Re: New study that validates vitamin E!!!!!

[Guest guest]

Yes, that term got to me too Carolyn - it's also a dump all " label "

used by lazy, stale so called professionals. You didn't mention how

your daughter is doing, hope she is well and recovered.

>

> I am the Carolyn referred to in this post as taking my daughter to

Dr. Ming

> who was mentioned in the research/report.

>

> I am getting confused. Just in case others are getting confused,

let me give

> you some background because I think cutting and pasting old emails

may be

> difficult to understand the point trying to be made (which I admit

I don't

> understand right now).

>

> My daughter went to Dr. Ming a couple of times, the last time being

2004.

> She didn't mention cheek samplings. The only test she did on my

daughter was a

> repeat brain MRI.

>

> We did discuss proefa. I was giving my daughter efelex prior to age

3 and

> then switched to proefa after reading the posts on this list from

so many saying

> they saw progress in speech in their children after supplementing

with it.

> The efelex did cause positive behavorial/sensory changes. My

daughter had been

> grinding her teeth all day (not at night). A doctor from NY City

(Dr.

> Pescatore) suggested efa supplementation for this. Within 3 weeks,

to my surprise

> and delight, the grinding stopped. Then, when we started the

proefa, it was

> like a miracle because my daughter started to say her first

purposeful " mama "

> and other words. That was at about 3 and 1/2. The problem for us

was that

> unlike many others, the progress leveled off but sometimes we

would see some

> progress when stopping and starting the proefa again.

>

> In our case, diet has also been important because at around age 5,

my

> daughter started to have seizures (convulsions) when she had a

sudden temperature

> increase. Dr. Ming suggested our seeing a different neurologist

when the

> seizures started. One doctor suggested a modified atkins diet, and

it appears

> (please God) that the seizures have stopped. She has not had one in

a year. So,

> basically, she eats fruits, veggies, whole grains, fish, meat, and

soups. All

> around, her health has improved too.

>

> Now, the first MRI was done when she was 2 and 1/2 as ordered by

Dr. Arnold

> Gold. The same radiologist/neur did this MRI and the later one. It

was

> determined that her myelin had not all come in but it was minimal.

Dr's do

> interpret MRI's differently though because when we were at

Children's Hospital in

> Philadelphia to make sure there was no genetic reason for her

delays (there were

> none), our geneticist showed the first MRI to a neurologist who

asked if it

> was the brain of a premature child (my daughter was 4 wks premature

but also I

> had labor pains at 8 wks early). The second MRI showed that the

myelin was

> completely in (according to radiologist/neuro-Dr. Ming thought

maybe a bit

> more needed) but now they could see tiny cysts in the white matter

caused by an

> apparent bleed either prior to birth or during the traumatic birth.

>

> The white matter, I was told deals with processing issues, and Dr.

Ming was

> happy that her gray matter was not affected at all since that would

affect

> intelligence.

>

> Ok, so I hope this helps anyone interested.

>

> Also, I know no one would ever mean to offend anyone, but I would

appreciate

> it if the term, " mentally retarded " or " mental retardation " was

not used.

> More and more doctors and even governmental agencies are realizing

that it has

> a negative connotation to it and has been used in insulting ways.

The terms

> that are used more and more are developmentally disabled or

cognitively

> impaired. Thanks for your consideration on this. Carolyn

>

>

>

> **************Ideas to please picky eaters. Watch video on AOL

Living.

> (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-

campos-duffy/

> 2050827?NCID=aolcmp00300000002598)

>

>

>

[Guest guest]

Ditto that... my kid is also a lead kid with a close second being

mercury. More importantly, his detox system is not fuctioning

properly - and I blame the ludicrous birth to 6 mo vaccines - so

inappropriately topped with Dr. Recommended Tylenol and locked in

by ...drum roll.... antibiotics (locks in mercury) to combat the

chronic ear infections. Heavy metal toxicity cause a chain reaction.

Our kids - most - have " various issues " - which from my reading,

research, constant study - ROOT: heavy metal toxicity causes system

wide malfunction - thus " various issues " as applied to various

genetic makeup.

*and btw - I recently learned about the lead problem - not because he

was not previously tested - because it's very tricky to get an

accurate picture on exactly which /what heavy metal is causing what

problem. Standard Ped testing is often unreliable. They're all BAD -

get them OUT and voila - the problems one by one disappear. Overyly

simplified - I know.

And, fyi, the lead did not come from toys

>

> Well,

>

> my son is a Lead kid and has problems with mercury too.....

