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Re: Digest Number 236

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Original Message:

Date: Thu, 19 Aug 1999 18:56:33 -0700 (PDT)

From: robert harris <raharris@...>

Subject: Welcome VRBrosky@...!

Welcome VRBrosky@... to the PA mailing list!!!

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  • 1 month later...

Reply re: Paxil and Brushing

Nellie,

Is this impulsivity/agitation as exhibited in climbing up ladders a new thing

for

your son? A couple of thoughts. There is sometimes an initial worsening of OCD

symptoms and agitation when a child begins an SSRI- it often predicts a " good

response " to the meds ultimately. Basically it means that the receptor sites

that

are being targetted are being reached, and after this initial adjustment, the

meds

should be useful. The concern, of course, is your child's safety during this

period- your son's doctor should make a recommendation about whether to change

meds or add something such as an anxiollytic- klonopin, xanax to temporarily

offset the agitation. Generally augmenting strategies such as adding Welbutrin

are not implemented until after the child has been on meds long enough to test

whether the initial drug is working at all (on average 12-19 weeks). This is a

very difficult juncture- on the one hand you may want to wait to give the Paxil

a

fair trial, on the other hand you have to weigh the degree of distress your

child

(and you) are experiencing. I hope your doctor can advise you in your next

steps.

Re: brushing

Brushing to reduce sensory integration dysfunction is a big commitment! Because

individual children's SI issues vary, your child's own OT is the best source,

but

information I have is that brushing should happen 4 times a day in order to

achieve desensitization. And that you want to apply as much pressure as the

child

can comfortably tolerate. Often kids with SI problems get " crazed " by light

touches, and this can make things worse, brushing with pressure is less

stimulating (good) and achieves the desired effect. Some OTs advocate using a

good strong hug pushing downward after you have done the brushing in place of

doing the joint compression. As with all specialties- there are many opinions

and

techniques. Best to all.

Tamar Chansky, Ph.D.

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  • 7 months later...
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Betts writes:

>

>I'm having problems with labeling my lip balm tubes. I used regular avery

>labels that I printed on the printer with information. When I pour my lip

>balm sometimes it spills and then the outside is oily>

You might want to check out the labels at www.rippedsheets.com . They have

several types of labels that are specially designed to be waterproof. It's

pretty cool. They work with either laser printers or ink jets, and even the

ink becomes smudgeproof after being printed. They just sent me samples and

I think I'm going to start using them! They'll even die-cut them to your

size for free. They aren't cheap but they seem worth it.

Rhonda in SB

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  • 3 months later...
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Dear :

For an initial lab screen of the thyroid, the TSH is not enough. You

need a full thyroid panel, which should include the TSH, T-3, T-7,

Thyroid Uptake, etc. This is just a start if the tests are abnormal, or

close to abnormal, there are other more indepth tests that should be

considered. But, if these are all " WNL " , (Within Normal Limits), then

you can pretty much say the thyroid is OK. The TSH is only good as a

partial monitoring after a diagnosis of thyroid disease is made. When

someone is stable on thyroid medication, the TSH may be enough to use a

regular follow up. The thyroid is a gland that, due it's hormonal

action, can affect multiple other glands and their hormonal secretions.

It can be a domino effect=if one falls, it can change many, if not all

other levels, so it's important that this be properly checked.

I think I posted once before that I believe you need someone that

will take responsibility for coordination of all your care, and even

then, you should stay on top of it. Otherwise, you might wind up in

severe trouble. If you want to discuss more details, please email me

direct- 2byteme@.... Marty

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Dear :

For an initial lab screen of the thyroid, the TSH is not enough. You

need a full thyroid panel, which should include the TSH, T-3, T-7,

Thyroid Uptake, etc. This is just a start if the tests are abnormal, or

close to abnormal, there are other more indepth tests that should be

considered. But, if these are all " WNL " , (Within Normal Limits), then

you can pretty much say the thyroid is OK. The TSH is only good as a

partial monitoring after a diagnosis of thyroid disease is made. When

someone is stable on thyroid medication, the TSH may be enough to use a

regular follow up. The thyroid is a gland that, due it's hormonal

action, can affect multiple other glands and their hormonal secretions.

It can be a domino effect=if one falls, it can change many, if not all

other levels, so it's important that this be properly checked.

