Re: Stimming-Should I stop him ???

[Guest guest]

Nikki,

I think you will hear a million different opinions about stimming. My son

stims so much at home and only a little at school. I think he is really trying

to

control himself at school and he lets it out at home--for hours!!

He does a combination of spinning, rubbing his hands together, grinding his

teeth, making some noise I cannot duplicate myself and crossing his eyes. If he

is not spinning he is holding a slim bat or boomwhacker (noisemaker tube made

of plastic) banging it on the floor while making the noise.

He will stop if in his hammock (which is in our family room now) or if we are

doing homework.

At restaurants, he will do it do without the spinning and I have recently

begun telling him he can only do it home.

I have heard opinions ranging from get them to stop it totally to replace the

stim to something more socially appropriate to letting them do their thing.

Obviously, I was of no help to you. Let me tell you what I do, which may be

totally the wrong thing. In public, if he needs to stim and can't find or won't

do something appropriate like squeezing a koosh in his pocket, putting his

hands in his pockets,etc. he needs to stop totally. (easier said than done but

getting better). At home I let him stim because he really controls himself for

6 1/2 hours at school, performing (and struggling at times) in a regular ed.

classroom, doing great at this four outside therapy appointments. I think he

may need it. In time, I will try to cut back the amount of time he does it. The

hammock really helped--it may be a different way of calming--much quieter

though

Sorry I couldn't be helpful.

Robin

[Guest guest]

My son stims also...I am not trying to get him to stop. I think he

needs it to calm his nervous system, so I let him do it.

I think the stimming will decrease and stop as you start biomed. and

chelation. With my son I noticed his sideways glance has stopped

since starting CLO daily. But he does still stim in other ways.

I don't want pressure him to stop doing these. I don't know how he

perceives the world. I think the stimming is something he needs.

I am pretty sure that as I add more biomed. things the stimming will

decrease.

However, my son (4 yrs. old) does put objects in his mouth also.

And this worries me because of inks, dyes, other poisons. So at

least 10 times a day I tell him " get that out of your mouth " .

There are no easy answers...I guess you just have to go with what

you feel is best for him.

Good Luck,

ndAutism , " libertystreetsoftware " <PDD@l...> wrote:

> Hi Everyone,

>

> I had a question on stimming and hope that I can get some of your

> inputs as what to do.My son is 2yrs4mths is on enzymes and

efa,also

> gfcf.I removed the other supps becasue he was getting

hyper.Laughing

> inapp. and screeching alot.Anyway,he is going to being seeing a

DAN

> doc in about 1 mth after official diagnosis is done.

>

> He has started IBI therapy and the therapist is working on

stopping

> his stimming... especially mouthing objects and his visual stims.

>

> My question is will this make the stims worse.I have noticed he

will

> go off in another room when we try to stop him.I just don't like

the

> idea that he may get worse or hide them from us.Any input would be

> GREAT!!!

>

> Thanks in Advance....Nikki

[Guest guest]

I feel the same way, his stims have changed over time with Biomed but we

still have them, mostly just tapping his hand or chin with something, straws are

favourite right now, he didn;t use to do this - he used to tap the TV with hard

or metal implements, little chips coming off the screen.......scared for his

eyes, I prefer that he taps himself so we spent 18 months redirecting that

which included having no cutlery in the house and meant trips to the locked

garage for eating irons!

When Sam was first Dx I read soemthing called Understanding people who are

different by Brad somebody or other, learned a lot from that and Dana's

explanations about how most of us stim but perhpas in more 'appropriate' ways,

chewing

pencil ends, swinging legs, biting nails etc. I do have a problem that my son

was poisoned but I dont; have a problem about him 'looking' Autistic, which

means unless the stims are a danger to him, I let him stim. With biomed he is

able to stop to concentrate for school so its more recreational now than

obsessive. Sometimes he will go several hours or even a day without doing them,

darned if I can ever remeber or figure out what was different about the time

after

the event, after 4 years of this I really should keep a daily diary. Cutting

way way down on sugar descreased many stims, enzymes helped with lots of

sensory stuff

Mandi in UK

> I think the stimming will decrease and stop as you start biomed. and

> chelation. With my son I noticed his sideways glance has stopped

> since starting CLO daily. But he does still stim in other ways.

>

> I don't want pressure him to stop doing these. I don't know how he

> perceives the world. I think the stimming is something he needs.

>

> I am pretty sure that as I add more biomed. things the stimming will

> decrease.

>

[Guest guest]

Thanks Dana, I'm impressed that I remember so much of what he wrote so

vividly, I'll keep a note of the link for other people

Mandi in UK

>

> >When Sam was first Dx I read soemthing called Understanding people who are

> >different by Brad somebody or other, learned a lot from that

>

>

> Here is that page

>

> http://www.isn.net/%7ejypsy/bradrand.htm

>

[Guest guest]

> He has started IBI therapy and the therapist is working on stopping

> his stimming... especially mouthing objects and his visual stims.

