Re: Digest Number 250

[Guest guest]

PINCKSTER:

Sporanox is a trade name for itraconazole, a systemic antifungal. Its use during

pregnancy may be associated with birth defects. I did not find much direct

informations effectiveness as a treatment for aspergillosis. One reference did

state that, " Treatment of invasive aspergillosis is frequently unsuccessful, so

innovations in therapy are needed. "

Kay Yeuell

[Guest guest]

Hi Rege

I live about 45 miles southeast of Pittsburgh and go there to see my

rheumatologist. She is affiliated with AGH.

[Guest guest]

and Rege,

Just wanted to throw in that we are also in W. PA - - 40 north of

PGH. My husband -49 , is the one with PA - about 3 years diagnosed -

had many of the problems for a decade before that. He also has a sister

and 5 first cousins who have PA. I teach in the North Hills, DH has an

'early retirement' from the severity of the PA - and tends to things

around the house -cooks, etc. We put in a decent sized garden and that

helps out, but he surely can't do all the things he planned due to the

PA.

Do any others have cousins etc with PA?

Jan

DENISE OHR wrote:

>

> From: DEE777@... (DENISE OHR)

>

> Hi Rege

> I live about 45 miles southeast of Pittsburgh and go there to see my

> rheumatologist. She is affiliated with AGH.

>

> ---------------------------

[Guest guest]

>>Do any others have cousins etc with PA?

Jan<<<

HI Jan,

I had a grandfather with PA and I have a first cousin with P and

maybe PA. She has had surgery done on her knee. She was in her

teens at that time. But these two are not from the same side of

the family. One is my moms father and the other my dads niece!

On my dads side - Great aunt with MS, Great Aunt Lupus,

grandmother with Fibromyalga and RA, cousin P maybe PA, father

some sort of arthritis.

Moms side - My mom has RA, Sjogrens, Fibromyalga, Her dad had

PA, her mom had a lot of problems including severe diabetes.

That's all I know!

Lee Ann

[Guest guest]

dear jan,

how long did it take your husband to get on total disability, after he was

diagnosed?

my dr. mentioned my retirement in passing the other day, so i have been

giving it some thought, but don't know, to what degree social security

considers disabled for people with pa??

if it's not much trouble, could you fill me in on what it took to get on

disability and to what degree of pain does one have to be in to get there.

thank you in advance for yor advice.

tnx

pat

[Guest guest]

hi again jan,

i forgot to answer your question about family members with p.

there are 4 of us boys, two of us have p, i am only one with pa.

none of our children have it yet thank god.

i have a cousin with psoriasis and 1 of his boys has p also.

then i have a cousin, whos husband has p, still i am only one so far with pa

symptoms???

nice to hear others historys so that i do not feel alone with this terrible

problem

hope you have a great day

pat

[Guest guest]

My husband didn't get any disability at this point - he just resigned

his position during a particularly desperate moment... his doctor had

wanted him to apply for disability - he was VERY involved in the PA

right then - both feet swollen - using crutches, sleeping erratically -

but Chet is determined that he won't do it for it won't be 'granted'. I

think it is all part of a stage of denial about the PA that he is in.

I do know that some others on the list are on disability - so maybe they

will respond.

Jan

PShaw86345@... wrote:

>

> From: PShaw86345@...

>

> dear jan,

> how long did it take your husband to get on total disability, after he was

> diagnosed?

> my dr. mentioned my retirement in passing the other day, so i have been

> giving it some thought, but don't know, to what degree social security

> considers disabled for people with pa??

> if it's not much trouble, could you fill me in on what it took to get on

> disability and to what degree of pain does one have to be in to get there.

> thank you in advance for yor advice.

> tnx

> pat

>

> ---------------------------

[Guest guest]

Yes, please send me your suggestions on reinvestations. Thank you, Neal

[Guest guest]

AVansi7465@ This is for Anne,

I have went down 9 sizes, I am

going on treatments now for 2 full years, Nov. will be my time to stop. My

first Doc. made a very big mistake with me, and messed up my treatments, I

did respond after 3 months, and he took me off and said I was in remission, I

got re-tested and after 3 more months the viral load was doubled, I found a

very good hepo. doctor who works with me. It took some time to get back to 0,

so we decided to stay on it a little longer at a smaller dose, he feels the

longer your on, the better for remission, hope he is right. Now for the

weight, I have a major problem eating, the doctor called it wasting syndrome,

because I have lost so much weight, as for the meds, that does not seem to be

a problem, they do have a print out with the meds, as to how much to take as

to your weight, Good luck, if you any help, please feel free to e-mail me. I

am just about 100 pounds, and did take the full dose, now I take 2.5x2 and .3

x1. Just the normal problems with having this virus.

