Guest guest Posted March 15, 2003 Report Share Posted March 15, 2003 In a message dated 3/4/2003 8:47:05 PM Eastern Standard Time, sjparvin@... writes: > Do I even belong in an AS group? I have felt AS was Joe but > there also was a nagging question. I've been trying for years to figure > out > what is going on with him when maybe I need to focus on all the things to > do. > I just with they could tell me what is really happening inside his head. > If > you made it this far....thank you. > Johanna > Johanna...my older son who was diagnosed at age 4 with Asperger's was evaluated this past fall by a neuropsychologist. She did not feel that my son clearly presented with Asperger's. It was quite a blow after 8 years of having the diagnosing and not really ever doubting it. I do feel my son has Asperger's from all my research and what we have experienced with him, but I do feel it is very mild. I do think that my son definitely tests and presents well and that can make one feel he is less effected than he really is. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 In my own situation, I believe my son has adapted very well. He will never " outgrow " his diagnosis. It is a part of who he is. But he tests very well and presents very well to outsiders. My father, who also has AS, has also learned to adapt...but to those of us who spend lots of time with him it is very apparent that he has those AS features . Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 <<<<...my older son who was diagnosed at age 4 with Asperger's was > evaluated this past fall by a neuropsychologist. She did not feel that my > son clearly presented with Asperger's. It was quite a blow after 8 years of > having the diagnosing and not really ever doubting it.> I wonder how much of this discrepancy has to do with all that we invest in them ? after all, it is a developmental disorder, but they DO learn. what about all the people with AS who were never diagnosed ? they fond a way to make in the world, but it doe snot mean they don't have AS. If you had seen my son at age 3, 4, 5, certainly at 7 and 8 you would be certain,. but now he is 10 and most of the time, I am told " no way ! " until an AS moment comes...... Fania \ I do feel my son has > Asperger's from all my research and what we have experienced with him, but I > do feel it is very mild. I do think that my son definitely tests and > presents well and that can make one feel he is less effected than he really > is. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 Yet, you gotta wonder if you did a test and saw a dozen (oh, that would be painful) different doctors, that they would probably NOT agree. My son definitely has autistic like traits that cannot in my opinion be only related to a language disorder like Auditory processing. The fact that the team spent 2 hours evaluated the tests, reports, interview etc told me that he isn't easily figured out! They normally do an hour. I think its just a hard call sometimes.... thanks for sharing as I can really relate....it will be interesting what happens in the future. In a message dated 3/15/2003 5:09:29 PM Pacific Standard Time, ppanda65@... writes: > Johanna...my older son who was diagnosed at age 4 with Asperger's was > evaluated this past fall by a neuropsychologist. She did not feel that my > son clearly presented with Asperger's. It was quite a blow after 8 years > of > having the diagnosing and not really ever doubting it. I do feel my son > has > Asperger's from all my research and what we have experienced with him, but > I > do feel it is very mild. I do think that my son definitely tests and > presents well and that can make one feel he is less effected than he really > > is. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 In a message dated 3/15/2003 10:14:41 PM Pacific Standard Time, beitchazen@... writes: > after all, it is a developmental disorder, but they DO learn. > Fania, I know I've heard this before, but its always been a question for me. I have heard its a neurological disorder that can change with the developmental stages, yes? Whatever Joe's challenges are, its neurological in nature....ie the way his brain functions. Both doctors have said its neurological. Just a little bit confused Johanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 In a message dated 3/16/03 10:27:47 AM Pacific Standard Time, sjparvin@... writes: << Yet, you gotta wonder if you did a test and saw a dozen (oh, that would be painful) different doctors, that they would probably NOT agree. >> Am I mistaken or doesn't ASD stand for Autism Spectrum Disorder? I remember our first doctor carefully explaining that many named disorders probably fit within the spectrum. He suggested that we probably will eventually learn that most disorders including Bipolar, ADHD, learning disabilities, epilepsy, ODD, etc. all fit within the spectrum in one way or another. A geneticist we saw suggested the same thing. They also both explained that diagnosis was difficult since so many of these overlap each other. I may have overinterpreted. Has anyone else heard anything like this? Debbie in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 In a message dated 3/16/2003 10:37:44 AM Pacific Standard Time, DNJC4TRESS@... writes: > Am I mistaken or doesn't ASD stand