Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 He speaks well these days but also in the archives are confirmation of metabolic stuff going on with him, regressions and the Prompt Therapist found him to be apraxic if that matters. His speech is excellent now but you never know. > > Liz PROMPT is a proven method of treatment for apraxia. From one of > your archives you say your child is talking normal so I don't know > what other therapies he needs -but for a speech impaired child (or an > apraxic child) I'd hate new parents to waste their time and money on > something when there are proven methods. PROMPT is only one of > them. Also -if you don't see progress in 3 months you should examine > again the therapy, therapist, or diagnosis. It could have been the > therapist and not the therapy -or again not sure of your child's > diagnosis since apraxic children don't speak normally by the age of 3 > last I checked. (even though that would be awesome) > > Some research from the PROMPT site > (for those that don't know what PROMPT is) > > https://promptinstitute.com/index.php?page=prompt-research > > a 45 minute video about PROMPT from Deb > (for those that don't know what PROMPT is) > http://www.youtube.com/watch?v=oa9KOMtY-N0 > > PROMPT rocks. (period) > > And a 3 year old that can say whatever they want -that's normal - that's good. (but why does he need any therapy?!!) > > Your archive from this group two months ago: > > My son's word list one week after his third birthday > Tue May 27, 2008 12:44 pm > > Which was 3 months ago: > > > Oh No > Yuk (uk) > Mine (either perfect or sometimes sounds like Moyne) > I need dat > > > Today he can say anything he wants. Articulation is near-perfect > except > the y sound and perhaps others. I am still not sure what happened but > assure you he was not, simply, a late talker. Don't ever give up! > /message/79665 > > > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 I don't mean to argue with this but it takes my son 4-7 mos to master a new sound so checking for progress every 3 mos would be too soon ime. We have had the same SLP for 2 1/2 years and my son has really come a long way! At the end of the year I check back through my son's notes from each session as well as watching him on our personal video camera and I can see remarkable progress but that progress came slowly. *My son still can't say the " s " or " f " sound but he's mastered the " ch " sound!?! He doesn't really follow the guidelines of sound production progression. > > Liz PROMPT is a proven method of treatment for apraxia. From one of > your archives you say your child is talking normal so I don't know > what other therapies he needs -but for a speech impaired child (or an > apraxic child) I'd hate new parents to waste their time and money on > something when there are proven methods. PROMPT is only one of > them. Also -if you don't see progress in 3 months you should examine > again the therapy, therapist, or diagnosis. It could have been the > therapist and not the therapy -or again not sure of your child's > diagnosis since apraxic children don't speak normally by the age of 3 > last I checked. (even though that would be awesome) > > Some research from the PROMPT site > (for those that don't know what PROMPT is) > > https://promptinstitute.com/index.php?page=prompt-research > > a 45 minute video about PROMPT from Deb > (for those that don't know what PROMPT is) > http://www.youtube.com/watch?v=oa9KOMtY-N0 > > PROMPT rocks. (period) > > And a 3 year old that can say whatever they want -that's normal - that's good. (but why does he need any therapy?!!) > > Your archive from this group two months ago: > > My son's word list one week after his third birthday > Tue May 27, 2008 12:44 pm > > Which was 3 months ago: > > > Oh No > Yuk (uk) > Mine (either perfect or sometimes sounds like Moyne) > I need dat > > > Today he can say anything he wants. Articulation is near-perfect > except > the y sound and perhaps others. I am still not sure what happened but > assure you he was not, simply, a late talker. Don't ever give up! > /message/79665 > > > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 I agree with the prompt training - but not exclusively of course. We paid for our school's slp to get the prompt training. She was a little discouraged to not see immediate improvement once implementing the touch cues, etc. But I reminded her that it's a process. I would also say - don't throw a therapy out in three months either. Esp with the PROMPT - its a type of neuro processing therapy and it takes time esp if there is some type of neuro injury (which could be as simple as nutrient deficeincy). Since May we got the F sound and the T sound at end of words. HUGE! And she is starting to hear someone new sounds come in. We did NOT have these gains prior to PROMPT - we had plateaued. My son also does not follow a 'normal' pattern of sound development...which just baffles his SLP. She loves the puzzle though. > > I don't mean to argue with this but it takes my son 4-7 mos to master > a new sound so checking for progress every 3 mos would be too soon > ime. > > We have had the same SLP for 2 1/2 years and my son has really come a > long way! At the end of the year I check back through my son's notes > from each session as well as watching him on our personal video > camera and I can see remarkable progress but that progress came > slowly. > > *My son still can't say the " s " or " f " sound but he's mastered > the " ch " sound!?! He doesn't really follow the guidelines of sound > production progression. