Guest guest Posted February 2, 2003 Report Share Posted February 2, 2003 > The 10 inches I lost aren't showing > in my 4 weeks pics I tought I'd > be albe to see a differnce. Oh well, > it gives me more motivation to work > even harder the next 4 weeks. I am > staying away from the scale till then. > > > > Sheryll N. Post them for all of us to see. Debra in GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2003 Report Share Posted February 2, 2003 Sorry.....I don't have guts enough to. Maybe at the end of week 12 I will. Sheryll N. > > The 10 inches I lost aren't showing > > in my 4 weeks pics I tought I'd > > be albe to see a differnce. Oh well, > > it gives me more motivation to work > > even harder the next 4 weeks. I am > > staying away from the scale till then. > > > > > > > > Sheryll N. > > > Post them for all of us to see. > > Debra > in GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 In a message dated 01/12/2003 19:03:38 GMT Standard Time, uucamper@... writes: > Does anyone have suggestions on what to try next? > Try Houstons, you can ring Devin if you don;t like web ordering <A HREF= " www.houstonni.com " > www.houstonni.com</A> In your case I woul dstart with Peptizyde and consider adding the No Fenol once he's settled on the Pep. HN ZYme is good too HNI really are better than the rest IMHO Good luck Mandi in UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 Many people have, you won't know unless you try Mandi in UK > > Do you think I'll see results even though I didn't see any results with the > gluten free diet? > > Caroline > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 I don't know about Digest Gold-- maybe switching to Houston's enzymes would be beneficial to him?? Because there are sensory issues, I would look into metal toxicity with a DDI hair test... I would look into using some supplements (Brainchild's liquid ones would be good)... perhaps Sea Buddies Concentrate! Focus Formula capsules... with the encopresis I would consider Lauricidin to kill off some of the yeast and bad bacteria and also get him on some magnesium and vitamin C to get the stool softer... also some sulfur-based supplements to help with the encopresis and sensory issues, too... have you done epsom salt baths? Those may help -- use only a quarter of a cup to start with and adjust based on how he responds to them... I would also try to get him to eat more raw fruits/veggies and less starchy carbs so that he has more energy and is not so " low " engine and not having to get hyper to rev himself up all the time. Look into Feingold diet www.feingold.org and also the SCD diet www.pecanbread.com if after using Houston enzymes you feel that it still isn't " enough " . SCD naturally encorporates most of the Feingold principles anyway. Do you do the brushing protocol and joint compressions? W > I hoping for some suggestions. I've been lurking a while. Some of what > I've seen on the list is over my head. Also, I'm just not sure how > aggressively we need to pursue the issues. > > My 8 yo son is dx PDD-NOS. He has some of the Asperger's type > stuff--difficulty transitioning, whining & temper tantrums when things don't > go his way, etc. His main issues tend to be sensory integration > stuff--difficulty concentrating, tending to be " low " and stimming (hyper > behavior) in an attempt to get himself " even " , needing proprioceptive input, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 In a message dated 12/1/03 2:03:53 PM, uucamper@... writes: << Does anyone have suggestions on what to try next? >> IMO, the difference between Houston's enzymes and the others is *huge. My son has (had) a lot of similar issues to yours, and the Houston enzymes + SCD + antifungals has made an enormous difference. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 Do you think I'll see results even though I didn't see any results with the gluten free diet? Caroline Re: Not seeing results In a message dated 01/12/2003 19:03:38 GMT Standard Time, uucamper@... writes: > Does anyone have suggestions on what to try next? > Try Houstons, you can ring Devin if you don;t like web ordering <A HREF= " www.houstonni.com " > www.houstonni.com</A> In your case I woul dstart with Peptizyde and consider adding the No Fenol once he's settled on the Pep. HN ZYme is good too HNI really are better than the rest IMHO Good luck Mandi in UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 Also...(I sent the last post without finishing my thought)...What does the No Fenol do? Is it to address the issues that the Feingold diet deals with? Some of this is pretty confusing to me. Caroline Re: Not seeing results In a message dated 01/12/2003 19:03:38 GMT Standard Time, uucamper@... writes: > Does anyone have suggestions on what to try next? > Try Houstons, you can ring Devin if you don;t like web ordering <A HREF= " www.houstonni.com " > www.houstonni.com</A> In your case I woul dstart with Peptizyde and consider adding the No Fenol once he's settled on the Pep. HN ZYme is good too HNI really are better than the rest IMHO Good luck Mandi in UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 Hmmm... I sent a post but maybe it got lost in space somewhere! Will try again... I would suggest going to houston's enzymes and giving those a try before you rule out enzymes completely. I would suggest using add'l supplements like some liquid vitamins and minerals (brainchild's) and something to fight off yeast/bacteria/viruses like Lauricidin (be prepared for some die off with this!)