

>

>

>