how much?

October 4, 2003

Hi all.

My son is 15 with AS and on the diet, however he is increasingly bugged

by not being able to have treats etc and I can tell by his behaviour,

face etc, that he cheats quite a lot. He has tried enzymes many times

with gluten/casein foods and always has a terrible reaction just the

same. Griping pains and diorhhea the day after.(and far more rigid

behaviour)

He has been taking one peptizide and one of the others(not the no

fenol)If he wants to eat straight away he opens the capsules and puts it

in a a bit of juice and if he is going to wait 20 mins he takes the

capsule. Even with little bits of gluten and casein this happens. He is

definitely not celiac because he ate all these foods for 12 yrs and

though he had bowel problems not to the extent of his celiac brother.

Any ideas how many he should take. He is a growing, hungry lad. Do we

need more peptizide?

Thanks

Jacqui

Re: Caution with restricted diets in autism

>>> This is absolutely fascinating. But for me somewhat perplexing.

What is perplexing?

>>>>My son's severe autistic behaviors were completely eliminated on

a gf/cf/soyf/cornf/phenolf diet.

If you had encountered enzymes first, the exact same thing might

have happened with enzymes that happened with food eliminations. I

don't think there is one right or wrong way. Just sort of the

sequence of events that we come into. Some people will do a little

better with one route and other people will do a little better with

another.

And as you mention, if he will do diet but not enzymes, it becomes

easier to do diet. Some won't do diet, but will do enzymes, so they

have a good option too. Some people like diets because it is like

being in a 'club'. Other people hate diets. Maybe a combination

approach. It doesn't have to be one OR the other. There are many

variations possible.

>>>>He is being treated symptomatically with the diet.

This is why I like enzymes (one of the reasons), because it isn't

just a band-aid...it goes in and does proactive healing.

.

October 4, 2003

>>He has tried enzymes many times

> with gluten/casein foods and always has a terrible reaction just the

> same. Griping pains and diorhhea the day after.(and far more rigid

> behaviour)

> He has been taking one peptizide and one of the others(not the no

> fenol)If he wants to eat straight away he opens the capsules and

puts it

> in a a bit of juice and if he is going to wait 20 mins he takes the

> capsule. Even with little bits of gluten and casein this happens.

Try AFP Peptizyde. If that works, then he does not tolerate

papain/bromelain.

>> He is

> definitely not celiac because he ate all these foods for 12 yrs and

> though he had bowel problems not to the extent of his celiac

brother.

Because he has not been eating gluten for quite a while, it is

possible that he really is in fact celiac, and now that his gut has

healed by being gf, he will now have the same symptoms as his celiac

brother when he eats gluten, even with enzymes. His symptoms do sound

EXACTLY like a celiac child who eats gluten, even with enzymes.

Dana

October 6, 2003

I would not be so quick to rule out celiac. Some with celiac have

lots of symptoms while others may be asymptomatic though the damage

is still being done. Also, most celiacs are not from birth but

develop it sometime during their life. Many are not triggered until

they are adults. For this reason you cannot consider the fact that a

child did not have a problem with gluten before as an indication that

he must not be celiac.

I have two sons that are celiac. One is autistic and the other is

not. My autistic son cried alot when he was young but this stopped

when he was about a year old. His growth was normal. When he

started solid food his stools never firmed up. It was not until I

put him on the GFCF diet that his stools became more explosive and

liquidy. I knew nothing of celiac at the time but had put him on the

diet for autism. About six months later I began to question why my

youngest was crying all the time. He did not sleep well and had

stopped growing. Eventually he was diagnosed as celiac. It was not

until I tried to take my autistic son off the diet with enzymes that

I discovered he is in fact celiac too.

There are some similarities in the symptoms of my two son but also

big differences. They both have diahrea but one much worse than the

other. When they get gluten though, the horrendous smell is the

same. One had no weight or height problem while the other did. One

slept fine while the other did not. Both had distended bellies

before diet however the celiac only child was more defined. When my

celiac son gets gluten he had horrible pain in the stomach and

horrendous diarrhea. His only behavioural change is what one would

expect from anyone in terrible pain. When my autistic son gets

gluten he reacts physically (pain & diarrhea) and behaviourally

(hitting himself, smearing feces, regression, biting etc.). If he

gets gluten with Peptizyde he still has the physical reaction but no

behavioural reaction. As for casein & soy, without enzymes he has

the same behavioural reaction but with Peptizyde he has not reaction

whatsoever.

