ph Update

[Guest guest]

Have you tried the body ecology diet and raw foods/raw fats/raw

colostrum etc? Go to organicpastures.com and then click on the link

about that.

> For those that don't know about ph, I'm repeating a few things.

I've broken it up into chronological order, so if you do know about

ph and you want, you can skip to the end.

> Something's Wrong

> At age four months I began to worry. My son's growth seemed

delayed. We were given prescription vitamins and told he had colic.

By fourteen months he was on the extreme tail end of the scale of

normal development, but still on the scale. However, as we introduced

more and more solid foods to our sons' diet, we saw changes in ph

that often left my husband and myself speechless. Hand flapping, tip

toe walking, spinning for abnormally long periods of time, screaming

for 3-4 hours for no reason we could discern, had to adhere rigidly

to routine, limited babbling, head banging, chronic diarrhea ( not

once had stool been formed), drooling profusely, no eye contact,

unbelievable tolerance to pain and aversion to touch. These things

happened gradually, and so of course between the family reassurances

he was fine, just a late bloomer as boys are wont to be, and the

pediatrician reassurances, well we just said he was, " on his own

program " . However, this combined with his only 3-4 hours sleep each

night, and he'd quit taking naps at this point. Well, we were

exhausted and worried. It's hard to decide what approach to take,

when you not only don't know what's wrong, but everyone keeps

reassuring " nothing is wrong " . My in-laws kept telling us to just

spank him, that'll bring him around.

> Searching

> I'm refusing to accept what everyone is saying. I'm with this child

24/7. Something is wrong. Maybe it's me. Just a little bit of reading

and I'm thinking " Autism " . I was fortunate to come across an article

in Parents magazine that contained a story about a little boy who was

diagnosed Autistic, but his parents traced it to a gluten and casein

intolerance. The little boy was now considered Neurotypical, just a

few minor speech issues. Within that same week our Newspaper printed

a story about our local Autism Center receiving a grant to test 75

Autistic children for this intolerance. They accepted ph as a

candidate for this research project. I begin the GFCF diet

immediately after we submit our urine test. Within one week of the

diet, ph was sleeping through the night ( 10 hours). ph is

now 2, and I am trying desperately to convince everyone of what I

suspect, my Husband and I are fighting something awful now. I begin

ABA therapy, during which time I appease my husband and pediatrician

with a hearing test, neurologist's visit and contacting our Kern

Regional Center. The results come back high for both gluten and

casein intolerance. We already see him responding to the diet, he

answers to his name, he waves bye-bye, but there is no language. He

had 20 words at one point. At some point they are no longer heard.

When did that happen?

> Progress

> ph is several months into ABA, and I want to start speech and

occupational therapy. The diet is a no brainer, it helps, and ph

now displays the four developmental markers that Dr.s Azrin and Fox

require to potty train a mentally retarded individual. ph is

potty trained in 2 days. Several things happen at once. His first poo

in the potty chair is formed. Solid. This is a first for him. Not

only that, his second poo, is at 2am, he comes to get me, get Me? Can

you believe that? This is a child who barely acknowledges my

existence.

> Searching Again

> He's made such beautiful progress, but I want more. What happened?

What caused this? Our school district does an assessment with their

team, on Sept. 11, 2001 we get the news, Autistic. We cry as we watch

the planes crash into the twin towers. I want answers. I'm not happy

with what the district has to offer, so we set up private speech and

I begin looking for a private pre-school. ph doesn't talk,

doesn't want to be touched, likes to be alone, lights bother him,

sounds bother him all of a sudden, he twirls, is obsessive compulsive

and has some rather nasty tantrums, we begin calling them meltdowns.

Four doctors later we end up at the Sansum Clinic in Santa Barbara

California. Here we go, Dr. Liebhaber listens to me, looks at all the

labs I've presented to him from all the different Doctors and says to

me, " how is it you don't know what is wrong with your son? " I cry. I

know something is wrong physically, and now a Doctor is agreeing with

me. He says we need to put a medic alert bracelet on him and get him

in to see an immunologist and gastroenterologist at UCLA. He is IgA

deficient completely, doesn't seem to have that part of his immune

system working at all, and suspects Celiac's disease.

> Age 3.

