Re: joseph update, and telling our stories

[Guest guest]

In a message dated 17/11/2003 21:37:41 GMT Standard Time, amattson@...

writes:

> Anyone know of chelating book that reads like 's enzyme book?

>

Nope But very hopeful one will be coming shortly..............

[Guest guest]

<A

HREF= " http://home.earthlink.net/~moriam/ " >http://home.earthlink.net/~moriam/</A>

Start there, that should keep you busy for a while LOL Probably start with

the how to hair files......

HTH

Mandi in UK

> Their stories are what inspired the changes we made, and hence the

> improvement we've had. Myself, I'd love to hear from others. Chelating is our

next

> hurdle, I'm thinking, and I really need to start documenting tips of what to

do

> and not to do. Of course I could go through the archives for that, or visit

> other sites, but, I've heard other message boards aren't as open as this one,

> and I've enough hostile doctors in my life, I don't need hostile internet

> groups. Anyone know of chelating book that reads like 's enzyme book?

>

[Guest guest]

Their stories are what inspired the changes we made, and hence the improvement

we've had. Myself, I'd love to hear from others. Chelating is our next hurdle,

I'm thinking, and I really need to start documenting tips of what to do and not

to do. Of course I could go through the archives for that, or visit other sites,

but, I've heard other message boards aren't as open as this one, and I've enough

hostile doctors in my life, I don't need hostile internet groups. Anyone know of

chelating book that reads like 's enzyme book?

joseph update, and telling our stories

Hi ,

Thanks for your update on ph. I really appreciate you telling your full

story - you (and all of us here!!!) have so much courage- it makes me cry

when I read the stories of what we've lived through, yet continue to fight

each and every day because our kids need us to and because they are worth

it!!!! Will look forward to hearing your progress updates!

I actually would be interested in hearing others' stories- from the

beginning, if they are interested in telling them. I will post mine too if

anyone wants to hear it. Sometimes you forget just how much progress you've

made until you think back to the beginning! I know I often forget! Also the

stories are a wealth of information. I loved reading and Dana's

stories- books and websites.

What do you all think?

Cyndi

K.

_________________________________________________________________

Great deals on high-speed Internet access as low as $26.95.

https://broadband.msn.com (Prices may vary by service area.)

[Guest guest]

I agree. I gain so much knowledge from reading others stories. It is

empowering to learn about other families going through the same

things and making such incredible leaps and bounds.

On a similar note, I wanted to throw this out there. . . it seems so

many of us are putting our stories out there. So many people I

encounter on a regular basis tell me I should write a book. I'm sure

you all have heard that too. This is from people who aren't in this

every day and don't understand there are thousands of parents like

me doing the same thing.

But I have been toying with an idea. There are now several books on

the market that discuss their own families' personal encounter with

autism, and the diet, and the vaccines, and the discoveries. I

think these are such an invaluable resource to our community. They

saved my kid's life. But...they are not attractive to the mainstream

population. I have been mulling over either writing a book that

is " based on a true story " but is a narrative work - popular fiction

thus pulling in the " mainstream " or (as I know others must have) of

writing a screenplay instead to get it " out " as quickly as possible.

I envision something along the lines of Silkwood, Brokovitch,

Lorenzo's Oil, and The Hot Zone or Outbreak.

What do you all think about this? I would follow the genre and be

able to insert factual information that will blow people's socks off

(that is if I wasn't killed before it came out - call me paranoid

but not something a whole lot of people would want to happen).

Any thoughts? Honest...

Truly,

a

[Guest guest]

I was just thinking the same thing the other day. No kidding, but, in this

society, the media (movie) is the quickest means with the largest audience to

convey information. What a heartbreaker this movie would be. The thing is, it

would have to include the toe walking, hand flapping, non eating, dark circles

under the eyes, social ostracizing, head banging, feces smearing, not talking,

aggressive, giddy laughter, non sleeping nightmare. Not to entertain, but to

wake parents up. You send enough parents home scratching their collective heads,

you're going to get, those rationalizing why that's " not their child " and those

secretly fearing " it is their child " . What aggravates me the most are those

parents who come to me for help, and then tune out when they realize the " work "

that's involved. For them, giving up the second vehicle, not keeping up with the

's, etc. It's too much. And no, you're not paranoid about " disappearing " .