This is for ,

I have the Marino, really don't work for me and my

stomach, seems to just make you over eat, a false hunger. Then you eat to

much and your stomach starts to hurt, sometimes you just can't win. I do take

stomach pills, compazine works pretty well. As for the itching, I also have

that, seems I have it all, my doctor gave me HYDROXZINE 25mg. every 8 hours,

it really works. It is a prescription, ask your doctor. My doctor did say it

is not bad for the liver. Let me know if it works, Good Luck. Anything else,

please feel free to e-mail me.

[Guest guest]

AVansi7465@ This is for Anne,

I have went down 9 sizes, I am

going on treatments now for 2 full years, Nov. will be my time to stop. My

first Doc. made a very big mistake with me, and messed up my treatments, I

did respond after 3 months, and he took me off and said I was in remission, I

got re-tested and after 3 more months the viral load was doubled, I found a

very good hepo. doctor who works with me. It took some time to get back to 0,

so we decided to stay on it a little longer at a smaller dose, he feels the

longer your on, the better for remission, hope he is right. Now for the

weight, I have a major problem eating, the doctor called it wasting syndrome,

because I have lost so much weight, as for the meds, that does not seem to be

a problem, they do have a print out with the meds, as to how much to take as

to your weight, Good luck, if you any help, please feel free to e-mail me. I

am just about 100 pounds, and did take the full dose, now I take 2.5x2 and .3

x1. Just the normal problems with having this virus.

This is for ,

I have the Marino, really don't work for me and my

stomach, seems to just make you over eat, a false hunger. Then you eat to

much and your stomach starts to hurt, sometimes you just can't win. I do take

stomach pills, compazine works pretty well. As for the itching, I also have

that, seems I have it all, my doctor gave me HYDROXZINE 25mg. every 8 hours,

it really works. It is a prescription, ask your doctor. My doctor did say it

is not bad for the liver. Let me know if it works, Good Luck. Anything else,

please feel free to e-mail me.

[Guest guest]

AVansi7465@ This is for Anne,

I have went down 9 sizes, I am

going on treatments now for 2 full years, Nov. will be my time to stop. My

first Doc. made a very big mistake with me, and messed up my treatments, I

did respond after 3 months, and he took me off and said I was in remission, I

got re-tested and after 3 more months the viral load was doubled, I found a

very good hepo. doctor who works with me. It took some time to get back to 0,

so we decided to stay on it a little longer at a smaller dose, he feels the

longer your on, the better for remission, hope he is right. Now for the

weight, I have a major problem eating, the doctor called it wasting syndrome,

because I have lost so much weight, as for the meds, that does not seem to be

a problem, they do have a print out with the meds, as to how much to take as

to your weight, Good luck, if you any help, please feel free to e-mail me. I

am just about 100 pounds, and did take the full dose, now I take 2.5x2 and .3

x1. Just the normal problems with having this virus.

This is for ,

I have the Marino, really don't work for me and my

stomach, seems to just make you over eat, a false hunger. Then you eat to

much and your stomach starts to hurt, sometimes you just can't win. I do take

stomach pills, compazine works pretty well. As for the itching, I also have

that, seems I have it all, my doctor gave me HYDROXZINE 25mg. every 8 hours,

it really works. It is a prescription, ask your doctor. My doctor did say it

is not bad for the liver. Let me know if it works, Good Luck. Anything else,

please feel free to e-mail me.