> It's close to Christmas and we go to UCLA, between all the

specialists, we are going 2 times a month. By the time they are done

with him, he is on year round antibiotics and receiving vaccines

every month. The gastroenterologist tells me to reintroduce some

foods, and quit with the vitamins. In the following 8 months ph

has 2 bouts of bronchitis, tonsillitis twice and 3 colds/viruses that

last 2 weeks to 2 months to kick, plus 2 ear infections. I'm

condescended to and yelled at for continuing my own research. They

tell me not to worry about the autoimmune diseases that can result

from the rest of his immune system being on hyper drive for so long.

> Age 4

> I'm done. ph is down to 34 pounds. We've not done ABA in two

months, pre-school is rare, meltdowns and stimming behaviors have

increased. Drooling disappeared for a short while, now has returned.

We have a new problem, he bites himself. Eczema disappeared after the

GFCF diet, now it's back. ph is reacting to all foods now, and we

are down to chicken, pork, potatoes, water and salt and pepper as

spices. He's sleeping only 3-4 hours a night again, and my husband is

gone. He has been called to active duty due to the Sept. 11 attacks.

I'm on my own. I get a phone call from UCLA, ph now has what is

called impaired poly sacchari response. He is not holding titers to

any vaccines now.

> My research, and newfound freedom ( husband out of state) lead me

to a new path. I begin Ojibwa Tea, probiotics and DMG. ph begins

talking in two word phrases and is gaining weight. Dark circles under

the eyes disappear and he kicks a cold in 4 days flat. ph starts

to sleep through the night again. January comes and I'm ready. Ready

to start enzymes. It is 2 months of hell. I tell my Mom, and Aunts to

understand I'm doing a sort of detox if you will, and ph is going

through this sort of die-off, withdrawal thing. ph pee's the bed,

bites and hits me, has nightmares, rages and laughs for no reason I

can discern. I'm tired, but I go through my journals and realize this

is everything I faced 2 years ago prior to the diet.

> Adjustment ends.

> ph has adjusted to all three enzymes. He is talking in

sentences and the speech pathologist is floored. He has lost his

rigid adherence to routine, and is engaging the children in his pre-

school to play (this part really began after the Ojibwa Tea). The

eczema clears up and he isn't sickly anymore. I quit counting every

crumb he consumes. His food repertoire opens up to include all things

allowed on the GFCF diet. We challenge with oats and it's no problem.

I'm excited. He is catching up so fast that my daily routine of ABA

can't keep up. He goes to pre-school every day now. My husband

returns home to a little boy who says, " I love you " . I'm tired, but

happy. There's still a problem.

> What Happened?

> I know from my research that there is a

viral/bacterial/yeast/fungus problem at the heart of his delays and

pain. I treat for yeast with GSE and see phenomenal improvement, and

then 2 weeks later, the irrational anger is back and I know the yeast

is back. I'm looking for a Doctor that will help me uncover what is

at the heart of this.

> Dr. Goldberg

> I find this doctor who treats a disease he calls . We go, he

tells us, " if your son has what I think he has, I can cure him " . I

ask for a timeframe, knowing everything takes years, and ph is

close to being 5. Doctor Goldberg says, " 4-6 months " . I ask about

future children, (we'd been told not to have anymore, as the next

child's immune system could be even more dysfunctional, and the odds

for an Autistic child increase once you have a child already

diagnosed.) Doctor Goldberg tells us not to worry. Yes, we can have

more children, and no they won't have this particular set of

problems. ph's disease was acquired, not genetic, and so it can

be avoided with future children. Turns out ph does have a virus

called HHV6. Most people show a past exposure, ph has high active

levels. We begin treatment with Valtrex, the last of my son's

obsessive compulsiveness disappears ( if he misses a step on his

ladder on his way to the top bunk bed, he'd have to go to the floor

and start all over again). A daily multitude of things like this,

sort of made him stand out from his classmates. His fine and gross

motor skills improve, he can catch and hit a ball with a bat. His

memory improves. His eyesight gets worse.

