Re: Digest Number 2284

[Guest guest]

, I have a daughter thats 5 she just had some tests done through great

plains lab. Those were for food allergy,peptide,and organic acid. We have done

the stool tests that you mentioned everything always came back O.k. at one point

she had blood that was not visible. That worried me so we went to G.I. she would

get sick out of both ends for one day about every 2-3 months , and it would end

up looking like mucos. Anyways I have heard anytime your child gets antibotics

to also ask for a script of nystain because it helps with the yeasts. We are

just now starting the diary free,and all the enzymes ,and stuff. I hope anyone

would e-mail me with advice All I have done so far is taken her off of dairy. I

have have a probotic in the frif also have coconut oil. Waiting for the enzyme

in the mail any info I would love!!!! Good luck

le

[Guest guest]

Rusty

Hello to all

and I have not posted for a while as we have been in a

really BIG slump. She has been tapering from 9 (x 2.5mg) MTX per week to 4

so far....she has an appointment with the rheumy the end of the month..she

is still on 1000 mg of Naprosyn per day. It is really discouraging. She has

lots of pain in the hip and knee region. After 2 scans of the body (bone and

MRI and CT) with NO activity....the DX may need to be changed. She will

always be + HLA-B27 with active signs from 18 months to 7 years of

age...however she is now 5'9 (NO complaints) with daily hip and knee

issues.She was playing soccer to keep active and that was REALLY BAD! So

maybe another problem wants to be heard? I hesitate to post a picture of her

as she is the picture of health positive youth carefree and happiness. I

only hope that we can uncover what her problem is now.

has a few words for Uncle Rusty. He may not have made you his

famous breakfast yet...and he really hopes that he will someday....but

pushing the veggies was over the top for him. His views are that if the

accompaniment is so obvious that you must sample it separate that perhaps

you didn't do your homework?!? A veggie fruit or starch should COMPLIMENT

the meal not mark it. Yes this kid is 13 and NO he is not a Emeril fan as

Emeril SALTS everything.. like Malto or something like that.

celebrates with the hurdles overcome and cries with the

ones missed. She recently donated her hair to Locks of Love which makes wigs

for kids on chemo (exclusively) at no charge. She is one that always looks

for ways to help. This is a major reason why we have not posted in a while.

We have only this with no new updates and nothing to offer by way of relief

or new direction.

With prayers of a less painful 2004

Carol and AS and ?

--- car54ol@...

[This message contained attachments]

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[Guest guest]

I have some good news. Ashton finally kicked a sinus thing without

antibiotics. We are so happy!! She started with sinus pain, congestion, and

yellow

mucus. I waited on calling the doctor. Usually, she will have a full blown

infection within a day. It never got worse, and now it is gone. I am amazed!! It

looks like the IVIG is helping her fight things now. I am so happy, and so is

she.

I think she needed a little boost. She is still isn't taking the diagnosis

very well. Now that they up'd her to IVIG every two weeks, her levels are

better. I am so thankful.

L.

Mom to Ashton 11 CVID, Asthma, Dyslexia & Marina 8 Asthma (labs still

pending)

[Guest guest]

In a message dated 11/5/2004 11:24:17 AM Eastern Standard Time,

Nanashmar@... writes:

I have some good news. Ashton finally kicked a sinus thing without

antibiotics. We are so happy!! She started with sinus pain, congestion, and

yellow

mucus. I waited on calling the doctor. Usually, she will have a full blown

infection within a day. It never got worse, and now it is gone. I am

amazed!! It

looks like the IVIG is helping her fight things now. I am so happy

That is WONDERFUL! I am happy for you.

Janet, mom to Brittany, CVID, age 13

[Guest guest]

Lynn, Traditional Medicinals has an organic roasted Dandelion Root Tea --

which I have but haven't tried yet !

[Guest guest]

Please count me in for the gathering this year. I know I am a quiet member,

but I sure love to see everyone at the gatherings, and someday (when I'm done

with school) I'll have enough tiime to do more than just read the messages! I

am so thrilled that it's close to me this year!

a

[Guest guest]

Gotcha a. What are you going to school for ?

thanks!

Shaye

[Guest guest]

Hi

I had difficulties re-registering last

December. I filled in the form correctly, not ticking the bit for nursing. The

NMC then contacted me saying I had to do it all again because my form had to

include a declaration that I was practising as a nurse. I then rang them

because I was annoyed and also concerned about the idea of being able to work

in a hospital after 25 years absence, and how unsafe this would be. I was

told that it was only a formality, I wouldn’t have to practise as a nurse

but I couldn’t re-register unless I said I would…..

You’re welcome to add this to your

log.

Kind regards

Gill

-----Original

Message-----

From:

[mailto: ]

Sent: 10 August 2008 15:02

Subject: Digest

Number 2284

SENATE

FOR HEALTH VISITING AND SCHOOL NU

Messages In This Digest (1 Message)

1.

NMC

re-registration glitches...? From: hwood@...

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NMC

re-registration glitches...?

Posted by: " hwood@... " hwood@...

hwood20002001

Sat Aug 9, 2008 9:51 am (PDT)

It occurred to me that we ought to have a

bit of a log of these

problems. I know the issues that have arisen, but it's not easy to

say whether these are just isolated blips or a general muddle.

I'm more than happy to contribute mine because I already put it all

on Senate to get the benefit of your collective advice and support.

I got the sense I wasn't alone!

