Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 Fania, Congratulations on the Parliament invitation!!! Hey, you can say a LOT in 7 minutes! Let us know how that goes. Boy, my heart just breaks for your son! I " think " the one good thing with my 14.5 yr old is that he just doesn't realize he's different. He knows we (family) say he is but he seems to think we are wrong! And I said " think " because who knows what he is holding back and not telling me, as he's the type to keep things to himself and doesn't want to talk about anything. I would have tried the same type examples you did on all those people. Like you said, though, he's right - it all has no bearing on his present life. This is all just so sad, what our kids have to deal with! I really do worry about their adult lives! But I think maturity/age really does help in some ways. (I hope!) Have a great weekend! > hi > what a month we have been through! > Well, we are now OFF the Risperdal. > he was acting so strangely! > I don't know if I have already posted this, so forgive me if I am repeating > myself, but let me know, so i can get MYSELF to a psych ! lol > > Ds is still " intensive " , still perseveres, but is having less jurk movements Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 > .... I got my neat boy back... ******** I am glad to hear this! > after describing to the psych everything we were seeing, she said risperdal > was not helping , and she is actually thinking many of his behaviours are > tics - hence, we are to try a new med instead of the Risperdal. ... ******** It might be worth leaving him off meds for a while to determine whether a new one is actually needed. Isaac has TS, but we are not medicating him for it. In Isaac's case, the tics don't bother him (in fact he doesnt't usually even notice that he is ticcing) and they usually aren't disruptive to anyone else. At least at the time we wer investigating meds for TS (about 5 years ago), all the options seemed to have scary side-effects. I think that if you are considering more meds for M, that it is important that M be informed and be part of the decision making process. (This does not mean that it should be just his decision.) > ... Lately he > has been belching really uglily and now I am wondering if it is also a tic > he can';t control. When it happens he laughs as if he did it on purpose > but he is also notorious for hiding inappropriate behaviour that he can't > control behind a facade of " just joking " . > poor baby, and I have been so angry at him for so many of these behaviours. ******** If it is a tic, maybe M would react to it more appropriately if he understood that. > nightbedwetting has also gotten worse ******* Until recently, Eli wet the bed whenever he was taking antibiotics. You said recently that M had sinusitus. Is he taking antibiotics for it? (Isaac wet every night from when he started sleeping all night at 4+ years old until he was 14). > ... well, one positive update, I was invited to speak on a mothers' experience > of having a child with AS in........... the parliament!They are having a > whole seat on mental health of children and adolescents. > and I have 7 whole minutes to talk ! ... > ... How do you do it in 7 minutes ?????? ********** Congratulations! Good luck! Speak fast! > ... I am taking ds to my parents' for the weekend. i figure for once a change in > routine may do good for him..... I hope I am right...Leaving dh with dd and > baby - he is already stressed about it ! lol > I won't be online until Sunday night. > F ********* I hope you have (had) a good weekend. in Massachusetts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 <<<<<<Congratulations on the Parliament invitation!!! Hey, you can say a LOT in 7 minutes! Let us know how that goes.> thank you, I sure will! <<<<<<Boy, my heart just breaks for your son!>>> I watched him yesterday crawling on the floor, a BIG 11 year old, in teh middle of all this family encounter. Everyone was sensitive enough not to say anything about it. someone even jsut cem to me and hugged me saying softly to my ear " be strong " , but I am not strong now. I have my heart in pieces. I feel like I am losing him in a way. <<<<<<<<<< I really do worry about their adult lives! But I think maturity/age really does help in some ways. (I hope!) > that is now the only thing I have to look forward to........ hoping that time and maturity will do some good........ F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 Fania, I really believe that time and maturity *will* do some good. I have seen it with my own eyes. Five years ago, I never would have believed that would be staying home by himself and doing just fine on his own, because five years ago, I couldn't even leave him for five minutes! He even has friends at school! (He doesn't have them over after school, but that's harder because they all live in other districts and he is reluctant to phone them or make arrangements ahead of time. And horrors at the thought of the mother doing it for him! But it is a goal in therapy now.) Is that the Knesset where you are speaking? In Italy they have a saying, " In boca al lupo, " which means " Into the wolf's mouth! " It's another way of saying " break a leg " or " good luck. " So, in boca al lupo! We'll be thinking of you! Liz " Uplift - soar with your imagination! " wrote: > <<<<<<Congratulations on the Parliament invitation!!! Hey, you can say a > LOT in 7 minutes! Let us know how that goes.> > > thank you, I sure will! > > <<<<<<Boy, my heart just breaks for your son!