> I ask what to do about yeast/fungus. I've researched a great deal,

and I want off this yeast roller coaster. Doctor Goldber prescribes

Nizoral. I research this med for 10 days before I get it filled. The

second day on this ph vomits and shows several of the warning

signs/side effects to look for. I call Dr. Goldberg. He says it's

coincidental. We have ph take this med. for 1 month. He gets an

ear infection and sore throat that just won't go away. I've managed

to avoid antibiotics for almost a year at this point, now it's

necessary to use Augmenten, it doesn't work. We run out of Nizoral,

and go back to Goldberg for a follow up. Labs show virus is still

just as active, and this Nizoral really took a toll on ph. It's

been 4 months, I ask Doctor Goldberg what is the problem, and I don't

want to continue the Nizoral. I get yelled at. It's unbelievable, we

leave and I'm heartbroken. Not only will Dr. Goldberg not prescribe a

different antifungal, but he wants to start SSRI's. The nurses

confess most of his patients require these meds. for years. Dr.

Goldberg just had high hopes for ph.

> Home Again

> I don't refill the Nizoral, but I treat with GSE for 4 days every

time I see evidence of a yeast problem, which is about once every 3

weeks, and I begin Culturelle. ph becomes constipated, so we use

PFS probiotic combined with Culturelle. Now, back in Sept, back when

we were 3 or 4 days into the Augmenten, I had a conversation with my

son. A conversation. It was our first. I kept him up till 11pm, he

fell asleep in my arms. I asked him what his favorite color was, his

favorite food, all the things I thought I'd learned through

deduction, but could never ask, because it was an abstract, and he

didn't understand. We had that for 2 days. It disappeared. In fact he

regressed in his abilities across the board shortly after that

Antibiotic treatment. Now the conversations are back. We have them

every day. About everything. He lies to me now, he has a friend. A

real friend, her name is Jordan. He got into trouble at school a

couple of days ago, he and a little boy named devised this

game about scary ducks and it got a little out of hand. I love it.

> November 11.

> I'm dreading it, but we have to go back to see Dr. Goldberg. In my

fantasy, he agrees the Nizoral created an environment in ph that

allowed the bacteria to get out of hand, the brief improvement on the

antibiotic was reflective of this, but the Culturelle seems to have

proved this point. The Nizoral is no longer an issue, we'll use

Nystatin or Oil of Oregano. And we'll use amino acids, full spectrum

lights, evening primrose oil, etc. to increase the available

serotonin, not SSRI's.

> The reality is he yelled for the entire visit. There was no

discussion. The nurses not only closed the door to our room, but the

door to the lobby as well. He refused to treat ph any longer,

said I did more harm than good, he said I wasn't a doctor, he said I

hampered his efforts, said I had to agree to do what he said or that

was it. I asked where the hell my cure was. He yelled about funding

and what not. I said that wasn't my problem. I said he didn't even

know for sure what type of yeast/fungus was the problem, so how could

he know I made it worse. I said all the Doctors before him told me to

trust them blindly as well, I told him I would not. I told him I know

ph better than he does, despite not being a doctor. I told him

that it was disheartening to realize his ego was bigger than his

compassion for ph and that all I wanted were copies of ph's

chart. He said he wanted to treat ph, but needed my cooperation,

and by the way did I purchase his videos? I said I would check them

out, but not buy them. He said he wouldn't charge us for the visit,

and to buy the videos and then call him if we still wanted him to

treat ph. I said, " no more Nizoral? he said, " no, we can try

Diflucan " . My husband bought the videos. We've yet to watch them. We

are waiting for our appt. in Virginia with Dr. Megson. We have more

answers now than we did a year ago. Onwards and upwards. ph is a

beautiful 45 pounds, the nurse examined his ears with this instrument

while we were waiting, ears all clear. When we correct ph, he

says, " I think... " I quit cleaning with comet a couple of days ago,

and the drooling is gone again. There's a lot of work to be done

still, but this little boy has friends, knows his parents love him,

isn't frustrated as much, because he is discovering he can do so much

more, has conversations with me, his friends, and amongst his toys.

I'm blessed. I still want more. We've still not licked this viral

thing (my goal is to give his immune system enough of a boost that it

can kick it/ build it's own antibody to it). Kick the bacterial and

yeast/fungus thing, I am neck deep in amino acid research, got to

heal that gut lining and get things in balance. His eyes are still an

issue. He has 20/20 vision, but can't sustain focus. We see Dr.

Megson Dec. 5. I'll update then.

>

>

>

[Guest guest]

Dear ,

Yes, I also believe that viral, yeast /bacteria gut is the root of all of

this. When we got 's gut cleared up 90% of his autistic behaviors were

gone and he grew and gained weight and got healthy.