I think I posted once before that I believe you need someone that

will take responsibility for coordination of all your care, and even

then, you should stay on top of it. Otherwise, you might wind up in

severe trouble. If you want to discuss more details, please email me

direct- 2byteme@.... Marty

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Dear :

I am writing as your messages were posted. I would not suggest your

taking, at this point, anything that is not related to your treatments.

If you go on the combo, you will probably get a degree of allopecia=hair

loss. As a male that has shot the whole genetic hair loss theory down,

(mother's father died with a full head of hair at 96), I can understand

being upset. If it really is something that is going to cause stress, I

would suggest you try a wig, or a hair weave.

With your thyroid function unknown, and there being other

possibilities that are unknown, adding anything else may not be in your

best interests. Some people experience different effects of medications,

(prescribed, over the counter, and herbal), then when they are not

taking the combo. If you add an unknown to this whole thing, and some

type of reaction occurs, you'll have a very hard time determining, or

may never know, what caused what. Also, thyroid disease can cause hair

loss.

The hair loss usually does not become significant until 3-4 months

into therapy, so at least wait until you are stabilized on therapy, your

labs have stabilized, and you get a better idea of how things affect

you. I believe it is in your best interests to wait, see how you are

doing, and then, if you still want to, explore other items. Marty

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Dear :

I am writing as your messages were posted. I would not suggest your

taking, at this point, anything that is not related to your treatments.

If you go on the combo, you will probably get a degree of allopecia=hair

loss. As a male that has shot the whole genetic hair loss theory down,

(mother's father died with a full head of hair at 96), I can understand

being upset. If it really is something that is going to cause stress, I

would suggest you try a wig, or a hair weave.

With your thyroid function unknown, and there being other

possibilities that are unknown, adding anything else may not be in your

best interests. Some people experience different effects of medications,

(prescribed, over the counter, and herbal), then when they are not

taking the combo. If you add an unknown to this whole thing, and some

type of reaction occurs, you'll have a very hard time determining, or

may never know, what caused what. Also, thyroid disease can cause hair

loss.

The hair loss usually does not become significant until 3-4 months

into therapy, so at least wait until you are stabilized on therapy, your

labs have stabilized, and you get a better idea of how things affect

you. I believe it is in your best interests to wait, see how you are

doing, and then, if you still want to, explore other items. Marty

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Dear Suzy:

What is your genotype? That will determine how long treatment should

be. If you are 1a or b, it is 48 weeks, if tolerated, no question. The

other genotypes have some good guidelines, but, it is necessary to know

where you are. At the 22 week mark, I would have another viral load

done. If undetectable, and you are not 1a or b, you probably will stop

at 24 weeks. There is no general reasons to go for more, again based on

many factors.

If you are 1a or b, your HMO should not give you a hassel about

another 24 weeks, because it's the accepted standard. If you need to, we

can talk about how to deal with them if there are issues. I would not

skip any time if possible, but, 1 week is about all. If you stay off any

length of time, and could benefit, you chance quasispecies, or

resistance. It's not worth the chance.

If you want a list of articles, let me know your genotype, and if

you had a biopsy, the results, as well as your last viral load, and I'll

be glad to get some current info for you. Marty

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Dear Suzy:

What is your genotype? That will determine how long treatment should

be. If you are 1a or b, it is 48 weeks, if tolerated, no question. The

other genotypes have some good guidelines, but, it is necessary to know

where you are. At the 22 week mark, I would have another viral load

done. If undetectable, and you are not 1a or b, you probably will stop

at 24 weeks. There is no general reasons to go for more, again based on

many factors.

If you are 1a or b, your HMO should not give you a hassel about

another 24 weeks, because it's the accepted standard. If you need to, we

can talk about how to deal with them if there are issues. I would not

skip any time if possible, but, 1 week is about all. If you stay off any

length of time, and could benefit, you chance quasispecies, or

resistance. It's not worth the chance.

