Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 I have been a member here for a few years. I am one of the older moms at this point. I lurk everyday and there are so many times that I want to comment, but I bite my lip and sign off. You know, we are all on the same road. It's a long difficult journey that we don't really understand. We are all here to help each other. We are all tired, frustrated, sad, and just want to fix our children. I think our emotions run high. Let's all remember that quite simply, there is not one thing that will work for every single kid. Some go to DAN doctors, some go to neurologist, some go to Development peds and some just got to ped. Some take kids to speech therapy every day, some only once a week. Each child is a individual and each child has to be evaluated individually. Each mother has her own gut feeling of what is wrong and what may help her child. Let's all -- EVERYONE -- be considerate of that. When I first came on this group, it was suggested that group therapy would not work for my daughter. Guess what? I took the info and said ok. But you know what. My daughter need group therapy for speech. She needed her " peers " to help her. Fish oil worked great for her. Maybe does not work for all children. Vitamin E may not work for all children. My daughter who was dx with apraxia at 18 months along with developmental delay has eye problems -- strabismus and myopia. Just because something works for someone on this board, does not mean it will work for all kids on this board and we don't need to say it is the end all be all. We all feel passionate about what will work and if it works, that's great and if it doesn't . . . move on to the next step. Let's all be considerate of each other and respect everyone's opinions. We all have enough on our plates to deal with. We are here for resources and helping each other out. Let's not lose sight of that. > > Carolyn as a member here for years you are a fighter for your > daughter who always has an open mind and tries what worked for most > first. Your daughter is very fortunate to have you as a mom as you > have sought out the best doctors and tried everything to help her > from when you first found out about her delayed myelinization back > when she was a wee one - until today. As you know the road can be > easier or harder depending upon variables. I've always said that if > fish oils didn't work I'd try other things too. I guess I just don't > understand when someone doesn't even try what works for most and > starts with strategies that most of us know are not appropriate or > don't work. That's a choice of the parent -not like you since you > tried the easy way and unfortunately the answer for your daughter - > just like her condition -is a bit more complex. So I didn't mean > hard road in regards to you -I meant to choose the way that didn't > work for most...first. > > Many people who answer the new parents who post all the time now feel > intimidated - one mom was jumped on for just asking why would you do > all you do? So yes we all should be considerate. > > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 I agree with everything that is stated in the message below. I think everyone should really read it again and think about some of the information and thoughts that were shared. Each child is different and what works for one might not work for all. There are other people that are lurking and I think that is the main concern even if it isn't stated. There are basic steps to getting started when the child is a toddler and some I feel like have forgotten what those basic steps are. Then there are those children that need more help and parents turn to alternative therapies because that is what is needed. Someone just posted that it isn't black and white but grey. I believe this to also be true. My son has verbal apraxia, mild sensory integration dysfunction and mild food allergies. He was a wonderful fish oil responder and that was all that was needed so far with low doses of Vitamin E. I haven't had much luck with doctors, but I have gotten referrals to see many doctors. Some have helped with a puzzle piece and then another one has put another piece of the puzzle together. I understand the frustration that parents have when there is more to what is going on besides speech and SID. There are pros and cons for everything related to neurodevelopmental disorders. The pros and cons of therapist, doctors, school experiences, supplements, and anything else that is involved in helping your children. I see a lot of people saying this worked great for us, but it is always one sided. And then when someone shows the bad side everyone gets defensive. I think this is crazy--I would want to know both sides the good, the bad, and the ugly! This is the main reason that providing links of information shared was asked for so that people could have a chance to read the facts instead of having to guess if they are facts or theory. Many people come to this site for resources to help their children. Please be considerate to each other when responding and try to keep an open mind of what it was like when you first started on this journey. For me--I felt so overwhelmed, confused, and alone! Tina > > I have been a member here for a few years. I am one of the older > moms at this point. I lurk everyday and there are so many times > that I want to comment, but I bite my lip and sign off. > > You know, we are all on the same road. It's a long difficult > journey that we don't really understand. We are all here to help > each other. We are all tired, frustrated, sad, and just want to fix > our children. I think our emotions run high. Let's all remember > that quite simply, there is not one thing that will work for every > single kid. Some go to DAN doctors, some go to neurologist, some go > to Development peds and some just got to ped. Some take kids to > speech therapy every day, some only once a week. > > Each child is a individual and each child has to be evaluated > individually. Each mother has her own gut feeling of what is wrong > and what may help her child. Let's all -- EVERYONE -- be > considerate of that. When I first came on this group, it was > suggested that group therapy would not work for my daughter. Guess > what? I took the info and said ok. But you know what. My daughter > need group therapy for speech. She needed her " peers " to help > her. > > Fish oil worked great for her. Maybe does not work for all > children. Vitamin E may not work for all children. My daughter who > was dx with apraxia at 18 months along with developmental delay has > eye problems -- strabismus and myopia. > > Just because something works for someone on this board, does not mean > it will work for all kids on this board and we don't need to say it > is the end all be all. We all feel passionate about what will work > and if it works, that's great and if it doesn't . . . move on to the > next step. > > Let's all be considerate of each other and respect everyone's > opinions. We all have enough on our plates to deal with. We are > here for resources and helping each other out. Let's not lose sight > of that. > > Quote Link to comment Share on other sites More sharing options...
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