This is what helped...

Butyrate....for his clostridia

Homeopathy....for gut(she put him on candida) and immune issues

body ecology/raw foods

Kane balancing his oils and unblocking pathways

craniosacral and chiro adjustment for clearing and overall health

My opinion on Dr. Goldberg...he is too close to the drug companies and wants

to be the one to find a drug to cure Autism...won't even consider that

vaccines caused damage to these kids. i know several who have taken their kids

there

and none were happy with him

[Guest guest]

Thanks for sharing. I'll have to look up a couple of those things you mentioned.

I am very happy for . Your child is blessed to have you as a mother. Every

single time I've been in Dr. Goldberg's office, there has been a pharmaceutical

rep. either in his office, or just leaving his office. The SSRI's he kept

pushing on us, yeah, he loaded us up with different boxes of samples. Of course

I just threw them in the trash. I appreciate his knowledge with regards to the

viral component of this problem, he did serve a purpose. Unfortunately my

excitement with regards to his ability to think " outside the box " failed to take

into account that he had simply created a larger box for himself and his

patients. Not my problem. There are those that are very happy with him, there

are those children that respond to the antivirals quickly. I realize why those

that are so positive about him, and go along with most of what he says, are

those that don't feel there is an alternative. Well, that's what got me into

this mess. I do have an alternative. I really don't appreciate being lied to

though. I may have to answer to God for vaccinating my son and putting all that

processed crap in his body, but Goldberg is in a lot more trouble than me. I

won't waste time with anger any longer, just moving on.

Re: Re: ph Update

Dear ,

Yes, I also believe that viral, yeast /bacteria gut is the root of all of

this. When we got 's gut cleared up 90% of his autistic behaviors were

gone and he grew and gained weight and got healthy.

This is what helped...

Butyrate....for his clostridia

Homeopathy....for gut(she put him on candida) and immune issues

body ecology/raw foods

Kane balancing his oils and unblocking pathways

craniosacral and chiro adjustment for clearing and overall health

My opinion on Dr. Goldberg...he is too close to the drug companies and wants

to be the one to find a drug to cure Autism...won't even consider that

vaccines caused damage to these kids. i know several who have taken their

kids there

and none were happy with him

[Guest guest]

> For those that don't know about ph, I'm repeating a few

things. I've broken it up into chronological order, so if you do

know about ph and you want, you can skip to the end.

OMG ,

You've had SUCH A FIGHT to ensure your son gets the things he needs

to help him get better! Why must doctors insist on being right -

and on mothers always being wrong? You inspire me. Your story

brought tears to my eyes!

You DO know ph best - better than all those guys in white coats

out there who insist that their theories are the only way.

Keep up the fight and thanks so much for sharing.

Jaci

PS - I look forward to your update in December!

[Guest guest]

Thank you.

[Guest guest]

Hi Everyone. I've posted updates before, they can be rather long, so just delete

if this isn't any info. you need. Archive messages list prior updates that have

ph Update as the Header. I'm too overwhelmed to start over, Messages 46941

and 49538 put you at two updates. The most comprehensive update is dated

November 13th, 2003 at 10:47 pm.

We saw Dr. Megson Dec. 5. I'm unable to accurately describe how I'm feeling.

Since her visit I've laughed, cried, been pensive ( according to my husband). We

went there hopeful, and we came home hopeful.

Rehash of the Immediate past.

. It sounds so formal, it encompasses the gastrointestinal, immune, and

autism issues that are for a large part so devastating to our children's

development. But here's what I've learned, in our search to deal with the

underlying catalyst that " caused " the Autism, leaky gut, IgA deficiency, and

viral/bacterial/fungal/yeast issues, we ended up " treating " just one more

symptom ( the virus). What I mean is this:

ph has multiple diagnosis. We were tired of treating them individually, or

rather, we were tired of treating the symptoms individually. We wanted a Doctor

who would look at the whole child and identify/fix the cause of all this.