>

> My question is will this make the stims worse.

Sometimes yes, other times no.

It depends on why your son does those stims.

If you suppress the stims but your son needs them to function, then you may find

another stim takes its place, and the new stim

might be worse than the current one.

Best is to find out why he needs or wants to stim, and work on removing the

problem.

For mouthing objects, many kids stop doing that when zinc is added. Others,

like one of my kids, stop it when offending foods and

supplements are removed, or yeast is killed.

For visuals, removing foods/supplements helps, vitamin A can help, or a few

other things.

The main problem with a therapist trying to stop stims, is that maybe your child

can learn and progress while stimming, and so if the

therapist spends all her time on the stims, his learning of language and other

concepts will suffer. I would ask her to work on the

language and other issues first, and not worry about the stims unless they are

interfering with that learning.

Dana

[Guest guest]

> When Sam was first Dx I read soemthing called Understanding people who are

> different by Brad somebody or other, learned a lot from that

Here is that page

http://www.isn.net/%7ejypsy/bradrand.htm

and Dana's

> explanations

I have my thoughts and the thoughts of others in this section, scroll down about

half-way

http://www.danasview.net/parentin.htm#understand

Dana

[Guest guest]

We too behaviorally address issues, as it is important to teach our children

what society would deem acceptable. However, we have found most stims are

related to a biological issue, something that is out of whack, and nothing truly

eliminates the stim or other issue, until it is addressed on this biological

base. For example, my son drools. He can now close his mouth, wipe his mouth,

but the excess saliva is still there. We have narrowed it down to excess

histamine. We are hoping the Calcium Butyrate ( that we still haven't received

yet! Ughhh) will level out the histamine levels and hence the drooling will

stop. My point is that we also have many more examples, tip toe walking, hand

flapping, spinning, etc. that were not able to disappear with any type of

behavioral intervention, it was all related to different things in his body

being out of whack. As disturbing as it is, all these things are really great

indicators of something being physically wrong. It's just time consuming and

down right difficult to figure out how to fix these things. Good luck to you,

for us, I thought ph had enough people in his life looking at him oddly, I

wasn't going allow myself to become one of them.

Stimming-Should I stop him ???

Hi Everyone,

I had a question on stimming and hope that I can get some of your

inputs as what to do.My son is 2yrs4mths is on enzymes and efa,also

gfcf.I removed the other supps becasue he was getting hyper.Laughing

inapp. and screeching alot.Anyway,he is going to being seeing a DAN

doc in about 1 mth after official diagnosis is done.

He has started IBI therapy and the therapist is working on stopping

his stimming... especially mouthing objects and his visual stims.

My question is will this make the stims worse.I have noticed he will

go off in another room when we try to stop him.I just don't like the

idea that he may get worse or hide them from us.Any input would be

GREAT!!!

Thanks in Advance....Nikki

------------------------------------------------------------------------------

[Guest guest]

---

,

Thanks for the info.We will be starting our son with a DAN doc in

Jan after official dx.

We noticed the tip toe walking , some hand flapping and visual stims

after he turned 2.Before this the lack of eye contact was a problem

and not responding to his name.His eye contact is pretty good now

and he also responds to his name.He never did before.

The only treatments I have implemented are gfcf diet and efa's.I

actually removed the supps I started him on because he became hyper

and that's when the screeching started.Prior to this he was a quiet

sort of kid.

I don't know if the vaccines had anything to do with this but I'm

pretty sure he was not born this way.I remember him at a few weeks

old in fact when I breast fed him that he would really look deeply

into my eyes.In fact when he was just delivered he was looking all

over the room in amazement.That changed later.Sort of like we lost

him for awhile.I don't want that to happen again.

So anyway do you think I should let him stim for now and treat it

biomedically and see what happens?I only want the best for him as

all the parents on this board do for their kids'.I would hate to

think I was making things more difficult for him.

Do you mind listing some of the treatments that helped ph?

Thanks in Advance it is greatly appreciated,

Nikki,mom to Jake

In , " Mattson "

<amattson@b...> wrote:

> We too behaviorally address issues, as it is important to teach

our children what society would deem acceptable. However, we have

found most stims are related to a biological issue, something that

is out of whack, and nothing truly eliminates the stim or other

issue, until it is addressed on this biological base. For example,

my son drools. He can now close his mouth, wipe his mouth, but the

excess saliva is still there. We have narrowed it down to excess

histamine. We are hoping the Calcium Butyrate ( that we still

haven't received yet! Ughhh) will level out the histamine levels and

hence the drooling will stop. My point is that we also have many

more examples, tip toe walking, hand flapping, spinning, etc. that

were not able to disappear with any type of behavioral intervention,

it was all related to different things in his body being out of

whack. As disturbing as it is, all these things are really great

indicators of something being physically wrong. It's just time

consuming and down right difficult to figure out how to fix these

things. Good luck to you, for us, I thought ph had enough people

in his life looking at him oddly, I wasn't going allow myself to

become one of them.