>>> > > I watched him yesterday crawling on the floor, a BIG 11 year old, in teh > middle of all this family encounter. Everyone was sensitive enough not to > say anything about it. someone even jsut cem to me and hugged me saying > softly to my ear " be strong " , but I am not strong now. I have my heart in > pieces. I feel like I am losing him in a way. > > <<<<<<<<<< I really do worry about their adult lives! But I think > maturity/age really does help in some ways. (I hope!) > > > that is now the only thing I have to look forward to........ hoping that > time and maturity will do some good........ > > F > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 <<<<<<<< I think that if you are considering more meds for M, that it is important that M be informed and be part of the decision making process. (This does not mean that it should be just his decision.)>> yes, we always include him in the decision making process, but we do have the veto :-) ******** If it is a tic, maybe M would react to it more appropriately if he understood that.>> you are right, i told about htis possibility and today it happened twice , and he did laugh, but he also put his hand on his mouth and said : " please forgive me, I can't help it, and it doessound funny'..... ******* Until recently, Eli wet the bed whenever he was taking antibiotics. You said recently that M had sinusitus. Is he taking antibiotics for it? (Isaac wet every night from when he started sleeping all night at 4+ years old until he was 14).>>>>> no, iti s not a new thing, it just got worse thismonth,. originally he wet until aobut a year and a half ago. then he was dry for about half a year, and tehn we started him on Risperdal and teh wetting started again the doc said it is because the med makes their sleep very deep. F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 <<<<<<Is that the Knesset where you are speaking?>>>>>>> Yes! <<<<< In Italy they have a saying, " In boca al lupo, " which means " Into the wolf's mouth! " It's another way of saying " break a leg " or " good luck. " So, in boca al lupo! We'll be thinking of you!Liz> How do you spell thanks in Italian ? Grazia ?? F " Uplift - soar with your imagination! " wrote: > <<<<<<Congratulations on the Parliament invitation!!! Hey, you can say a > LOT in 7 minutes! Let us know how that goes.> > > thank you, I sure will! > > <<<<<<Boy, my heart just breaks for your son!>>> > > I watched him yesterday crawling on the floor, a BIG 11 year old, in teh > middle of all this family encounter. Everyone was sensitive enough not to > say anything about it. someone even jsut cem to me and hugged me saying > softly to my ear " be strong " , but I am not strong now. I have my heart in > pieces. I feel like I am losing him in a way. > > <<<<<<<<<< I really do worry about their adult lives! But I think > maturity/age really does help in some ways. (I hope!) > > > that is now the only thing I have to look forward to........ hoping that > time and maturity will do some good........ > > F > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 > > > How do you spell thanks in Italian ? Grazia ?? > F " Grazie " is usually how they say it, grazia is one " thank, " grazie is " thanks " LOL Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 > I watched him yesterday crawling on the floor, a BIG 11 year old, in teh > middle of all this family encounter. ... Fania, Both Isaac and Eli have acted like this (and worse) when overwhelmed. It will get better. My guys improved greatly at about 12-13 years old. {{{{{{{hugs}}}}}}} in Massachusetts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 Grazie, then......... :-) F -- Re: ( ) Re: update M > > > How do you spell thanks in Italian ? Grazia ?? > F " Grazie " is usually how they say it, grazia is one " thank, " grazie is thanks " LOL Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2003 Report Share Posted October 26, 2003 Fania, I hope being off the Risperdal helps M. And I pray the new med helps him. I am sad to hear that feels so out of control. I went though that (PPD) after giving birth to . Awful. Lastly I wish you much luck on your speech. What a great opportunity although 7 minutes is way too little. HUGS a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2003 Report Share Posted November 4, 2003 well.... ont eh subjec to fhwat the spycholoigst said agbout an 'Educational problem, psychiatrist totally disagrees. psychiatrist says AS kids CAN manipulate a little, CAN lie, CAN identify their feelings -all in a small unsophisticated scale, and that the outbursts and meltdowns are a hallmark of AS and not a " power struggle " or other sophisticated manipulation. no coubt tehre are educaiontal tools and methods that can be applied in order for the child to learn as much as he can, but the tools and methods chosen should be very different than the ones he is implying. anyway, she agreed with me we are NOT going back to the days when a frigid mother was teh cause of autism. hello ?? It was good to hear it from her. She also said his suicide coment is not something he would act upon, rather the way he found to move the school and us to listen to his bad situation right now, but it is not out of manipualtion, rahter out of really wanting help. so lets help the new med combination does help. we hsall see within a week. anyway,I am HAPPY teh school is striking.... Dh husband says this country has so many strikes it whould be turned into a Bowling Aley !! lol F Quote Link to comment Share on other sites More sharing options...
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