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[Guest guest]

Thanks Gill! I believe there will be a way to use this data, ideally

before the next NMC Council gets in in the new year.

It sounds like there's a muddle at the re-registration office which

keeps coming up when we try to renew. Mine was ticked for both

nursing and health visiting, because I'd been able to do a senior PCT

job which honestly bridged both. But next time, I'll just be a

health visitor and will seek the registration which relates to my

area of practice.

I haven't been a pukka hands-on sick nurse for 31 years, but in the

light of my registration, I guess I could pop into my local intensive

care unit and seek a post commensurate with my seniority at that

stage. Dunno what this means for public protection, but it's nice to

feel up to date...

.

< >

From: " Gill Newell " <gill.newell@...>

Date sent: Sun, 10 Aug 2008 17:59:37 +0100

Subject: RE: Digest Number 2284

Send reply to:

Hi

I had difficulties re-registering last December. I filled in the form

correctly, not ticking the bit for nursing. The NMC then contacted me

saying I had to do it all again because my form had to include a

declaration that I was practising as a nurse. I then rang them

because I was annoyed and also concerned about the idea of being able

to work in a hospital after 25 years absence, and how unsafe this

would be. I was told that it was only a formality, I wouldn´t have

to practise as a nurse but I couldn´t re-register unless I said I

would.....

You´re welcome to add this to your log.

Kind regards

Gill

Digest Number 2284

SENATE FOR HEALTH VISITING AND SCHOOL NU

Messages In This Digest (1 Message)

1.

NMC re-registration glitches...? From: hwood@...

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Message

1.

NMC re-registration glitches...?

Posted by: " hwood@... " hwood@...

hwood20002001

Sat Aug9,2008 9:51am (PDT)

It occurred to me that we ought to have a bit of a log of these

problems. I know the issues that have arisen, but it's not easy to

say whether these are just isolated blips or a general muddle.

I'm more than happy to contribute mine because I already put it all

on Senate to get the benefit of your collective advice and support.

I got the sense I wasn't alone!

Back to top

Reply to sender| Reply to group| Reply via web post

Messages in this topic (1)

Visit Your Group

Health

Achy Joint?

Common arthritis

myths debunked.

Meditation and

Lovingkindness

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[Guest guest]

Hello My re-registration came up in July.  I telephoned, and was given lots of misinformation about what counted as up to date practce, and was basically told that I wouldn't be expected to be up to date with hands on nursing, just because I ticked the box.  I duly ticked both nursing and health visiting (SCPHN), and within 3 days received notification that my SCPHN registration had lapsed and the nursing one was current.  I telephoned again in some distress, and was told it was a computer error; both should be current.  It took another telephone call and two weeks for the 'correct' notification to come through (ie, with both current).  On 10 Aug 2008, at 18:10, hwood@... wrote:Thanks Gill! I believe there will be a way to use this data, ideally before the next NMC Council gets in in the new year. It sounds like there's a muddle at the re-registration office which keeps coming up when we try to renew. Mine was ticked for both nursing and health visiting, because I'd been able to do a senior PCT job which honestly bridged both. But next time, I'll just be a health visitor and will seek the registration which relates to my area of practice. I haven't been a pukka hands-on sick nurse for 31 years, but in the light of my registration, I guess I could pop into my local intensive care unit and seek a post commensurate with my seniority at that stage. Dunno what this means for public protection, but it's nice to feel up to date....< >From: "Gill Newell" <gill.newelldsl (DOT) pipex.com>Date sent: Sun, 10 Aug 2008 17:59:37 +0100Subject: RE: Digest Number 2284Send reply to: Hi I had difficulties re-registering last December. I filled in the form correctly, not ticking the bit for nursing. The NMC then contacted me saying I had to do it all again because my form had to include a declaration that I was practising as a nurse. I then rang them because I was annoyed and also concerned about the idea of being able to work in a hospital after 25 years absence, and how unsafe this would be. I was told that it was only a formality, I wouldn´t have to practise as a nurse but I couldn´t re-register unless I said I would.....You´re welcome to add this to your log.Kind regardsGill-----Original Message-----From: [mailto: ]Sent: 10 August 2008 15:02 Subject: Digest Number 2284SENATE FOR HEALTH VISITING AND SCHOOL NUMessages In This Digest (1 Message)1.NMC re-registration glitches...? From: hwood@....co.ukView All Topics | Create New TopicMessage1.NMC re-registration glitches...?Posted by: "hwood@....co.uk" hwood@....co.uk hwood20002001Sat Aug9,2008 9:51am (PDT)It occurred to me that we ought to have a bit of a log of theseproblems. I know the issues that have arisen, but it's not easy tosay whether these are just isolated blips or a general muddle.I'm more than happy to contribute mine because I already put it allon Senate to get the benefit of your collective advice and support.I got the sense I wasn't alone!Back to topReply to sender| Reply to group| Reply via web postMessages in this topic (1)Visit Your Group HealthAchy Joint?Common arthritismyths debunked.Meditation andLovingkindnessA Groupto share and learn.Share PhotosPut your favoritephotos andmore online.Need to Reply?Click one of the "Reply" links to respond to a specific message in the Daily Digest.Create New Topic | Visit Your Group on the WebMessages | Files | Photos | Links | Database | Polls | Members | CalendarChange settings via the Web ( ID required)Change settings via email: Switch delivery to Individual | Switch format to TraditionalVisit Your Group | Terms of Use | Unsubscribe sarahcowley183@...http://myprofile.cos.com/S124021COn