Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 Hi Liz, The DAN that I've begun working with is HUGH into HBOT. In fact, he's ranked as the #1 or #2 HBOT doc. Anyway, he practices in Santa Fe and Sacramento, and he's incredibly knowledgeable. You could try contacting him or Ed Nemith via email. Ed owns the HBOT center in Sacramento. His daughter has CP, and she just so happened to be in my kindergarten class when I taught. When I met up with them recently, I immediately noticed the incredible gains his daughter had made over the last few years.....hence his dedication to HBOT. I do know THAT much about HBOT, but I do know that Dr. Stoller would not recommend HBOT until other things were in order for my son -- probably meaning that we'd need explored other avenues of healing first.....so HBOT being the " final " therapy sounds somewhat accurate. Stan Kurtz also probably knows quite a bit as well, because Dr Stoller's organization donated some chambers to his school down in L.A. So to make a long story a little shorter, you may want to direct your questions to Stan Kurtz, Dr Stoller or Ed Nemeith. Stan has the MB12Valtrex group (or is it the other way around?). Although I'm mostly just a lurker on his list serv, he seems pretty good about responding to questions. I do know that Dr Stoller and Ed Nemeith are INCREDIBLY forthcoming with information, and REALLY want to help kids!! They're both very caring people. They're both very knowledgeable and connected to DAN community. Unfortunately, I can't give you exact websites, but if you google any of these names (Stan Kurtz, Dr. Stoller, or Sacramento HBOT), you'll get their info. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 HBOT can be used to treat a variety of conditions but in all cases should be administered by a medical professional with extensive experience using it and someone who knows when it should NOT be used. There are some medical conditions and symptoms that are NOT compatible with HBOT and can be life-threatening if used when it shouldn't be or if used incorrectly. A thorough medical exam and history need to be taken in advance and careful monitoring done during the course of treatment. The treatments need tailored to the patient's needs and medical condition(s). There are different types of HBOT chambers hard and soft, single and multiple person ones - and different Oxygen and pressurization levels depending on the needs of the individual patient. There are more people buying soft chambers for use at home and then renting out time to other families...I believe it requires a doctor's prescription to purchase one - they are quite expensive...again, doing HBOT without medical supervision can be very risky. It is also not a first step therapy to try...medical conditions need ruled out and some gut healing and other stuff started first. Here are some links to read on the subject. HBOT Studies http://www.hbotreatment.com/studies.htm HBOT FAQ- Dr Benincasa-Feingold http://www.valleyhyperbarics.com/265688.html Public Archives for Mild HBOT Questions mildhbot/ HBOT A Guide to Hyperbaric Treatment for Brain Injury **http://www.hbotmanual.com/ NeuroHBOT NeuroHBOT/ HDOTherapyforAutism HDOTherapyforAutism/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 We haven't done HBOT, but my niece did. I think my sister felt it was beneficial, and the kid loved it and how it made her feel, but... --This was over a year ago, and it wasn't a magic cure. She still has lots of issues and delays. Perhaps she needs more dives, perhaps her problems can't be cured by HBOT. (For example, if you have PANDAS, HBOT probably won't change that.) --It costs a ton and is mostly not covered by insurance companies. It's about $100/dive, and my sister had to pay the $4,000 in advance! --If money is no object, it should probably be pretty high on the list of things to try. It's non-invasive, short-term, well- researched, doctor-supervised, and proven to work extremely well for SOME kids. If money is a consideration (as it is for most of us), it is hard to justify such an enormous expense for a maybe. --Other than money, it is not a thing to wait for. I don't think it works better if you have worked on other parts of your recovery first. It is supposed to work directly on the " injury " . It is actually one of the first things my niece did. The reason not to wait is that once you repair the injury, your brain is now more ready to change and grow. For example, all that speech therapy will, theoretically, now sink in. Again, it does not work for everyone, though. --I think I posted this previously: my sister went into the chamber with my niece to make sure she was calm, and they would watch a dvd while in there. One time my sister went in with a cut, and came out with it mostly healed. A little bite of proof that