Re: Digest Number 4267

[Guest guest]

When we went to due process and the lawyer for the school board tried to

bully me when the judge sent us out to the room to " talk things out to see

if

we could come to some kind of agreement " , he was acting like he was in

charge and I told him that he wasn't in charge we were supposed to be

discussing things. Nobody told him he was running things.

When we went back in to the judges chambers (this judge did all the talking

informally before we went in the court room to be " on the record " ) anyway

we went in the judges chambers and I said " I'm sorry your Honor, we couldn't

work out anything because he is obnoxious and mean and it is impossible to

have an adult conversation with him. " The Judge gave the lawyer the eyebrow

and the lawyer looked like somebody hit him with a shovel. HAHAHAHAHA

It makes me laugh just thinking about it. The Judge said, " well if you can

t be

civil, I suppose I will work this out myself. " and things came out

definitely

leaning my way. The lawyer commented that I wasn't doing something

correctly

and the Judge said " They don't do this all the time. It is their first time

and I am

making this as easy for them as I can. They obviously feel very strongly

about

this situation or they wouldn't have come this far. " I was very happy we

got the

Judge we did.

GOOD LUCK - you can beat them - you know you can!!!!!

Dawn

Dawn,

ROFLOL!!! You didn't tell me you went to due process! What a great story.

You are one feisty gal!

Kathy

[Guest guest]

aw shucks (blushing) you're embarrasing me.

Now if I meet somebody else on the list I'll feel pressure to be funny. LOL!

(kidding)

**** LOL!! I don't think that will be a problem for you! ****

Kathy was great! Funny, informative and very good company. She is

quite a character. We really did have a great time.

Absolutely, I would love to have lunch again.

I'm still waiting to meet Barbara. (hint, hint, hint)

Has anyone heard from Anne??

I hope everything is going well with her.

If anyone has an opportunity to go to lunch with Kathy, take it.

She's a wonderful person.

too bad we can't have a great big get together

maybe eventually

Dawn

****oooh, now I'm blushing. But, uh....wha-what exactly do you mean by

" character???? " LOL!

Kathy

[Guest guest]

In a message dated 6/21/2005 8:30:13 PM Eastern Daylight Time,

writes:

Heart problems in CFS may be as in MVP - mitral valve prolapse

(http://www.mitralvalveprolapse.com/) due to dysfunction in

the autonomic nervous system (dysautonomia)

The type of dysautonomia how it may differ from other forms of

dysautonomia and how it occurs yet to be revealed.

/Per

..

..

>>> I have a diagnosis of MVP and this is why the cardiologist suggested I

take Hawthorne, Mg, B6 and l-Taurine. Helps me.

mjh

http://foxhillfarm.us/FireBasil/

[Guest guest]

I havn`t been on the site for a while, due mainly to tiredness. I can only

only go on after six in the evening as it is much cheaper. I just wanted to

say hello to everyone, expecially the new ones. I hope you all had a good

easter.

I have been spending alot of time at the hospital getting tests as i still

feel ill, achy and tiered even when my liver function tests are ok. Does

anyone else have this. Doctors wondered if i had Lupus, but they are not

sure as my ana tests are negative, although my skin rashes tested positive

for Lupus. I am so confused, my mum has pbc and i was diagnosed with aih

about 7 years ago, and have been on steroids ever since. I have tried imuran

twice, but it made me so sick.

I also get this damp, clammy feeling in my hands, back and head mainly, this

is usually when i feel at my worst and can`t function properly. I would love

to know what is is. I am waiting for a second biopsy, the first was 7 years

ago now, and they didn`t really get a good sample, not enough they said. I

suffer alot from sickness, and loss of appetite, doctors don`t know why,

even when my liver functions tests are ok. Strange. I wish i knew what was

wrong. I don`t work, but keep worrying about how i would cope if i had to. I

can`t even cope with housework, shopping, cooking etc Any advise or similar

situations would be wecome. Love and Hugs to you all. Jackie x

[ ] FOSAMAX/0STEOPOROSIS

Question? I was wondering if any of your are on Fosamax and

Prednisone? And if you have had any eye problems like burning, blurred

vision, and just plain eye pain? I am taking the prednisone for the AIH and

the fosamax for osteoporosis caused by the prednisone!!!

I went on Fosamax about 2 1/2 years ago and complained about my eyes

hurting all the time and not one Dr. connected it to the fosamax until about

6 months ago when I was told to immediately stop taking the fosamax. I am

still having eye problems with severe dry eyes, possibly another autoimmune

disease:Sjorgrens!

I am now totally convinced that the Fosamax caused all of these eye

problems as I had none of the eye problems before, and after 2 1/2 years my

Dr. finally became suspicious after my asking her several times " could it be

the fosamax or the prednisone " ?