>

> Janice

>

>

> [sPAM]Re: [ ] Re: New study that

validates vitamin E!!!!!

>

>

>

> In a message dated 2/23/2008 7:04:03 P.M. Eastern Standard Time,

> crystalam_@... writes:

>

> (I figured she could have passed it to me).

> Anyway, turns out my Uranium (from Radon probably) was off the

charts,

> and my daughters was 1 1/2 times mine. So you might be right, and

it

> might not be mercury, but that doesn't mean it's not something

else!

> It seems like different things are the triggers in different

cases,

> but if you look it seems like it's usually some sort of toxin

built

> up. Just my .02

>

> Again-- In my case-- my toxin levels were fine. No uranium

problems etc.

> I am TOTALLY hearing what you're saying though, and AGREE that

many times

> the cause of these neurological based disabilities are exposures

to metals and

> toxins. (but will say definitely NOT ALL)

>

>

> becky

>

> **************Ideas to please picky eaters. Watch video on AOL

Living.

> (http://living.aol.com/video/how-to-please-your-picky-

eater/rachel-campos-duffy/

> 2050827?NCID=aolcmp00300000002598)

>

>

[Guest guest]

Re: Lead...Maybe I am ill-prepared here because neither kid of mine

mouthed stuff but my big thought on lead, and perhaps this in a NJ

thing, is the air we breathe, the soil the food grows in when we eat

even the good stuff, with milk it matters as the cows are eating that

grass and the stuff that gets in the groundwater. I have beaten

myself up for giving my kids bottled water with 27x the amount

of " safe " fluoride in it for adults...UNTIL...I looked at the local

water report. The stuff my kids bathed in was full of lead,

pesticides, mercury, industrial waste, etc. And truth be told we have

pretty good water...unfluoridated mind you as they don't want to risk

trapping the nasties.

Truth is there is no one source for the stuff that ails our kids,

even if it is metal. Best we can do is try to find potential

culprits, reduce exposure and if needed, go in and get it out and

heal the physical damage that results from all of it. Not sure where

our journey will lead. Things are pretty happy here but I never know

when the other shoe will drop so I have to keep inquiring and

researching. Don't look back and weep Janice. Look forward to the

future with a much healthier child. You deserve that as does he and

that is my prayer for you both.

> >

> > Well,

> >

> > my son is a Lead kid and has problems with mercury too.....

> >

> > Janice

> >

> >

> > [sPAM]Re: [ ] Re: New study that

> validates vitamin E!!!!!

> >

> >

> >

> > In a message dated 2/23/2008 7:04:03 P.M. Eastern Standard

Time,

> > crystalam_@ writes:

> >

> > (I figured she could have passed it to me).

> > Anyway, turns out my Uranium (from Radon probably) was off the

> charts,

> > and my daughters was 1 1/2 times mine. So you might be right,

and

> it

> > might not be mercury, but that doesn't mean it's not something

> else!

> > It seems like different things are the triggers in different

> cases,

> > but if you look it seems like it's usually some sort of toxin

> built

> > up. Just my .02

> >

> > Again-- In my case-- my toxin levels were fine. No uranium

> problems etc.

> > I am TOTALLY hearing what you're saying though, and AGREE that

> many times

> > the cause of these neurological based disabilities are

exposures

> to metals and

> > toxins. (but will say definitely NOT ALL)

> >

> >

> > becky

> >

> > **************Ideas to please picky eaters. Watch video on AOL

> Living.

> > (http://living.aol.com/video/how-to-please-your-picky-

> eater/rachel-campos-duffy/

> > 2050827?NCID=aolcmp00300000002598)

> >

> >

[Guest guest]

,

We have identical ROOT issues. It is amazing the damage all of this has done!

The more I learn about how severely my son's systems were compromised, the more

I scratch my head in wonder at how aweful and poor medical awareness of these

issues is! Chelation is working but how do you make up for so many years of

toxicity?

The issue with recommending Tylenol after the shots.... " How dare they do this

to us? " That is my mantra. " How could they tell us to give Tylenol to our

babies when it is an immune suppressent? " It is absolutely poor judgement on

behalf of the medical community and we suffer the results.

We did 3 separate tests prior to realizing that lead was the primary issue.

Mercury kept scoring high but....in my heart, I knew it was lead from watching

Dr. Usmans' lectures with regards to dyspraxia. She was describing my child!

He was a Lead kid to a tee. We had to fully eliminate seafood from the diet for

a week (now we have quit it forever). Once we did that, the mercury levels

quieted down (still high though) and the lead levels jumped through the roof.