If you want a list of articles, let me know your genotype, and if

you had a biopsy, the results, as well as your last viral load, and I'll

be glad to get some current info for you. Marty

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Dear Suzy:

Keep a log with at least 3 notations everyday, such as morning, noon

and night. Add to that, in the morning, how you slept and felt upon

wakening, the weather, and any other information. Then rate the tinnitis

on a scale of 1-10, with 1 being nothing and 10 being the worst

possible. For the noon one, add short notations on what you did during

the morning, the weather, and any other influences, eg: boss came down

on me, bad morning with kids/husband etc., and again do the 1-10 scale.

The night should be the same info used in the noon one, and reverse the

morning, eg: house was a mess, kids not doing homework, etc., and 1-10

scale. Don't look at what you wrote daily, just go week by week, or that

could tense you up.

Other things to note is whether you were sitting, standing, reaching

etc., for any period of time. Did you have intercourse and did that

change anything? Did you have trouble sleeping, or falling asleep?

Remember you are looking for any pattern, which may not be as obvious

until you see that at such and such times, or dates, when you felt, or

did, the same or similar things, the pain was worse, and if you did

certain things, it got better. What may sound stupid at first, may not

be so when you find there is a pattern.

After a week or 2, you can try some relaxation exercises, hot baths,

etc., and see if that changes the 1-10 scale. Write down any meds taken,

and anything else, no matter how ridiculous it may sound at the time, in

the journal.

THis is a good place to start, and then, take it to the next step if

needed. Let me know if I can help with anything else. Marty

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Dear Suzy:

Keep a log with at least 3 notations everyday, such as morning, noon

and night. Add to that, in the morning, how you slept and felt upon

wakening, the weather, and any other information. Then rate the tinnitis

on a scale of 1-10, with 1 being nothing and 10 being the worst

possible. For the noon one, add short notations on what you did during

the morning, the weather, and any other influences, eg: boss came down

on me, bad morning with kids/husband etc., and again do the 1-10 scale.

The night should be the same info used in the noon one, and reverse the

morning, eg: house was a mess, kids not doing homework, etc., and 1-10

scale. Don't look at what you wrote daily, just go week by week, or that

could tense you up.

Other things to note is whether you were sitting, standing, reaching

etc., for any period of time. Did you have intercourse and did that

change anything? Did you have trouble sleeping, or falling asleep?

Remember you are looking for any pattern, which may not be as obvious

until you see that at such and such times, or dates, when you felt, or

did, the same or similar things, the pain was worse, and if you did

certain things, it got better. What may sound stupid at first, may not

be so when you find there is a pattern.

After a week or 2, you can try some relaxation exercises, hot baths,

etc., and see if that changes the 1-10 scale. Write down any meds taken,

and anything else, no matter how ridiculous it may sound at the time, in

the journal.

THis is a good place to start, and then, take it to the next step if

needed. Let me know if I can help with anything else. Marty

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Dear Dee Dee:

The past is the past, and no one knew. The sex, drugs and rock and

roll age was fun, but, that was then, and you have to deal with now. If

you gave tainted blood, you are probably one of the thousands that did,

and you did not know. Maybe the blood was used, or maybe not, you'll

never know, and can not do anything about it now. So don't beat yourself

up about it, it doesn't help you, or anyone else. Besides, maybe your

blood was what saved someone's life, and they either never got the

virus, or were placed into full remission. Think positive.

As I say to many of my patients, if I could go into the future by 5

years, then return, I could then tell them what they should do. But, we

can not, and all anyone can do is work with the best information

available today, and not play the " what if " game. It won't change

anything except give you more stress, without any changes-so don't beat

yourself up over something you never knew about, nor intended any

problems with. That's the past, and can not be changed, so live for the

present and future. Marty

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Dear Dee Dee:

The past is the past, and no one knew. The sex, drugs and rock and

roll age was fun, but, that was then, and you have to deal with now. If

you gave tainted blood, you are probably one of the thousands that did,

and you did not know. Maybe the blood was used, or maybe not, you'll

never know, and can not do anything about it now. So don't beat yourself

up about it, it doesn't help you, or anyone else. Besides, maybe your

blood was what saved someone's life, and they either never got the

virus, or were placed into full remission. Think positive.