[Guest guest]

AVansi7465@ This is for Anne,

I have went down 9 sizes, I am

going on treatments now for 2 full years, Nov. will be my time to stop. My

first Doc. made a very big mistake with me, and messed up my treatments, I

did respond after 3 months, and he took me off and said I was in remission, I

got re-tested and after 3 more months the viral load was doubled, I found a

very good hepo. doctor who works with me. It took some time to get back to 0,

so we decided to stay on it a little longer at a smaller dose, he feels the

longer your on, the better for remission, hope he is right. Now for the

weight, I have a major problem eating, the doctor called it wasting syndrome,

because I have lost so much weight, as for the meds, that does not seem to be

a problem, they do have a print out with the meds, as to how much to take as

to your weight, Good luck, if you any help, please feel free to e-mail me. I

am just about 100 pounds, and did take the full dose, now I take 2.5x2 and .3

x1. Just the normal problems with having this virus.

This is for ,

I have the Marino, really don't work for me and my

stomach, seems to just make you over eat, a false hunger. Then you eat to

much and your stomach starts to hurt, sometimes you just can't win. I do take

stomach pills, compazine works pretty well. As for the itching, I also have

that, seems I have it all, my doctor gave me HYDROXZINE 25mg. every 8 hours,

it really works. It is a prescription, ask your doctor. My doctor did say it

is not bad for the liver. Let me know if it works, Good Luck. Anything else,

please feel free to e-mail me.

[Guest guest]

This is for Anne,

What kind of red spots are you talking about? Little

tiny ones? If yes, I get them from the sun, and does peroxide take them away?

Thanks

[Guest guest]

This is for Anne,

What kind of red spots are you talking about? Little

tiny ones? If yes, I get them from the sun, and does peroxide take them away?

Thanks

[Guest guest]

This is for Anne,

What kind of red spots are you talking about? Little

tiny ones? If yes, I get them from the sun, and does peroxide take them away?

Thanks

[Guest guest]

This is for Anne,

What kind of red spots are you talking about? Little

tiny ones? If yes, I get them from the sun, and does peroxide take them away?

Thanks

[Guest guest]

The lurker is here!!! I have been trying the last few weeks to read the list

every day or at least fly by!! Can you believe is now 22 yrs old? Of

course I was only 10 yrs when I had her!!!

She is in her last year of public school, YEAH!!! or depending on job

situations! I understand that most of the young adults really miss school

even though they love their jobs. has a young adult friend with DS

who has been working for two years and he told me he would love to go back to

school even part time, he misses everyone and feels he has a lot to offer in

the career class as to the " real world " . I agree he does.

emailed him tonight to ask him to movies and dinner at our house this

Saturday!

Diane please email me and I am sure someone will direct you to the Teen list,

which has other parents of 20 or so on there.

I can tell you that the DS listserve and this listserv gave me more knowledge

and information and support than the DS Support groups we were involved with.

However, I think they are VITAL when you have a new baby and young ones.

Rejoice!

Amie

[Guest guest]

AmieBell,

This is Carolyn and I e-mailed Diane privately and sent her the addy to

the Teen group , Like you I have benefited from this list as well as the Teen

list.

Carolyn - Mom to Darran 18 (DS) & Krystal 15 (NDS)

Tennessee

Re: Digest Number 250

The lurker is here!!! I have been trying the last few weeks to read the list

every day or at least fly by!! Can you believe is now 22 yrs old? Of

course I was only 10 yrs when I had her!!!

She is in her last year of public school, YEAH!!! or depending on job

situations! I understand that most of the young adults really miss school

even though they love their jobs. has a young adult friend with DS

who has been working for two years and he told me he would love to go back to

school even part time, he misses everyone and feels he has a lot to offer in

the career class as to the " real world " . I agree he does.

emailed him tonight to ask him to movies and dinner at our house this

Saturday!

Diane please email me and I am sure someone will direct you to the Teen list,

which has other parents of 20 or so on there.

I can tell you that the DS listserve and this listserv gave me more knowledge

and information and support than the DS Support groups we were involved with.

However, I think they are VITAL when you have a new baby and young ones.

Rejoice!

Amie

[Guest guest]

In a message dated 6/18/01 10:24:28 AM Pacific Daylight Time,

writes:

>

> I'm curious about this question too. I never belonged to the " orange team "

> or the " green team " lol, and have never, ever since day one had " the "

> problem. (Gladly I might add ) )

> I wonder if maybe my body absorbs just as it always did. Doesn't really

> matter what I eat. Life is normal except for the amount I can consume at any

> given time. Could this be why I lose slowly???? Maybe I'm not

> mal-absorbing?????

