Re: [APRAX] mitochondtrial disorders and speech--po...

[Guest guest]

Thanks . I copied this. You have done a thorough job again. I would not

have Josh tested with these invasive tests unless it was unavoidable. I have

given a copy of the letter from Shelds to Dr Cooke who is respected and

is the top endocrinologist in her field her at Blank Children's Hospital.

Josh sees her every 2 weeks. We will get him on a pump in the fall because he

gets 12-15 shots a day now and he will not get all those shots after we get him

on a pump. In our case the mitochondria connection all makes sense. I have a

DR friend in Cleveland. She takes her daughter to the Cleveland Clinic. She

believes her daughter has mito too. It all makes sense. It is good to know

because we can be on the lookout for other problems which may occur. Charlotte

**************Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

[Guest guest]

I forgot to tell you that there are 3 top physicians in the country studying

mitochondria disorders. One is in Cleveland which is only a days drive from

Iowa. The other 2 are in Texas and California.

**************Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

[Guest guest]

There is also one in Atlanta, GA.

Dana

and Garrett, just turned 4, SCD 2 years

Celiac, ASD, Speech and Motor Apraxia, sensory processing disorder

From: stehn4@... <stehn4@...>

Subject: Re: [ ] Re: [APRAX] mitochondtrial disorders and

speech--po...

Date: Wednesday, July 30, 2008, 12:15 AM

I forgot to tell you that there are 3 top physicians in the country studying

mitochondria disorders. One is in Cleveland which is only a days drive from

Iowa. The other 2 are in Texas and California.

************ **Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020)

[Guest guest]

What about Dr. Vockley in Pittsburgh

[Guest guest]

is there a doctor that you can recommend in NY/NJ area?

June

On Wed, Jul 30, 2008 at 9:46 AM, ilizzy03 <lizlaw@...> wrote:

> What about Dr. Vockley in Pittsburgh

>

>

>

[Guest guest]

Our metabolic neuro sees some of this. Dr. Marks at St. s in

Phila. I tried NY, no luck. Marks is getting a NJ office soon.

>

> > What about Dr. Vockley in Pittsburgh

> >

> >

> >

>

>

>

[Guest guest]

Do you have the names and hospitals or clinics for these doctors? At least the

names? Thank you! -Laimi

From: stehn4@... <stehn4@...>

Subject: Re: [ ] Re: [APRAX] mitochondtrial disorders and

speech--po...

Date: Wednesday, July 30, 2008, 4:15 AM

I forgot to tell you that there are 3 top physicians in the country studying

mitochondria disorders. One is in Cleveland which is only a days drive from

Iowa. The other 2 are in Texas and California.

************ **Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020)