Re: hi again......

[Guest guest]

<<<<<<<<<<I hope that now that we know nothing horrible is wrong with him

(re:hematimas) , I will get back to my usual posting pace.....>>

and the priginal typos.......... :->

Love,

F

[Guest guest]

*** What is Clonnirit? Is this the same as Clonidine? Do the burises hurt

at all?***>

teh bruises do not hurt,they disappear within -2-3 days without leaving the

ussual green/purple/yellow marks...

Clonnirit is a med usually fo rpeople woth heart conditions, it lowers blood

pressure, and was found to lower tics.

<<<My thoughts on the AS lecture at the school were that it was a good start

By that I mean that you cannot conquer Rome in a day. >

he is 11 and I have been trying since he was 3 years old..... :-(

<<You got these people to come and listen to a talk on AS and that's half

the battle!! I would suggest that you continue this - maybe have an

inservice once per month, if possible. You could speak on a variety of

topics and give handouts to them or get the AS organization to keep coming

back or a mixture of the two. >>

they feel onec is more than needed......

<<<<<< Many times it is very difficult to get inservicing here in the

schools because they like to pretend they know it all already..

here tehy simply say it does not exist so you don't need to learn about it..

....

<<<<As for the comments on his homeroom, I think that is a big problem with

kids like ours that split time in two " worlds. " Part of your work is not

only introducing them to AS, but also introducing them to " inclusion " and

how that should work. Again, both are BIG topics to have to tackle with a

large group that is used to doing things a certain way. It is nothing we

don't struggle with here also. I think when you start to see the sped

teacher and his regular ed teacher collaborating more smoothly, you will

know you are succeeding>>>>>

\

you mean, heck *I* need more patience too ?? lol

<<<<Shoot - I had something else to say but now I can't think of it. I will

have to write again when my brain gets plugged in (and who knows when that

will take place! lol)

..>>>>>>>>>

lol, thanks!

well, the psychiatrist is sure the hematomas are not a side effect.....

still, she is leaving him off meds for at least two weeks. if teh hematomas

continue to show up I need to take him to the ER and demnad it further be

studied. I hope i won't need to. she said he is very unique in the

combination of AS and TS he has. she mentioned how he is so wise and seemes

to " Get it " until the very very last second of understanding a situation or

making a decision in a social situation, when he completely totally fails...

.... which makes it even harder on him because people cannot grasp this

difficulty and it is interpreted as " done on purpose " .

The psychiatrist also said regular school is something too difficult for

him, yet special ed will totally kill him, so there is no choice but to keep

him where he is. she thought we might consider an open school. she is

adamantly against homeschooling (for him! not in general) , and she thinks I

should open a school for him, lol.

kidding or not, I have been approached regarding establishing a new school..

... who knows??

now that he is off the meds, you see a lot of stuff coming back : stimming,

the intensity of one interest, vocal and movement tics, etc.a lot of new

tics too, like grimaces and touching his head.

she gave two thumbs up for the vacation idea, and said that if needed she

will write a letter to school stating it is imperative that we go....she

said she will even write he needs to dip in deep salted water 6 times a day

for 4 days, if we are going to the ocean, lol.....

past midnight here, going to sleep...

F

[Guest guest]

Fania,

I wish you were in San Diego. 's school added a beautiful new elementary

school about three years ago (just as Tess left). The class sizes are small,

and the work is very individualized. The kids are a bright, albeit quirky,

bunch. I just have this feeling that he'd fit right in. Too bad you're so far

away. :-( Starting your own school isn't such a dumb idea. The last school I

taught at came out of a study group of parents and a teacher.

Liz

Uplift - The Beauty of Imagination in Healing wrote:

>

>

>

> *** What is Clonnirit? Is this the same as Clonidine? Do the burises hurt

> at all?***>

>

> teh bruises do not hurt,they disappear within -2-3 days without leaving the

> ussual green/purple/yellow marks...

>

> Clonnirit is a med usually fo rpeople woth heart conditions, it lowers blood

> pressure, and was found to lower tics.

>

> <<<My thoughts on the AS lecture at the school were that it was a good start

> By that I mean that you cannot conquer Rome in a day. >

>

> he is 11 and I have been trying since he was 3 years old..... :-(

>

> <<You got these people to come and listen to a talk on AS and that's half

> the battle!! I would suggest that you continue this - maybe have an

> inservice once per month, if possible. You could speak on a variety of

> topics and give handouts to them or get the AS organization to keep coming

> back or a mixture of the two. >>

>

> they feel onec is more than needed......

>

> <<<<<< Many times it is very difficult to get inservicing here in the

> schools because they like to pretend they know it all already..

>

> here tehy simply say it does not exist so you don't need to learn about it..

> ...

