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> Blood Tests Index: check out this site

>

> http://www.ariess.com/s-crina/tests-bloodindex.htm#Contents

>

> Kay

Thanks Kay.... I have these sites in my files... I sent them out to the group

some time ago and was about to send them again but you beat me to it...

We should remember that in evaluating the amount of damage done to our liver the

doctors look at bilirubin, albumin and prothrombin time plus the severity of

encephalopathy and ascites in making a decision to transplant...

BTW... any one interested.... I have loads of info in my files on various blood

tests, thier values and meanings

Jerry

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  • 1 year later...

Pete,

I get my Enbrel for free because it is an injectable drug and is covered

under medical care. I do pay a fortune for my other meds though. The worst

was when I was going through all the NSAIDs trying to find one that actually

worked. Unfortunately they all irritated my stomach and ultimately left me

with an ulcer (and the need for even more prescriptions). I have full

bottles of vioxx, celebrex, relafen, bextra, ect. under my bathroom sink.

Also have almost full bottles of Zoloft and Effexor (for fibromyalgia) that

never worked or caused severe reactions and Elavil and Trazadone (given for

sleep) never worked either. I think the most I spent on meds one month was

almost $200. Half the time they either didn't work or I couldn't take them

cause of side effects. I was without insurance for 2 years so I can relate

with spending a fortune on prescriptions. What makes me so mad is that

Americans pay more than anyone. That's why so many people are trying to get

their prescriptions from other countries. The drug companies figure since

most Americans have insurance they can jack the prices up. It's so unfair!

Message: 15

Date: Thu, 23 Jan 2003 09:52:45 -0800 (PST)

From: pete colombo <peterunspa@...>

Subject: Re: Cost of Enbrel

Hello :

I too have Aetna insurance, but no such thing as " free " for me. Every

prescription has a co-pay, with branded prescriptions having a minimum

co-pay of $20. If I were to walk into my local pharmacy, I would imagine

the co-pay for Enbrel to be in the hundreds of dollars. I smartly choose

the mail-order option that caps prescription co-pay at $45 for a 3-month

supply.

In this day and age it is very rare not to have a co-pay with a

prescription. Consider yourself most fortunate.

All the Best...

Pete.

<leslieiansa@...> wrote:I have Aetna insurance and they

cover my Enbrel under medical care. I get it refilled monthly...for free!

I also get my insulin syringes (for injection of enbrel) for free too.

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I am organizationally impaired... so I get all of my prescriptions

filled at one pharmacy. At the end of the year, I ask for a print-

out of my prescription history for just that year. It has every

prescription- the cost- the amount insurance paid- the amount I paid-

and the annual total. While great for tax purposes- it's a little

disheartening to see three pages of meds with such a large final

total! It does make you appreciate the your insurance tho!

Kirsten

> About the high cost of meds...keep track of all your out of pocket

costs.

> Any amount you exceed over 7.5% of your income can be deducted on

your taxes!

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  • 3 weeks later...

Have you thought of couching your education in a similar manner - with a

little training (and maybe reading " Change your Brain Change Your Life "

by Amen, execs could become better managers by learning the techniques

to identify staff with brain problems, and the techniques to deal with

them.

Dave, thanks very much for this suggestion - I've ordered the book and think it

could be very useful. Thanks, too, Mandi for suggesting Carole Gray - I will

look for these too.

I was very interested. Dave, in your ability to identify execs with brain

problems -- any tips you could pass on to me? Myers Briggs testing does provide

useful insights - someone in a client IT company recently told me that almost

all managers were ENTJ - so very low in empathy. There are useful stats around

to show that managers/execs with Emotional Intelligence skills are more

successful and make the company more money.

In the UK the more enlightened organisations do pay work-life balance

consultants and our government believes in it as a business benefit and has been

paying for free consultancies for organisations -- luckily for me, as this is

how I earn my living! It's quite big business in the USA as well, but the two

countries have surprisingly different workplace cultures.

Thanks again,

Lucy UK

More marketing than real content change, but it might be useful...

Thanks,

Dave

Dave Asprey

dave@...

www.asprey.net

________________________________________________________________________

________________________________________________________________________

>>>Message: 2

Date: Sun, 16 Feb 2003 10:06:52 -0000

From: " Lucy McCarraher " <lucy@...>

Subject: Re: Engineering

crazy tumbling colours

shriek to hell when thier disorder is pointed out to them

, this is beautiful poetry and attests to your creative, fictional

abilities!

Like Marti, I used to write fiction -- television scripts in my case,

many for children. Now I work in the business world as a consultant,

specialising in work-life balance, and had a factual (self-help) book

called The Book of Balanced Living on personal work-life balance

published last year.

Although I'm not involved in fiction writing/production any more, I do

think that fiction can be a very useful learning tool, as for me with

Speed of Dark and understanding (if it's accurate) an ASD mindset.

The link that was posted last week to the article " The Geek Syndrome "

also ties in with this for me: as a consultant I go into organisations

and try to implement better work-life balance for employees through more

flexible working arrangements. But for it to really work, senior

managers and line managers need to be able to empathise with, for

instance, the needs of working parents, staff with disabilities, in

order to see the business benefits (a major theme in Speed of Dark) of

employing them to work non-standard hours or from home etc. The

preponderance of non-empathetic managers I come up against, especially

in IT, engineering, legal etc companies (see Geek Syndrome article) is a

real problem to me, professionally speaking, and I need to find ways to

address this in management training programmes.

Dave's comments about learning empathetic strategies as a teenager

through magazines was really interesting - I'll bet those articles had

" case studies " to show how it worked (which were probably fictional!).

And, of course, copying the behaviour of others. Does anyone else have

any experience of learning or training in social skills/empathy that

they could share? Are there any training programmes for ASD people in

this area at all?