if there is an injury, it will speed recovery. Also, recently my niece behaved very well on an airplane trip. My sister thinks she liked the pressurized feeling, so maybe that's part of why she liked the HBOT. in NJ --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 We started our 2 1/2 year old daughter on the HBOT last July. After 10 hours of therapy (we would do 1 hour session a day) we saw some great results. The first is with her motor planning after the HBOT, Alaina was able to run, jump, climb with great dexterity and skill. All of her mouth over sensitivity seem to be gone. She suddenly was able to drink through straws, try new foods, and really build tone with her mouth. Her affection towards others and awareness for others grew tremendously. She began hugging her sister and blowing us kisses!! We rented the chamber through our DAN doctor, Dr. Bradstreet, so it was very accessible. We believed in it so much we ended up purchasing the chamber. Alaina still does 1 hour each night and even her sister , who is 1, likes to go into the " spaceship " and play. We have never seen any adverse affects, or odd behaviors as a result of the HBOT. It is a very low-risk method to get some great gains. It really seemed to help the healing with our daughter. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 How many dives did you do before you started seeing those great results? Is it safe to do every day? in NJ > > We started our 2 1/2 year old daughter on the HBOT last July. After 10 hours of therapy (we would do 1 hour session a day) we saw some great results. The first is with her motor planning after the HBOT, Alaina was able to run, jump, climb with great dexterity and skill. All of her mouth over sensitivity seem to be gone. She suddenly was able to drink through straws, try new foods, and really build tone with her mouth. Her affection towards others and awareness for others grew tremendously. She began hugging her sister and blowing us kisses!! We rented the chamber through our DAN doctor, Dr. Bradstreet, so it was very accessible. We believed in it so much we ended up purchasing the chamber. Alaina still does 1 hour each night and even her sister , who is 1, likes to go into the " spaceship " and play. We have never seen any adverse affects, or odd behaviors as a result of the HBOT. It is a very low-risk method to get some great gains. It really seemed to help the healing with > our daughter. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Hi , we saw great results with her around 10 hours (so 10 dives) but I would say the big stuff was after 60 dives. It is safe to do each day-we do have the soft top chamber which I think is very safe verses the hard-top chamber (not as much pressure). We still do an hour each evening and we take our 1 year old in there too and have seen her recover quicker from colds ect... it has given me more energy too. bigcheech91 <bigcheech91@...> wrote: How many dives did you do before you started seeing those great results? Is it safe to do every day? in NJ > > We started our 2 1/2 year old daughter on the HBOT last July. After 10 hours of therapy (we would do 1 hour session a day) we saw some great results. The first is with her motor planning after the HBOT, Alaina was able to run, jump, climb with great dexterity and skill. All of her mouth over sensitivity seem to be gone. She suddenly was able to drink through straws, try new foods, and really build tone with her mouth. Her affection towards others and awareness for others grew tremendously. She began hugging her sister and blowing us kisses!! We rented the chamber through our DAN doctor, Dr. Bradstreet, so it was very accessible. We believed in it so much we ended up purchasing the chamber. Alaina still does 1 hour each night and even her sister , who is 1, likes to go into the " spaceship " and play. We have never seen any adverse affects, or odd behaviors as a result of the HBOT. It is a very low-risk method to get some great gains. It really seemed to help the healing with > our daughter. > --------------------------------- Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 I spoke to my sister, and I have to slightly revise what I said earlier. She thought it was great and it really mellowed out her daughter a lot. She stopped a lot of her big tantruming, etc. Toward the end, she got a little hyper. My sister thinks it may have stirred up some yeast, but she didn't realize it at the time. She said she would continue with it if it weren't such a hassle to get to the place, etc. She has heard it works synergistically during chelation. And best of all... her insurance paid for 85% of the cost! Wahoo! in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Don't know why I'm asking, but how much did the chamber cost to purchase? > > > > We started