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Hello, all. I mostly listen but I need to talk. Zeb is my 5 year old

son who is autistic and visually impaired due to prematurity. We

have currently been on all of Houston's enzymes, ProEPA, Probiotics,

L-Carnosine, Vitamin C for almost 2 years. He was basically

nonverbal before starting the L-Carnosine,48 hours after starting he

was verbal and quickly progressed. He is still working on

conversational speech, and decreasing echo speech but 90%

improvement. Other areas have also improved but not the way the

speech did. His social skills and developmental delay's are still

below normal. Intelligent level is above normal, he adds, spells,

counts past 100(forward and backward), knows all ABC's upper and

lower case, shapes, colors, ect... His fine motor skills suck, he

hates writing, coloring, feeding himself, we have worked hard in

this area with little improvements. Socially he will play games like

Duck, Duck, Goose, & Connect Four, he will parallel play and

occasionally play one on one with a child when made to. He is very

much a loner. He likes T.V. movies, radios, any toys with lights,

sounds, he hates pretend play and can't engage in it at all. He

loves computers, he is a lovey child. Basically his only stims are

spinning and poking his eye(which is related to his eye problems).

Spinning is usually only when he is bored. He is in regular

preschool with SLP, OT, and Vision teacher. He does well in

school.I do not want to sound ungrateful, because I thank God

everyday for his accomplishments but I read others stories and I

feel like he could be doing more. He takes handfuls of pills three

times or more a day and he still has so much more to go to be

considered not autistic. I had his hair tested and he had mild

toxicity so I've been doing PC3X detox. for a few months(I know PC3X

is contraversial with some) and I haven't really seen any changes. I

don't want to continue to add more and more pills but I want Zeb to

have as normal life as he can, I want him to anticipate Christmas

and get excited about Santa and ask questions like: MOM, why is the

sky blue or were do babies come from? I read the post and there is

so much to digest and understand and I'm a RN with a College Degree.

Am I missing something, what else can I do? Thanks for listening.

Alisha

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You're not a bad Mom. You're in the middle of a puzzle. Your education will help

you digest info., your wish list for you munchkin is neither excessive or

unusual. It's what most of us want. Some kids get there quicker than others.

Research and pray is what I do. Of course this means I'm sleep deprived, broke

...... If you feel like your son could be doing more, go with that, no one knows

him like you do, and he won't do more without you. Frustrated -Sorry so Long

Hello, all. I mostly listen but I need to talk. Zeb is my 5 year old

son who is autistic and visually impaired due to prematurity. We

have currently been on all of Houston's enzymes, ProEPA, Probiotics,

L-Carnosine, Vitamin C for almost 2 years. He was basically

nonverbal before starting the L-Carnosine,48 hours after starting he

was verbal and quickly progressed. He is still working on

conversational speech, and decreasing echo speech but 90%

improvement. Other areas have also improved but not the way the

speech did. His social skills and developmental delay's are still

below normal. Intelligent level is above normal, he adds, spells,

counts past 100(forward and backward), knows all ABC's upper and

lower case, shapes, colors, ect... His fine motor skills suck, he

hates writing, coloring, feeding himself, we have worked hard in

this area with little improvements. Socially he will play games like

Duck, Duck, Goose, & Connect Four, he will parallel play and

occasionally play one on one with a child when made to. He is very

much a loner. He likes T.V. movies, radios, any toys with lights,

sounds, he hates pretend play and can't engage in it at all. He

loves computers, he is a lovey child. Basically his only stims are

spinning and poking his eye(which is related to his eye problems).