Also, I just read in an article I found in google on the net that people

that are on Prednisone should not take fosamax-like drugs due to the fact

that the combination can cause bone death in their jaws (osteonecronosis)

Has any one else heard of this???

Anyway, now my Dr. wants me to start on Forteo and injectable osteoporosis

drug. Is anyone else out there on this drug Forteo for their osteoporosis??

I found this article by Marcelle Pick, OB/GYN NP by going to google and

typing in the word Forteo and then clicking on Osteoporoosis and Fosamax it

is a women to women.com/bonehealth/osteoporosis site.

Take care,

Shirlee

[Guest guest]

Hi Jackie,

It sounds familiar so familiar....... You need to be tested for the

following as many of these conditions have overlapping symptoms and when

resolved

give the liver a chance.

# 1 Heavy Metal test from Smokey Mt. Labs. Mercury is a

huge burden on the liver and is cause of many autoimmune conditions.

# 2 A blood test called IGG IGM which will tell you if

you have an active infection and indicates such as lupus etc.

# 3 A lyme disease test from only Ignex labs which will

show so much that you may have thought was something else. Lyme disease

mimics everything from m.s. to a.l.s.

# 4 A fungal panel which will show if you need to deal

with candida and thereby you will know why you are chronically fatigued.

All of these tests will tell the whole picture

and give you solutions to many burdens on the liver Oh dear i forgot that

you also need a detoxification profile from Smokey Mt. Lab on phase 1 and 2 of

your live function

Before any heavy drugs i would do all of the above and

really know what the program should be Daggett

[Guest guest]

You are the first person that I've come across that's mom also had the same

illness. My mom had PBC and I was diagnosed with it nine years ago. But you;re

saying that your liver function tests are okay? Mine get progressively worse

(especially this past year). I also tire very easily -they say that it is

probably due to my anemia. I just have to pace myself and not let it get to me

if my condo is perfectly clean. Right now, I have double pnemonia so I'm not

doing a whole heck-of-alot. I had to stop working about 8 months ago.

Your biopsy could help them determine if your liver is involved. Certainly, your

symptoms are remarkably similar .

Hang in there and let us know how the test goes.....

[ ] FOSAMAX/0STEOPOROSIS

Question? I was wondering if any of your are on Fosamax and

Prednisone? And if you have had any eye problems like burning, blurred

vision, and just plain eye pain? I am taking the prednisone for the AIH and

the fosamax for osteoporosis caused by the prednisone!!!

I went on Fosamax about 2 1/2 years ago and complained about my eyes

hurting all the time and not one Dr. connected it to the fosamax until about

6 months ago when I was told to immediately stop taking the fosamax. I am

still having eye problems with severe dry eyes, possibly another autoimmune

disease:Sjorgrens!

I am now totally convinced that the Fosamax caused all of these eye

problems as I had none of the eye problems before, and after 2 1/2 years my

Dr. finally became suspicious after my asking her several times " could it be

the fosamax or the prednisone " ?

Also, I just read in an article I found in google on the net that people

that are on Prednisone should not take fosamax-like drugs due to the fact

that the combination can cause bone death in their jaws (osteonecronosis)

Has any one else heard of this???

Anyway, now my Dr. wants me to start on Forteo and injectable osteoporosis

drug. Is anyone else out there on this drug Forteo for their osteoporosis??

I found this article by Marcelle Pick, OB/GYN NP by going to google and

typing in the word Forteo and then clicking on Osteoporoosis and Fosamax it

is a women to women.com/bonehealth/osteoporosis site.

Take care,

Shirlee

[Guest guest]

the doctor gave my son three pills to get rid of candida

I am afraid to use it as candida killed off to quickly puts out a poison i

am afraid would burden the liver.

How do you all get rid of your candida

sherry O

[Guest guest]

I am using on my son milk thistle

A certain type of lechitin to remove scar tissue

Branched chain amino acids

B vitamins 100 mgs

and more

sam e is said to be great fo rthe liver

sherry

[Guest guest]

Have you been on 6MP? It helped me when Imuran and Cellcept made me very sick!

They did not want me to be on the 6MP, but I did respond quickly with the 6MP

and prednisone.

Actually, I have stopped the 6MP and I am feeling tired. I am trying to see if

the Milk Thistle and other herbal treatments will help....so far, it doesn't

seem to be helping. I will probably go back on the 6MP after I see my GP next

week....

All in all, the 6MP did work for the liver.

Debby

[ ] FOSAMAX/0STEOPOROSIS

Question? I was wondering if any of your are on Fosamax and

Prednisone? And if you have had any eye problems like burning, blurred

vision, and just plain eye pain? I am taking the prednisone for the AIH and

the fosamax for osteoporosis caused by the prednisone!!!

