Guest guest Posted April 16, 2003 Report Share Posted April 16, 2003 In a message dated 4/16/03 7:27:23 AM Eastern Daylight Time, wsotis@... writes: > Wendi > mom to 2.10 yr old ASD triplets, (AS?), Luke (HFA) and Madeline > (HFA) > > > > ALL of them are on the spectrum???? <bowing down to Wendi> Don't know HOW I never saw this before..... Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2003 Report Share Posted April 16, 2003 In a message dated 4/16/2003 4:27:28 AM Pacific Daylight Time, wsotis@... writes: > Could we actually be this lucky after so many duds? I'll let you know on > May 5th when we see him for the first time! > I hope so, Wendi!!! Wouldn't that be wonderful! Let us know how it goes.... Also, great news on the kidney!!! That must be a big relief... Johanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2003 Report Share Posted April 16, 2003 Hi Wendi, Sounds like you're right - he'll LOVE your family! I wish all doctors were like him. OK, I don't have time to read all the notes here daily - what is hydronephrosis? > Hi, > > Wanted to share some good news! > > First, Maddie (HFA) went to the nephrologist (kidney doctor) about her > hydronephrosis. Her left kidney is definitely growing. Her right one they > couldn't get a good scan of the size, but since she hasn't had any UTIs > they think it is growing too. The hydronephrosis is almost gone!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2003 Report Share Posted April 16, 2003 Fluid that is being retain in the kidney. It causes the kidney to become enlarged. MISSY SAHM of MANY April is Autism Awareness Month!! Become aware of our special kids!! Excuse Me While I Go Raise Tomorrow's Future. ( ) Re: good news to share Hi Wendi, Sounds like you're right - he'll LOVE your family! I wish all doctors were like him. OK, I don't have time to read all the notes here daily - what is hydronephrosis? > Hi, > > Wanted to share some good news! > > First, Maddie (HFA) went to the nephrologist (kidney doctor) about her > hydronephrosis. Her left kidney is definitely growing. Her right one they > couldn't get a good scan of the size, but since she hasn't had any UTIs > they think it is growing too. The hydronephrosis is almost gone!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2003 Report Share Posted April 16, 2003 In a message dated 4/16/03 7:27:28 AM Eastern Daylight Time, wsotis@... writes: > This is the guy I made appts with a couple of months ago - they are coming > up in the beginning of May. I'm so happy to hear confirmation of the > already glowing reports about him. > > Could we actually be this lucky after so many duds? I'll let you know on > May 5th when we see him for the first time! > Congrats on the kidney! And of course, a good doc is worth his/her weight in gold! I hope he's a keeper! Roxanna ô¿ô Autism Happens... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2010 Report Share Posted December 30, 2010 That is great news! What a nice way to start the new year. Posting good news is so wonderful! I hope the tapering goes well, Michele ( 23, spondy) From: [mailto: ] On Behalf Of nn Sent: Thursday, December 30, 2010 3:47 PM Subject: good news to share Hello all, I wanted to share our good news from 's appointment at Children's yesterday. Her labs were all normal - for the third month in a row, since starting kineret - yeah! She is down to 1mg of prednisone and the plan is to taper that off completely in the next few weeks, and then immediately start tapering the methotrexate. If all goes well then we'll try to discontinue the Mobic in the summer, and she'll be left on only the daily kineret. This is " the plan " and I know that it can change, but just to be moving in a better direction and taking AWAY meds feels so good. It feels weird to post good things, but I felt compelled to share with those who would understand what a big deal it is. Happy new year to you, and I hope this next year is a good one for all of our kids. nn (mom to , age 9, systemic onset Oct 2009) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2010 Report Share Posted December 30, 2010 Whoo hoo, that is GREAT news indeed. Just be careful of the pred taper.If has been on it since onset that is over one year.No matter how well the Kiniret is working it will not stop steroid withdrawl.Mayby ask about 1 day pred the other none then taper after a week or two. Then .75mg pred then the next day none and so forth.Try not to rush it even though it's ALL GOOD!!!!!! Steroid withdrawl has NOTHING to do with disease activity. Becki and 12 SoJRA ________________________________ From: nn <rosannwinn@...> Sent: Thu, December 30, 2010 3:47:19 PM Subject: good news to share Hello all, I wanted to share our good news from 's appointment at Children's yesterday. Her labs were all normal - for the third month in a row, since starting kineret - yeah! She is down to 1mg of prednisone and the plan is to taper that off completely in the next few weeks, and then immediately start tapering the methotrexate. If all goes well then we'll try to discontinue the Mobic in the summer, and she'll be left on only the daily kineret. This is " the plan " and I know that it can change, but just to be moving in a better direction and taking AWAY meds feels so good. It feels weird to post good things, but I felt compelled to share with those who would understand what a big deal it is. Happy new year to you, and I hope this next year is a good one for all of our kids. nn (mom to , age 9, systemic onset Oct 2009) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.