Guest guest Posted March 2, 2008 Report Share Posted March 2, 2008 we give the same fish oils to our boys every day -even in one day my son Tanner regresses without his oil. He gets bumpy in speech. If a professional told me to rotate or change his formula I would not unless there was a danger to what he was taking which there is not. For the most part there is not enough education and awareness about the PUFAs. In fact the more you learn the more you realize you have to still find out. It's complex in that way...simple in that it works even if you don't understand why -and even if you are skeptical about it working. Doesn't matter. For most it just works! The Omega 369 is the commercial line and the same thing as the ProEFA which is the professional line that used to be anyway less expensive since you get 90 vs. 60 capsules. If you want to raise anything you want to raise the EPA -most of us do that for apraxia with a 2/1 ratio. So for every two ProEFA capsules you would use one ProEPA. Some go up to three times a day with that. The archive below was written when we used to raise the dosage very slow over months -with Dr. ' findings however many today including Dr. ' own son moved to the 9 capsules a day fairly quick. Just a note that my ADHD child needs a 1/1 ratio of ProEFA to ProEPA and he gets 5 of each a day. When I tried to raise the EPA any higher with Tanner he regressed -so the 2/1 is it. Tanner we've learned over the years if pretty typical of the majority of children with apraxia. Did you see the following archive? Below is a new member archived message, and an " EFA 101 basics " archived message to hopefully answer more of your questions for now (did you read The Late Talker yet?) For updated information on vitamin E and more - please visit the links section here /links What type of apraxic like speech behaviors are you seeing that makes you and the SLP suspect your child has apraxia vs. a simple delay in speech? Is your child talking at all yet? At your child's age - without speech, it's difficult to diagnose verbal apraxia -they could " suspect " verbal apraxia and begin treatment just in case, which wouldn't hurt your child if he ended up just having a simple delay. Just a few questions before we could provide more accurate answers: Does your child have signs of oral apraxia? (for example, can he on command smile, imitate funny faces, blow bubbles...if you put peanut butter anywhere around his mouth can he lick it off no matter where it is?) http://www.cherab.org/information/speechlanguage/oralapraxia.html Does your child have any neurological " soft signs " such as hypotonia or sensory integration dysfunction? http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html Who else evaluated your child? Was it only the SLP through your town school or was he also in Early Intervention through the state? (birth to three) Was he evaluated by both a speech pathologist as well as an occupational therapist? Was/were they knowledgeable about apraxia? (If your child wasn't diagnosed by an occupational therapist as well and professionals suspect apraxia -I highly recommend you request that too either through both the school as well as private through insurance for many reasons) To answer any questions you may have about taking your child to see a neurodevelopmental MD if he has not yet been to one and apraxia is suspected... in one word - " Yes!!! " I would have your child diagnosed (private) by a neurodevelopmental medical doctor (developmental pediatrician or pediatric neurologist) who is knowledgeable about apraxia and other neurologically based multi-faceted communication impairments for numerous reasons. Reasons include (but not limited to) *having a " hero " on the outside of the school who can assist in a therapeutic plan and oversee your child's development over the years *advocacy support with the insurance company * ruling out or confirming any neurological soft signs or any other reasons for the delay in speech *help those that ask " why isn't he talking yet " understand this is a medical condition -and has nothing to do with your child's cognitive ability. (if in your child's case it doesn't. Apraxia in itself does not affect a child's cognitive ability -and speaking early or late is no indication of a child's intelligence. Also contrary to popular belief -most who have speech impairments have average to above average intelligence) Here's an article written by Neurodevelopmental Pediatrician Dr. Marilyn Agin that was featured as a cover article in Contemporary Pediatrics -a trade magazine for hundreds of thousands of pediatric medical professionals across the US. (I wrote the parent guide) " The " late talker " -when silence isn't golden Not all children with delayed speech are " little Einsteins " or garden variety " late bloomers. " Some have a speech-language disorder that will persist unless warning signs are recognized and intervention comes early. Includes a Guide for Parents. " Cover feature article by Late Talker co-author Marilyn Agin MD http://www.contemporarypediatrics.com/contpeds/article/articleDetail.jsp?id=1327\ 20 Parent guide of article by Late Talker co-author Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2008 Report Share Posted March 2, 2008 I am just trying to see if I am up on the " current thinking " on fish oil. I understood we were supposed to add the ProEFA and ProEPA slowly -- like over a period of months. I have a seven-year-old who has been on the equivalent of two ProEFA and one ProEPA twice a day. I would like to increase to three times a day. How long should I stay on the current twice a day before upping it? Also, once you have increased, do