We treat for the Autism diagnosis with ABA therapy, sensory integration methods,

a speech pathologist and a neurotypical pre-school environment. For the IgA

deficiency diagnosis, we are very careful, bottled water, keep him home on

occasion when nasty little outbreaks occur at school, change his clothes and

wash his hands frequently, and a medic alert bracelet. For the Impaired poly

sacchari responsiveness diagnosis (doesn't hold titers to vaccines) , no more

shots of any sort for us. For the leaky gut Celiac's misdiagnosis, GFCF diet,

with enzymes allowing all other foods, except bananas and oranges. ( This is

significant because at one point in the beginning of 2004 we were down to

potatoes, rice, chicken, pork and water, with only salt and pepper to flavor).

For the yeast flare ups I would treat periodically for a 3-4 day period with GSE

and then a couple of weeks later symptoms of yeast overgrowth would return.

What I was seeking from Dr. Goldberg back in the spring of this year, was a

means of treating the underlying problem that started the immune system,

gastrointestinal and autism problems. ( I could pinpoint the beginning of all

this to the vaccines, but I thought, due to my research that it was not just the

mercury as a preservative that was problematic, but that one of several stealth

viruses could be sabotaging ph's improvement. These viruses sneak into the

vaccines due to the way they are cultured.)

Dr. Goldberg was a man who put it all together, did blood work ups for viruses

no one else would do, and " believed " me or at least seemed to " listen " to my

observations and concerns. Having researched a great deal prior to our visit

with him, I was optimistic.

Here's the reality, Dr. Goldberg " thinks outside the box " when compared to the

mainstream medical establishment, but all he did was put ph in a bigger box.

ph does have high active levels of HHV6 ( a virus in the herpes family), yes

the virus does cause problems to his development, but, it's like the leaky gut

and autism, it is not the cause of all this, just one more symptom of a

malfunctioning immune system. Dr. Goldberg led us to believe that treatment with

Valtrex ( an antiviral that reacts only with cells carrying the virus) would

alleviate the problems we'd been facing. That the developmental issues would

resolve, as the constriction the body self induced to reduce the flow of the

virus also reduced the flow of nutrients to, among other places, the brain. Once

the body realized the virus was no longer a threat, adequate blood flow would

resume and growth would resume.

Here's what I've discovered that no one is talking about. HHV6, along with CMV

and some other suspect viruses, hide. That's right. It hides. There are 5 places

in the body that mercury likes to hide, and that is where the virus goes.The

virus is effectively blockaded from the antivirals by the mercury sitting there,

and so you get either no improvement in active levels of HHV6 or you get the

recurrence of this virus once the med. is stopped, unless of course this brief

boost is sufficient for your own immune system to form its' own antibodies to

HHV6. The whole point of the antiviral treatment is to give your own immune

system ( which is underfunctioning and overwhelmed) a helping hand so that you

can develop your own immunity to this virus, just like most everyone else in our

population does. We've been on Valtrex for six months with no

improvement/decrease in the active levels of the virus.

To address the fungal/yeast issue, which most doctors won't even touch on, Dr.

Goldberg put ph on Nizoral, I protested, but not adamantly enough. We tried

it for a month and it put ph in such bad shape that I stopped it, despite

Goldberg's insistence we continue with it.

Thanks to this group of intelligent individuals, I researched and then altered

our standard GSE yeast treatment with OoO and OLE and introduced Culturelle to

our arsenal of probiotics. This is what has given us our recent leap in

cognitive abilities and given ph his conversational abilities. Very exciting

for us, but dismissed by Goldberg during our last visit. He still wanted us back

on Nizoral, and to start the SSRI's he's been yammering about for the past 3

months. I've done enough research on SSRI's to know I won't use them, the info.

was bad enough, but his inability to dispute, in fact his obligatory

acknowledgment I was " right " about the side effects and lack of long term

studies led not to an understanding between us, but to his yelling, and I do

mean yelling about how I'm not a doctor, how his lack of funding inhibits him

from doing truly fantastic things, how the " natural " stuff I use is doing more

harm than any med. he'd prescribe. Now that's just asinine. The truth about the

Natural stuff is as follows.

We use enzymes, they are plant based. They've put 10 + pounds on our son, and

they make it so he desires to eat when ill, opened up what was previously a

limited food repertoire, and they absolutely could in no way " harm " him unless

he was truly allergic to one of the ingredients.

We use probiotics, many studies later, the safe products we use are well

documented in numerous literature. Used to be standard procedure for Doctors to

prescribe them following any antibiotic use.

