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Re: Intro to Danny

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Hi Debbie,

We see a psychiatrist for meds, and he is in contact with the school and the

psychologist periodically. We also see a psychologist every other week to deal

with social issues and school issues. During the diagnostic phase, we saw a

neuropsychologist who did comprehensive testing on our ds, which disagreed with

the school district's testing. Our results were used instead. Also, our

neuropsychologist was a good source of referrals for clinicians. Good luck. It's

not easy to move.

Liz

DNJC4TRESS@... wrote:

> Hi all,

>

> I could use some advice about my son Danny, 8, AS in a BED classroom in North

> Carolina with a wonderful teacher. Earlier in the year he was doing so well

> and they began mainstreaming him. We all sort of believe he sabotaged it,

> wanting to be with his other teachers and having difficulty transitioning.

> But since then, he has continued with escalating behaviors like walking like

> a snail to his cab(can't ride a bus home) and then kicking everyone as he

> goes in. He said that because he was on " yellow " (they score green-best,

> yellow, red, blue--worst) that it meant he should behave that way. He also

> talks about liking his writing consequences. We have all tried a number of

> different things.

>

> I have gotten his medication changed--upped the dosage of Concerta and

> Risperdal. That has a little bit of an effect, but still doesn't prevent him

> from finding something new to " obssess " about, which is what I think it is

> about. The problem is we can't tell what he is going to obssess about next

> or why or how to get rid of it. In the past, changing medication worked, not

> this time.

>

> Lastly, in FL we had a wonderful Developmental Psychologist and office with

> every possible type of specialist needed to handle his problems. We are now

> in NC and my only experience so far has been being rushed in and out of a

> neurologists office with a new prescription, and noticing later that they

> charged my insurance for a new patient expense of approx. $1500. We

> definitely did not get our money's worth in the 20 min. he talked to me( if

> it was that long.) The other experience has been calling the pediatrician,

> who has only seen him once, to renew the prescriptions. There must be

> someone who will see him, listen to the problems, consolidate and consider

> all of our past doctor's visits, and offer some real solutions. Any

> suggestions of who, what type of doctor, organization, etc. to talk to?

>

> Thanks,

>

> Debbie

>

>

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Guest guest

Hi Debbie, what kind of drug is Concerta what does it treat and how does it

help your boy...

Thanks Kerry-NZ-AS-MUM

-- Re: ( ) Intro to Danny

Hi Debbie,

We see a psychiatrist for meds, and he is in contact with the school and the

psychologist periodically. We also see a psychologist every other week to

deal

with social issues and school issues. During the diagnostic phase, we saw a

neuropsychologist who did comprehensive testing on our ds, which disagreed

with

the school district's testing. Our results were used instead. Also, our

neuropsychologist was a good source of referrals for clinicians. Good luck.

It's

not easy to move.

Liz

DNJC4TRESS@... wrote:

> Hi all,

>

> I could use some advice about my son Danny, 8, AS in a BED classroom in

North

> Carolina with a wonderful teacher. Earlier in the year he was doing so

well

> and they began mainstreaming him. We all sort of believe he sabotaged it,

> wanting to be with his other teachers and having difficulty transitioning.

> But since then, he has continued with escalating behaviors like walking

like

> a snail to his cab(can't ride a bus home) and then kicking everyone as he

> goes in. He said that because he was on " yellow " (they score green-best,

> yellow, red, blue--worst) that it meant he should behave that way. He also

> talks about liking his writing consequences. We have all tried a number of

> different things.

>

> I have gotten his medication changed--upped the dosage of Concerta and

> Risperdal. That has a little bit of an effect, but still doesn't prevent

him

> from finding something new to " obssess " about, which is what I think it is

> about. The problem is we can't tell what he is going to obssess about next

> or why or how to get rid of it. In the past, changing medication worked,

not

> this time.

>

> Lastly, in FL we had a wonderful Developmental Psychologist and office

with

> every possible type of specialist needed to handle his problems. We are

now

> in NC and my only experience so far has been being rushed in and out of a

> neurologists office with a new prescription, and noticing later that they

> charged my insurance for a new patient expense of approx. $1500. We

> definitely did not get our money's worth in the 20 min. he talked to me(

if

> it was that long.) The other experience has been calling the pediatrician,

> who has only seen him once, to renew the prescriptions. There must be

> someone who will see him, listen to the problems, consolidate and consider

> all of our past doctor's visits, and offer some real solutions. Any

> suggestions of who, what type of doctor, organization, etc. to talk to?

>

> Thanks,

>

> Debbie

>

>

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Guest guest

In a message dated 3/9/2003 5:52:25 PM Pacific Standard Time,

DNJC4TRESS@... writes:

> We are now

> in NC and my only experience so far has been being rushed in and out of a

> neurologists office with a new prescription, and noticing later that they

> charged my insurance for a new patient expense of approx. $1500.

I'd call the office and notify them of their error and if that didn't work,

call the insurance company. I had a doctor's office mischarge me and

thankfully they were unaware and corrected it immediately.....

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Guest guest

Kerry,

Concerta is a form of Ritalin that is time-released. He takes it once a day

and it releases dosages throughout the day. It lasts approximately 8 hrs.

Hope it helps.

Debbie

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Guest guest

Kerry,

Sorry forgot to say how it helps. Concerta seems to be the drug that helps

Danny to stay focused and not all over the place with every whim. His

Risperdal seems to help him control reactions, so he is calmer. Actually,

the reason why I wrote originally is so that I can find a doctor who can help

us decide if these drugs are doing what they are supposed to be doing.

Debbie.

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Guest guest

This might be a good first contact to make...usually they can help you find

what you are looking for:

> PARENT TRAINING & INFORMATION PROJECT

Connie Hawkins, Executive Director  

>

> ECAC, Inc. (Exceptional Children's Assistance Center) 

> P.O. Box 16  

> son, NC 28036  

> (704) 892-1321(V/TTY); (800) 962-6817 (In NC only) 

> E-mail: ECAC1@... 

PARENT-TO-PARENT

Family Support Network of North Carolina/ 

>

> Central Directory of Resources 

> CB. #7340  

> University of NC at Chapel Hill  

> Chapel Hill, NC 27599-7340  

> (919) 966-2841; (800) 852-0042 

> E-mail: cdr@... 

> URL: <A

HREF= " http://www.med.unc.edu/commedu/familysu " >http://www.med.unc.edu/commedu/fa\

milysu</A> 

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