you ever go down -- not cut it out, but are you ever able to reduce? Finally, what level of Vitamin E are most on? We've been using Vitamin World High Gamma for several months -- 2 capsules a day. We've played around with this quite a bit. My child did really well on the Yasoo Liquid, but I stopped that on 's advice. The Vitamin E capsules haven't given us the same result, but we keep on them anyway. What would y'all increase first -- the fish oil or Vitamin E -- or would you increase both at the same time? Thanks for all the help. I just wanted to say that over Thanksgiving, our family had a horrible stomach virus. I had to stop all supplements, and as it was going through the whole family, I forgot to start it all back up until one day my child said something to me and for the first time in a long, long time I realized I couldn't understand what she was saying!!! I realized that her speech had become less clear during the first week, and by the second week, there was a dramatic decrease in intelligibility. > > we give the same fish oils to our boys every day -even in > one day my son Tanner regresses without his oil. He gets bumpy in > speech. If a professional told me to rotate or change his formula I > would not unless there was a danger to what he was taking which there > is not. For the most part there is not enough education and > awareness about the PUFAs. In fact the more you learn the more you > realize you have to still find out. It's complex in that > way...simple in that it works even if you don't understand why -and > even if you are skeptical about it working. Doesn't matter. For > most it just works! > > The Omega 369 is the commercial line and the same thing as the ProEFA > which is the professional line that used to be anyway less expensive > since you get 90 vs. 60 capsules. If you want to raise anything you > want to raise the EPA -most of us do that for apraxia with a 2/1 > ratio. So for every two ProEFA capsules you would use one ProEPA. > Some go up to three times a day with that. > > The archive below was written when we used to raise the dosage very > slow over months -with Dr. ' findings however many > today including Dr. ' own son moved to the 9 capsules a day > fairly quick. > > Just a note that my ADHD child needs a 1/1 ratio of ProEFA to ProEPA > and he gets 5 of each a day. When I tried to raise the EPA any > higher with Tanner he regressed -so the 2/1 is it. Tanner we've > learned over the years if pretty typical of the majority of children > with apraxia. > > Did you see the following archive? > > Below is a new member archived message, and an " EFA 101 basics " > archived message to hopefully answer more of your > questions for now (did you read The Late Talker yet?) For updated > information on vitamin E and more - please visit the links section > here > /links > > What type of apraxic like speech behaviors are you seeing that makes > you and the SLP suspect your child has apraxia vs. a simple delay in > speech? Is your child talking at all yet? At your child's age - > without speech, it's difficult to diagnose verbal apraxia -they > could " suspect " verbal apraxia and begin treatment just in case, > which wouldn't hurt your child if he ended up just having a simple > delay. Just a few questions before we could provide more accurate > answers: > > Does your child have signs of oral apraxia? (for example, can he on > command smile, imitate funny faces, blow bubbles...if you put peanut > butter anywhere around his mouth can he lick it off no matter where > it is?) > http://www.cherab.org/information/speechlanguage/oralapraxia.html > > Does your child have any neurological " soft signs " such as hypotonia > or sensory integration dysfunction? > http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html > > Who else evaluated your child? Was it only the SLP through your > town school or was he also in Early Intervention through the state? > (birth to three) Was he evaluated by both a speech pathologist as > well as an occupational therapist? Was/were they knowledgeable > about apraxia? (If your child wasn't diagnosed by an occupational > therapist as well and professionals suspect apraxia -I highly > recommend you request that too either through both the school as > well as private through insurance for many reasons) > > To answer any questions you may have about taking your child to see a > neurodevelopmental MD if he has not yet been to one and apraxia is > suspected... in one word - " Yes!!! " I would have your child diagnosed > (private) by a neurodevelopmental medical doctor (developmental > pediatrician or pediatric neurologist) who is knowledgeable about > apraxia and other neurologically based multi-faceted communication > impairments for numerous reasons. Reasons include (but not limited > to) > > *having a " hero " on the outside of the school who can assist in a > therapeutic plan and oversee your child's development over the years > *advocacy support with the insurance company > * ruling out or confirming any neurological soft signs or any other > reasons for the delay in speech > *help those that ask " why isn't he talking yet " understand this is a > medical condition -and has nothing to do with your child's cognitive > ability. (if in your child's case it doesn't. Apraxia in itself > does not affect a child's cognitive ability -and speaking early or > late is no indication of a child's intelligence. Also contrary to > popular belief -most who have speech impairments have average to > above average intelligence) > > Here's an article written by Neurodevelopmental Pediatrician Dr. > Marilyn Agin that was featured as a cover article in