Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Our daughter is 21 months old (17 adjusted) and her speech therapist through Early Intervention strongly suspects that she is apraxic. She just did a formal evaluation at Children's Hospital of Philadelphia and while there is nothing conclusive yet that the therapist can determine, she does show a lot of signs of CAS---no babbling to speak of (so to speak!), very little use of consonants, only has one or two words that have remained part of her vocabulary (she has pop-outs but loses them as quickly as she acquires them), and very severe eating issues (she cannot chew properly, has an overactive gag reflex that leads her to vomit on any texture that is thicker than a stage 2 baby food). Meanwhile, she is learning sign language quite quickly and seems to have little problem using gestures and other non-verbal communication forms. Anyway, since she was so premature, had a brain bleed at birth, and has so many signs of apraxia, we are trying to get her services now rather than defer them until an official diagnosis. Traditional speech therapy has yielded no progress in the 13 months we've been receiving services. So we'd like to try to get her care that is more specialized and geared towards apraxia. I know that I've seen a bunch of folks who are from PA and NJ. If anyone has any resources---therapists, support groups, what have you---that are located within a reasonable distance of Philly and wouldn't mind recommending them to us, we'd be very grateful. Thanks in advance! Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Yardley Speech & Language 215-428-2777 103 Eton Rd, Yardley, PA 19067 is the therapist there. She is trained in Prompt and very good at getting the kids at ease with play and speech at the same time. Her initial eval is free to allow you to decide if this is the right thing for your child. > > Our daughter is 21 months old (17 adjusted) and her speech therapist > through Early Intervention strongly suspects that she is apraxic. She > just did a formal evaluation at Children's Hospital of Philadelphia and > while there is nothing conclusive yet that the therapist can determine, > she does show a lot of signs of CAS---no babbling to speak of (so to > speak!), very little use of consonants, only has one or two words that > have remained part of her vocabulary (she has pop-outs but loses them > as quickly as she acquires them), and very severe eating issues (she > cannot chew properly, has an overactive gag reflex that leads her to > vomit on any texture that is thicker than a stage 2 baby food). > Meanwhile, > she is learning sign language quite quickly and seems to have little > problem using gestures and other non-verbal communication forms. > > Anyway, since she was so premature, had a brain bleed at birth, and > has so many signs of apraxia, we are trying to get her services now > rather than defer them until an official diagnosis. Traditional speech > therapy has yielded no progress in the 13 months we've been receiving > services. So we'd like to try to get her care that is more specialized > and geared towards apraxia. > > I know that I've seen a bunch of folks who are from PA and NJ. If > anyone > has any resources---therapists, support groups, what have you---that > are located within a reasonable distance of Philly and wouldn't mind > recommending them to us, we'd be very grateful. > > Thanks in advance! > > Abby > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Abby, In case you haven't discovered it yet, there is a support group that meets monthly in Plymouth Meeting. Just go to this link and page down to PA and you will find the contact information. http://www.apraxia-kids.org/site/apps/nl/content2.asp? c=chKMI0PIIsE & b=701793 & ct=910785 > > Our daughter is 21 months old (17 adjusted) and her speech therapist > through Early Intervention strongly suspects that she is apraxic. She > just did a formal evaluation at Children's Hospital of Philadelphia and > while there is nothing conclusive yet that the therapist can determine, > she does show a lot of signs of CAS---no babbling to speak of (so to > speak!), very little use of consonants, only has one or two words that > have remained part of her vocabulary (she has pop-outs but loses them > as quickly as she acquires them), and very severe eating issues (she > cannot chew properly, has an overactive gag reflex that leads her to > vomit on any texture that is thicker than a stage 2 baby food). > Meanwhile, > she is learning sign language quite quickly and seems to have little > problem using gestures and other non-verbal communication forms. > > Anyway, since she was so premature, had a brain bleed at birth, and > has so many signs of apraxia, we are trying to get her services now > rather than defer them until an official diagnosis. Traditional speech > therapy has yielded no progress in the 13 months we've been receiving > services. So we'd like to try to get her care that is more specialized > and geared towards apraxia. > > I know that I've seen a bunch of folks who are from PA and NJ. If > anyone > has any resources---therapists, support groups, what have you---that > are located within a reasonable distance of Philly and wouldn't mind > recommending them to us, we'd be very grateful. > > Thanks in advance! > > Abby > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.