I went on Fosamax about 2 1/2 years ago and complained about my eyes

hurting all the time and not one Dr. connected it to the fosamax until about

6 months ago when I was told to immediately stop taking the fosamax. I am

still having eye problems with severe dry eyes, possibly another autoimmune

disease:Sjorgrens!

I am now totally convinced that the Fosamax caused all of these eye

problems as I had none of the eye problems before, and after 2 1/2 years my

Dr. finally became suspicious after my asking her several times " could it be

the fosamax or the prednisone " ?

Also, I just read in an article I found in google on the net that people

that are on Prednisone should not take fosamax-like drugs due to the fact

that the combination can cause bone death in their jaws (osteonecronosis)

Has any one else heard of this???

Anyway, now my Dr. wants me to start on Forteo and injectable osteoporosis

drug. Is anyone else out there on this drug Forteo for their osteoporosis??

I found this article by Marcelle Pick, OB/GYN NP by going to google and

typing in the word Forteo and then clicking on Osteoporoosis and Fosamax it

is a women to women.com/bonehealth/osteoporosis site.

Take care,

Shirlee

[Guest guest]

What is 6MP? An herbal med??? or perscription? What does it supposed to do

that Milk Thistle may also do, but is not doing for you? ( I do not think Milk

Thisle works very fast, I think you need to take it regularly and for a long

time before there may be changes in how you feel) Clara from OR

--------- [ ] FOSAMAX/0STEOPOROSIS

Question? I was wondering if any of your are on Fosamax and

Prednisone? And if you have had any eye problems like burning, blurred

vision, and just plain eye pain? I am taking the prednisone for the AIH and

the fosamax for osteoporosis caused by the prednisone!!!

I went on Fosamax about 2 1/2 years ago and complained about my eyes

hurting all the time and not one Dr. connected it to the fosamax until about

6 months ago when I was told to immediately stop taking the fosamax. I am

still having eye problems with severe dry eyes, possibly another autoimmune

disease:Sjorgrens!

I am now totally convinced that the Fosamax caused all of these eye

problems as I had none of the eye problems before, and after 2 1/2 years my

Dr. finally became suspicious after my asking her several times " could it be

the fosamax or the prednisone " ?

Also, I just read in an article I found in google on the net that people

that are on Prednisone should not take fosamax-like drugs due to the fact

that the combination can cause bone death in their jaws (osteonecronosis)

Has any one else heard of this???

Anyway, now my Dr. wants me to start on Forteo and injectable osteoporosis

drug. Is anyone else out there on this drug Forteo for their osteoporosis??

I found this article by Marcelle Pick, OB/GYN NP by going to google and

typing in the word Forteo and then clicking on Osteoporoosis and Fosamax it

is a women to women.com/bonehealth/osteoporosis site.

Take care,

Shirlee

[Guest guest]

6MP is Purinethol, a drug generally used for Leukemia, but has been shown to

work for patients with AIH. It is a drug...pure and simple.

The reason I stopped taking it was that I am tired of taking it...I take so

much and I am still stiff and sore and just with I would get better....and

nothing really helps. I don't really know if the Milk Thistle will change

anything, but I must give it a try.

I am NOT suggesting to anyone that you should stoop meds, etc. without Dr.

approval, but for me, it is important that I try something different. This

board is specifically for what works for us. I do NOT recommend that anyone

do what I am doing, and will probably get a tongue lashing from my GI (which

I probably deserve next week) and if she says that I am going to have go

back, I probably go back, but perhaps it is the rebel in me that says I need

to try something different!

Debby

[ ] FOSAMAX/0STEOPOROSIS

Question? I was wondering if any of your are on Fosamax and

Prednisone? And if you have had any eye problems like burning, blurred

vision, and just plain eye pain? I am taking the prednisone for the AIH

and

the fosamax for osteoporosis caused by the prednisone!!!

I went on Fosamax about 2 1/2 years ago and complained about my eyes

hurting all the time and not one Dr. connected it to the fosamax until

about

6 months ago when I was told to immediately stop taking the fosamax. I am

still having eye problems with severe dry eyes, possibly another

autoimmune

disease:Sjorgrens!

I am now totally convinced that the Fosamax caused all of these eye

problems as I had none of the eye problems before, and after 2 1/2 years

my

Dr. finally became suspicious after my asking her several times " could it

be

the fosamax or the prednisone " ?

Also, I just read in an article I found in google on the net that

people

that are on Prednisone should not take fosamax-like drugs due to the fact

that the combination can cause bone death in their jaws (osteonecronosis)

Has any one else heard of this???

Anyway, now my Dr. wants me to start on Forteo and injectable

osteoporosis

drug. Is anyone else out there on this drug Forteo for their

osteoporosis??

I found this article by Marcelle Pick, OB/GYN NP by going to google and

typing in the word Forteo and then clicking on Osteoporoosis and Fosamax

it

is a women to women.com/bonehealth/osteoporosis site.

Take care,

Shirlee