We use Grapefruitseed Extract, unless my son was allergic to grapefruit, or the

product wasn't pure we can only do damage if we give too long, and then kill off

good bacteria.

This difference of opinion between us and Dr. Goldberg led us to Dr. Megson. I'd

read about her work before, but she was across the country, and at the time, I

really thought the virus was the crux of the problem. She addresses the vision

issue plus the gastrointestinal, autism, immune, viral, bacterial and yeast

issues from a different standpoint. She also has a website.

My update from November 13th shares the initial problems we faced when ph

was small, and how those problems have changed and progressed. It has been

difficult for me to walk in one direction and then veer off at a 45 degree

angle.

But the Dr. Goldberg experience reinforced for me the necessity of doing this

all gently, and naturally, although I hate the word " alternative " . Absorb and

move on, this is what we are doing and that is how we ended up in Dr. Megson's

office.

I went to this appointment knowing we needed a natural antiviral, the Valtrex

worked to a degree ( this antiviral med. that Goldberg prescribed cleared up the

remainder of my son's obsessive compulsiveness, and brought improved age

appropriate motor skills).

My last remaining untreated complaint was my son's eyes and the

yeast/fungal/bacterial roller coaster, we wanted off the roller coaster, but not

using any harsh meds.

Dr. Megson didn't give us a neat name, she didn't prescribe any harsh meds. She

not only didn't knock the " Natural " stuff we were using, she encouraged us to

continue it. She acknowledged my concern about the Mercury perhaps hiding the

virus, and went into great detail about the other damage Mercury does. She noted

his low muscle tone, his droopy eyes, and his fidgetiness.

We were with Dr. Megson for 4 hours.

The first good news we received was everything is natural, supplements,

vitamins, brushing technique, swimming, and trampoline for the central nervous

system. The second round of good news was the " tailored for ph protocol " we

received. I was very leery after Dr. Goldberg, I didn't want anyone putting

ph in a " box " and treating with a " standard " protocol that could hurt him as

the Nizoral did.

I said I wanted this done gently, and a gentle program is what we got. We don't

have any massive dose of this or that, albeit for some children this has been

the answer, for us, at this time, it is not. We were told to limit the

environmental toxins he comes in contact with, insure adequate sun exposure,

supplements to unblock those neural pathways. We came home with test kits for a

hair/metals analysis, clostridium test ( she paid attention to my mention of our

first breakthrough conversation after a few days on Augmenten, the regression

and our subsequent continual conversations with our son since introducing

Culturelle). And an OAT test. I'm not much concerned with the test results. We

got a frank discussion of the eye issue that concerned us. Too much detail to

post, but visit her site if your child looks out the sides of their eyes, won't

sustain eye contact or mistakes letters and numbers, doesn't distinguish facial

features ( mistakes known individuals for others), etc.

We don't have the chicken and the egg question with her. It's not " what came

first that triggered this whole mess " , it's how it all snowballed into this.

It's about how to avoid further triggers for this, and how to minimize and undo

the damage that was done. At one point she said, " we'll get him back, in 3-4

years he'll be a healthier more robust little boy " . This makes sense to me, took

several years to do this damage, if we are truly going to gently undo it, then

that too will take a few years. The second thing was she asked if ph ever

lined things up, organized them, or got upset when his stuff was rearranged or

put away.

A couple of years ago this was one of our biggest battles, it hindered his

ability to relate/play with his peers, it was difficult to transition him. Now

it's not so much of a problem. However, on the plane, ph went hysterical

when the airline stewardess closed the overhead compartments. Not the noise, not

the people, not the confined space, but the closing of the overhead compartments

set him off. We were able to calm him down eventually, but occasionally during

the flight he'd protest the overhead compartments being closed. Dr. Megson said

that was because the dysfunction with his eyes made it difficult for him to

" know " where it was. For ph things jump around so much, that to have that

continuous beige compartment up there just threw him for a loop. For the plane

trip back we bought him a red Scooby Doo backpack with wheels that was small

enough to put under his seat. We put his stuff in it, and he didn't want to get

into it, he just wanted to be able to look down and see that " bit of red " under

his seat. I was telling another Mother that ph isn't clumsy per say or

inattentive. I understand now that he spills his cup of juice because his eyes

are telling him that there is more room on that table top than there actually

is, to top it off, I have a glass table top. How's that for difficult?