... I would get some EFA's into him for the sensory issues... I would get some magnesium and vitamin C into him for the encopresis (lauricidin will help here too) and also some sulfur-y based supplements. The sulfur stories list has a list of supplements but something like L glutamine will probably help the encopresis. Do you do any brushing/joint compressions with him? Look into Sea Buddies Concentrate! Focus Formula. Also consider getting him to eat more raw fruits/veggies and less starchy carbs to help with his low-engine and reduce the need to rev himself up (hyper). Look into metal analysis with a DDI hair test... Look into Feingold www.Feingold.org and SCD www.pecanbread.com Everything I mentioned was meant to help with one or more of the issues you mentioned. If you want me to explain further, just ask. :-) W > I hoping for some suggestions. I've been lurking a while. Some of what > I've seen on the list is over my head. Also, I'm just not sure how > aggressively we need to pursue the issues. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 Have you ever eliminate dairy/casein? Re: Not seeing results In a message dated 01/12/2003 19:03:38 GMT Standard Time, uucamper@... writes: > Does anyone have suggestions on what to try next? > Try Houstons, you can ring Devin if you don;t like web ordering <A HREF= " www.houstonni.com " > www.houstonni.com</A> In your case I woul dstart with Peptizyde and consider adding the No Fenol once he's settled on the Pep. HN ZYme is good too HNI really are better than the rest IMHO Good luck Mandi in UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 : Thanks for all the suggestions. It just seems too much to do all at once. How do you tell what is helping if you start everything at once? How do you pay for all of this stuff...on top of occupational therapy, psychotherapy, tutoring, etc. Why do the Lauricidin unless you see yeast die off? Does grapefruit seed work as well? Massive doses or a smaller amount consistently? I don't do the brushing/joint compressions because my son is 8 and already shows inappropriate boundaries. The OT thought that it would be better if my son would do his own compression stuff (rolling on a big therapy ball, trampoline, climbing, etc.). Unfortunately, he is resistant to doing much of anything, except playing with his Legos and Playmobile stuff or watching TV, when I let him. I do try to get him to eat the raw fruits and veggies--but he is addicted to the starchy carbs, of course. I worry about too much fruit because I'm hypoglycemic (worry that he might be too) and vegetables are pretty much force fed as a mandatory item with dinner. I do make sure he eats some lunch and dinner. I rather start a bit more slowly...see some improvement and then go from there. Are the Houston enzymes really so much better? If I don't see any improvement with them, am I barking up the wrong tree entirely? I'd also rather the enzymes worked than try another elimination diet. I work at a camp and get meals included. It gets complicated to keep casein out. The wheat was a little easier--my boss is cyliac. Most of the food is good and fresh, but there is always a desert. It's hard to ensure my son passes by the foods that might be a problem. I'm sorry if I sound like a whiner. It's just that we have tried so much and with so little result. I don't want to go and invest 100's of dollars and make my son take loads of different stuff all at once to just have another " no change " result. What would be a good way to start more slowly and methodically? Caroline Re: Not seeing results Hmmm... I sent a post but maybe it got lost in space somewhere! Will try again... I would suggest going to houston's enzymes and giving those a try before you rule out enzymes completely. I would suggest using add'l supplements like some liquid vitamins and minerals (brainchild's) and something to fight off yeast/bacteria/viruses like Lauricidin (be prepared for some die off with this!)... I would get some EFA's into him for the sensory issues... I would get some magnesium and vitamin C into him for the encopresis (lauricidin will help here too) and also some sulfur-y based supplements. The sulfur stories list has a list of supplements but something like L glutamine will probably help the encopresis. Do you do any brushing/joint compressions with him? Look into Sea Buddies Concentrate! Focus Formula. Also consider getting him to eat more raw fruits/veggies and less starchy carbs to help with his low-engine and reduce the need to rev himself up (hyper). Look into metal analysis with a DDI hair test... Look into Feingold www.Feingold.org and SCD www.pecanbread.com Everything I mentioned was meant to help with one or more of the issues you mentioned. If you want me to explain further, just ask. :-) W > I hoping for some suggestions. I've been lurking a while. Some of what > I've seen on the list is over my head. Also, I'm just not sure how > aggressively we need to pursue the issues. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 I'm going to put my comments in your text with ****preceding them. Read thru till you see my signature... > How do you tell what is helping if you start everything at once? ***** It's best to start one new thing at a time, allowing a few weeks in between start times. How do you > pay for all of this stuff...on top of occupational therapy, psychotherapy, > tutoring, etc. ******* Chelating Ethan was the biggest cost-saver we ever did. We were spending about 400 a month on occupational therapy and about 700 a month on vision therapy. Chelating and supplements and diet (or any combo of these) is much cheaper, IMO! Epsom salt baths are probably the cheapest and easiest thing I suggested. Ethan reacted badly to them at first (majority of kids react very positively right away) but that can be adjusted by adjusting the amount and frequency of the baths. > > Why do the Lauricidin unless you see yeast die off? ******* there does seem to be a viral component for ASD kiddo's. You may notice this in the form of changes around illnesses. Especially if they seem " better " when they are in a fever and then regress somewhat right before and right after an illness. Lauricidin is an antiviral which is the main reason why I wanted to start him on it-- to see if it had an effect. But he was also having some weird bacteria or yeast problems in a cyclic (monthly) manner and it was suggested to me to start Lauricidin by Conrad LeBeau who is very knowledgeable about the gut. I think lauricidin is better than just doing an antifungal treatment because I think you should also deal with the bad bacteria,too, and lauricidin does do that. Think of it this way... Ethan was doing alright this summer... just a little OCD now and then a little impulsiveness now and then and having regular stools every day. His height and weight are both above 75th percentile... so no outward signs that he's having bad bacteria and yeast. I give him four pellets of lauricidin and whoa-- he's a mess! Stools are foul! Then he returns to normal. Keep him on four pellets and then suddenly go to a full scoop of pellets and the next day he was sooo much calmer and no more ocd thoughts or impulsivity. So even though you do not see outward yeast issues right now, you really can't judge that-- it's almost like you don't know how bad it is until you see things really good. That's how it was with chelating Ethan-- I saw how good things were getting, so when yeast flared up, I knew it because I knew what to look for in him (decrease eye contact, increase impulsivity, poor auditory skills...). Does grapefruit seed > work as well? ***** grapefruit seed extract wipes out both good and bad bacteria and yeast, too. It is effective, but you cannot overuse it. The child has to have a break from it now and then. Massive doses or a smaller amount consistently? **** When we used it, we did a drop or sometimes three drops per day, for a few days on, and then stopped for a week or two or three. > > I don't do the brushing/joint compressions because my son is 8 and already > shows inappropriate boundaries. ****** what do you mean? Do you mean that he doesn't have a good body bubble? The brushing/joint compressions would not adversely impact this at all. Brushing is powerful in several ways-- one, it is felt to retrain the pathways but two, brushing is also a detoxification technique in spa's... it helps the lymph and fatty tissues dump toxins. Email me at maryw@... if you want me to send you a writeup on brushing from a harvard.edu website interspersed with some comments from me. The OT thought that it would be better if > my son would do his own compression stuff (rolling on a big therapy ball, > trampoline, climbing, etc.). ****** those things are good for sensory issues but the brushing daily and joint compressions may be really good for him. Unfortunately, he is resistant to doing much > of anything, except playing with his Legos and Playmobile stuff or watching > TV, when I let him. ****** again, I think the type of food he is eating, and a lack of vitamins and minerals may be at play here... sounds very lethargic. > > I do try to get him to eat the raw fruits and veggies--but he is addicted to > the starchy carbs, of course. ******Of course! I worry about too much fruit because I'm > hypoglycemic (worry that he might be too) and vegetables are pretty much > force fed as a mandatory item with dinner. ****** Ask someone who is more knowledgeable about SCD than I am to tell you whether or not the fruit would be a problem. My response is that no it wouldn't be especially if you could get some protein snacks in him at regular intervals through the day. Protein snacks really help hypoglycemics. > I rather start a bit more slowly...see some improvement and then go from> there. Are the Houston enzymes really so much better? ****** My son has what appears to be an allergic reaction to enzyme products so I can't speak from personal experience. When he was first on them, before the reaction, yes, the difference was very noticeable in how much better he was doing. The longer he stayed on them the more red his lips became, etc. So for him it was an allergy issue. Most kids just go through die off with the enzymes and then you can get a good idea of whether it is helping or not. The Houston Enzymes do have a very positive effect on a lot of kids, many of whom had been on different enzyme brands before and their parents can see the difference with the Houston enzymes. If I don't see any > improvement with them, am I barking up the wrong tree entirely? ******* No. Some kids cannot do enzymes and no dietary changes...some kids need both enzymes and dietary changes...some need enzymes and some supplements... everything you try