our 2 1/2 year old daughter on the HBOT last July. After > 10 hours of therapy (we would do 1 hour session a day) we saw some > great results. The first is with her motor planning after the HBOT, > Alaina was able to run, jump, climb with great dexterity and skill. > All of her mouth over sensitivity seem to be gone. She suddenly was > able to drink through straws, try new foods, and really build tone > with her mouth. Her affection towards others and awareness for others > grew tremendously. She began hugging her sister and blowing us > kisses!! We rented the chamber through our DAN doctor, Dr. > Bradstreet, so it was very accessible. We believed in it so much we > ended up purchasing the chamber. Alaina still does 1 hour each night > and even her sister , who is 1, likes to go into the " spaceship " and > play. We have never seen any adverse affects, or odd behaviors as a > result of the HBOT. It is a very low-risk method to get some great > gains. It really seemed to help the healing with > > our daughter. > > > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Search. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 My daughter hasn't done HBOT but my best friend's son has. Last year while we were still living in Washington I flew done to Florida for a week to help with the month of HBOT treatments. Her son did 40 dives in one month, 2 dives a day, 5 days per week. They didn't see any significant results but they are still glad they did it. Mainly from a perspective of knowing that they didn't leave any bridge uncrossed. So... not only is it safe to do every day, you can do it more than once a day. I haven't noticed many folks on this board who have used HBOT much, etc. But... there is a board here on , I think it is called Chelating Kids 2 (I think) and those folks have a lot more personal experience with HBOT. So..... you may want to check that out. HTH Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 This may sound strange coming from me but I have heard that often people lurk and that families rent out HBOT chambers they can now buy to other families and things get done under the radar. I was also told that there are times and conditions when HBOT can be harmful for some kids. I will research this further and if I find anything on this part of it I will post as it seems nothing iswithout risk and we ought to know the risks. I asked the question because long before I ever knew what a DANDr. was I called Dr. Neubrander's office and without seeing my kid his brother recommended this. That has never sat well with me. I believe Dr. N has done well by many and his protocols have changed lives but that call bothered me and still does. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 We've done it for my son. We've completed 80 dives and are working on another 40 right now. We've seen improvement in his receptive language (this was VERY significant after the first 40 dives) and an increase in vocalizations. Our son is pretty significantly delayed in most areas, but as long as we can afford it, and keep seeing positive changes, we'll do it periodically. I will say that most of the kids we've been in the chamber with (it is large - holds 4 kids and 4 adults) have autism. And I recognize many of them from previous sessions so I'm guessing they're seeing a difference too or they wouldn't be shelling out over $4K again. , mom to Cordis, 4 y/o, dx Infantile Spasms @6.5mos, IS resolved, developmental delays with some autisitc features, severe ADHD, essentially non-verbal --- bigcheech91 <bigcheech91@...> wrote: > We haven't done HBOT, but my niece did. I think my > sister felt it > was beneficial, and the kid loved it and how it made > her feel, but... > > --This was over a year ago, and it wasn't a magic > cure. She still > has lots of issues and delays. Perhaps she needs > more dives, perhaps > her problems can't be cured by HBOT. (For example, > if you have > PANDAS, HBOT probably won't change that.) > > --It costs a ton and is mostly not covered by > insurance companies. > It's about $100/dive, and my sister had to pay the > $4,000 in advance! > > --If money is no object, it should probably be > pretty high on the > list of things to try. It's non-invasive, > short-term, well- > researched, doctor-supervised, and proven to work > extremely well for > SOME kids. If money is a consideration (as it is > for most of us), it > is hard to justify such an enormous expense for a > maybe. > > --Other than money, it is not a thing to wait for. > I don't think it > works better if you have worked on other parts of > your recovery > first. It is supposed to work directly on the > " injury " . It is > actually one of the first things my niece did. The > reason not to > wait is that once you repair the injury, your brain > is now more ready > to