As I say to many of my patients, if I could go into the future by 5

years, then return, I could then tell them what they should do. But, we

can not, and all anyone can do is work with the best information

available today, and not play the " what if " game. It won't change

anything except give you more stress, without any changes-so don't beat

yourself up over something you never knew about, nor intended any

problems with. That's the past, and can not be changed, so live for the

present and future. Marty

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Marty

I am 1 b will send you the results of the lab work later, may have to

convince my GI doc of going 48 weeks however. Thanks talk to you later

Suzy

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--- Suzy Balone <suzybalone@...> wrote:

> I am 1 b will send you the results of the lab work

> later, may have to

> convince my GI doc of going 48 weeks however.

Dear Suzy,

Are you PCR undetectable? If so, I can't believe

any doctor would want to stop you, a 1b, at 24 weeks!

That would only lead to relapse. If this is the

situation, there is a lot of literature that clearly

states that genotype 1b's should do 48 weeks. If you

are NOT undetectable, then it is pointless to continue

treatment unless your only goal is to improve the

condition of your liver. If that is your goal you

might want to talk to your doctor about that, and

discontinue the ribavirin, since it is the interferon

helping the liver. There is also literature supporting

this thought.

If you are not undetectable by now, the chance of

becoming undetectable following the same treatment

protocol you are on now is very, very slim. I hate

saying that, but it is the truth. I know, I've been

there myself, and being a 'non-responder' myself, I

read everything I can get my hands on that even

remotely pertains to non-responders, and genotype 1b.

A more aggressive approach and a change to another

interferon MIGHT help, such as daily high dosing with

Infergen. Or, what I plan on, waiting for the Roche

version of pegylated interferon.

I sure hope that I wrote all that for nothing and

you are really undetectable!!!

Take care

=====

Claudine

claudinecrews@...

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--- Suzy Balone <suzybalone@...> wrote:

> I am 1 b will send you the results of the lab work

> later, may have to

> convince my GI doc of going 48 weeks however.

Dear Suzy,

Are you PCR undetectable? If so, I can't believe

any doctor would want to stop you, a 1b, at 24 weeks!

That would only lead to relapse. If this is the

situation, there is a lot of literature that clearly

states that genotype 1b's should do 48 weeks. If you

are NOT undetectable, then it is pointless to continue

treatment unless your only goal is to improve the

condition of your liver. If that is your goal you

might want to talk to your doctor about that, and

discontinue the ribavirin, since it is the interferon

helping the liver. There is also literature supporting

this thought.

If you are not undetectable by now, the chance of

becoming undetectable following the same treatment

protocol you are on now is very, very slim. I hate

saying that, but it is the truth. I know, I've been

there myself, and being a 'non-responder' myself, I

read everything I can get my hands on that even

remotely pertains to non-responders, and genotype 1b.

A more aggressive approach and a change to another

interferon MIGHT help, such as daily high dosing with

Infergen. Or, what I plan on, waiting for the Roche

version of pegylated interferon.

I sure hope that I wrote all that for nothing and

you are really undetectable!!!

Take care

=====

Claudine

claudinecrews@...

__________________________________________________

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Hi Marty and All,

Staying positive and putting the past into the past isn't easy when the

first question that comes out of people's mouths when you disclose you have

hcv is " How did you get it? " I share in Foxes anger and frustration

on this whole thing. I appreciate your comments and all the advise I've

received.......Dee Dee

>From: 2byteme@...

>Reply-Hepatitis Cegroups

>Hepatitis Cegroups

>Subject: Re: Digest Number 236

>Date: Sun, 30 Jul 2000 00:55:50 -0400

>

>Dear Dee Dee:

> The past is the past, and no one knew. The sex, drugs and rock and

>roll age was fun, but, that was then, and you have to deal with now. If

>you gave tainted blood, you are probably one of the thousands that did,

>and you did not know. Maybe the blood was used, or maybe not, you'll

>never know, and can not do anything about it now. So don't beat yourself

>up about it, it doesn't help you, or anyone else. Besides, maybe your

>blood was what saved someone's life, and they either never got the

>virus, or were placed into full remission. Think positive.

> As I say to many of my patients, if I could go into the future by 5

>years, then return, I could then tell them what they should do. But, we

>can not, and all anyone can do is work with the best information

>available today, and not play the " what if " game. It won't change

>anything except give you more stress, without any changes-so don't beat

>yourself up over something you never knew about, nor intended any

>problems with. That's the past, and can not be changed, so live for the

>present and future. Marty

>

>

________________________________________________________________________

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Guest guest

Hi Marty and All,

Staying positive and putting the past into the past isn't easy when the

first question that comes out of people's mouths when you disclose you have

hcv is " How did you get it? " I share in Foxes anger and frustration

on this whole thing. I appreciate your comments and all the advise I've

received.......Dee Dee

>From: 2byteme@...

