Re: To , Response to posts about MR and lame comment from our O.T.

[Guest guest]

,

Don't let the district personnel label your child yet. Your son is

much too young to be labeled as Cognitively impaired. My son is 14

and was labeled at 5 as Mentally Retarded. I thought these people

were the experts, and I believed they would see the truth

eventually. But here I am to say the School district staff are

Mentally Retarded. My son passed the 8th grade constitution test 2

weeks ago and has shocked everyone in my district. They wanted to

place him in a class where he would not get the opportunity to take

the test, let alone pass the test. If I had let them place him, he

would only be able to get a certificate of completion. Now he can

earn a 8th grade diploma. Our next goal is High school goals with

the support he needs to be successful.

Good Luck,

Lorraine

>

> Hi everyone,

> I've been reading thru the posts the past couple days about

labeling

> and the " mental retardation " thing. And I've also seen posts of

> members who have left this group either: (1) because they didn't

feel

> welcome or (2) because they couldn't handle the fighting amongst

> members. Just a few thoughts and questions for you:

>

> (1) I hope that this group being " mostly " devoted to apraxia can be

> welcoming to us moms whose kids are multi-dimensional in their

> issues. (Mine being dyspraxic, apraxic, low tone and possibly

ADP.)

> Otherwise the description of the group should say that this group

is

> only for apraxic kids with no other issues. After all we've been

> through I can't handle any more rejection (and I can't imagine that

> any of the members of this board would do that as you've already

been

> helpful to us the past couple weeks!)

>

> (2) Given my son's issues .... we are just not sure whether there

is

> any sort of cognitive impairment. He's a mystery to us and

everyone

> else. He's consistently inconsistent? (Anyone have any thoughts

on

> that?)

>

> (3) After reading the most recent report written by my son's EI OT

> and EI PT (who work at the same place and see Owen back to

back)....

> I challenged the OT as to why he showed Owen still at an 18 month

> level in his fine motor and why he had goals in his report all

> as " unmet " and goals that he didn't discuss with me (eating more

> vegetables? beginning to potty train?) He couldn't really answer

me

> except to say, " There's only so much I can do with your cognitively

> impaired child. " So my question to all of you amazing, advocating

> moms is.....what would you do with that? (We are already on the

side

> taking steps with regards to seeing a pediatric neurologist,

> bloodwork, MRI, check for lead and mercury, etc.)

>

> I knew that the comment was possible only the beginning. And made

me

> feel like I'm standing in the gap between reality and hope....

>

> Warmly,

>

> Mom of Owen, 33 months

>

[Guest guest]

,

Being " consistently inconsistent " is a hallmark of apraxia/dyspraxia. Our kids

are extremely intelligent and I agree. Careful of letting them label him too

soon.

Janice

[sPAM][ ] Re: To , Response to posts about MR

and lame comment from our O.T.

,

Don't let the district personnel label your child yet. Your son is

much too young to be labeled as Cognitively impaired. My son is 14

and was labeled at 5 as Mentally Retarded. I thought these people

were the experts, and I believed they would see the truth

eventually. But here I am to say the School district staff are

Mentally Retarded. My son passed the 8th grade constitution test 2

weeks ago and has shocked everyone in my district. They wanted to

place him in a class where he would not get the opportunity to take

the test, let alone pass the test. If I had let them place him, he

would only be able to get a certificate of completion. Now he can

earn a 8th grade diploma. Our next goal is High school goals with

the support he needs to be successful.

Good Luck,

Lorraine

>

> Hi everyone,

> I've been reading thru the posts the past couple days about

labeling

> and the " mental retardation " thing. And I've also seen posts of

> members who have left this group either: (1) because they didn't

feel

> welcome or (2) because they couldn't handle the fighting amongst

> members. Just a few thoughts and questions for you:

>

> (1) I hope that this group being " mostly " devoted to apraxia can be

> welcoming to us moms whose kids are multi-dimensional in their

> issues. (Mine being dyspraxic, apraxic, low tone and possibly

ADP.)

> Otherwise the description of the group should say that this group

is

> only for apraxic kids with no other issues. After all we've been

> through I can't handle any more rejection (and I can't imagine that

> any of the members of this board would do that as you've already

been

> helpful to us the past couple weeks!)

>

> (2) Given my son's issues .... we are just not sure whether there

is

> any sort of cognitive impairment. He's a mystery to us and

everyone

> else. He's consistently inconsistent? (Anyone have any thoughts

on

> that?)

>

> (3) After reading the most recent report written by my son's EI OT

> and EI PT (who work at the same place and see Owen back to

back)....

> I challenged the OT as to why he showed Owen still at an 18 month

> level in his fine motor and why he had goals in his report all

> as " unmet " and goals that he didn't discuss with me (eating more

> vegetables? beginning to potty train?) He couldn't really answer

me

> except to say, " There's only so much I can do with your cognitively

> impaired child. " So my question to all of you amazing, advocating

> moms is.....what would you do with that? (We are already on the

side

> taking steps with regards to seeing a pediatric neurologist,

> bloodwork, MRI, check for lead and mercury, etc.)

>

> I knew that the comment was possible only the beginning. And made

me

> feel like I'm standing in the gap between reality and hope....

>

> Warmly,

>

> Mom of Owen, 33 months

>