Guest guest Posted November 30, 2003 Report Share Posted November 30, 2003 Hello, all. I mostly listen but I need to talk. Zeb is my 5 year old son who is autistic and visually impaired due to prematurity. We have currently been on all of Houston's enzymes, ProEPA, Probiotics, L-Carnosine, Vitamin C for almost 2 years. He was basically nonverbal before starting the L-Carnosine,48 hours after starting he was verbal and quickly progressed. He is still working on conversational speech, and decreasing echo speech but 90% improvement. Other areas have also improved but not the way the speech did. His social skills and developmental delay's are still below normal. Intelligent level is above normal, he adds, spells, counts past 100(forward and backward), knows all ABC's upper and lower case, shapes, colors, ect... His fine motor skills suck, he hates writing, coloring, feeding himself, we have worked hard in this area with little improvements. Socially he will play games like Duck, Duck, Goose, & Connect Four, he will parallel play and occasionally play one on one with a child when made to. He is very much a loner. He likes T.V. movies, radios, any toys with lights, sounds, he hates pretend play and can't engage in it at all. He loves computers, he is a lovey child. Basically his only stims are spinning and poking his eye(which is related to his eye problems). Spinning is usually only when he is bored. He is in regular preschool with SLP, OT, and Vision teacher. He does well in school.I do not want to sound ungrateful, because I thank God everyday for his accomplishments but I read others stories and I feel like he could be doing more. He takes handfuls of pills three times or more a day and he still has so much more to go to be considered not autistic. I had his hair tested and he had mild toxicity so I've been doing PC3X detox. for a few months(I know PC3X is contraversial with some) and I haven't really seen any changes. I don't want to continue to add more and more pills but I want Zeb to have as normal life as he can, I want him to anticipate Christmas and get excited about Santa and ask questions like: MOM, why is the sky blue or were do babies come from? I read the post and there is so much to digest and understand and I'm a RN with a College Degree. Am I missing something, what else can I do? Thanks for listening. Alisha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 You're not a bad Mom. You're in the middle of a puzzle. Your education will help you digest info., your wish list for you munchkin is neither excessive or unusual. It's what most of us want. Some kids get there quicker than others. Research and pray is what I do. Of course this means I'm sleep deprived, broke ...... If you feel like your son could be doing more, go with that, no one knows him like you do, and he won't do more without you. Frustrated -Sorry so Long Hello, all. I mostly listen but I need to talk. Zeb is my 5 year old son who is autistic and visually impaired due to prematurity. We have currently been on all of Houston's enzymes, ProEPA, Probiotics, L-Carnosine, Vitamin C for almost 2 years. He was basically nonverbal before starting the L-Carnosine,48 hours after starting he was verbal and quickly progressed. He is still working on conversational speech, and decreasing echo speech but 90% improvement. Other areas have also improved but not the way the speech did. His social skills and developmental delay's are still below normal. Intelligent level is above normal, he adds, spells, counts past 100(forward and backward), knows all ABC's upper and lower case, shapes, colors, ect... His fine motor skills suck, he hates writing, coloring, feeding himself, we have worked hard in this area with little improvements. Socially he will play games like Duck, Duck, Goose, & Connect Four, he will parallel play and occasionally play one on one with a child when made to. He is very much a loner. He likes T.V. movies, radios, any toys with lights, sounds, he hates pretend play and can't engage in it at all. He loves computers, he is a lovey child. Basically his only stims are spinning and poking his eye(which is related to his eye problems). Spinning is usually only when he is bored. He is in regular preschool with SLP, OT, and Vision teacher. He does well in school.I do not want to sound ungrateful, because I thank God everyday for his accomplishments but I read others stories and I feel like he could be doing more. He takes handfuls of pills three times or more a day and he still has so much more to go to be considered not autistic. I had his hair tested and he had mild toxicity so I've been doing PC3X detox. for a few months(I know PC3X is contraversial with some) and I haven't really seen any changes. I don't want to continue to add more and more pills but I want Zeb to have as normal life as he can, I want him to anticipate Christmas and get excited about Santa and ask questions like: MOM, why is the sky blue or were do babies come from? I read the post and there is so much to digest and understand and I'm a RN with a College Degree. Am I missing something, what else can I do? Thanks for listening. Alisha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 I really like the paper " Understanding Autism " by Jepson MD for ideas I was missing: you can find it here: Intervention | Education | Prevention .... community, CBC of Utah's Medical Director, Dr. Jepson, specializes in the DAN! ... Download " Understanding Autism " by Dr. Jepson. News Items. ... www.cbcutah.com/ - 15k - Cached - More pages from this site Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 >>His fine motor skills suck, he > hates writing, coloring, feeding himself, we have worked hard in > this area with little improvements. Try carnitine, see if that helps. >>Basically his only stims are > spinning and poking his eye(which is related to his eye problems). > Spinning is usually only when he is bored. My son spins when he has yeast http://www.danasview.net/yeast.htm Poking the eye can also be yeast. Or consider vitamin A, which helped my son not only lose his visual stims, it was also VERY helpful for social skills and pretend play. >>I had his hair tested and he had mild > toxicity so I've been doing PC3X detox. What metals was he high in? PCA won't do lead. Also, if he has daily exposure, you might consider reducing or removing those sources http://www.danasview.net/metals.htm > don't want to continue to add more and more pills For my son, adding for a time and then removing was what was most beneficial. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 In a message dated 11/30/03 10:06:08 PM, risen@... writes: << Am I missing something, what else can I do? >> Maybe this is old news, but I just got a copy of Stanley Greenspan's " The Special Needs Child " and it is already helping my son with AS *so much. Greenspan's idea -- he calls it " floortime " -- is that kids with social deficits need to be pushed to connect emotionally, and he's very specific about how to go about doing it. I feel kind of idiotic, really, for not understanding that my kid needed to be taught how to play, and that simply following his lead wasn't enough. (A lot of the time there didn't seem to be a lead to follow lol.) Anyway, the book has been around for awhile so maybe you've already worked in this direction -- but I'm finding that doing floortime, after improving so much biomedically, is like lighting the wick of the candle... Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 > Hello, all. I mostly listen but I need to talk. Zeb is my 5 year old > son who is autistic and visually impaired due to prematurity. Hi Alisha, Wow = you've really been determined about your son's development and how exciting that he's been responding, even in marginal ways. The speech changes sound fantastic so it seems he's able to respond to treatments. I'm sure the more experienced and informed on this list will be able to give you great guidance on supplements and so on (like yeast, bacteria and parasite treatments as well as viral stuff) so I won't presume to do any of those. However, I would like to know more about his vision impairment and if he has a " special education - vision " teacher who might have some thoughts to his therapies? My son has a minor vision impairment (drastically reduced depth perception) and he gets home visits (we are in what is considered a " rural, isolated " ) as well as visits to his EI playgroups with his vision teacher, as we call her. (Apart from her being so fantastic with his vision, she really looks after his " whole being " and tries to co-ordinate the fine and gross motor skills with his vision tasks.) My son also got great benefit from eye surgery early this year and his confidence went through the roof! He was doing things he wouldn't do before and, sigh, running faster, jumping higher, climbing.... We aren't sure what the surgery did because it wasn't meant to improve depth perception but we assume it did - and he felt better about the world. His fine motor really improved too because he could see things better and didn't have to " go fishing " to grasp small items. Don't know exactly what I was trying to achieve with this reply but the " vision teacher " might be helpful if you haven't already got one for Zeb. Sounds like you are doing so many wonderful things for him - and he is working hard to reward you! Please keep us posted. Jaci, Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 Nell, That was the first " special needs " book I read. It still fills me with hope and inspiration! Floortime is heaps of fun (or it is for me) and it made all the difference for my son! We still spend most of our time on the floor when we are inside. People at doctor's offices etc must think I'm crazy because I don't sit in a chair anymore - I'm usually down on the floor playing with my son. LOL we have so much fun! I'm SO GLAD you enjoy the book. There's a website devoted to floor time as well as greenspan's website. Enjoy. www.coping.org/earlyin/floortm.htm www.stanleygreenspan.com Jaci, Australia > > In a message dated 11/30/03 10:06:08 PM, risen@p... writes: > > << Am I missing something, what else can I do? >> > > Maybe this is old news, but I just got a copy of Stanley Greenspan's " The > Special Needs Child " and it is already helping my son with AS *so much. > Greenspan's idea -- he calls it " floortime " -- is that kids with social deficits need > to be pushed to connect emotionally, and he's very specific about how to go > about doing it. I feel kind of idiotic, really, for not understanding that my kid > needed to be taught how to play, and that simply following his lead wasn't > enough. (A lot of the time there didn't seem to be a lead to follow lol.) > Anyway, the book has been around for awhile so maybe you've already worked in this > direction -- but I'm finding that doing floortime, after improving so much > biomedically, is like lighting the wick of the candle... > > Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 hi where can i purchase l carnosine and can i give it on its own? thank you Frustrated -Sorry so Long > Hello, all. I mostly listen but I need to talk. Zeb is my 5 year old > son who is autistic and visually impaired due to prematurity. We > have currently been on all of Houston's enzymes, ProEPA, Probiotics, > L-Carnosine, Vitamin C for almost 2 years. He was basically > nonverbal before starting the L-Carnosine,48 hours after starting he > was verbal and quickly progressed. He is still working on > conversational speech, and decreasing echo speech but 90% > improvement. Other areas have also improved but not the way the > speech did. His social skills and developmental delay's are still > below normal. Intelligent level is above normal, he adds, spells, > counts past 100(forward and backward), knows all ABC's upper and > lower case, shapes, colors, ect... His fine motor skills suck, he > hates writing, coloring, feeding himself, we have worked hard in > this area with little improvements. Socially he will play games like > Duck, Duck, Goose, & Connect Four, he will parallel play and > occasionally play one on one with a child when made to. He is very > much a loner. He likes T.V. movies, radios, any toys with lights, > sounds, he hates pretend play and can't engage in it at all. He > loves computers, he is a lovey child. Basically his only stims are > spinning and poking his eye(which is related to his eye problems). > Spinning is usually only when he is bored. He is in regular > preschool with SLP, OT, and Vision teacher. He does well in > school.I do not want to sound ungrateful, because I thank God > everyday for his accomplishments but I read others stories and I > feel like he could be doing more. He takes handfuls of pills three > times or more a day and he still has so much more to go to be > considered not autistic. I had his hair tested and he had mild > toxicity so I've been doing PC3X detox. for a few months(I know PC3X > is contraversial with some) and I haven't really seen any changes. I > don't want to continue to add more and more pills but I want Zeb to > have as normal life as he can, I want him to anticipate Christmas > and get excited about Santa and ask questions like: MOM, why is the > sky blue or were do babies come from? I read the post and there is > so much to digest and understand and I'm a RN with a College Degree. > Am I missing something, what else can I do? Thanks for listening. > Alisha > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.