Guest guest Posted December 19, 2002 Report Share Posted December 19, 2002 In a message dated 12/19/2002 6:54:21 AM Eastern Standard Time, writes: > if you had to be homeless for one year where would you want it to be ? I > say > Vegas Any where WARM! I don't do well with temps lower than 80 degrees. lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 , First of all please please do not your pain get the better of you. I know exactly how you feel. I let my boys who are now 16 and 18 go to live with family. I couldn't possibly be the mother they deserved. It was the hardest thing I have ever done but I am divorced so I had no other choice. I am so sorry that your daughters are going through this also. But you should not feel guilty. It is not your fault. I know it seems hard but we all have to remember everything happens for a reason. Somehow this will make us stronger. Many days I am not sure how but I believe in my heart that it will. I have had suicidal thoughts but I too know I have to be here for my children and no matter how bad the pain gets, I will be damned if it gets the best of me because I want to see my boys be great men and have families. I want to be a grandmother, and I will not let this stop me. About my meds. I take some pretty strong stuff. I am on MS Contin 15 mg. which is a slow release morphine, twice a day. Also I have oxycodone 5 mg. which is written for 2-3 times a day as needed for the breakthrough pain. Also I take flexaril at night to help me sleep. I can take that during the day but I mainly use it at night. It does help me relax and sleep. Some days are better than others. I hate when I hurt a lot because I will not take enough of my meds to kill the pain. I am too afraid of becoming too tolerant and having to use higher dosages. As far as the fybro, I don't know how Drs. are where you are but a lot of them here in VT don't have much of a clue with things. You need to find a DR that understands the fybro and have the test. It is all about pressure points. I have recently found a Physical Therapist, my son actually was referred to him. When I went with him to the appt. I spoke with this man. He had spine posters on the wall. I spoke up about my back and he said he thought he could help me. I got a referral from my Dr. and started going 2 wks ago. He is doing something called myofascial release. It is soft tissue massage. I can barely feel him touching my back but he is doing some amazing things. The only down fall of this Myofascial Release is I cry. It doesn't hurt at all but it is loosening up this tissue that has been so tight. It runs into our brain, from what I understand. It just somehow effects me with tears. I feel foolish in this man's office but he is totally fine with it. He told me not to feel bad and to let it go. He asked if I had a therapist, which I am in the process of finding, but I told him no. He told me he would listen if I needed to talk. He was like an angel from God for me. After blubbering through my first appt. I was thinking he must think I am a flake but he told me he is a Christian. So I feel even more comfortable with him. I know he won't judge me. He is a God send. I am on total disability and have Medicare and Medicaid Ins. Most PT in my area (except at the hospital) won't take my ins. Which is a damn shame seeing how someone in my position needs it very much. I didn't ask to be disabled and if it were up to me, I would be back being a hairdresser making good money. I was on several different anti-depressants, Zoloft worked good for me for a few yrs then I didn't seem to be getting any benefits from it. I have tried several different ones. At the moment I am not on any. I was feeling good last winter so I weaned myself off the anti-depressants. I have done real good up until this past month. I am not sure if I need meds again or if it is because of this long winter we are having. Possibly it is just the myofascial release. That is what I am hoping. I had accepted my disability, I thought, but then when I had to talk about it with my Physical Therapist, it all came back to me. I started to get so mad, with myself and the whole world. That is when I got on-line and found this group. I don't know if I will dare to have revision surgery, if I am even eligible. I have my appt with a specialist in April. I am hopeful that this Dr. will make me feel confident in him. I would like to go to Boston and have a second opinion if possible with a real flat-back specialist. That will be my next project, if Burlington thinks I should have surgery. I do not want to be another guinea pig. I hope I have helped you in some way. My experience with Darvacet was not good. I was in so much pain I could have taken 4 or possibly more and not feel any relief. I don't think it can begin to take care of the pain we are in. If we can't get relief from our pain, we get so tense. If we are too tense we can't sleep, if we don't get to Stage 4 sleep our bodies can't heal itself, which is what starts Fibromyalgia. It is a nasty cycle. We have to take good care of ourselves. I try to get 8-10 hrs sleep every night,I eat fruits and vegies and drink lots of water. I have just started walking in the morning at the mall. It's too cold outside. Even in the summer I like to walk at the mall because it is an even surface to walk on. I can't walk on the sidewalks up here. They are too uneven and in need of repair but we get too many frost heaves in the winter to help that. , I am going to include you in my thoughts and prayers. I am not affiliated with a church but I do believe in a Higher Power. God is the only thing that has kept me from totally cracking up. It is a natural part of grieving. We have lost our ability to function like others. It's ok to feel like you are losing it. WE have that right. I know a lot of people that could never have suffered as much as I have. We are strong and we have to remember that. We have to be here for our Kids and their Kids also. Please keep your chin up. I hope I have helped you somehow Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Dear , A rheumatologist would be able to evaluate whether you have fibromyalgia and perhaps, also determine if the meds you're currently taking are effective for the pain you're experiencing. I'm not in the medical profession, but if 4 Darvocet or more are not alleviating your symptoms, then maybe you need something else. Also, I wonder if you are getting a good night's sleep. Flexeril would help you sleep and relax those spasming muscles! And if you do have fibromyalgia, it's one of the drugs of choice! Please hang in there, . Your beautiful girls need their mother. And you need them. If you can get your pain under control and get some good sleep, I think you will feel much better physically and it may help lift your depression. Chronic pain is a funny thing - it really catches you in a vicious cycle. You have pain so you don't sleep, you don't sleep so you feel more pain. You were very courageous in writing about your feelings; writing is a great release. And who can understand better than those of us on this site - been there, done that? Hoping you get a good night's sleep, Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 Anela Congrats on your new addition!! Take it easy and rest for as long as your body needs to heal. In a few weeks or whatever your doctor says...when you can start back into exercising. Go slow. Don't twist the abs or have them do too much work right away. I myself have no kids, but I have had friends try to start back full throttle and end up with an abdominal hernia ( I think thats the right term). Hugs, a -- _______________________________________________ Find what you are looking for with the Lycos Yellow Pages http://r.lycos.com/r/yp_emailfooter/http://yellowpages.lycos.com/default.asp?SRC\ =lycos10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 Donna, I have the Langford tape as well. I wonder if he has done anything else. There is some potential in him to do quite a bit better. The girls DO distract me and thats why I hardly ever do the tape but it is a good alternative to Taebo on occassion. I need to get the energy back for kickboxing. I went to a class last week and barely made it through. I was just so drained. Of course it would be nice if my gym offered up some decent cardio on the weekends.....grrrrrr a -- _______________________________________________ Find what you are looking for with the Lycos Yellow Pages http://r.lycos.com/r/yp_emailfooter/http://yellowpages.lycos.com/default.asp?SRC\ =lycos10 Quote Link to comment Share on other sites More sharing options...
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