I believe that the first assault was the mercury from the shots and it just

created an opening for the lead to invade my son's system. This makes me

quietly reflect on every single chew toy..... every baby blanket, every plate,

every item he had...... it was all made in China.

I am 'supposing' here and I simply will never know how my son incurred such high

lead levels in his system. But if you look up the symptoms of global dyspraxia

in relation to the symptoms of Lead poisening, they are remarkeably similiar.

Too remarkable in my opinion!

We finish round for of oral DMSA chelation today. I watch the lead coming out

of his body right in front of my eyes..... it is both astonishing and yet

horrifying at the same time.

Janice

Mother of Mark, 13

[sPAM]Re: [ ] Re: New study that

validates vitamin E!!!!!

>

>

>

> In a message dated 2/23/2008 7:04:03 P.M. Eastern Standard Time,

> crystalam_@... writes:

>

> (I figured she could have passed it to me).

> Anyway, turns out my Uranium (from Radon probably) was off the

charts,

> and my daughters was 1 1/2 times mine. So you might be right, and

it

> might not be mercury, but that doesn't mean it's not something

else!

> It seems like different things are the triggers in different

cases,

> but if you look it seems like it's usually some sort of toxin

built

> up. Just my .02

>

> Again-- In my case-- my toxin levels were fine. No uranium

problems etc.

> I am TOTALLY hearing what you're saying though, and AGREE that

many times

> the cause of these neurological based disabilities are exposures

to metals and

> toxins. (but will say definitely NOT ALL)

>

>

> becky

>

> **************Ideas to please picky eaters. Watch video on AOL

Living.

> (http://living.aol.com/video/how-to-please-your-picky-

eater/rachel-campos-duffy/

> 2050827?NCID=aolcmp00300000002598)

>

>

[Guest guest]

In a message dated 2/24/2008 3:55:29 P.M. Eastern Standard Time,

lizlaw@... writes:

Re: Lead...Maybe I am ill-prepared here because neither kid of mine

mouthed stuff but my big thought on lead, and perhaps this in a NJ

thing, is the air we breathe, the soil the food grows in when we eat

even the good stuff, with milk it matters as the cows are eating that

grass and the stuff that gets in the groundwater

I guess I wanted to gently ask that you would stop referring to things as

always being

" a NJ thing " because you're in ONE part of NJ and I am also in NJ, and

don't have the same issues as you seem to with the environment.

Of course the Big Pharm companies and all the industrial areas are going to

be MORE concentrated with " blech things " . that's a definite " no-brainer "

LOL, BUTTTT, not all of NJ has this sort of problem, and it depends on the

area.

I know you had mentioned my water supply at one point-- and referred to the

PASSAIC River being a very bad water supply-- and yet, I'm not near the

Passaic River and our water doesn't come anywhere near from that river-- etc.

So- I dunno-- but I just wanted to point out that NO, it's not always a " NJ

thing " because this state has so many different environments that we're

dealing with, and not ALL are going to be that typical thought that people talk

about with NJ and the " bad " crap.

Hope that made sense

Becky

**************Ideas to please picky eaters. Watch video on AOL Living.

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

2050827?NCID=aolcmp00300000002598)

[Guest guest]

In a message dated 2/24/2008 3:55:29 P.M. Eastern Standard Time,

lizlaw@... writes:

Truth is there is no one source for the stuff that ails our kids,

even if it is metal. Best we can do is try to find potential

culprits, reduce exposure and if needed, go in and get it out and

heal the physical damage that results from all of it.

I very much agree with this statement!

I believe there are MANY causes to Apraxia/Dyspraxia, and to say it's ever

just one thing would be untruth.

There are so many things that will add to the condition, and each of our

children will be exposed to different things, that it's extremely complex.

Then factor in how each of our KIDS is totally different and individual, and

that adds to the complexity of this Apraxia/Dyspraxia mystery.

But I believe wholeheartedly-- that there are always going to be MANY things

that will cause issues like this for our children (and for US for that

matter)

Becky

**************Ideas to please picky eaters. Watch video on AOL Living.

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

2050827?NCID=aolcmp00300000002598)

[Guest guest]

In a message dated 2/23/2008 9:49:01 P.M. Eastern Standard Time,

lizlaw@... writes:

Please do not misunderstand me. I have many theories behind what we

have seen in my family and I assure you metal is only one part and

may likely be a small but important part is all.

