Re: WAS New study - Majority and the purpose of this board

[Guest guest]

A number of the " old timers " may remember me and know that I rarely

post negatively but the below post really got to me. I'm replying to

Michele's message because to me it sounded so disrespectful but I

write to the group.

First things first - The definition of majority means OVER 50%.

There are OVER 7,000 people on this list. I would respectively ask

for people to PLEASE temper your accusations and your guesses. Even

if there were 10 people posting about a specific intervention or

disability it does NOT make it a majority. Actually as I write this

there are 7,590 people subscribed to this list. That means that OVER

3,795 would be a majority. It is of NO help to ANYONE when people

throw their own particular theories around. We are very lucky that

[Guest guest]

I am not going to support fighting on either side of this landmine by

any means as I have fought my fair share, was wrong to do so and it

(my part is all I am speaking of)was unproductive and took away from

the kids. I do think, sadly, the majority thing is now coming down to

this: a larger number of children are becoming more severely affected

with apraxia and a more severe or varied form of it. These children

are not always autistic as well if that name is bothersome but some

are autistic as well. They may OR may not need interventions that go

beyond or differ from what once worked in isolation for so many to at

least help the apraxia. As someone who is doing a diet I know that

the fish oil and E stories and more importantly research are

important to my child even if I cannot do it the way it will be

studied because those stories and those studies go a long way toward

acknowledgement of what ails our kids in the first place.

I really think fighting each other is not the way. I don't filter my

messages because I want to read it all, even the ugly, because I

never know what may help. I read every single milk post of 's

even though we (sort of actually) disagree on milk and I have learned

a lot, even just yesterday.

The DAN/chelation discussion could get contentious but it need not

be. It is a scary topic, no way around it. All of this is

scary....our children's neurological systems are not working right

and we do not know why. I find that alarming. Who wants to know their

kid is metal toxic? Who wants to know that the remedy for metal

toxicity is not well known in mainstream hospitals and places you

would take your kid if something went south? If we can be respectful

we should talk about this stuff. If the moms chelating, most if not

all of whom have have researched it like crazy, could probably tell

the rest of us (the ones who are interested only) about other safety

hazards. People who considered it but did not do it can tell their

stories. People who may consider it later may have a different point

of view. That is the value of 's not censoring. But for us to get

that benefit I think hit the nail on the head, there has to be

respect.

[Guest guest]

Please don't leave. This too shall pass and this is a good board, a

true safe haven for many topics and all those dicussions can help a lot

of kids.

>

> Wow. Can't we all just GET ALONG? Aren't we all here to help our

children? I'm unsubscribing from this board, even though it has

knowledgeable people with great information. I have enough stress

dealing with my child's difficulties. Thanks for the info., but I'm

outta here.

>

>

>

[Guest guest]

I can't speak for everyone but that antibacterial, antiviral

discussion is of interest to me. Not to run and do it but to know

what is out there because my kids, both of them, remain puzzles,

particularly in the autoimmune dept. Please stay and please do tell.

>

> you should stay. You got me trying OLE! I have read your

posts

> on other boards and you are a very insightful mother.

> This board is just a work in progress...real people here...true

> feelings...but behind all the snippits here and there we are all

working

> towards

> helping our kids

> Your one of the few people here that have mentioned

> antivirals...antibiotics....awesome...its another piece to the

puzzle.

> Now that you are doing this for your son, you may be able to help

other

> mothers consider this option.

> Fish oils isn't the only treatment. We need moms that are trying

new

> things so our non responders to fish oil

> have other options.

>

[Guest guest]

I will miss you and your posts and wish you and your precious children

happiness and good health. Hang tough!

>

> My son is autistic and apraxic. I feel more or less unwelcome here.

Thanks tho.

>

> [ ] Re: WAS New study - Majority and the

purpose of this board

>

>

> Please don't leave. This too shall pass and this is a good board, a

> true safe haven for many topics and all those dicussions can help a

lot

> of kids.

>