Re: Digest Number 248

[Guest guest]

Jody,

I agree with Sue about going to the ER. The nice thing about that is that

you can select which hospital you go to and have the option of going where

the medical reputation is good. There's the problem of insurance coverage,

though. Some policies stipulate that if it isn't a genuine " emergency " ,

you're not covered, or there's a very high deductible. Apparently their

idea of an emergency is based on whether you're hospitalized. How could

you possibly anticipate whether that would happen or not? Also, the wait

in an ER can be unbelievable and you still get the luck of the draw...

i.e., you can't be sure what level doctor will see you. But if you're

really feeling sick, it's a very good idea to go in right away.

Theoretically they do a kind of triage and you'll be seen based on the

level of urgency. With luck, you may not have to wait so long. Years ago

I was in a head on collision in my car and my knee bone was chipped. I

also was in shock and had a mild concussion, besides having a cut in the

back of my head that was streaming blood down my back but I didn't know it.

I lay on a gurney for almost 6 hours waiting to be seen in that Los

Angeles ER. A smaller hospital in a smaller community probably wouldn't be

so bad.

Take care,

Geri

[Guest guest]

Has anyone used a drug called Sporanox to control Aspergillus? It costs over

$1000 a month so I am hoping someone can tell me it has worked for them.

Thank you.

[Guest guest]

Hi all

Jeanie thanks for the info.....I will talk to my Doctor about the lung

capacity test and see what he tells me. Gretchen count me in on the

book deal....May be one way to get a lot more Doctors to listen to us.

I don't know about the rest of you but at one time I had a couple of

Doctors telling me that some of my symptoms were all in my

head......well for awhile I thought maybe I was losing my mind...come to

find out they were the ones that were just " blowing me off " . This list

has been the best thing that has happened to me since I was diagnosed

and I owe what sanity..LOL!! I have left to all of you!!

CSCluv**

http://community.webtv.net/cat926/CATHYSCOOLCATCORNER

[Guest guest]

I feel exactly the same way! I was getting so depressed with being told I

was just lazy and uncoordinated and making up excuses. I am so grateful to

be able to 'talk' to all of you. I have learned so much and I have a much

more positive outlook on life - living with the symptoms is not the worst

part, the worst is when nobody believes you.

Thank you all!

> ----------

> From: cat926@...

> Reply egroups

> Sent: Sunday, April 16, 2000 3:43 PM

> egroups

> Subject: Re: [] Digest Number 248

>

> Hi all

> Jeanie thanks for the info.....I will talk to my Doctor about the lung

> capacity test and see what he tells me. Gretchen count me in on the

> book deal....May be one way to get a lot more Doctors to listen to us.

> I don't know about the rest of you but at one time I had a couple of

> Doctors telling me that some of my symptoms were all in my

> head......well for awhile I thought maybe I was losing my mind...come to

> find out they were the ones that were just " blowing me off " . This list

> has been the best thing that has happened to me since I was diagnosed

> and I owe what sanity..LOL!! I have left to all of you!!

>

>

>

>

> CSCluv**

>

>

>

>

>

> http://community.webtv.net/cat926/CATHYSCOOLCATCORNER

>

>

> ------------------------------------------------------------------------

> Whatever you want, chances are you'll find it at one of the hundreds

> of sites in The PointClick Network--like Disney.com, eCost.com,

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>

[Guest guest]

In a message dated 4/28/2000 3:47:21 AM US Eastern Standard Time,

egroups writes:

<< i've never heard of stretch marks being hereditary

from what i have heard, stretch marks are from the stretching of skin, ie,

weight gain, weight loss, pregnancy, etc >>

Yes it is from that but, some people get them and some people don't and the

way ones skin reacts to the stretching is hereditary. Unfortunately my

grandmother got them...my mom however didn't. My sister and I both inherited

my grandmothers skin...drat! And like Simon says (he he no pun intended) Emu

oil does help the appearance of them.