Spinning is usually only when he is bored. He is in regular

preschool with SLP, OT, and Vision teacher. He does well in

school.I do not want to sound ungrateful, because I thank God

everyday for his accomplishments but I read others stories and I

feel like he could be doing more. He takes handfuls of pills three

times or more a day and he still has so much more to go to be

considered not autistic. I had his hair tested and he had mild

toxicity so I've been doing PC3X detox. for a few months(I know PC3X

is contraversial with some) and I haven't really seen any changes. I

don't want to continue to add more and more pills but I want Zeb to

have as normal life as he can, I want him to anticipate Christmas

and get excited about Santa and ask questions like: MOM, why is the

sky blue or were do babies come from? I read the post and there is

so much to digest and understand and I'm a RN with a College Degree.

Am I missing something, what else can I do? Thanks for listening.

Alisha

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I really like the paper " Understanding Autism " by Jepson MD

for ideas I was missing:

you can find it here:

Intervention | Education | Prevention

.... community, CBC of Utah's Medical Director, Dr. Jepson,

specializes in

the DAN! ... Download " Understanding Autism " by Dr. Jepson.

News Items. ...

www.cbcutah.com/ - 15k - Cached - More pages from this site

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>>His fine motor skills suck, he

> hates writing, coloring, feeding himself, we have worked hard in

> this area with little improvements.

Try carnitine, see if that helps.

>>Basically his only stims are

> spinning and poking his eye(which is related to his eye problems).

> Spinning is usually only when he is bored.

My son spins when he has yeast

http://www.danasview.net/yeast.htm

Poking the eye can also be yeast. Or consider vitamin A, which helped my son

not only lose his visual stims, it was also VERY

helpful for social skills and pretend play.

>>I had his hair tested and he had mild

> toxicity so I've been doing PC3X detox.

What metals was he high in? PCA won't do lead. Also, if he has daily exposure,

you might consider reducing or removing those

sources

http://www.danasview.net/metals.htm

> don't want to continue to add more and more pills

For my son, adding for a time and then removing was what was most beneficial.

Dana

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In a message dated 11/30/03 10:06:08 PM, risen@... writes:

<< Am I missing something, what else can I do? >>

Maybe this is old news, but I just got a copy of Stanley Greenspan's " The

Special Needs Child " and it is already helping my son with AS *so much.

Greenspan's idea -- he calls it " floortime " -- is that kids with social deficits

need

to be pushed to connect emotionally, and he's very specific about how to go

about doing it. I feel kind of idiotic, really, for not understanding that my

kid

needed to be taught how to play, and that simply following his lead wasn't

enough. (A lot of the time there didn't seem to be a lead to follow lol.)

Anyway, the book has been around for awhile so maybe you've already worked in

this

direction -- but I'm finding that doing floortime, after improving so much

biomedically, is like lighting the wick of the candle...

Nell

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> Hello, all. I mostly listen but I need to talk. Zeb is my 5 year

old

> son who is autistic and visually impaired due to prematurity.

Hi Alisha,

Wow = you've really been determined about your son's development and

how exciting that he's been responding, even in marginal ways. The

speech changes sound fantastic so it seems he's able to respond to

treatments.

I'm sure the more experienced and informed on this list will be able

to give you great guidance on supplements and so on (like yeast,

bacteria and parasite treatments as well as viral stuff) so I won't

presume to do any of those.

However, I would like to know more about his vision impairment and

if he has a " special education - vision " teacher who might have some

thoughts to his therapies? My son has a minor vision impairment

(drastically reduced depth perception) and he gets home visits (we

are in what is considered a " rural, isolated " ) as well as visits to

his EI playgroups with his vision teacher, as we call her.

(Apart from her being so fantastic with his vision, she really looks

after his " whole being " and tries to co-ordinate the fine and gross

motor skills with his vision tasks.)

My son also got great benefit from eye surgery early this year and

his confidence went through the roof! He was doing things he

wouldn't do before and, sigh, running faster, jumping higher,

climbing.... We aren't sure what the surgery did because it wasn't

meant to improve depth perception but we assume it did - and he felt

better about the world. His fine motor really improved too because

he could see things better and didn't have to " go fishing " to grasp

small items.