Maybe nothing so dramatic, but you address the toxins in our society and the

whole vaccine issue, and you sure as heck will get a character assassination

done on you and your family. All these individuals who've written books, I

especially remember Maurice ( not her real name), there are a lot of

reputations and some money on the line here. Good luck to you, if you need any

material, just ask.

Re: joseph update, and telling our stories

I agree. I gain so much knowledge from reading others stories. It is

empowering to learn about other families going through the same

things and making such incredible leaps and bounds.

On a similar note, I wanted to throw this out there. . . it seems so

many of us are putting our stories out there. So many people I

encounter on a regular basis tell me I should write a book. I'm sure

you all have heard that too. This is from people who aren't in this

every day and don't understand there are thousands of parents like

me doing the same thing.

But I have been toying with an idea. There are now several books on

the market that discuss their own families' personal encounter with

autism, and the diet, and the vaccines, and the discoveries. I

think these are such an invaluable resource to our community. They

saved my kid's life. But...they are not attractive to the mainstream

population. I have been mulling over either writing a book that

is " based on a true story " but is a narrative work - popular fiction

thus pulling in the " mainstream " or (as I know others must have) of

writing a screenplay instead to get it " out " as quickly as possible.

I envision something along the lines of Silkwood, Brokovitch,

Lorenzo's Oil, and The Hot Zone or Outbreak.

What do you all think about this? I would follow the genre and be

able to insert factual information that will blow people's socks off

(that is if I wasn't killed before it came out - call me paranoid

but not something a whole lot of people would want to happen).

Any thoughts? Honest...

Truly,

a

[Guest guest]

You know, I have felt that a movie would be a good way too. I told my mother

recently that I wish I could win the lottery. It was up to 200 mil. SHe said

what would I do with it? I said I would fund more research on autism and do

commercials about the 'know the risks first before you jab' part. Her comment to

me was " the drug companies would just have you assassinated " . And she was not

joking.

Re: joseph update, and telling our stories

I agree. I gain so much knowledge from reading others stories. It is

empowering to learn about other families going through the same

things and making such incredible leaps and bounds.

On a similar note, I wanted to throw this out there. . . it seems so

many of us are putting our stories out there. So many people I

encounter on a regular basis tell me I should write a book. I'm sure

you all have heard that too. This is from people who aren't in this

every day and don't understand there are thousands of parents like

me doing the same thing.

But I have been toying with an idea. There are now several books on

the market that discuss their own families' personal encounter with

autism, and the diet, and the vaccines, and the discoveries. I

think these are such an invaluable resource to our community. They

saved my kid's life. But...they are not attractive to the mainstream

population. I have been mulling over either writing a book that

is " based on a true story " but is a narrative work - popular fiction

thus pulling in the " mainstream " or (as I know others must have) of

writing a screenplay instead to get it " out " as quickly as possible.

I envision something along the lines of Silkwood, Brokovitch,

Lorenzo's Oil, and The Hot Zone or Outbreak.

What do you all think about this? I would follow the genre and be

able to insert factual information that will blow people's socks off

(that is if I wasn't killed before it came out - call me paranoid

but not something a whole lot of people would want to happen).

Any thoughts? Honest...

Truly,

a

[Guest guest]

In a message dated 11/17/2003 10:38:03 PM Eastern Standard Time,

mcphee.family@... writes:

> So many people I

> encounter on a regular basis tell me I should write a book. I'm sure

> you all have heard that too. This is from people who aren't in this

> every day and don't understand there are thousands of parents like

> me doing the same thing.

>

Wonderful idea! If you could reach more of the " non-autism " community you

might be able to give an unknowing parent of an autistic, or future autistic

child a heads up. Before my son was diagnosed I really didn't know what autism

looked like. Many peoples only experiences are movies like " Rainman " . If I had

known some of the warning signs I could have gotten starter sooner on

interventions!

[Guest guest]

Yes, yes, yes...that is exactly what I was thinking in terms of what

needs to be shown. And I think it would be a tearjerker but with a

very happy ending. At least our story is...and my hope is it would

show people the reality of it so they understand autism *can be*

treated. People still think autism is RainMan or a birth defect.