> Rosemary Locklear

>

____________________________________________________________________

Rosemary

I too do not belong to the orange or green teams and never have. With all

this talk about the " orange team " I was thinking also that maybe Dr.R did not

bypass very much on me since I am not a member. I too am a slow looser. I

only had about 95lb to loose. I know it does not sound like alot to some of

you, but to me it was like climbing Mt. Everest. I have only lost 50lb. in

almost 6 months. But, maybe loosing 1/2 my weight in 6 months is about

right...

Guess what will be will be. My biggest problem is that I am allergic to

exercise!!

Joni

231/181/138...hoping

[Guest guest]

Hi..

I sent a post to this site a few days ago, but haven't seen it yet. Maybe I

replied to an individual's post rather than sending it to the list ???

Anyway, my name is Sara and I'm in the beginning stages of research. I have

subscribed to several of the Bandster lists, including the insurance one so

most of my questions should get answered. One question thcomes up after

reading the " frisky " posts is this...

Is there a better spot for having the port installed over another? I have

read about 2 locations so far. One mid-chest, and the other to the left of

the navel in the abdomen. I know the port id held in place by 4 sutures, but

will having wild crazy sex undo the sutures if the port is located in the

abdomen?

Another question - Regarding fills - some people have mentioned having a

fleuroscopy (?) done at the time of the fill to insure that the saline

solution goes into the port and doesn't miss the mark. I realize this

procedure would be more expensive, but I would think it would be worth it to

prevent the possibility of having the band itself punctured and then having

to have the surgery done all over again at my expense. Any experience or

comments on this?

Cheers,

Sara in Port Angeles

[Guest guest]

In a message dated 1/2/2003 6:56:51 AM Eastern Standard Time,

writes:

> Also, is baby aspirin a small enough dosage, or can someone recommend a

> specific OTC brand, I'd like to start taking some too? Thanks, Doug

>

>

Doug, any brand of aspirin is okay as long as it's 81 mgs.

[Guest guest]

>This has given me endless problems in the

>last couple of years and I'd really like to know what I can do to

>make things better. Any input would be appreciated.

I don't think I'm going to be much help. When I found out I was allergic to

aspirin type drugs in my late teens I simply avoided painkillers, sleeping

off headaches when I can and being miserable at other times. I found it got

easier to cope with the pain. Most of my headaches were sinus in origin - I

very rarely get normal type headaches - although the sinus headaches were

akin to migraines. In the early days I did take paracetomol but a couple of

reactions to that meant I stayed clear of anything not cleared by my doctor

AND pharmacist.

The weird thing is that now I'm taking four aspirin tablets a day they

don't work as painkillers and I have to take paracetomol and/or codeine to

cope with toothache etc. I won't take anything if my peak flow is low or I

feel vulnerable - emotional, too many samters symptoms, etc.

all the best,

Beverley

http://members.ozemail.com.au/~beverleypaine

Homeschool Australia & FAQ

Unschool~Kidz!

Children's Author

Bungala Ridge Permaculture Gardens & FAQ

**Submissions for the Autumn Issue of UNSCHOOL~KIDZ now open**

- contributions from homeschooling and unschooling children required

Send a stamped self addressed envelope for

HOMESCHOOL TODAY!

information on beginning homeschooling:

B Paine, PO Box 371 Yankalilla SA 5203

" War never decides who is right, only who is left. "

[Guest guest]

,

I'm so excited for you and appreciate the great news.

Your surgery date is very close and means you are on

the way to hearing. Everything went thru very quickly

for you which is really great too.

I especially felt good with your comments about CI

Hear. I want you to know how much those comments

meant to me and look forward to reading more from you

as your journey begins and takes you to many wonderful

places because this hearing world is full of beautiful

sounds.

Alice

[Guest guest]

On Sunday, March 23, 2003, at 08:26 AM,

spinaldisorderssupport wrote:

> spineonline.com and spineuniverse.com and back.com

[Guest guest]

On Sunday, March 23, 2003, at 08:26 AM,

spinaldisorderssupport wrote:

> spineonline.com and spineuniverse.com and back.com