> Stimming-Should I stop him ???

>

>

> Hi Everyone,

>

> I had a question on stimming and hope that I can get some of

your

> inputs as what to do.My son is 2yrs4mths is on enzymes and

efa,also

> gfcf.I removed the other supps becasue he was getting

hyper.Laughing

> inapp. and screeching alot.Anyway,he is going to being seeing a

DAN

> doc in about 1 mth after official diagnosis is done.

>

> He has started IBI therapy and the therapist is working on

stopping

> his stimming... especially mouthing objects and his visual stims.

>

> My question is will this make the stims worse.I have noticed he

will

> go off in another room when we try to stop him.I just don't like

the

> idea that he may get worse or hide them from us.Any input would

be

> GREAT!!!

>

> Thanks in Advance....Nikki

>

>

>

> -------------------------------------------------------------------

-----------

>

[Guest guest]

Sorry it's taken me so long to reply. I almost lost my mind waiting for the

calcium butyrate to arrive. Despite knowing the probable source of his mood

swings, it was still difficult to handle ( didn't want to get out of bed in the

morning and go to his room to wake him). Love him dearly, but I've been spoiled

by all these cognitive, physical, emotional and developmental leaps and bounds

that came this past year. So dealing with this insanity, although brief ( he was

a pleasure today) has kept me from the computer. As long as it's not injuring

anyone, I'd allow the stims to continue. Ojibwa tea and the perfect stool

formula probiotic helped with socializing, DMG helped with speech, enzymes

helped with malabsorption issues, and physical acting out that occurred due to

food sensitivities, Culturelle helped with the bacterial issues, and rotating

the GSE, Olive Leaf extract and Oil of Oregano has given us a blessed relief

from the yeast roller coaster. It's amazing what the body will do when it is low

in this mineral or that metal. So, Calcium butyrate, zinc, Vit. C, glutathione,

glutamine, are good to research, and the efa's are what we too are doing now.

The Natural Medicine Guide to Autism by Marohn was pretty

comprehensive of a good portion of what we discuss in this group, up until chp.

8, then she lost me. Good luck to you and your child. It's amazing the freedom I

felt when the tip toe walking and spinning disappeared. Then when the obsessive

compulsiveness disappeared, during the Valtrex it was completely gone, we were

ecstatic. Have to say, it came back to a degree when the Valtrex stopped. He got

in the habit of carrying this box around with all his toys, and wanted this box

in church, at school, etc. Most of the time we could convince him to leave the

box and take 1 toy, but the last couple of weeks have been screaming nightmares.

He not only wanted the whole box, but the dog ( she's a mini dachshund) wanted

me to go to work, and Daddy stay home, no bathes, then refused to get out of the

bath, it was awful. But today, he left his toys in the car while he went to

preschool, ( 3 days on Calcium Butyrate) asked if he could take a shower tonight

and have a bath tomorrow, ate all his dinner, got up this morning without the

recent grumpfest that has been taking place ( past two weeks won't wash hands to

eat breakfast, won't brush teeth, wants to wear pajamas all day.) Investigating

the central nervous system, how it works, etc. might give you an idea of what

specifically is out of whack. Of course this just leads to another thing and

another thing, but it is how I narrowed it down to our current protocol. I find

doctor appt.s go much better when I go in with my 3x5 cards all ready with my

questions and ideas of what I think is going on. Too it helps me to remember

what is almost impossible to recall during the " event " of a doctor appt. Again

good luck to you. We received the payment summaries from the insurance company

for the labs Dr. Megson ran, $2000, yes, worth of labs. That doesn't include the

Great Plains labs, hair metals test, stool clostridia tests we have to mail in.

The supplements she put us on are basically cost comparable to the meds. Dr.

Goldberg had us on, and much safer, so we're okay there. I'm not complaining,

just thought I'd give you a heads up of what some of these doctors need to get a

picture of your child.

Stimming-Should I stop him ???

>

>

> Hi Everyone,

>

> I had a question on stimming and hope that I can get some of

your

> inputs as what to do.My son is 2yrs4mths is on enzymes and

efa,also

> gfcf.I removed the other supps becasue he was getting

hyper.Laughing

> inapp. and screeching alot.Anyway,he is going to being seeing a

DAN

> doc in about 1 mth after official diagnosis is done.

>

> He has started IBI therapy and the therapist is working on

stopping

> his stimming... especially mouthing objects and his visual stims.

>

> My question is will this make the stims worse.I have noticed he

will

> go off in another room when we try to stop him.I just don't like

the

> idea that he may get worse or hide them from us.Any input would

be

> GREAT!!!

>

> Thanks in Advance....Nikki

>

>

>

> -------------------------------------------------------------------

-----------

>