Contemporary > Pediatrics -a trade magazine for hundreds of thousands of pediatric > medical professionals across the US. (I wrote the parent guide) > > " The " late talker " -when silence isn't golden > Not all children with delayed speech are " little Einsteins " or garden > variety " late bloomers. " Some have a speech-language disorder that > will persist unless warning signs are recognized and intervention > comes early. Includes a Guide for Parents. " > > Cover feature article by Late Talker co-author Marilyn Agin MD > http://www.contemporarypediatrics.com/contpeds/article/articleDetail.jsp?id=1327\ 20 > Parent guide of article by Late Talker co-author Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Thank you. And so to clarify, the omega 3 is the EPA? What is cod liver oil then? EPA or something different? Why is this so darn hard for me? I really am smart. Really. Ahhhh. Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 I have read a lot on the fish oils but when I just looked at my NN Complete 3 6 9 (60)gelcaps, I noticed the quantity of the levels aer a bit off from what is being stated on this list as optimal. It says: PER 2 softgels == EPA 270 mg DHA 180mg Other Omega 3s 115mg GLA 66mg OA 160mg Is this the right one??? How much should I be giving of it? I wish they just sold one type. I have been researching DAN for a long time, but for some reason, the fish oils which you would think should be easy, is by far the most confusing. Thanks. Michele > > I have asked so many fish oil questions, I am soooo embarrassed to > bring up the subject again but here goes... > > I bought from the store NN complete omega 3-6-9 and Omega-3 purified > fish oil. Are these the correct ones or was I supposed to buy a > kids' one that is lower dose? > > Okay, now according to his genetics from Yasko testing (I posted > about her biomed approach on this site before, I believe), my son > needs lipids like fish oil rotated. Is it okay to give 3-6-9 one day > and omega 3 the next or do they need to be given on the same day to > have the correct ratio? > > I gave my son half a capsule of the 3-6-9 yesterday. He is hyper on > it already ... not sure if this is good or bad but it is typical for > my son to react right away to supplements. He seems to have better > eye contact and be 'seeing' things more (like he was checking out a > toy lizard on his brother's dresser as though he never saw it before > when it has been there a looooooong time) and is making many more > sounds but they sound like verbal stims to me. I am going to push > foward. I will post if I see any language gains. > > Thanks in advance to anyone who knows the answers to my questions and > takes the time to respond! > > Michele > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 I would love an answer to this too. I was going over formulas as we are switching from Equazen's Eye Q to Nordic Naturals. What is the exact brand that everyone is using now and is NN Complete 3 6 9 (which I can find at Whole Foods) the same as ProEFA (which I would need to order). As I am switching, I was to use the EXACT formula that has shown the best results. Also, how long should one stay on 2-a-day dosing before moving to 3-a-day dosing? > > > > I have asked so many fish oil questions, I am soooo embarrassed to > > bring up the subject again but here goes... > > > > I bought from the store NN complete omega 3-6-9 and Omega-3 > purified > > fish oil. Are these the correct ones or was I supposed to buy a > > kids' one that is lower dose? > > > > Okay, now according to his genetics from Yasko testing (I posted > > about her biomed approach on this site before, I believe), my son > > needs lipids like fish oil rotated. Is it okay to give 3-6-9 one > day > > and omega 3 the next or do they need to be given on the same day to > > have the correct ratio? > > > > I gave my son half a capsule of the 3-6-9 yesterday. He is hyper > on > > it already ... not sure if this is good or bad but it is typical > for > > my son to react right away to supplements. He seems to have better > > eye contact and be 'seeing' things more (like he was checking out a > > toy lizard on his brother's dresser as though he never saw it > before > > when it has been there a looooooong time) and is making many more > > sounds but they sound like verbal stims to me. I am going to push > > foward. I will post if I see any language gains. > > > > Thanks in advance to anyone who knows the answers to my questions > and > > takes the time to respond! > > > > Michele > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 they are all fish oil -just different formulas. Cod liver oil is fish oil -but fish oil made from the liver of the fish so it contains naturally vitamin A. Fish oil not made from the liver of the fish does not contain vitamin A. All fish oil has omega 3/DHA and/or EPA -but some are also supplemented with a small amount of omega 6/GLA such as primrose or borage seed oil (make sure it's always the borage seed and not the borage plant -Nordic uses the seed) We have found in this group that the small amount of Omega 6 is needed to see more dramatic surges. If you use the cod liver oil and the ProEFA you changed the formula and raised the DHA -so you either won't see a surge -or less of one. (in almost all cases -yes there are around 10-20% exceptions we found) http://www.cherab.org/information/historyEFA.html Hope that helps -it's lots to learn all at once for sure! Here's more info on EFAs from CHERAB http://www.cherab.org/information/indexinformation.html#diet ===== Quote Link to comment Share on other sites More sharing options...
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