>

> <<<<As for the comments on his homeroom, I think that is a big problem with

> kids like ours that split time in two " worlds. " Part of your work is not

> only introducing them to AS, but also introducing them to " inclusion " and

> how that should work. Again, both are BIG topics to have to tackle with a

> large group that is used to doing things a certain way. It is nothing we

> don't struggle with here also. I think when you start to see the sped

> teacher and his regular ed teacher collaborating more smoothly, you will

> know you are succeeding>>>>>

> \

> you mean, heck *I* need more patience too ?? lol

>

> <<<<Shoot - I had something else to say but now I can't think of it. I will

> have to write again when my brain gets plugged in (and who knows when that

> will take place! lol)

> .>>>>>>>>>

>

> lol, thanks!

>

> well, the psychiatrist is sure the hematomas are not a side effect.....

> still, she is leaving him off meds for at least two weeks. if teh hematomas

> continue to show up I need to take him to the ER and demnad it further be

> studied. I hope i won't need to. she said he is very unique in the

> combination of AS and TS he has. she mentioned how he is so wise and seemes

> to " Get it " until the very very last second of understanding a situation or

> making a decision in a social situation, when he completely totally fails...

> ... which makes it even harder on him because people cannot grasp this

> difficulty and it is interpreted as " done on purpose " .

> The psychiatrist also said regular school is something too difficult for

> him, yet special ed will totally kill him, so there is no choice but to keep

> him where he is. she thought we might consider an open school. she is

> adamantly against homeschooling (for him! not in general) , and she thinks I

> should open a school for him, lol.

> kidding or not, I have been approached regarding establishing a new school..

> .. who knows??

> now that he is off the meds, you see a lot of stuff coming back : stimming,

> the intensity of one interest, vocal and movement tics, etc.a lot of new

> tics too, like grimaces and touching his head.

> she gave two thumbs up for the vacation idea, and said that if needed she

> will write a letter to school stating it is imperative that we go....she

> said she will even write he needs to dip in deep salted water 6 times a day

> for 4 days, if we are going to the ocean, lol.....

>

> past midnight here, going to sleep...

> F

>

>

[Guest guest]

<<<<<I wish you were in San Diego.....Too bad you're so far away. >>>>>>>

Our psychiatrist thinks relocation should be a consideration with a kid like

ours ;-)

<<<< Starting your own school isn't such a dumb idea. The last school I

taught at came out of a study group of parents and a teacher.>>>>>

I am seriously considering it. I have been approached by two powerful and

knowleadgeable women about it in the past...they are still interested, and

teh AS org is also considering supporting something like this. at the time I

refused, thinknig mostly that our kdis need us to forfcefully make the

regular education system accept them. but sometimes I think they maybe

therei s no otehr way but to build something new and idifferent for them.

Also, there is an open school in a town 20 minutes away. it could be a good

school for him, as they have a core of subjects (math, language and English)

htat is a must, and the rest is up to the child's choice. the study groups

are small, and they are not grade-dependent. I have to go there and talk to

the principal.

a similar school may be established in our town this coming year - we

enlisted in it last year, and they accepted ds after taking some time to

learn about AS and talking to a psych, and after meeting ds and observing

him with the oteehr children in one of their fun-days tehy had to attract

more students. teh school did not open becasue too few children enlisted.

but they are trying hard to open it this year. teh major problem with htis

type of school is of course that it is private, so no special services AND

it costs a bundle!

I had a talk with his current sped teacher and he mentioned some kind of a

combination, like three days at school and two days outdoors (museum,

university, library, whatever) where he needs to complete a task on his own

and lecture about it in class.and maybe a third day off for relaxation. I am

thinking about it. She really cares for him on one hand, but on the other -

she too has an interest of having " quiet " in her class......

He has been off meds since Tuesday , and meantime we have not seen any

worsening except for his tics that have reemerged forcefully + some new ones

I wonder if any of you knwo how long the risperdal " stays in the system " .

waht I can see reemerging that had gone away with the risperdal is that he

is feeling everything " intensely " . probably anxiety is up.

and as if he needed it, ALL the fish in his tank just died this weekend (we

have no clue why) , including the poor eel he worked for... he is very sad,

but said : " I can cry because it is truly sad, but my crying won't bring

them back, so I need to prepare the tank for nwe fish " ... so it is 21:00 now

and he is redoing the whole tank......

We are reconsideing the psychologist we hired. He has said a few things

lately that made us ponder if he has any grasp of who our son is and how AS

and TS affect him. he had spoken to the psychiatrist and she was also upset

as he questioned her Dx.... I got really upset and worried when he told us

durin out last meeting that we need to teach ds to take revenge instead of

just bottling up his anger until he ahs an outburst. hello-o ??? we have

been trying so hard to teach him to curb this revenge instinct, especially

that he has no understanding of how strong he is physically plus his AS

tendency to not realize the consequences of his deeds , let alone when he is

angry......

so we are discussing this with him, and meantime we are postponing the

meeintg we had prepared between him and the school staff.

never ever boring here, right ?

f

[Guest guest]

Teaching M to take revenge???? I don't *think* so! That's the dumbest idea

I've ever heard! If I had money for every hour I've had to spend persuading

NOT to take revenge, I would be a wealthy woman.

