Guest guest Posted October 4, 2003 Report Share Posted October 4, 2003 My 7-year old son, , has been gfcf for three months. He was diagnosed pdd-nos at three. We have been involved in all sorts of speech-language therapy since his original diagnosis. We have seen improvements with the diet - I wish I had heard of it sooner - I stumbled upon it in July. He all of a sudden has interest in imaginary play, is no longer in pull-ups at night, and hits his 6- year old brother less in frustration. He is a second grader in a mainstream classroom. He gets OT and speech " resource " . He has problems concentrating, keeping on task, behavioral, and interacting with his peers. We do see a link between sugar consumption and behavoral issues. He does well in math, spelling, reading (he taught himself to read at four), but has difficulty comprehending and expressing himself. All this is typical of his disorder. My concern is that he had a very limited diet before the diet (cereal, pb & j, pasta, milk, macaroni & cheese, fruit, no meat unless you call McNuggets meat, ice cream, crackers, etc) and with the diet is still very limited just different foods (gfcf waffles, peanut butter on gfcf toast, corn pasta, chocolate soymilk, soybeans, fruit, corn, soy ice cream, french toast made with gfcf bread). He eats a lot of soy, corn, and peanut butter and I am concerned that he may be allergic to these also, but if we removed these he would eat hardly anything. I talked with another parent in the area this week and she suggested probiotics and ensymes. We tried the ensymes from the gfcf website and they were so bitter we had to disguise them in foods and found he didn't want the foods anymore because of the taste (and I tried them and couldn't blame him). I have read 's book and it seems like he may have yeast. After he got out of the tub last week we noticed that his groin was all red (he had also just recovered from a cold). It just made sense to us that he has yeast. Right now I am overwhelmed. I would like to do food testing so we could know for sure what he is intolerant to. My mother is allergic to wheat, milk, sugar, peanuts, and many other things (my brothers and I probably have similar allergies). She had a lab in Texas do the testing about six years ago. I am inclined to do the same. However, if he is allergic to soy, corn, and peanut butter, we'd be left with fruit, potato chips, and Mcs fries as the only foods he'll eat. We tried the DariFree milk and he didn't like it. He won't eat rice or potatoes other than those mentioned. A lot of what the parent in the area said made sense. If we could do the probiotics and he would start eating meat and vegetables, it would be wonderful. The only vegetables he eats now are soybeans, corn, and sometimes peas. I am concerned about his weight. He is as skinny as a stick. He weighs 52 pounds and is 52 inches tall (he was 90% in height and 75% in weight a year ago, but hasn't gained any weight in almost two years). His father was as skinny as a child, but ate a lot. We give him a vitamin at night. I bought the gfcf raspberry vitamins and he didn't like them. So we have been giving him Flintstones. As far as I can tell they are gfcf. I guess my question is what do I do and why. I'm inclined to try the probiotics and ensymes. From what I see from other postings is to do the probiotics first for a week and then the ensymes (any recommendations as to ones that taste good). As I understand it this is to get good bacteria in his stomach. Then she recommended that I try grape seed oil extract to kill the yeast (I would try Nystatin but my pediatrician is no help - " you can't believe much about what you learn on the internet " and I am not sure he would prescribe it.). We have heard about DAN doctors and the Pfifer clinic in Chicago. Are these worth investigating? Or should we do the probotics and ensymes and see how they work first? Please forgive me for rambling, but I wanted to put in as much information that might be relevant. Thanks for any assistance. Quote Link to comment Share on other sites More sharing options...
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