>Reply-Hepatitis Cegroups

>Hepatitis Cegroups

>Subject: Re: Digest Number 236

>Date: Sun, 30 Jul 2000 00:55:50 -0400

>

>Dear Dee Dee:

> The past is the past, and no one knew. The sex, drugs and rock and

>roll age was fun, but, that was then, and you have to deal with now. If

>you gave tainted blood, you are probably one of the thousands that did,

>and you did not know. Maybe the blood was used, or maybe not, you'll

>never know, and can not do anything about it now. So don't beat yourself

>up about it, it doesn't help you, or anyone else. Besides, maybe your

>blood was what saved someone's life, and they either never got the

>virus, or were placed into full remission. Think positive.

> As I say to many of my patients, if I could go into the future by 5

>years, then return, I could then tell them what they should do. But, we

>can not, and all anyone can do is work with the best information

>available today, and not play the " what if " game. It won't change

>anything except give you more stress, without any changes-so don't beat

>yourself up over something you never knew about, nor intended any

>problems with. That's the past, and can not be changed, so live for the

>present and future. Marty

>

>

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

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Guest guest

Hi Marty and All,

Staying positive and putting the past into the past isn't easy when the

first question that comes out of people's mouths when you disclose you have

hcv is " How did you get it? " I share in Foxes anger and frustration

on this whole thing. I appreciate your comments and all the advise I've

received.......Dee Dee

>From: 2byteme@...

>Reply-Hepatitis Cegroups

>Hepatitis Cegroups

>Subject: Re: Digest Number 236

>Date: Sun, 30 Jul 2000 00:55:50 -0400

>

>Dear Dee Dee:

> The past is the past, and no one knew. The sex, drugs and rock and

>roll age was fun, but, that was then, and you have to deal with now. If

>you gave tainted blood, you are probably one of the thousands that did,

>and you did not know. Maybe the blood was used, or maybe not, you'll

>never know, and can not do anything about it now. So don't beat yourself

>up about it, it doesn't help you, or anyone else. Besides, maybe your

>blood was what saved someone's life, and they either never got the

>virus, or were placed into full remission. Think positive.

> As I say to many of my patients, if I could go into the future by 5

>years, then return, I could then tell them what they should do. But, we

>can not, and all anyone can do is work with the best information

>available today, and not play the " what if " game. It won't change

>anything except give you more stress, without any changes-so don't beat

>yourself up over something you never knew about, nor intended any

>problems with. That's the past, and can not be changed, so live for the

>present and future. Marty

>

>

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

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Guest guest

Hi Marty and All,

Staying positive and putting the past into the past isn't easy when the

first question that comes out of people's mouths when you disclose you have

hcv is " How did you get it? " I share in Foxes anger and frustration

on this whole thing. I appreciate your comments and all the advise I've

received.......Dee Dee

>From: 2byteme@...

>Reply-Hepatitis Cegroups

>Hepatitis Cegroups

>Subject: Re: Digest Number 236

>Date: Sun, 30 Jul 2000 00:55:50 -0400

>

>Dear Dee Dee:

> The past is the past, and no one knew. The sex, drugs and rock and

>roll age was fun, but, that was then, and you have to deal with now. If

>you gave tainted blood, you are probably one of the thousands that did,

>and you did not know. Maybe the blood was used, or maybe not, you'll

>never know, and can not do anything about it now. So don't beat yourself

>up about it, it doesn't help you, or anyone else. Besides, maybe your

>blood was what saved someone's life, and they either never got the

>virus, or were placed into full remission. Think positive.

