Guest guest Posted October 7, 2003 Report Share Posted October 7, 2003 on cannot have dairy. He got juvenile rheumatoid arthritis at age three (he only ever had cheese and butter anyway and soy milk). When dairy was completely eliminated he went into remission -and treated for leaky gut. When, 6 months later he was re-challenged, same thing happened - three hot joints. I have been giving him dairy since we've been on enzymes and seemed to be going OK, but now he has a hot joint (maybe 2) again. I'm so upset. Do you think it will get better as his gut heals more or is there something else (ie virus causing autoimmune reaction) that I should be looking at? Thanks a lot Prue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2003 Report Share Posted October 7, 2003 Prue-- Maybe you could try goat milk, cheese, yogurt instead. I have a son that is allergic (hives, throat clearing, sick feeling) when he eats cow milk products, but has no trouble at all with goat products. We even use Goatein by Garden of Life. It helped him put on a little weight. ideas? > on cannot have dairy. He got juvenile rheumatoid arthritis at age three (he only ever had cheese and butter anyway and soy milk). When dairy was completely eliminated he went into remission -and treated for leaky gut. When, 6 months later he was re-challenged, same thing happened - three hot joints. I have been giving him dairy since we've been on enzymes and seemed to be going OK, but now he has a hot joint (maybe 2) again. I'm so upset. Do you think it will get better as his gut heals more or is there something else (ie virus causing autoimmune reaction) that I should be looking at? > Thanks a lot > Prue > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Hi ... What if you take a route that never strays far from home, like going around and around the block? You should definitely try pushing it if you're able. I've watched a lot of people recover, and I can definitely say that those who walk a lot seem to recover faster than those who don't. It's not unheard of that people are walking a mile by this stage. Cam, wasn't it you who got specific goals in terms of walking distance? Regards, > > Hi all, > I have been making many tours through the house since I have been > home. Monday was two weeks. I walked outside down the sidewalk > about 50 ft for two days, then one house down, then two houses down. > The problem is whoever is watching me doesn't want me walking any > further. They are afraid I am overextending, though I have explained > that I am not. I even tried to explain that this is what I am suppose > to be doing. As PT said, only walk as far as knowing you can make it > back. I know I can go further. How can I convince these people (they > all mean well) that I can walk further? any ideas? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Hi : I sympathize with your predicament! I cannot recall how many weeks you are post-op. I can only tell you the specific walking guidelines that I was given (by Dr. Bridwell) post-revision. He said that my goal was to be walking 1 mile by 1 month post-op, 2 miles/day by 2 months post-op and 3 miles/day by 3 months post-op. I know that it sounds challenging when you're still in the early stages, but it was definitely achievable, and very rewarding to set the goals and then meet them. It all did end up working out each month (1, 2 & 3), and then I was also expected to keep up the 3 miles/day after that! I guess that if you mention the doctor's goals to your friends/relatives, that they may accept " doctor's orders " over their well-meaning protectiveness-? Worth a try! Good luck to you. It sounds like you are doing so well! Sincerely, Martha > > > > Hi all, > > I have been making many tours through the house since I have been > > home. Monday was two weeks. I walked outside down the sidewalk > > about 50 ft for two days, then one house down, then two houses down. > > The problem is whoever is watching me doesn't want me walking any > > further. They are afraid I am overextending, though I have explained > > that I am not. I even tried to explain that this is what I am suppose > > to be doing. As PT said, only walk as far as knowing you can make it > > back. I know I can go further. How can I convince these people (they > > all mean well) that I can walk further? any ideas? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 , You don't say, is someone walking with you? Are they afraid you are just going to collapse? The timing of my surgery was such that outside walking was not really a possibility for the first month to six weeks...it was still winter and there are no paved smooth areas, no malls...just dirt roads and trails. My discharge instructions, and I quote, were " Begin slowly and gradually work up to 15-20 minute walks, 3-4 times a day. Work up to 5 miles a day. Use a cane for outside ambulation " . Part of that info was good...and part, I think, is a typo. What I did was set the timer on my kitchen stove and walk the loop in the house first for 10 minutes, then build to 15 minutes, then 20 mins....adding the extra 5 mins to each session every couple of days. And I did that religiously 2 or 3 times a day. Once I got so I could walk for the whole 20 or 25 mins. I had my husband bring me to the grocery store so I could walk longer while he shopped....that seemed like a huge moment. Ha! Working up to 5 miles seems like an outlandish goal. Before flatback befell me I walked and hiked alot. I could walk a mile in under 13 minutes. At that pace, post surgery goals would take 1-1/2 hours. Being that I wasn't walking anything like 13 min/miles I am thinking walking 5 miles, even today, would take close to 3 hours. I like the way Martha's Doctor put it better...so I just kind of worked up to taking one big long walk as the weather improved and I felt surer on my feet. I think one of my routes is about 2.5 miles and I could easily cover that by 4 months. I honestly felt a lot safer water walking in the earlier going so I did that more. Maybe just tell your family that this is what it takes, and the faster you regain some endurance, the better it is going to be for everyone. I did order one of those camp chairs (tripod thing) that had a sling so I could put it over my back and bring it on a walk in case I needed to sit down. It turned out I never did...but it seemed to make me feel more confident! Just remember that less is more right now. If you walk 3X 20 mins...that is walking an hour a day....more than most of your friends and family probably do! Patience! Cam Quote Link to comment Share on other sites More sharing options...
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