change and grow. For example, all that speech > therapy will, > theoretically, now sink in. Again, it does not work > for everyone, > though. > > --I think I posted this previously: my sister went > into the chamber > with my niece to make sure she was calm, and they > would watch a dvd > while in there. One time my sister went in with a > cut, and came out > with it mostly healed. A little bite of proof that > if there is an > injury, it will speed recovery. Also, recently my > niece behaved very > well on an airplane trip. My sister thinks she > liked the pressurized > feeling, so maybe that's part of why she liked the > HBOT. > > in NJ > > --- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Liz - I think the soft chamber manufacturer would sell a chamber to anyone and people are always selling them. As I have stated, I'm not wild about soft chamber but there are plenty of families who have rented and purchased this home unit and many are getting results. I really think it's a stretch to say blankly that hbot hurts some kids. Too many variables - and I just highy doubt it. I can see it doing nothing before actually " hurting " . I could say that ABA therapy hurts some kids. I just don't think that's a fair statement. The big soft-mfg.s marketing imo is a bit sneaky- there are dangers they don't speak of - it is not FDA approved for use with 100% oxygen but they do still sell it that way - w/ caveat " at your own risk " . I personally think it's better to go to a facility with a hard chamber w/ a trained CHT professional at the helm for your initial 40-120 dives and then consider a home unit. I was very concerned - so did a lot of deep research. As for Dr. Neubrander - I have met him. His practice is all about neuro damaged kids - he is very well respected and is the real deal in my book. I think they (his office) are so impressed with HBOT results within their growing clientele - his brothers' enthusiam may have come across as over zealous. His presentation was punctuated with studies and research as well as quite impressive before and after video clips of kids. When you get your book - you will have a better understanding what HBOT is and what it does. here is part of a post from Hartsoe - owner of a non profit HBOT center. I think the important thing to understand about hbot is that there is no magic, no danger, no special deal. It is simply providing oxygen under pressure so that the plasma will become saturated. The natural ability of the brain and body to produce results in its self-healing mode takes over from there. It recogizes that proper oxygen supplies are not reaching certain areas and it produces capillary growth to compensate. Hartsoe www.miraclemountain.org > > This may sound strange coming from me but I have heard that often > people lurk and that families rent out HBOT chambers they can now buy > to other families and things get done under the radar. I was also told > that there are times and conditions when HBOT can be harmful for some > kids. I will research this further and if I find anything on this part > of it I will post as it seems nothing iswithout risk and we ought to > know the risks. > > I asked the question because long before I ever knew what a DANDr. was > I called Dr. Neubrander's office and without seeing my kid his brother > recommended this. That has never sat well with me. I believe Dr. N has > done well by many and his protocols have changed lives but that call > bothered me and still does. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 - just curious - what facility are you taking your son to? Do you go in too? Do you do 1 or 2 sessions per day? Nice to hear that you are seeing results too. I'm looking forward to our next 40 dives. I take my son to Miracle Mountain in North Carolina - we stay there for 3 weeks. > > We've done it for my son. We've completed 80 dives > and are working on another 40 right now. We've seen > improvement in his receptive language (this was VERY > significant after the first 40 dives) and an increase > in vocalizations. Our son is pretty significantly > delayed in most areas, but as long as we can afford > it, and keep seeing positive changes, we'll do it > periodically. > > I will say that most of the kids we've been in the > chamber with (it is large - holds 4 kids and 4 adults) > have autism. And I recognize many of them from > previous sessions so I'm guessing they're seeing a > difference too or they wouldn't be shelling out over > $4K again. > > , mom to Cordis, 4 y/o, dx Infantile Spasms > @6.5mos, IS resolved, developmental delays with some > autisitc features, severe ADHD, essentially non-verbal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 about $24,000 bigcheech91 <bigcheech91@...