for Autism Spectrum Disorder? I remember > our first doctor carefully explaining that many named disorders probably > fit > within the spectrum. He suggested that we probably will eventually learn > that most disorders including Bipolar, ADHD, learning disabilities, > epilepsy, > ODD, etc. all fit within the spectrum in one way or another. A geneticist > we > saw suggested the same thing. They also both explained that diagnosis was > difficult since so many of these overlap each other. I may have > overinterpreted. Has anyone else heard anything like this? > Hi Debbie, Yes, the ASD does stand for autism spectrum dis and AS is included....My devel pediatrician said that the Auditory processings, sensory issues, etc is included in Aspergers's. So there are a lot of things that can be part of a ASD... There are those doctors that are more conservative in giving out a dx of ASD and others that view the DSM IV criteria more loosely.... J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 In a message dated 3/16/2003 10:57:40 AM Pacific Standard Time, sjparvin@... writes: > My > devel pediatrician said that the Auditory processing, sensory issues, etc > is > included in Aspergers's. I should correct myself! These things CAN be part of AS, or they can be alone. J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 Dear Fania, I found out my son has AS a couple of months ago. He's 18yo. Before that I knew he had goldenhars syndrome, but that was not the whole story. I researched autism, took him for tests at age 3 and they said autistic children don't usually have any other disabilities! They said he wasn't classic and was intelligent. I'd 'coached' dan to do many things she thought he'd learnt on his own. Eg to grip an object took me over a year to teach him . I've had the comment you've taught him too well to get a diagnosis. In the end age about 5 they had to accept and write down he had autistic tendancies. He flapped,tiptoed, echolaylia, no eyecontact,no social interaction, the list goes on. Then after leaving school, going into so called adult services for disabled adults he had an assessment with a clinical psychologist that said he had an IQ of 94 by the washler test and she thought he leaned more toward AS.I think mums know best the nearest diagnosis to explain their child. Jo. d. Re: ( ) Not AS? <<<<...my older son who was diagnosed at age 4 with Asperger's was > evaluated this past fall by a neuropsychologist. She did not feel that my > son clearly presented with Asperger's. It was quite a blow after 8 years of > having the diagnosing and not really ever doubting it.> I wonder how much of this discrepancy has to do with all that we invest in them ? after all, it is a developmental disorder, but they DO learn. what about all the people with AS who were never diagnosed ? they fond a way to make in the world, but it doe snot mean they don't have AS. If you had seen my son at age 3, 4, 5, certainly at 7 and 8 you would be certain,. but now he is 10 and most of the time, I am told " no way ! " until an AS moment comes...... Fania \ I do feel my son has > Asperger's from all my research and what we have experienced with him, but I > do feel it is very mild. I do think that my son definitely tests and > presents well and that can make one feel he is less effected than he really > is. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 <<<<<.I think mums know best the nearest diagnosis to explain their child. <<<< Dear Jo. d. this sums my opinion up! lol I totaly agree. Fania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 << I have > heard its a neurological disorder that can change with the developmental > stages, yes? . yes, now note: it is not that the disorder changes, rather: it manifests itself in different ways or with different emphasis at different developmental stages. and this is in addition to the variable ways it manifests in each and every person with AS. <<<<< Whatever Joe's challenges are, its neurological in nature....ie > the way his brain functions. Both doctors have said its neurological. > that is true. neurological and developmental are not mutually exclusive. F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 Debbie in NC: Sure have. Picture ASD as one line, a continuum, if you will. In three dimensions, picture the other disorders you have mentioned, each with their own line, and those lines bending and intersecting here and there ... we also were told this, 7 or 8 years ago. / 4makelas@... Way, Way Up in Northern Ontario ----- Original Message ----- From: <DNJC4TRESS@...> < > > Am I mistaken or doesn't ASD stand for Autism Spectrum Disorder? I remember > our first doctor carefully explaining that many named disorders probably fit > within the spectrum. He suggested that we probably will eventually learn > that most disorders including Bipolar, ADHD, learning disabilities, epilepsy, > ODD, etc. all fit within the spectrum in one way or another. A geneticist we > saw suggested the same thing. They also both explained that diagnosis was > difficult since so many of these overlap each other. I may have > overinterpreted. Has anyone else heard anything like this? > Quote Link to comment Share on other sites More sharing options...
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