We started on the list of supplements she's given us. We began the Vit. C, Zinc

and CLO from Kirkman labs already. I researched the glutathione, and while what

the body makes is certainly necessary, I came across some info. that said, as an

oral supplement it is worthless because it gets lost in the digestion process.

However some other studies said oral dosing in humans that are deficient, does

raise GSH { glutathione} ( the sought after tripeptide formed of 3 separate

amino acids). The potential for benefits, honestly, there are too many good

things to list about GSH. Studies show that in healthy individuals no marked

increase of GSH was found after oral dosing, so suggests plasma GSH is so well

buffered in healthy subjects that it's difficult to influence by supplements. I

had been worried because individually the amino acids are excitotoxins, and we

don't need that. Suffice to say, oral supplements can't hurt. So we began

Glutathione supplements today. If the worst scenario is no change, and the best

scenario is good change, why not. For those that want to increase GSH with

foods, fresh fruits and vegetables, eggs, milk, cheese and whey protein work, of

course these are all things many of our munchkins can't eat.

We next have Enduraguard, haven't researched it yet. Monolaurin, DHA and Calcium

Butyrate. The last one they warned me 10% of the kids have sleep issues,

stimming etc., and if that occurred we'd stop using it. We get to keep enzymes,

probiotics, and GSE, OoO and OLE rotation. They've no problem with the Ojibwa

tea, didn't really know too much about it, but said nothing they gave us would

have any adverse reactions with a natural antiviral. I'm happy. I've a ton of

reading to do, but it's all good. Hope this helps somebody. I apologize for

contributing to that false hope with regards to Dr. Goldberg. No other doctor

had ever promised us a " cure " before, and I thought surely no one would be so

cruel, well, the viral component is legit, but I don't consider a lifetime of

harsh meds. a " cure " . Especially when my munchkin was becoming quite ill from

them ( the Nizoral that is) . Good luck to everyone. As I research each new

supplement I'll post what I find.

http://www.thorne.com/altmedrev/fulltext/glut.html is a site to get you started

on researching GSH. Really remarkable, but don't know if it's a legit oral

supplement, either in general or for us. For some, DMG doesn't work out real

well, but for us it does. I'm excited by the potential as it seems GSH enables

the body to detox, for one thing heavy metals. It forms a soluble compound with

the toxin that can then be excreted through urine. Kind of like the Ojibwa Tea.

So, we'll see. Again, good luck to everyone.

[Guest guest]

> We saw Dr. Megson Dec. 5. I'm unable to accurately describe how

I'm feeling. Since her visit I've laughed, cried, been pensive (

according to my husband). We went there hopeful, and we came home

hopeful.

,

Thanks so much for your update! We are quietly hopeful for the

improvement you so much desire from your meeting with Dr Megson -

she certainly sounds the perfect antidote to Dr G.

Jaci, Australia

[Guest guest]

That is really interesting to read! I will try giving expressed breastmilk

to my 3 1/2 year old soon.

My story: My 3 1/2 year old diagnosed ASD son, Hutton, was colicky as a

young infant. I still nursed him through it, but didn't make any changes to

my diet, though in hindsight I would have cut at least milk from my diet.

As soon as Hutton weaned at 15 months and had cow's milk, he started getting

eczema, which I determined was from the milk, and cut it from his diet,

though it took a little while before I made the connection. Right after

weaning, he had his first ear infections, which were probably linked to the

cow's milk as well. He had antibiotics for those. A year later he was

diagnosed ASD, and it took yet another year before we started the GFCF diet,

and now we are just starting the enzymes, which I'm planning on taking as

well, in the hopes that it will help prevent my younger son from getting

anything he shouldn't from my diet.

How long were you on the enzymes before you started giving ph your

expressed milk? I just received AFP, Zyme Prime and No -Fenol in the mail

today, so haven't even started my older son or myself on them yet.

My younger son is 7 months, is huge (21 pounds!), but doing well on

breastmilk. He has not had colic like his brother, and is a pretty

easy-going baby, but also he has not been vaccinated, whereas my 3 1/2 year

old had all of the recommended vaccines up to age 2 1/2. We're trying to do

everything we can to keep younger son NT, as well as get his older brother

that way, too!

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