The fact that your son does have pain and diarrhea while on enzymes

makes me suspect he is in fact celiac. If that is the case, no

amount of enzymes will stop the physical reaction to gluten.

Peptizyde is still helpful in preventing problems with casein and soy

as well as preventing the behavioural reaction to gluten.

>

> Hi all.

> My son is 15 with AS and on the diet, however he is increasingly

bugged

> by not being able to have treats etc and I can tell by his

behaviour,

> face etc, that he cheats quite a lot. He has tried enzymes many

times

> with gluten/casein foods and always has a terrible reaction just the

> same. Griping pains and diorhhea the day after.(and far more rigid

> behaviour)

> He has been taking one peptizide and one of the others(not the no

> fenol)If he wants to eat straight away he opens the capsules and

puts it

> in a a bit of juice and if he is going to wait 20 mins he takes the

> capsule. Even with little bits of gluten and casein this happens.

He is

> definitely not celiac because he ate all these foods for 12 yrs and

> though he had bowel problems not to the extent of his celiac

brother.

>

> Any ideas how many he should take. He is a growing, hungry lad. Do

we

> need more peptizide?

> Thanks

> Jacqui

> Re: Caution with restricted diets in autism

>

> >>> This is absolutely fascinating. But for me somewhat perplexing.

>

> What is perplexing?

>

> >>>>My son's severe autistic behaviors were completely eliminated

on

> a gf/cf/soyf/cornf/phenolf diet.

>

> If you had encountered enzymes first, the exact same thing might

> have happened with enzymes that happened with food eliminations. I

> don't think there is one right or wrong way. Just sort of the

> sequence of events that we come into. Some people will do a little

> better with one route and other people will do a little better with

> another.

>

> And as you mention, if he will do diet but not enzymes, it becomes

> easier to do diet. Some won't do diet, but will do enzymes, so they

> have a good option too. Some people like diets because it is like

> being in a 'club'. Other people hate diets. Maybe a combination

> approach. It doesn't have to be one OR the other. There are many

> variations possible.

>

> >>>>He is being treated symptomatically with the diet.

>

> This is why I like enzymes (one of the reasons), because it isn't

> just a band-aid...it goes in and does proactive healing.

>

> .

>

October 6, 2003

Thank you for your reply. Can I ask whether your son with the not

so severe symptoms has bad breath? From birth Luke has had the most

appalling breath imaginable and though the diet has helped massively

with this, now he is obviously 'cheating' the smell has come back.

Whether he has the peptizide or not he gets really severe stomach cramps

and diorhhea and he keeps asking if he should take 2 capsules(either

open or not).

The behaviouraly changes in him are subtle but noticeable to those who

know him but then he is a hormonal 15 yr old with AS so its rather hard

to tell.

He just so wants to eat 'normal' food occasionally and I suspect would

be happy enough if it were only dairy stuff.

Thanks again for your help.

jacqui

Re: Caution with restricted diets in autism

>

> >>> This is absolutely fascinating. But for me somewhat perplexing.

>

> What is perplexing?

>

> >>>>My son's severe autistic behaviors were completely eliminated

on

> a gf/cf/soyf/cornf/phenolf diet.

>

> If you had encountered enzymes first, the exact same thing might

> have happened with enzymes that happened with food eliminations. I

> don't think there is one right or wrong way. Just sort of the

> sequence of events that we come into. Some people will do a little

> better with one route and other people will do a little better with

> another.

>

> And as you mention, if he will do diet but not enzymes, it becomes

> easier to do diet. Some won't do diet, but will do enzymes, so they

> have a good option too. Some people like diets because it is like

> being in a 'club'. Other people hate diets. Maybe a combination

> approach. It doesn't have to be one OR the other. There are many

> variations possible.

>

> >>>>He is being treated symptomatically with the diet.

>

> This is why I like enzymes (one of the reasons), because it isn't

> just a band-aid...it goes in and does proactive healing.

>

> .

>

July 6, 2005

I was wondering if my son eats one piece of pizza is this a snack or dinner?

I have been putting a half of capsule on his pizza his this enough?