Maybe in some cases, but not the epidemic of kids we are talking

about. Some one actually said to me the other day, " But he doesn't

look retarded... " Duh!

I know what you mean too... the local Child Development Services

refers people to me for help with the diet. Most of the time they

don't keep up. They want the instant cure which by all means I can

understand but reality says we are in it for the long haul. We have

maxed the second mortgage and are down to our last $1000 on our

credit card but hey - if that is what it takes, that's what it

takes. It's soooo worth it!! But I completely understand why for

some people it's so hard. It is hard! I get upset with people and

feel like, " well, why the heck did you even ask if you aren't going

to do it! " but I know I shouldn't.

Thanks for the ideas and encouragement. I'm going to keep these

messages for reference.

Truly,

a

The thing is, it would have to include the toe walking, hand

flapping, non eating, dark circles under the eyes, social

ostracizing, head banging, feces smearing, not talking, aggressive,

giddy laughter, non sleeping nightmare. Not to entertain, but to

wake parents up. You send enough parents home scratching their

collective heads, you're going to get, those rationalizing why

that's " not their child " and those secretly fearing " it is their

child " . What aggravates me the most are those parents who come to me

for help, and then tune out when they realize the " work " that's

involved. For them, giving up the second vehicle, not keeping up

with the 's, etc.

[Guest guest]

and a -

It wouldn't be like " Shine " or " Awakenings " but both films proved

that the toe-walking, hand-flapping, etc can capture attention!

- it really is heartbreaking to see the number of kids who

don't get the dietary interventions they need to just get out of

pain because the interventions (i.e. diets) are " too hard " . Yeesh.

And that's just to get out of pain - not develop and reach potential.

Jaci

> I was just thinking the same thing the other day. No kidding, but,

in this society, the media (movie) is the quickest means with the

largest audience to convey information. What a heartbreaker this

movie would be. The thing is, it would have to include the toe

walking, hand flapping, non eating, dark circles under the eyes,

social ostracizing, head banging, feces smearing, not talking,

aggressive, giddy laughter, non sleeping nightmare. Not to

entertain, but to wake parents up. You send enough parents home

scratching their collective heads, you're going to get, those

rationalizing why that's " not their child " and those secretly

fearing " it is their child " . What aggravates me the most are those

parents who come to me for help, and then tune out when they realize

the " work " that's involved. For them, giving up the second vehicle,

not keeping up with the 's, etc. It's too much. And no, you're

not paranoid about " disappearing " . Maybe nothing so dramatic, but

you address the toxins in our society and the whole vaccine issue,

and you sure as heck will get a character assassination done on you

and your family. All these individuals who've written books, I

especially remember Maurice ( not her real name), there

are a lot of reputations and some money on the line here. Good luck

to you, if you need any material, just ask.

> Re: joseph update, and telling our stories

>

>

> I agree. I gain so much knowledge from reading others stories.

It is

> empowering to learn about other families going through the same

> things and making such incredible leaps and bounds.

>

> On a similar note, I wanted to throw this out there. . . it

seems so

> many of us are putting our stories out there. So many people I

> encounter on a regular basis tell me I should write a book. I'm

sure

> you all have heard that too. This is from people who aren't in

this

> every day and don't understand there are thousands of parents

like

> me doing the same thing.

>

> But I have been toying with an idea. There are now several books

on

> the market that discuss their own families' personal encounter

with

> autism, and the diet, and the vaccines, and the discoveries. I

> think these are such an invaluable resource to our community.

They

> saved my kid's life. But...they are not attractive to the

mainstream

> population. I have been mulling over either writing a book that

> is " based on a true story " but is a narrative work - popular

fiction

> thus pulling in the " mainstream " or (as I know others must have)

of

> writing a screenplay instead to get it " out " as quickly as

possible.

>

> I envision something along the lines of Silkwood,

Brokovitch,

> Lorenzo's Oil, and The Hot Zone or Outbreak.

>

> What do you all think about this? I would follow the genre and

be

> able to insert factual information that will blow people's socks

off

> (that is if I wasn't killed before it came out - call me

paranoid

> but not something a whole lot of people would want to happen).

>

> Any thoughts? Honest...

>

> Truly,

> a

>

>

>