is giving you a clue about what is going on in your child's body. Every reaction they have, positive, negative, or nil, is telling you something. Sometimes timing is an issue. For a while, magnesium supplements were making Ethan hyper-- NOT the expected response. If I had never tried magnesium again, that would have been a mistake. By using ojibwa tea of life, it helped detox his system enough and then he was able to take magnesium without being hyper. So timing, not the supplement, was the issue-- you may try Houston Enzymes now and see no changes... but perhaps trying them again in a year or two may yield changes after you've changed some other things for him. > > I'm sorry if I sound like a whiner. It's just that we have tried so much > and with so little result. I don't want to go and invest 100's of dollars > and make my son take loads of different stuff all at once to just have > another " no change " result. ******* I know. BUT as you have said, you are having to pay for all kinds of therapy services that may not be needed once you figure out what is causing the diagnosis/symptoms. > > What would be a good way to start more slowly and methodically? ****** If I were in your shoes, I would start with Houston Enzymes Epsom Salt baths brushing/joint compressions then stick with these for a while to see what changes you see magnesium and vitamin C and essential fatty acids-- are really not too expensive. You can get magnesium and vitamin C at the drugstore for less than 10 dollars each... just make sure you get brands that are free from colorings and allergens and yeast. EFA oils can run a bit more... I would start with some flax oil and see if you see any positive or negatives from that. Brainchild Nutritionals vitamin and minerals then see how things go for a while Lauricidin... see how things go for a while I would not stress out too much about cost at this point. Yes, if you were to start it all tomorrow--there would be a big cost output but if we are talking six months to a year to try these things then that is not going to be too hard. And you may see enough changes to be satisfied for a while with just a few of the things mentioned. Other people may mention other things too. THe point is, to save all of these suggestions and just try things when you can. I heard about lauricidin at least a year ago, but didn't try it right away. We can put that pressure on ourselves to do it all right away, but realistically, we do have to take things one step at a time, and give yourself permission to do that! But just save the messages that you see that talk about various products--some will turn out to be things that don't apply but some will be real gems. Each child is different and so you can only know by trying. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 You're great for giving all the info. I was hoping for the info. on the brushing/joint compressions. Also, do I understand correctly that you can use the Lauricidin and the Ojibwa tea at the same time? We had to momentarily stop the Ojibwa Tea ( I hated that because it had brought us such great things) while doing the Valtrex. Now that we may no longer be doing the Valtrex, I'd like to broach Dr. Megson about the Lauricidin, and it's a bonus for us if we can return to the tea. It's such a great gentle detox. Thank you again. Re: Not seeing results I'm going to put my comments in your text with ****preceding them. Read thru till you see my signature... > How do you tell what is helping if you start everything at once? ***** It's best to start one new thing at a time, allowing a few weeks in between start times. How do you > pay for all of this stuff...on top of occupational therapy, psychotherapy, > tutoring, etc. ******* Chelating Ethan was the biggest cost-saver we ever did. We were spending about 400 a month on occupational therapy and about 700 a month on vision therapy. Chelating and supplements and diet (or any combo of these) is much cheaper, IMO! Epsom salt baths are probably the cheapest and easiest thing I suggested. Ethan reacted badly to them at first (majority of kids react very positively right away) but that can be adjusted by adjusting the amount and frequency of the baths. > > Why do the Lauricidin unless you see yeast die off? ******* there does seem to be a viral component for ASD kiddo's. You may notice this in the form of changes around illnesses. Especially if they seem " better " when they are in a fever and then regress somewhat right before and right after an illness. Lauricidin is an antiviral which is the main reason why I wanted to start him on it-- to see if it had an effect. But he was also having some weird bacteria or yeast problems in a cyclic (monthly) manner and it was suggested to me to start Lauricidin by Conrad LeBeau who is very knowledgeable about the gut. I think lauricidin is better than just doing an antifungal treatment because I think you should also deal with the bad bacteria,too, and lauricidin does do that. Think of it this way... Ethan was doing alright this summer... just a little OCD now and then a little impulsiveness now and then and having regular stools every day. His height and weight are both above 75th percentile... so no outward signs that he's having bad bacteria and yeast. I give him four pellets of lauricidin and whoa-- he's a mess! Stools are foul! Then he returns to normal. Keep him on four pellets and then suddenly go to a full