Heidi the Hippie

[ Now & Zen Bathworks [

" It is only to the individual that a soul is given. " Einstein

[Guest guest]

In a message dated 4/28/00 8:30:32 AM Central Daylight Time,

Time4fun12@... writes:

<< Emu

oil does help the appearance of them. >>

I have never heard of this- where can you get it? Do you think that it can

help on marks from a baby you had 7 yrs ago?

thanks a bunch!

Sunny

[Guest guest]

I have never heard of this- where can you get it? Do you think that it can

help on marks from a baby you had 7 yrs ago?

thanks a bunch!

Sunny

Sunny:

I know lots of women that have used it and love it. The problem may be it

won't covert them up all the way, but it sure will make them less

noticeable. You can send me a note about where to get it, if you want some.

Simon

CALEB WHOLESALE PRODUCTS

FULL LINE ALTERNATIVE ENERGY PRODUCTS 805-475-2209

[Guest guest]

My husband is an O and I am an A. We discovered that oats are not a problem

unless you need to lose weight (my dh would like to gain). But, as to oats

being lumped

with wheat, I disagree.

Regarding food for the thyroid. The D'Adamo website has a product called fucus

or fucus plus which includes the exactly right type of kelp (bladderwrack), and

I have

bee very pleased with taking it to feed mine (thyroid).

sincerely,

Frances

[Guest guest]

If anyone is going to use the " pen " for more than 6 doses, you can ask

your physician to write a script for the special needles used with the

Insulin Pen. They are slightly longer, but just as thin and will screw

into the Interferon Pen. You can not use a regular needle with the pen

system. Another method is to ask the pharmacist to get a small sterile

vial for you, and you either push all the interferon into the vial,

which will be LESS liquid then normally drawn up when the vial method is

used alone. Then calculate the correct amount, (the pen is more

concentrated so you can still get 3mu in a smaller amount). You can then

use an " insulin " or " TB " syringe and needle to inject. This is also a

way to add whatever is left in the pen if you are using it 3 times a

week, for an extra dose every 1 1/2-2 pens. Marty

[Guest guest]

In a message dated 08/09/2000 10:02:25 AM Pacific Daylight Time,

2byteme@... writes:

<< You can not use a regular needle with the pen

system. >>

Actually, Marty, I have used a regular needle to draw up the interferon.

What happened was, my husband and I separated and I lost a huge income.

Since I have a huge co-pay on all of my families Meds, I had to make a choice

one month, pay the mortgage on my home, or get my combo Meds. So, you can

imagine which one I chose!

I had to wait an extra week to gather my funds together before I could get

the next months Interferon/Ribivarian package.

During that week on my regular scheduled shot days, I bought 3 needles, 27

gauge insulin needles, and just used the pen to draw from, just like a vial.

It worked but I don't recommend doing it every time!

Since I am not much of a needle person, I was terrified that I would " break

off the needle " or something like that, but I got over it on the second day!

Here in Arizona you can buy needles at any pharmacy. I know it's different

around the country, so you would have to check with your states laws.

Necessity is the mother of all invention.

Sharon Nicholson

Hepatitis Education & Patient Coalition (H. E. P. C. in AZ)

Executive Director

<A HREF= " http://www.suite101.com/welcome.cfm/hepatitis_abc " >Hepatitis A, B,

C's - Editor</A>

http://www.suite101.com/welcome.cfm/hepatitis_abc

Are you in ARIZONA?

Then Join our e-group mailing list online!

<A HREF= " ArizonaHepatitis C " >eGroups :

ArizonaHepatitis C</A>

ArizonaHepatitis C

[Guest guest]

Thanks Marty.. on the pen vs extra needles.. I really confused my poor ol

P.A. when she realized she had to calculate the extra interferon I was doing

vs the " bottle & pen box " they've been coming in. Not sure how they'll do

that.

alley/

ICQ 12631861

alleypat@...

http://www.flash.net/~alleypat

[Guest guest]

Hi Sharon I also got seperated while i was on meds . after twenty

eight years of being marry ,no kids .it was hard being on my own and

working sometime12 hours a day as a tractor trailer driver in the city

of phila. i been off the meds now for 8 months (non responder) GI APPT.