> As I say to many of my patients, if I could go into the future by 5

>years, then return, I could then tell them what they should do. But, we

>can not, and all anyone can do is work with the best information

>available today, and not play the " what if " game. It won't change

>anything except give you more stress, without any changes-so don't beat

>yourself up over something you never knew about, nor intended any

>problems with. That's the past, and can not be changed, so live for the

>present and future. Marty

>

>

________________________________________________________________________

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Dee Dee

My husband shares your frustration about the same question how did you get

it? He also donated blood not knowing if he had the Hep C at the time. He

and his dad donated blood every month from the age of 16 years old until he

was 28 and he is 41 now. He has found a way to live with it now but felt

really guilty about maybe passing it on that way not knowing he had it since

we do not know how long he has had it. He hadn't given blood since they

started the testing they do on the blood when in 89 or 92 I can't remember

the year now. Who cares how you got it - the main issue is to take care of

it now the best you can. I know it is easy for me to say but you are under

enough stress to add that one to it and stress is one of the worse things for

this disease. Stay potitive!!

Winne

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Dee Dee

My husband shares your frustration about the same question how did you get

it? He also donated blood not knowing if he had the Hep C at the time. He

and his dad donated blood every month from the age of 16 years old until he

was 28 and he is 41 now. He has found a way to live with it now but felt

really guilty about maybe passing it on that way not knowing he had it since

we do not know how long he has had it. He hadn't given blood since they

started the testing they do on the blood when in 89 or 92 I can't remember

the year now. Who cares how you got it - the main issue is to take care of

it now the best you can. I know it is easy for me to say but you are under

enough stress to add that one to it and stress is one of the worse things for

this disease. Stay potitive!!

Winne

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  • 4 months later...

<<

Ozonated water is not the same as H2O2; it loses its special 'ozonated

water' status and becomes the same within minutes of making it.

>>

Duncan...what is the difference between ozanated water and oxygenated water?

I'm feeling confused.

Thanks.....Kiasi

Hello Kiasi;

Oxygenated water is good for you, but ozonated water and peroxide have

magnitudes more oxygen in them. And the reactive nature of the O1 as it's

freed from the peroxide, leaving water, or the O1 splitting off the Ozone

(O3), leaving oxygen (O2) makes it a better choice for it may combine with

another O1, making O2, or may react with a pathogen, disabling or killing it

along the way..

ciao

Duncan

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  • 5 months later...
Guest guest

Dear Diane,

Now I am more in awe of you than ever! I can't believe how wise and

wonderful and quick your response to that ignorant teacher was on the field

trip!!!! I really wish I could not only think of such a good reply so fast

but also act so decisively in regards to pulling my son from a bad

situation! I hate to rock the boat plus I am a very indecisive person in

most areas so making decisions with regards to Micah's education (and even

my other son's education as well!) is difficult. Our iep meeting is

tomorrow morning at eight am. If I knew what was best for him I think I

could be more firm, but I don't really know. Bravo again for giving the

best message to your boys.....I love you just the way you are! Have you

seen or read the picture book " Ilove you the Purplest " ........I cried in the

bookstore the first time I read it.......just like I did when I read your

post about your reply. Thanks for sharing it! Cheers, Carol

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Bruce,

blueberries, raspberries and prunes all have low glycemic responses. Prunes

are the number one natural antioxidant food in the studies, blueberries come

very high on the list. There are glycemic lists on the net so that you could

select your fruit consumption accordingly. Maybe combine it with a few nuts

to lower the glycemic spike.

http://www.mendosa.com/gilists.htm has a good index that many people use,

filled with info on quantities, what GI is etc etc.. here's the listing for

fruit.

Food-based list:

FRUIT AND FRUIT PRODUCTS

Cherries 32 22

Grapefruit 36 25

Apricots, dried 44 31

Pear, fresh 53 37

Apple 54 38

Plum 55 39

Apple juice 58 41

Peach, fresh 60 42

Orange 63 44

Pear, canned 63 44

Grapes 66 46

Pineapple juice 66 46

Peach, canned 67 47

Grapefruit juice 69 48

Orange juice 74 52

Kiwifruit 75 53

Banana 77 54

Fruit cocktail 79 55

Mango 80 56

Sultanas 80 56

Apricots, fresh 82 57

Pawpaw 83 58

Apricots, canned, syrup 91 64

Raisins 91 64

Rockmelon (muskmelon, cantaloupe) 93 65 [usually called cantaloupe in the

U.S.]

Pineapple 94 66

Watermelon 103 72

Blueberries aren't on it, nor raspberries. I will look them up for you.

MM

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