scoop of pellets and the next day he was sooo much calmer and no more ocd thoughts or impulsivity. So even though you do not see outward yeast issues right now, you really can't judge that-- it's almost like you don't know how bad it is until you see things really good. That's how it was with chelating Ethan-- I saw how good things were getting, so when yeast flared up, I knew it because I knew what to look for in him (decrease eye contact, increase impulsivity, poor auditory skills...). Does grapefruit seed > work as well? ***** grapefruit seed extract wipes out both good and bad bacteria and yeast, too. It is effective, but you cannot overuse it. The child has to have a break from it now and then. Massive doses or a smaller amount consistently? **** When we used it, we did a drop or sometimes three drops per day, for a few days on, and then stopped for a week or two or three. > > I don't do the brushing/joint compressions because my son is 8 and already > shows inappropriate boundaries. ****** what do you mean? Do you mean that he doesn't have a good body bubble? The brushing/joint compressions would not adversely impact this at all. Brushing is powerful in several ways-- one, it is felt to retrain the pathways but two, brushing is also a detoxification technique in spa's... it helps the lymph and fatty tissues dump toxins. Email me at maryw@... if you want me to send you a writeup on brushing from a harvard.edu website interspersed with some comments from me. The OT thought that it would be better if > my son would do his own compression stuff (rolling on a big therapy ball, > trampoline, climbing, etc.). ****** those things are good for sensory issues but the brushing daily and joint compressions may be really good for him. Unfortunately, he is resistant to doing much > of anything, except playing with his Legos and Playmobile stuff or watching > TV, when I let him. ****** again, I think the type of food he is eating, and a lack of vitamins and minerals may be at play here... sounds very lethargic. > > I do try to get him to eat the raw fruits and veggies--but he is addicted to > the starchy carbs, of course. ******Of course! I worry about too much fruit because I'm > hypoglycemic (worry that he might be too) and vegetables are pretty much > force fed as a mandatory item with dinner. ****** Ask someone who is more knowledgeable about SCD than I am to tell you whether or not the fruit would be a problem. My response is that no it wouldn't be especially if you could get some protein snacks in him at regular intervals through the day. Protein snacks really help hypoglycemics. > I rather start a bit more slowly...see some improvement and then go from> there. Are the Houston enzymes really so much better? ****** My son has what appears to be an allergic reaction to enzyme products so I can't speak from personal experience. When he was first on them, before the reaction, yes, the difference was very noticeable in how much better he was doing. The longer he stayed on them the more red his lips became, etc. So for him it was an allergy issue. Most kids just go through die off with the enzymes and then you can get a good idea of whether it is helping or not. The Houston Enzymes do have a very positive effect on a lot of kids, many of whom had been on different enzyme brands before and their parents can see the difference with the Houston enzymes. If I don't see any > improvement with them, am I barking up the wrong tree entirely? ******* No. Some kids cannot do enzymes and no dietary changes...some kids need both enzymes and dietary changes...some need enzymes and some supplements... everything you try is giving you a clue about what is going on in your child's body. Every reaction they have, positive, negative, or nil, is telling you something. Sometimes timing is an issue. For a while, magnesium supplements were making Ethan hyper-- NOT the expected response. If I had never tried magnesium again, that would have been a mistake. By using ojibwa tea of life, it helped detox his system enough and then he was able to take magnesium without being hyper. So timing, not the supplement, was the issue-- you may try Houston Enzymes now and see no changes... but perhaps trying them again in a year or two may yield changes after you've changed some other things for him. > > I'm sorry if I sound like a whiner. It's just that we have tried so much > and with so little result. I don't want to go and invest 100's of dollars > and make my son take loads of different stuff all at once to just have > another " no change " result. ******* I know. BUT as you have said, you are having to pay for all kinds of therapy services that may not be needed once you figure out what is causing the diagnosis/symptoms. > > What would be a good way to start more slowly and methodically? ****** If I were in your shoes, I would start with Houston Enzymes Epsom Salt baths brushing/joint compressions then stick with these for a while to see what changes you see magnesium and vitamin C and essential fatty acids-- are really not too expensive. You can get magnesium and vitamin C at the drugstore for less than 10 dollars each... just make sure you get brands that are free from colorings and allergens and yeast. EFA oils can run a bit more... I would start with some flax oil and see if you see any positive or negatives from that. Brainchild Nutritionals vitamin and minerals then see how things