Oh, I don't misunderstand you at all! I TOTALLY hear you, and no matter

what issues our children have, anyone that has metal toxins in their system

will

eventually be very sick--- and that always should be addressed as a health

concern.

I was just saying that for my personal case-- it's a little baffling,

because as of right now, we have never had any metal issues that would have

" caused " my son's Apraxia.

Honestly-- I don't even like to think of what caused anything-- because

sometimes it's almost TOO MUCH knowledge to handle-- and then we sit here as

parents and say " what did I do wrong " ? " etc and I wouldn't want to go through

that self-doubt.

I *DO* want to know about the possible dangers out there and AVOID them at

all costs-- because that just makes common sense to me.

Hope that made ANY amount of sense?? LOL

becky

**************Ideas to please picky eaters. Watch video on AOL Living.

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

2050827?NCID=aolcmp00300000002598)

[Guest guest]

In a message dated 2/25/2008 4:49:57 P.M. Eastern Standard Time,

lizlaw@... writes:

North Jersey: borders NY and all the 911 fallout along with whatever

was already going on pollution wise in the Passaic River

But not all of Northern NJ actually borders NYC but rather UPSTATE regions

of NYS.

There truly is a difference, let's say, between NYC borders of NJ and Tuxedo

Park, NY Borders of NY where you're up in the Mountains. (Ramapo)

Truly-- I understand what you're saying, but I don't agree with you in that

where *I* am personally in the NORTHERNMOST region of NJ is what you're

referring to everytime you say " It's a NJ thing "

That's the terminology that sort of rubs up against me-- because I feel that

yes, there ARE certain parts of ANY State that may be more toxic than

others, it certainly isn't a STATE thing.

and again-- this is respectfully my opinion and yours can vary! LOL

Becky

**************Ideas to please picky eaters. Watch video on AOL Living.

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

2050827?NCID=aolcmp00300000002598)

[Guest guest]

Not trying to offend but the truth is, I am in the alleged cleanest

part of the state. Not trying to trash Jersey but here is the

landscape:

South Jersey: borders a nuclear power plant and all that goes with it.

North Jersey: borders NY and all the 911 fallout along with whatever

was already going on pollution wise in the Passaic River

Central Jersey: allegedly the cleanest but there is always something.

I am not near the Passaic River.

There are new issues croping up in Central NJ because the edison

folks are getting the fall out of the stuff dumped in Staten Island.

Honestly, environmental stuff is not Jersey isolate nor is it even

big talk where I live. I just notice it more because in addressing my

kids stuff funds are limited and research is free.

>

>

> In a message dated 2/24/2008 3:55:29 P.M. Eastern Standard Time,

> lizlaw@... writes:

>

> Re: Lead...Maybe I am ill-prepared here because neither kid of

mine

> mouthed stuff but my big thought on lead, and perhaps this in a NJ

> thing, is the air we breathe, the soil the food grows in when we

eat

> even the good stuff, with milk it matters as the cows are eating

that

> grass and the stuff that gets in the groundwater

>

>

>

>

>

> I guess I wanted to gently ask that you would stop referring to

things as

> always being

> " a NJ thing " because you're in ONE part of NJ and I am also in

NJ, and

> don't have the same issues as you seem to with the environment.

> Of course the Big Pharm companies and all the industrial areas are

going to

> be MORE concentrated with " blech things " . that's a definite " no-

brainer "

> LOL, BUTTTT, not all of NJ has this sort of problem, and it depends

on the area.

> I know you had mentioned my water supply at one point-- and

referred to the

> PASSAIC River being a very bad water supply-- and yet, I'm not near

the

> Passaic River and our water doesn't come anywhere near from that

river-- etc.

>

> So- I dunno-- but I just wanted to point out that NO, it's not

always a " NJ

> thing " because this state has so many different environments that

we're

> dealing with, and not ALL are going to be that typical thought

that people talk

> about with NJ and the " bad " crap.

>

> Hope that made sense

>

> Becky

>

>

>

> **************Ideas to please picky eaters. Watch video on AOL

Living.

> (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-

campos-duffy/

> 2050827?NCID=aolcmp00300000002598)

>

>

>

[Guest guest]

Liz,

I agree New Jersey has it's many, many issues, but I must must must

point out that nuclear power is actually the cleanest source of fuel in

this country -- compare it to fossil fuels, coal burning, etc. I do

not want to get into a political debate about this one -- it is way

beyond off topic! -- but I had to chime in because this fallacy is

pretty much conventional wisdom nationwide.

in NJ

>

>

> South Jersey: borders a nuclear power plant and all that goes with it.

>