The open school sounds like a great option, if enough kids enroll so it opens,

Sounds a little bit like Montessori, which worked well for my kids.

Sorry to hear about the fish. M seems to have great self awareness when he's

calm and thinking about things. That's a great strength.

Hang in there,

Liz

Uplift - The Beauty of Imagination in Healing wrote:

>

>

> <<<<<I wish you were in San Diego.....Too bad you're so far away. >>>>>>>

>

> Our psychiatrist thinks relocation should be a consideration with a kid like

> ours ;-)

>

> <<<< Starting your own school isn't such a dumb idea. The last school I

> taught at came out of a study group of parents and a teacher.>>>>>

>

> I am seriously considering it. I have been approached by two powerful and

> knowleadgeable women about it in the past...they are still interested, and

> teh AS org is also considering supporting something like this. at the time I

> refused, thinknig mostly that our kdis need us to forfcefully make the

> regular education system accept them. but sometimes I think they maybe

> therei s no otehr way but to build something new and idifferent for them.

>

> Also, there is an open school in a town 20 minutes away. it could be a good

> school for him, as they have a core of subjects (math, language and English)

> htat is a must, and the rest is up to the child's choice. the study groups

> are small, and they are not grade-dependent. I have to go there and talk to

> the principal.

> a similar school may be established in our town this coming year - we

> enlisted in it last year, and they accepted ds after taking some time to

> learn about AS and talking to a psych, and after meeting ds and observing

> him with the oteehr children in one of their fun-days tehy had to attract

> more students. teh school did not open becasue too few children enlisted.

> but they are trying hard to open it this year. teh major problem with htis

> type of school is of course that it is private, so no special services AND

> it costs a bundle!

> I had a talk with his current sped teacher and he mentioned some kind of a

> combination, like three days at school and two days outdoors (museum,

> university, library, whatever) where he needs to complete a task on his own

> and lecture about it in class.and maybe a third day off for relaxation. I am

> thinking about it. She really cares for him on one hand, but on the other -

> she too has an interest of having " quiet " in her class......

>

> He has been off meds since Tuesday , and meantime we have not seen any

> worsening except for his tics that have reemerged forcefully + some new ones

> I wonder if any of you knwo how long the risperdal " stays in the system " .

> waht I can see reemerging that had gone away with the risperdal is that he

> is feeling everything " intensely " . probably anxiety is up.

> and as if he needed it, ALL the fish in his tank just died this weekend (we

> have no clue why) , including the poor eel he worked for... he is very sad,

> but said : " I can cry because it is truly sad, but my crying won't bring

> them back, so I need to prepare the tank for nwe fish " ... so it is 21:00 now

> and he is redoing the whole tank......

> We are reconsideing the psychologist we hired. He has said a few things

> lately that made us ponder if he has any grasp of who our son is and how AS

> and TS affect him. he had spoken to the psychiatrist and she was also upset

> as he questioned her Dx.... I got really upset and worried when he told us

> durin out last meeting that we need to teach ds to take revenge instead of

> just bottling up his anger until he ahs an outburst. hello-o ??? we have

> been trying so hard to teach him to curb this revenge instinct, especially

> that he has no understanding of how strong he is physically plus his AS

> tendency to not realize the consequences of his deeds , let alone when he is

> angry......

> so we are discussing this with him, and meantime we are postponing the

> meeintg we had prepared between him and the school staff.

>

> never ever boring here, right ?

> f

[Guest guest]

<<<<<<Teaching M to take revenge???? I don't *think* so! That's the dumbest

idea

I've ever heard! If I had money for every hour I've had to spend persuading

NOT to take revenge, I would be a wealthy woman.>

Thank you !

I needed to hear it from someone else too. this " NO! " thought is constantly

buzzing in my mind but as in many other times when teh " EXPERTS " say

something , I find myself the only one disagreeing and tehn I keep hearing

this disagreement only as an echo of myself in my mind.... know teeh feeling

?

<<The open school sounds like a great option, if enough kids enroll so it

opens,

Sounds a little bit like Montessori, which worked well for my kids.>

yes, tehy ahve incorporated a lot of good stuff from different schools of

thought in education.

<Sorry to hear about the fish. M seems to have great self awareness when he

s

calm and thinking about things. That's a great strength.>

yes, and it is what makes everyone else realy either puzzled or angry at his

behaviour at ohter times.......

<Hang in there>

thanks, Liz,

if I have time today (between doc appointments and a choir performance) I

will go to a good pet store to ask about what happnened and perhaps getting

him a few new fish....

F