go for a while Lauricidin... see how things go for a while I would not stress out too much about cost at this point. Yes, if you were to start it all tomorrow--there would be a big cost output but if we are talking six months to a year to try these things then that is not going to be too hard. And you may see enough changes to be satisfied for a while with just a few of the things mentioned. Other people may mention other things too. THe point is, to save all of these suggestions and just try things when you can. I heard about lauricidin at least a year ago, but didn't try it right away. We can put that pressure on ourselves to do it all right away, but realistically, we do have to take things one step at a time, and give yourself permission to do that! But just save the messages that you see that talk about various products--some will turn out to be things that don't apply but some will be real gems. Each child is different and so you can only know by trying. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 The more yeast, the higher the sensory issues here. Perhaps a combo of probiotics in addition to the enzymes would facilitate faster results. If it were my son I'd also use the Ojibwa tea, the burdock root and other 3 herbs do a number on any number of bacteria, viruses, and fungus. Just something to look into. Hope it helps. Not seeing results I hoping for some suggestions. I've been lurking a while. Some of what I've seen on the list is over my head. Also, I'm just not sure how aggressively we need to pursue the issues. My 8 yo son is dx PDD-NOS. He has some of the Asperger's type stuff--difficulty transitioning, whining & temper tantrums when things don't go his way, etc. His main issues tend to be sensory integration stuff--difficulty concentrating, tending to be " low " and stimming (hyper behavior) in an attempt to get himself " even " , needing proprioceptive input, etc. He also is encopretic and overweight. All in all, his symptoms are not as bad as many kids, but enough that he feels different and bad about himself more often than I would like. I was hoping using the enzymes would help him with some of the sensory issues. I was also hoping that the encopresis would improve and that his weight would become more normal. I tried him on a gluten free diet for a while (probably a year) but it didn't seem to make much difference. Not enough to put him through the feeling that he was deprived. We were seeing a physical therapist at the time and according to her muscle testing, he was not intolerant of wheat. I'm not sure I agreed with the results, but had trouble justifying keeping him on the diet. We've been using the Enzymetica " Digest Gold " --partially since I can get it at the store and don't have organize timing on the mail order, etc. (maybe laziness on my part). I'm not seeing any dramatic results from these enzymes after a month or so. The encopresis might be a bit better but the sensory issues seem to be about the same. I'm not sure where I should go from here. I had very high hopes when I read 's book. Everything made so much sense to me. I thought because there was the encopresis, that probably there were other gut things going on as well. I have been disappointed not to see more results. Does anyone have suggestions on what to try next? Caroline Quintanilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 > Caroline, > > Peptizyde is what really helped both my daughters¹ constipation. My AS > daughter is almost 7 and also has benefited from extra magnesium and 5-htp. > Cutting back a bit on the cow¹s milk has helped as well. > > Serena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 Yes, you can use lauricidin and ojibwa tea together-- I just would not give them at the same time. Give the lauricidin at least an hour away from the tea if possible. Will send you the brushing protocol privately. W > You're great for giving all the info. I was hoping for the info. on the brushing/joint compressions. Also, do I understand correctly that you can use the Lauricidin and the Ojibwa tea at the same time? We had to momentarily stop the Ojibwa Tea ( I hated that because it had brought us such great things) while doing the Valtrex. Now that we may no longer be doing the Valtrex, I'd like to broach Dr. Megson about the Lauricidin, and it's a bonus for us if we can return to the tea. It's such a great gentle detox. Thank you again. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 > I tried him on a gluten free diet for a while (probably a year) but it > didn't seem to make much difference. Not enough to put him through the > feeling that he was deprived. It may be that he needed other food removals. Enzymes can help with that, many times instead of food removals. Try enzymes from one of these sources http://www.houstonni.com/ http://www.kirkmanlabs.com/ Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 > Does anyone have suggestions on what to try next? Hi Caroline, Try using the Houston enzymes - I know it's difficult with having to time the order to prevent running out but it's really worth it! My son is so improved, and little things continue to show up which were unexpected. We attribute most of this to the enzymes. When you use the enzymes make sure you 1. Match the enzyme to the food 2. Time the enzyme to BEFORE a meal (20 mins or so if in capsule, immediately before or with the first bites if sprinkled out of the