> wrote: Don't know why I'm asking, but how much did the chamber cost to purchase? > > > > We started our 2 1/2 year old daughter on the HBOT last July. After > 10 hours of therapy (we would do 1 hour session a day) we saw some > great results. The first is with her motor planning after the HBOT, > Alaina was able to run, jump, climb with great dexterity and skill. > All of her mouth over sensitivity seem to be gone. She suddenly was > able to drink through straws, try new foods, and really build tone > with her mouth. Her affection towards others and awareness for others > grew tremendously. She began hugging her sister and blowing us > kisses!! We rented the chamber through our DAN doctor, Dr. > Bradstreet, so it was very accessible. We believed in it so much we > ended up purchasing the chamber. Alaina still does 1 hour each night > and even her sister , who is 1, likes to go into the " spaceship " and > play. We have never seen any adverse affects, or odd behaviors as a > result of the HBOT. It is a very low-risk method to get some great > gains. It really seemed to help the healing with > > our daughter. > > > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Search. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Please do not get me wrong. Not trashing this, just inspiring conversation. The person said for some conditions it is contraindicated and the concern was to get a thorough medical eval in doing it rather than just jumping into it by renting someone other than a doc's chamber. As for Neubrander, I have no qualms with him. It was a bad deal for me as I missed out on learning stuff. I don't know what the deal was...the brother was not forthcoming with what was done there and right away mentions the chamber...strange to me. I was a newbie to all of this. I know a few people going to him and they are all happy. They did the drill, diet, MB12 and I think one is considering HBOT so the phone call was not reflective of the practice. > > > > This may sound strange coming from me but I have heard that often > > people lurk and that families rent out HBOT chambers they can now > buy > > to other families and things get done under the radar. I was also > told > > that there are times and conditions when HBOT can be harmful for > some > > kids. I will research this further and if I find anything on this > part > > of it I will post as it seems nothing iswithout risk and we ought > to > > know the risks. > > > > I asked the question because long before I ever knew what a DANDr. > was > > I called Dr. Neubrander's office and without seeing my kid his > brother > > recommended this. That has never sat well with me. I believe Dr. N > has > > done well by many and his protocols have changed lives but that > call > > bothered me and still does. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Our son also does better when it's overcast - but I have always attributed this to light sensitivity. But maybe you're right and it's pressure. When we did MHBOT in the spring, he came out of this sensitivity after about 40 dives and wanted to play outside. We're doing HBOT now and I haven't seen any difference in this yet. Our guy also has anxiety but has been sensitive to just about everything we've tried, including GABA. (It made him cry.) He takes transdermal Glutithione now and after a short adjustment period is doing well on it. The best thing for our son's anxiety seems to be a good night's sleep, which can also be a challenge. He has periodically taken melatonin, but the hangover (at less than 1 mg) is a little like depression, so what's the good of that? We are experimenting with valerian root to help him sleep and it seems to be helping. HTH, Maggie > > My son feels better during cloudy and rainy weather > and hates sunny weather. Would this mean he would not > do well with HBOT because that would increase pressure? > Isn't the air pressure lower in rainy weather? > He has anxiety and I read somewhere this could be remedied > with more oxygen. We've done van Ardenne's oxygen protocol > with no improvement. Also thinking about GABA and L-Theanine > for anxiety. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2008 Report Share Posted August 25, 2008 > > My son feels better during cloudy and rainy weather > and hates sunny weather. Would this mean he would not > do well with HBOT because that would increase pressure? > Isn't the air pressure lower in rainy weather? > He has anxiety and I read somewhere this could be remedied > with more oxygen. We've done van Ardenne's oxygen protocol > with no improvement. Also thinking about GABA and L-Theanine > for anxiety. > Have you thought about the UV rays killing pathogens (like Lyme) or increasing vit d beyond his ability to process it? c Carolyn Quote Link to comment Share on other sites More sharing options...
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