in 4 months and life go on and on and on thank GOD GIVE BE MOVE

CHARLEY

[Guest guest]

Hi Sharon I also got seperated while i was on meds . after twenty

eight years of being marry ,no kids .it was hard being on my own and

working sometime12 hours a day as a tractor trailer driver in the city

of phila. i been off the meds now for 8 months (non responder) GI APPT.

in 4 months and life go on and on and on thank GOD GIVE BE MOVE

CHARLEY

[Guest guest]

Hi Sharon I also got seperated while i was on meds . after twenty

eight years of being marry ,no kids .it was hard being on my own and

working sometime12 hours a day as a tractor trailer driver in the city

of phila. i been off the meds now for 8 months (non responder) GI APPT.

in 4 months and life go on and on and on thank GOD GIVE BE MOVE

CHARLEY

[Guest guest]

Hi Sharon I also got seperated while i was on meds . after twenty

eight years of being marry ,no kids .it was hard being on my own and

working sometime12 hours a day as a tractor trailer driver in the city

of phila. i been off the meds now for 8 months (non responder) GI APPT.

in 4 months and life go on and on and on thank GOD GIVE BE MOVE

CHARLEY

[Guest guest]

Until recently I was on cordarone. Now I am on amiodarone. Are they the same? Or is there a difference. I neglected to ask my cardiologist. So m any of you seem to think positively about amiodarone. I'm fine, still no firing off in 4.5 years. Just had my replacement done, and I am still a little tired, especially in this heat we are having in NE US.

[Guest guest]

My husband recently went on the amiodarone. He was on toprol (along with a dozen other drugs). I for one do not like the side effects, but as the Dr said what choice do we have at this time. The heat in the NE right now is knocking him on his butt not to mention with the air quality he can't breath. The weather should be better after tomorrow afternoon. :-)

Gail

Re: Digest Number 248

Until recently I was on cordarone. Now I am on amiodarone. Are they the same? Or is there a difference. I neglected to ask my cardiologist. So m any of you seem to think positively about amiodarone. I'm fine, still no firing off in 4.5 years. Just had my replacement done, and I am still a little tired, especially in this heat we are having in NE USPlease visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Amioderone is a generic version of Coradone

[Guest guest]

Cordarone is a trade name for the drug known generically as amiodarone. It's the same with Lanoxin (digoxin), Coumadine (warfarin), Aldactone (spiranalactone), Lasix (frusemide), Disprin (apirin) etc.

Until recently I was on cordarone. Now I am on amiodarone. Are they the same? Or is there a difference. I neglected to ask my cardiologist. So m any of you seem to think positively about amiodarone. I'm fine, still no firing off in 4.5 years. Just had my replacement done, and I am still a little tired, especially in this heat we are having in NE US.

[Guest guest]

I changed schools this year, so when I see old sstudents from my old shool (I

LOVE those kids) I go up to them and I am genuinely so happy to see them -

yet they are looking at me with confused little faces! I have to say, It's

Mrs. Lee silly! Then they smile real big and give me a hug. I love it! I had

surgery alst summer, so when I left that school I was at my all time highest

(size 26) and now I am in a size 12, or a large or medium REGUALR sized

clothes!!!

Loving it!

> I've bumped in to a few people who didn't know who I was or who for a few

> minutes seemed confused....I love it!

>

> Flo

>

[Guest guest]

,

What Feingold book are you quoting?

M

> To add to the oil discussion...here are the relative salicylate

> content ratings from the Feingold book. It gives it for the food and

> is more concentrated in the oil but the relative ratings would be the

> same. How does cold pressing or expeller pressing affect the oil,

> anyone?

>

> very low - sunflower seeds, cashews, hazelnuts, pecans

> low - corn, coconut, walnuts, sesame seeds, poppy seeds, Brazil nuts

> Medium - macadamia nuts, pinenuts, pistachio nuts, pumpkin seeds

> high - peanuts, olives (also benzoates)

>

> for sugars:

> granulated sugar - none

> honey - medium, wide variety

> high - clover honey, molasses

>

>

> I also see that all the grains, dairy and meat have negligible or no

> salicylate. So being on a GFCF diet and eliminating the refined sugar

> rather pushes you into a higher phenol diet. I am happy to look up

> anything else.