capsule) 3. Use them with all meals, snacks etc. HTH Jaci, Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 > I hoping for some suggestions. Hi Caroline, I forgot to suggest treating for yeast and bacteria. Give good probiotics, if he can tolerate them, while treating. His encopresis should improve, if nothing else! (I don't know about you but I read and re-read 's book - it's fantastic and the more I read the more I learn. Seems to be layers of information!) Jaci, Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 Wondering if others see this advantage to testing, or are there some who feel these tests are not all they claim to be? >>.IMHO they are expensive, often unreliable and their usefulness if accurate is dependent on anothers anility to correctly intrepret the results. False negatives are common with stool tests for gut bugs Having said that we did 4 non invasive tests when we started on the bimed journey CDSA with parasiteolgy (poop) OAT (wee) These two showed wildly differing results, however they proved to me my seemingly healthy looking son wasn;t at all Hair Test - highly recommned this one - Use DDI Hair elements - <A HREF= " www.doctorsdata.com " > www.doctorsdata.com</A> Peptides - COMPLETE waste of time, inconclusive results and even Sahttock himself will tell you, they are only guessing these peaks are peptides Mandi in UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 Thank You. Re: Not seeing results Yes, you can use lauricidin and ojibwa tea together-- I just would not give them at the same time. Give the lauricidin at least an hour away from the tea if possible. Will send you the brushing protocol privately. W > You're great for giving all the info. I was hoping for the info. on the brushing/joint compressions. Also, do I understand correctly that you can use the Lauricidin and the Ojibwa tea at the same time? We had to momentarily stop the Ojibwa Tea ( I hated that because it had brought us such great things) while doing the Valtrex. Now that we may no longer be doing the Valtrex, I'd like to broach Dr. Megson about the Lauricidin, and it's a bonus for us if we can return to the tea. It's such a great gentle detox. Thank you again. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 Far from an expert here, but an expert from another site did give me some advice which made sense to me. She was stressing the usefulness in getting some basic tests ran from one of the specialty labs, like Great Plains, for help in a starting point. This seemed like a short cut to just testing out different diets or supplements. It's just for my daughter I was having a hard time determining the effectiveness of something like enzymes. Then I find out that with enzymes as with some others getting worse before getting better is a good sign; there are different kinds of enzymes; may need to vary the starting amount; and if you have mold issues sometimes enzymes can not be tolerated. These tests aren't cheap, but depending on insurance situations may help defer the cost. I just sent off for some tests so will have to wait a few weeks to see what they come up with and/or if they pan out for me. Wondering if others see this advantage to testing, or are there some who feel these tests are not all they claim to be? Thanks, Kari Re: Not seeing results In a message dated 12/1/03 2:03:53 PM, uucamper@... writes: << Does anyone have suggestions on what to try next? >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 Hi Mandi, Thanks for your input. Was the CDSA and OAT tests you did from the same lab? Sounds like even though they were totally different, what was there that gave you a enough to prove all wasn't great inside for your son? I'm really thinking my daughter has candida, and it just seems to make sense that something like this could be determined. But I guess since some yeast in our body is normal, so is the catch to this defining normalness or whether or not the test can identify this? Her pediatrician gave her a urine test but from many sources I was told that to give a child a urine test for yeast is merely a means to pacify a pushy parent. It came back negative. Great Plains is claiming to test an element called tartaric acid which can only come from yeast. Anyone know this to be true and/or comments as to whether something like this might prove to be conclusive? Thanks again, Kari Re: Not seeing results These two showed wildly differing results, however they proved to me my seemingly healthy looking son wasn;t at all Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 Dear Caroline: My son used the Digest Gold enzymes and did poorly. They have malt. Currently, we use Kirkman. Many people like Houston. Have you read the Body Ecology Diet? I know how it feels to be overwhelmed, but little by little... Do you do the Feingold diet? We saw marked results with this. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2003 Report Share Posted December 3, 2003 <<Great Plains is claiming to test an element called tartaric acid which can only come from yeast. Anyone know this to be true and/or comments as to whether something like this might prove to be conclusive?>> You can read about this and other Great Plains tests in the book " Biological Treatments for Autism and PDD " written by Dr. Shaw of Great Plains. Deborah Quote Link to comment Share on other sites More sharing options...
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