Jaci

[Guest guest]

> >However, he is taking Olive

> >Leaf Extract two or three times a >day and his BMs are improved

and

> >we even got a firm stool! Yee Ha!

>

> Excellent news Jaci!! Good on you.

> Prue

>

>

>

[Guest guest]

>You aren't near

>the fires, are you? I hope not, >for your sake.

No, it's been hot enough though. We went to Rottnest Island for three days over

Chrissie. It was very relaxing. I forgot how well he plays at the beach I should

go more often. He didn't hit anyone - not once!! Yay!

Prue

[Guest guest]

Hi Jaci,

Thank you so much for remembering I had my trial on Monday. My main problem

is that I got so sick from the anesthesia. That is all I have been doing is

getting sick with a horrible migraine. I feel better today so I am going to

try this thing out. The stimulation is very hard to get used to. I think

it is helping with my back and leg pain(mostly leg pain) but I am not

totally positive since I have been so sick and just laying in bed. Today

will be the test. I am going to run a couple errands and see how I feel. I

get the trial out tomorrow(Thursday) so I really need to find out today. I

am bleeding a lot from the incisions but still think that is from getting

sick too. The incisions hurt a lot but I guess that is to be expected?

Besides getting so sick, is all this normal? Will I just get used to this

weird feeling in my legs(the stimulation) when the permanent one is

implanted? Does it just become your way of life? It is just real odd for

me right now but I am thankful I am not hurting as much.

How long have you had yours?

-- update and Welcome New Members

>

> Dear Group,

>

> I am excited that we are growing in numbers. I feel that the more we

> have it will help each and everyone of us at one time or another.

> Those you of you that just had your impant I hope that your recovery

> has been good and successful. I do understand the pain that comes with

> getting it done but its worth it.

>

> As for me I had my surgery on April 28th the brand that was used is

> Medtronic it has been a success so far and I know it will be for the

> rest of my life. The doctor told my parents that the battery should

> last up to five years before it has to be replaced due to the testing

> they did in the OR. For some of you that dont know my history I had a

> tarlov cyst decompressed in 99 in the low back and than seven months

> later I had to get a teathered cord realse done on the low back due to

> the spinal cord being teathered and how my syptoms were severe.

>

> My surgeon than advised me to go to a pain specialist I was in denial

> about getting help for a year and a half. I than called my surgeon and

> told me to go to a pain specailist. I went through medications and

> injections nothing seemed to work. So I went back to him for a second

> opinion, he than told me that I had nerve damage. He than recommended

> a spinal cord stimulator he told me that he didnt do them that I would

> have to go back to my pain doc and have him do it.

>

> I than went through the trail with success it took my pain from 9-10

> to 0-1 on my worst day. This took place in fall of 2002 so I got an

> ANS implant it worked great until four to six weeks out one of the

> leads moved. So than in dec my pain doc did a revision however with

> that I got a spinal headache. He than reffered me to a nerosurgeon to

> look at me he ran tests we couldnt find the location of the leak. He

> wasnt happy with my pain doc cause he didnt test for location before

> he did two blood ptaches. Right now for that I am on an anti nausa

> medication and we will be doing testing again for it.

>

> Back to the stimulator after the csf leak check with that surgeon my

> pain doc asked him to do a paddle lead with the same unit inside me.

> It wasnt successful so than two months latter we did another revision

> of the paddle connection and no success. Please do not get discouraged

> about my history it had to play a part of what my doctor the pain doc

> wanted done. With all the revisions however I did learn and grow

> through each trial of life with this.

>

> My neurosurgeon told me he had success all the time with the

> stimulator of the Medtronic kind that he put in people. In which I can

> aggree very well with since my testing in or and out come with

> surgery was a success. I know that with my religious beliefs took a

> great part in this I am sure for others you can understand too.

>

> I promise you all I will try to come on as much as possible to help

> you with whatever questions you might have. I am in my second week of

> recovery and my back gives me a hard time setting at the computer but

> I do check every other day at least it depends on how I am feeling.

>

> For those of you that dont know my age I am 28 and have had a total of

> seven back surgeries now that includes all the stimulator ones.

>

> I pray that all of you are doing well with things please let me know

> if you need me for anything I am here for you. Oh one more than I am

> getting things in order for me to go back into Medical Assiting School

> once I finish I want to work with back patients in a doctors office or

> children with cancer in a clinic.

>

>

> I hope you all have a great day keep staying postive about life that

> is important.

>

> Love ya all

> Holly Moderator

>

>

>

[Guest guest]

I am sorry it took me a few days to get back to you. Which type of

SCS are you having done are you having the percutaneous or the

lamenectomy lead? The incisions hurting a lot are normal. Each day

will get a little better. You can try using ice packs after the leads

are removed and after the actual implantation surgery. Depending on

which version you had done the bleeding is more common. You will get

used to the stimulation. With me I have become so used to the

stimulator that I don't even feel the tingling anymore. If I turn it

up I'll feel it or I turn a certain way I will but then I won't feel it

anymore. My body has just become accustomed to it. There are certain

places where you may feel it more but you should get used to. I got my

first stimulator which was a peripheral nerve stimulator which is like

a spinal cord stim but done in the leg on a specific nerve, in 1998.

My second one was in 1999 that was also a peripheral nerve stim and

finally my SCS was done 2002. How did you feel when you went out to do

your errands? What kind of pain relief were you getting? Please let

me know how things went and what you decide to do. I am continuing to

think of you.

Jaci

On May 19, 2004, at 10:50 AM, jennifer brosnan wrote:

> Hi Jaci,

> Thank you so much for remembering I had my trial on Monday.  My main

> problem

> is that I got so sick from the anesthesia. That is all I have been

> doing is

> getting sick with a horrible migraine.  I feel better today so I am

> going to

> try this thing out.  The stimulation is very hard to get used to.  I

> think

> it is helping with my back and leg pain(mostly leg pain) but I am not

> totally positive since I have been so sick and just laying in bed. 

> Today

> will be the test.  I am going to run a couple errands and see how I

> feel.  I

> get the trial  out tomorrow(Thursday) so I really need to find out

> today.  I

> am bleeding a lot from the incisions but still think that is from

> getting

> sick too.  The incisions hurt a lot but I guess that is to be

> expected? 

> Besides getting so sick, is all this normal?  Will I just get used to

> this

> weird feeling in my legs(the stimulation) when the permanent one is

> implanted?  Does it just become your way of life?  It is just real

> odd for

> me right now but I am thankful I am not hurting as much.

> How long have you had yours?

>

>

>

>