Don't know exactly what I was trying to achieve with this reply but

the " vision teacher " might be helpful if you haven't already got one

for Zeb.

Sounds like you are doing so many wonderful things for him - and he

is working hard to reward you!

Please keep us posted.

Jaci, Australia

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Nell,

That was the first " special needs " book I read. It still fills me

with hope and inspiration!

Floortime is heaps of fun (or it is for me) and it made all the

difference for my son! We still spend most of our time on the

floor when we are inside. People at doctor's offices etc must think

I'm crazy because I don't sit in a chair anymore - I'm usually down

on the floor playing with my son. LOL we have so much fun!

I'm SO GLAD you enjoy the book. There's a website devoted to floor

time as well as greenspan's website. Enjoy.

www.coping.org/earlyin/floortm.htm

www.stanleygreenspan.com

Jaci, Australia

>

> In a message dated 11/30/03 10:06:08 PM, risen@p... writes:

>

> << Am I missing something, what else can I do? >>

>

> Maybe this is old news, but I just got a copy of Stanley

Greenspan's " The

> Special Needs Child " and it is already helping my son with AS *so

much.

> Greenspan's idea -- he calls it " floortime " -- is that kids with

social deficits need

> to be pushed to connect emotionally, and he's very specific about

how to go

> about doing it. I feel kind of idiotic, really, for not

understanding that my kid

> needed to be taught how to play, and that simply following his

lead wasn't

> enough. (A lot of the time there didn't seem to be a lead to

follow lol.)

> Anyway, the book has been around for awhile so maybe you've

already worked in this

> direction -- but I'm finding that doing floortime, after improving

so much

> biomedically, is like lighting the wick of the candle...

>

> Nell

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hi

where can i purchase l carnosine and can i give it on its own?

thank you

Frustrated -Sorry so Long

> Hello, all. I mostly listen but I need to talk. Zeb is my 5 year old

> son who is autistic and visually impaired due to prematurity. We

> have currently been on all of Houston's enzymes, ProEPA, Probiotics,

> L-Carnosine, Vitamin C for almost 2 years. He was basically

> nonverbal before starting the L-Carnosine,48 hours after starting he

> was verbal and quickly progressed. He is still working on

> conversational speech, and decreasing echo speech but 90%

> improvement. Other areas have also improved but not the way the

> speech did. His social skills and developmental delay's are still

> below normal. Intelligent level is above normal, he adds, spells,

> counts past 100(forward and backward), knows all ABC's upper and

> lower case, shapes, colors, ect... His fine motor skills suck, he

> hates writing, coloring, feeding himself, we have worked hard in

> this area with little improvements. Socially he will play games like

> Duck, Duck, Goose, & Connect Four, he will parallel play and

> occasionally play one on one with a child when made to. He is very

> much a loner. He likes T.V. movies, radios, any toys with lights,

> sounds, he hates pretend play and can't engage in it at all. He

> loves computers, he is a lovey child. Basically his only stims are

> spinning and poking his eye(which is related to his eye problems).

> Spinning is usually only when he is bored. He is in regular

> preschool with SLP, OT, and Vision teacher. He does well in

> school.I do not want to sound ungrateful, because I thank God

> everyday for his accomplishments but I read others stories and I

> feel like he could be doing more. He takes handfuls of pills three

> times or more a day and he still has so much more to go to be

> considered not autistic. I had his hair tested and he had mild

> toxicity so I've been doing PC3X detox. for a few months(I know PC3X

> is contraversial with some) and I haven't really seen any changes. I

> don't want to continue to add more and more pills but I want Zeb to

> have as normal life as he can, I want him to anticipate Christmas

> and get excited about Santa and ask questions like: MOM, why is the

> sky blue or were do babies come from? I read the post and there is

> so much to digest and understand and I'm a RN with a College Degree.

> Am I missing something, what else can I do? Thanks for listening.

> Alisha

>

>

>

>

>

>

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