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 Deb you say your child is making progress so that means that your child is capable of making progress which means there should be 3 month goals which are appropriate to your child. It doesn't mean all children will have the same goals (think IEP as this is another place where 3 month goals should be written) but it means that based on your child's diagnosis and severity X is expected as a short term goal and X is expected as a long term or yearly goal. In general there is no reason to keep a close eye on a child that is developing normal -the more severe the child even more the reason to keep an eye on progress to make sure this therapist you've trusted for years really is doing the best he or she can with your child. There are as you may know from this group far too many parents who trust in one SLP for years and years and then they end up here with a 9 or 13 year old that still is essentially nonverbal. I just spoke with one such parent the other day who said she's so angry that she trusted the therapist as long as she did with her child who gave her a very long term goal " he'll be talking in a few years " Unless your therapist is Alison Dubois you need to have goals –or progress report or whatever you want to call it to keep your SLP in check and make sure that your child is getting the appropriate therapy needed. Think advocate for your child. I don't care how " awesome " or " nice " the therapist is. Perhaps they'd make a great friend or mother or neighbor –but that does not mean that therapist is providing the appropriate therapy your child requires. This (again) is why I say if no progress in 3 months to evaluate again the therapy, therapist or diagnosis. I never had just one SLP for either of my boys and found it best to have a private " expert " who will write (for my child) appropriate short and long term goals based on my child's severity and diagnosis to make sure that he is on track. If goals are not met then again that doesn't mean the end of the world but reevaluation. Apraxia is typically a slow go for all –but no where as bad a prognosis by professionals today as it was back when my son and other 12 year olds in this group were first diagnosed. I was told there was a chance that Tanner would " never talk " and as I just posted 's update she was told that her child probably wouldn't even be able to bag groceries. Both of our boys and others like then who were diagnosed as " severe profound " had short and long term goals. This is a basic advocacy to keep all on track and to provide your child with the best possible chance of success. Today we know that with a good SLP and appropriate therapy even without the EFAs there should be an expectation of progress and (thank God) we know that your child is capable of progress no matter how severe his diagnosis. Of course for most of us with the EFAs the progress is accelerated. If you don't ask you for short term goals in your child's IEP you will automatically get a yearly goal. An IEP is a contract between you the parent and the school to secure FAPE. Typically the private SLP will write the short term goals for your child and you will advocate to have them written into the IEP. Since we are up in Orlando (at a Disney resort but going today to Universal) I'll just share some links and hope this helps. Perhaps one of the professionals in the group will jump in and share more since hint hint here's a message that's about something you all keep telling me you want this group to talk about more!!!) Progress must be reported at least as often as parents of nondisabled students are informed of their child's progress. The IEP could indicate frequency of reporting, for example, as: • monthly, • quarterly, • at the end of each term, • at 3 month intervals. http://www.vesid.nysed.gov/specialed/publications/policy/iep/progressp arent.htm Assessment of a child's progress in meeting objectives should be used on an ongoing basis to further refine the IEP. Lack of objectively documentable progress over a 3-month period should be taken to indicate a need to increase intensity by lowering student/teacher ratios, increasing programming time, reformulating curricula, or providing school staff with additional training and consultation. http:// www.autismeurope.org/portal/LinkClick.aspx? link=AE+Recommendations+Autism+Educ.CoE+eng.pdf & tabid=1 Feedback on the success of this strategy to be conducted on a 3 month cycle; it is to involve all team members, and documentation of a plan of action for utilizing technology for is to be kept http://www.edu.gov.mb.ca/k12/specedu/iep/paul.html Even biomedical has a 3 -6- 12 month plan similar to an IEP!! Develop a Plan Develop a 3-, 6-, and 12-month biomedical plan similar to an IEP. For instance, your daughter's IEP will contain specific goals like identifying shapes along with the methods employed to reach the goal. The same type of goal-driven plan may be employed for biomedical treatments. http://www.nationalautismassociation.org/autismoverview.php ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 At the top of the " Speech and Language Data Sheet " my son's therapist gives us after each session are the goals! I forgot! We have crossed out 4 and added 4 new ones this year alone. I just checked and my son has mastered 11 goals in 2 1/2 years! That's encouraging. (Goals like: Increase lip strength to 6 of 6 upper and lower Increase tongue tip and midblade elevation Produce target phonemes) > > Deb you say your child is making progress so that means that your > child is capable of making progress which means there should be 3 > month goals which are appropriate to your child. It doesn't mean all > children will have the same goals (think IEP as this is another place > where 3 month goals should be written) but it means that based on > your child's diagnosis and severity X is expected as a short term > goal and X is expected as a long term or yearly goal. In general > there is no reason to keep a close eye on a child that is developing > normal -the more severe the child even more the reason to keep an eye > on progress to make sure this therapist you've trusted for years > really is doing the best he or she can with your child. There are as > you may know from this group far too many parents who trust in one > SLP for years and years and then they end up here with a 9 or 13 year > old that still is essentially nonverbal. I just spoke with one such > parent the other day who said she's so angry that she trusted the > therapist as long as she did with her child who gave her a very long > term goal " he'll be talking in a few years " Unless your therapist is > Alison Dubois you need to have goals –or progress report or whatever > you want to call it to keep your SLP in check and make sure that your > child is getting the appropriate therapy needed. Think advocate for > your child. I don't care how " awesome " or " nice " the therapist is. > Perhaps they'd make a great friend or mother or neighbor –but that > does not mean that therapist is providing the appropriate therapy > your child requires. This (again) is why I say if no progress in 3 > months to evaluate again the therapy, therapist or diagnosis. > > I never had just one SLP for either of my boys and found it best to > have a private " expert " who will write (for my child) appropriate > short and long term goals based on my child's severity and diagnosis > to make sure that he is on track. If goals are not met then again > that doesn't mean the end of the world but reevaluation. > > Apraxia is typically a slow go for all –but no where as bad a > prognosis by professionals today as it was back when my son and other > 12 year olds in this group were first diagnosed. I was told there > was a chance that Tanner would " never talk " and as I just posted > 's update she was told that her child probably wouldn't even be > able to bag groceries. Both of our boys and others like then who > were diagnosed as " severe profound " had short and long term goals. > This is a basic advocacy to keep all on track and to provide your > child with the best possible chance of success. > > Today we know that with a good SLP and appropriate therapy even > without the EFAs there should be an expectation of progress and > (thank God) we know that your child is capable of progress no matter > how severe his diagnosis. Of course for most of us with the EFAs the > progress is accelerated. If you don't ask you for short term goals > in your child's IEP you will automatically get a yearly goal. An IEP > is a contract between you the parent and the school to secure FAPE. > Typically the private SLP will write the short term goals for your > child and you will advocate to have them written into the IEP. > > Since we are up in Orlando (at a Disney resort but going today to > Universal) I'll just share some links and hope this helps. Perhaps > one of the professionals in the group will jump in and share more > since hint hint here's a message that's about something you all keep > telling me you want this group to talk about more!!!) > > Progress must be reported at least as often as parents of nondisabled > students are informed of their child's progress. The IEP could > indicate frequency of reporting, for example, as: > • monthly, > • quarterly, > • at the end of each term, > • at 3 month intervals. > http://www.vesid.nysed.gov/specialed/publications/policy/iep/progressp > arent.htm > > Assessment of a child's progress in meeting objectives should be used > on an ongoing basis > to further refine the IEP. Lack of objectively documentable progress > over a 3-month period > should be taken to indicate a need to increase intensity by lowering > student/teacher ratios, > increasing programming time, reformulating curricula, or providing > school staff with > additional training and consultation. > http:// www.autismeurope.org/portal/LinkClick.aspx? > link=AE+Recommendations+Autism+Educ.CoE+eng.pdf & tabid=1 > > Feedback on the success of this strategy to be conducted on a 3 month > cycle; it is to involve all team members, and documentation of a plan > of action for utilizing technology for is to be kept > http://www.edu.gov.mb.ca/k12/specedu/iep/paul.html > > Even biomedical has a 3 -6- 12 month plan similar to an IEP!! > Develop a Plan > Develop a 3-, 6-, and 12-month biomedical plan similar to an IEP. For > instance, your daughter's IEP will contain specific goals like > identifying shapes along with the methods employed to reach the goal. > The same type of goal-driven plan may be employed for biomedical > treatments. > http://www.nationalautismassociation.org/autismoverview.php > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 Prompt therapy rocks in my book as well with the right therapist and we had her. I believe it is not the only way is all I was saying. The 3 month evals at NACD do not just address speech. Since my kid had/had global tone stuff a comprehensive eval was needed to cover all areas. Consequently speech production, articulation and motor planning were improved. He can say anything he wants. The articulation is pretty darn good but just recently I needed to interpret twice. The motor planning lags a little. That, I am told, relates to his AP issues, which we are working on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2008 Report Share Posted August 1, 2008 go to www.promptinstitute.com - they have links in there to prompt trained folks. We found very few in our area (near Boston) and those listed were totally booked. So we approached our speech therapist to see if she was willing to go to a prompt training (also listed on the website). she was , the school was willing to give her the two days off to go and paid for her expenses - we paid for the training. So we had a lot of support from our school, but they felt the training would probably help a handful of other students currently enrolled (it is a communications disorders school). I would say the initial analysis is that it has been a success. My son has had a couple of big illnesses this spring, a tubes surgery and an intolerance to a new supplement - but also during that time we've gained two new speech sounds that are pretty consistent. Not bad gains during our 'rough patch'. > From: ilizzy03 <lizlaw@...> > Subject: [ ] Re: PROMPT therapy rocks > > Date: Thursday, July 31, 2008, 4:09 PM > > > > > > > > > > > > Prompt therapy rocks in my book as well with the right therapist and we > > had her. I believe it is not the only way is all I was saying. The 3 > > month evals at NACD do not just address speech. Since my kid had/had > > global tone stuff a comprehensive eval was needed to cover all areas. > > Consequently speech production, articulation and motor planning were > > improved. He can say anything he wants. The articulation is pretty darn > > good but just recently I needed to interpret twice. The motor planning > > lags a little. That, I am told, relates to his AP issues, which we are > > working on. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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