>

[Guest guest]

Hello

Don't get too discouraged at the time it's taking for your son to be

potty trained. My son (autism) turned 6 in June, and he's only been fully

potty trained for about the last 8 months or so. It does take quite a bit of

time and patience, and fortunately in 's case, his teacher worked with

him in the classroom as well. I'm not sure I approve of 's school's

method at this point, either. If all else fails, however, it may be an

option to try for a week or so and find out if the sensation of wet/soiled

pants is unpleasant enough to encourage him to go potty. 's teacher

used small snacks (Goldfish, M & M's) to reward him when he did go on the potty

--- have you tried rewarding with small prizes? Setting a regular

schedule helps a bit, too....over time, his body will begin to respond at the

set intervals (a big help for you as well, since you'll know approximately

when he has to go). is still experimenting with differnent

" containers " as potties! Our poor dog's water bowl has been used several

times (I just thot he didn't like the dog! lol), I have caught him urinating

in the drains around the apartment complex where we live (much to his

sister's embarrassment, and mine), he has urinated into the swimming pool

(also embarrassing) but at least he understands that some kind of receptacle

or container is needed. Now if I can just get him to understand that this

activity is reserved for INDOORS! Is verbal? is mostly

non-verbal, but he has learned to say " Go potty? " when he needs to go while

we're in public. I put a small potty in his room for times when our one

bathroom is occupied (this was VERY helpful) or during the night when he's

too sleepy to navigate the walk from bedroom to bathroom.

It may well be that simply does not see the point of using a

potty at all. Also he may find the flushing sound unpleasant ( still

does, but he flushes most of the time). Hang in there and see if his teacher

will agree to setting up two or three specific times during the school day to

get him on a schedule. Good luck.... I know how frustrating it can be, but

WILL get the hang of it! Take care

Pearland, Texas

[Guest guest]

Hello All!

Quick! I need help! My six year old autistic son has recently begun

engaging in masturbatory behavior, and I don't know how to stop him. He

grabs pillows, cushions, etc and literally " humps " them (sorry folks but

there's just no other word to describe it). I have been trying to make sure

he keeps his pants/shorts on, since he only does this when he's nude or in

his underwear. It's quite embarrassing for him to start this while visitors

are over (or we're visiting), and needless to say the behavior is highly

inappropriate unless he's alone in his own bedroom. is predominately

non-verbal as well, so this doesn't help. How in the WORLD do I discourage a

behavior that is it's own immediate reward????

Any input or help on this one is more than appreciated. Thanks,

everyone

Pearland, Texas

[Guest guest]

Jessie wrote:: //Larry: have you heard anything about the two doctors in

Shelton doing banding?//

Jessie et al:

I called their office last summer.

I got the impression that it would run $20,000

for the banding including hospital costs.

Apparently they were new to the procedure.

Their nirse told me then that they were unlikely

to do fills for people they ahdn't banded.

Dr Ogle was supposedly doing a presentation about

the band at Mason General Hospital. I was tempted to go

up and slip in some words about DR Kuri for $8500 and mexican

DRs in general but GF pointed out that DR Ogle had treated her and treated

her well (not all DRs have!). Their was also the consideration that irking

a local DR that does lap bands might be bad if I went into hospital in an

emergency, they might consult him about my band. Then again what

American DR would use his surgical skills to get even?

Larry Murray

[Guest guest]

Actually connect with your ability to control your immune system.

Don't do it to get your finger to move -- just do it, connect.

The movement or signal is just a confirmation.

Love, Keely

" I am now connected with my own ability to control my immune system. "

Is that the statement you're supposed to make to get your finger to move?

Or is there another statement I am supposed to be making?

I've been making that statement off and on for over a week, and it doesn't

move.

Do you have any suggestions?

Bayard said in the video not to get a password until you were sure about

this. So I have not gotten a password yet.