Thank You

Cherie

July 7, 2005

> I was wondering if my son eats one piece of pizza is this a snack or

dinner?

> I have been putting a half of capsule on his pizza his this enough?

It really depends on the child. Do you notice better behavior etc, if

you add a full capsule instead of just half?

Dana

February 13, 2010

No, up to this day his little teeth are a necklace of white pearls ;-).

(I am in love w my child, huh?)

Thanks

Isa

Enviado desde mi oficina móvil BlackBerry® de Telcel

[ ] Re: How much?

1/8-1/2 mg/lb. so 5-20 mg, best to start at the low end and gradually increase.

Glad you stopped the other. He doesn't have any mercury amalgam dental

fillings, does he? Many of us chelate without a doc.

S S

How much?

Posted by: " isaguzmandiaz2@... " isaguzmandiaz2@...

isaguzmandiaz2

Fri Feb 12, 2010 10:32 pm (PST)

I already ordered a copy of Andy's book...and I am thinking about this chelation

protocol but not until l've learned enough from you guys and understood the

basics explained by Mr Cutler, still, l want to throw a question: how much ALA/

DMSA would be a safe dose to start a 42 pound, 5 yo child on the protocol? He

was chelated with IV Ca EDTA last time a year ago (7 pushes in total) and l

never saw a thing but negatives and now reading your explanations about mid-life

chelating agents and damage caused by inadequate methods and agents I am afraid

I am convinced l was going the wrong route. I don't have any MDs here to support

me with my kid (mexico city) and nobody who truly understands how it should be

done. So, everything l implement on biomed or healing interventions l do on my

own and this error-success road is pretty exhausting both emotionally as well as

existentially.... U know what l am talking about. I believe his mercury load

didn't get any better with the other chelation methods, just stirred up. (I do

have knowledge of him being Hg toxic since the second time we chelated we

collected urine for 8hrs and doctor's data test came back positive for several

heavy metals). I am now working on implementing vit k2 protocol, which l

understand shouldn't be combined with other protocols, so, I will try and see,

otherwise l am moving into this protocol. I am also treating bacterial issues

since he showed + for some lyme bands and a couple of its co-infections.

Comments are highly appreciated.

Blessings,

Isa

------------------------------------------------------------

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February 13, 2010

The dosing range is 1/8 - 1/2 mg per pound of body weight. Start at the low end

and work your way up if your child is tolerating it well.

Make sure you give the supporting supplements as well. Read in the files section

and the FAQs for more information. There is a lot of it there.

TJ

________________________________

From: " isaguzmandiaz2@... " <isaguzmandiaz2@...>

Autism mercury group < >

Sent: Fri, February 12, 2010 10:33:28 PM

Subject: [ ] How much?

I already ordered a copy of Andy's book...and I am thinking about this chelation

protocol but not until l've learned enough from you guys and understood the

basics explained by Mr Cutler, still, l want to throw a question: how much ALA/

DMSA would be a safe dose to start a 42 pound, 5 yo child on the protocol? He

was chelated with IV Ca EDTA last time a year ago (7 pushes in total) and l

never saw a thing but negatives and now reading your explanations about mid-life

chelating agents and damage caused by inadequate methods and agents I am afraid

I am convinced l was going the wrong route. I don't have any MDs here to

support me with my kid (mexico city) and nobody who truly understands how it

should be done. So, everything l implement on biomed or healing interventions l

do on my own and this error-success road is pretty exhausting both emotionally

as well as existentially.... U know what l am talking about. I believe his

mercury load didn't get

any better with the other chelation methods, just stirred up. (I do have

knowledge of him being Hg toxic since the second time we chelated we collected

urine for 8hrs and doctor's data test came back positive for several heavy

metals). I am now working on implementing vit k2 protocol, which l understand

shouldn't be combined with other protocols, so, I will try and see, otherwise l

am moving into this protocol. I am also treating bacterial issues since he

showed + for some lyme bands and a couple of its co-infections. Comments are

highly appreciated.

Blessings,

Isa

Enviado desde mi oficina móvil BlackBerry® de Telcel

------------------------------------

=======================================================

February 13, 2010

Thanks TJ your posts are always a " learning pill " .

:-)

Isa

Enviado desde mi oficina móvil BlackBerry® de Telcel

[ ] How much?