I could, of course, suggest that my client organisations offer free

enzymes to all their non-empathetic managers and see if it helps!

Thanks for any ideas.

Lucy

UK

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Lucy,

I applaud you for your efforts to teach companies to be human. I've

found that when times get tight, companies lose most of the flexibility.

They also don't pay consultants for stuff like work/life balance, which

is a shame. I can point out to you every one of the executives in my

last company who had brain problems, and categorize them pretty

accurately. They have the Myers/Briggs, which execs actually adhere to.

Have you thought of couching your education in a similar manner - with a

little training (and maybe reading " Change your Brain Change Your Life "

by Amen, execs could become better managers by learning the techniques

to identify staff with brain problems, and the techniques to deal with

them.

More marketing than real content change, but it might be useful...

Thanks,

Dave

Dave Asprey

dave@...

www.asprey.net

________________________________________________________________________

________________________________________________________________________

>>>Message: 2

Date: Sun, 16 Feb 2003 10:06:52 -0000

From: " Lucy McCarraher " <lucy@...>

Subject: Re: Engineering

crazy tumbling colours

shriek to hell when thier disorder is pointed out to them

, this is beautiful poetry and attests to your creative, fictional

abilities!

Like Marti, I used to write fiction -- television scripts in my case,

many for children. Now I work in the business world as a consultant,

specialising in work-life balance, and had a factual (self-help) book

called The Book of Balanced Living on personal work-life balance

published last year.

Although I'm not involved in fiction writing/production any more, I do

think that fiction can be a very useful learning tool, as for me with

Speed of Dark and understanding (if it's accurate) an ASD mindset.

The link that was posted last week to the article " The Geek Syndrome "

also ties in with this for me: as a consultant I go into organisations

and try to implement better work-life balance for employees through more

flexible working arrangements. But for it to really work, senior

managers and line managers need to be able to empathise with, for

instance, the needs of working parents, staff with disabilities, in

order to see the business benefits (a major theme in Speed of Dark) of

employing them to work non-standard hours or from home etc. The

preponderance of non-empathetic managers I come up against, especially

in IT, engineering, legal etc companies (see Geek Syndrome article) is a

real problem to me, professionally speaking, and I need to find ways to

address this in management training programmes.

Dave's comments about learning empathetic strategies as a teenager

through magazines was really interesting - I'll bet those articles had

" case studies " to show how it worked (which were probably fictional!).

And, of course, copying the behaviour of others. Does anyone else have

any experience of learning or training in social skills/empathy that

they could share? Are there any training programmes for ASD people in

this area at all?

I could, of course, suggest that my client organisations offer free

enzymes to all their non-empathetic managers and see if it helps!

Thanks for any ideas.

Lucy

UK

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  • 1 year later...
Guest guest

In a message dated 4/19/2004 8:55:38 AM Eastern Daylight Time,

writes:

From: " fannajatja " <fannajatja@...>

Subject: Re: to Flo Webber

-No I don´t know about your question about coffie. I am not on

Budvigs diet I don´t have cancer. I had skin cancer. But I just

wanted to have flaxceed grinded as part of my breakfast.

..

..

I do not have cancer nor does my son BUT we both have other significantly

debilitating health issues. We have been on Johanna Budwig's protocol for over

two years and find it very helpful.

mjh

http://foxhillfarm.us/FireBasil/

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Guest guest

In a message dated 4/19/2004 8:55:38 AM Eastern Daylight Time,

writes:

From: " Ramona " <ramona@...>

Subject: Re: Shark Cartilage/Prednisone

Hi Mona,

My cancer presented itself in the brain, horrible headaches.

They prescribed Pred. to reduce swelling, 4mg 2x a day. Because it makes me

climb the walls, (I take 2 aspirin and get a hangover!) they also gave me

Lorazpam, 1 mg up to 4 x a day. What a cycle. I have been on them now for only

2

weeks and KNOW I have to get off. I am seeing an enzyme therapist who is

very willing to work with me and hope we can eliminate these this next few days.

Any info you might have to share would be a blessing - God's grace is

sufficient - we will overcome!

God Bless,

Ramona

----- Original

..

..

Ramona

Please check into Johanna Budwig's protocol as it is very helpful in

shrinking tumors and that would relieve the headaches. My son is hydrocephalic

and

also gets swollen brain. Same pain. We use a number of herbs and supplements

to keep inflammation under control.

Hope this helps

mjh

http://foxhillfarm.us/FireBasil/

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  • 9 months later...

Hey ...I didn't realize you were using both your CI and your hearing aid

since your implant. My audiologist doesn't want me to use my HA for about 4

weeks after the implant. I have also been told that when someone does that, it

makes hearing with the CI take longer for the brain to adapt to. My ENT said

that the brain is going to key in on the side that has the most familiarity to

it. Does anyone have any thoughts to share about this?

RE: ci reflections

How special, Larry. It never ceases to amaze me when I read some of the

beautiful messages that are written by the wonderful members of this list.

Thanks for being one of them.

Alice

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Hi Deborah,

This is something that varies from audiologist to audiologist. When I

was activated in 1999, it was an absolute no,no to do this but my

surgeon wanted me to use my HA with the CI to help with the adjustment

to the new sound. I had not heard for many years on the implanted

side and his point of view was to take advantage of what hearing was

available to me. I found that for about the first 4 weeks, the two

together were helpful and indeed it was very easy for me to adapt to

the CI. After 4 weeks, the CI was much stronger than the HA so I my

hearing aid in the case and gave it to a friend who needed one but was

unable to afford one because she her husband had just passed away. I

never used it again. For some people.. the hearing aid actually makes

it more difficult to adapt to the CI since the two sounds can be much

different. I would tend to follow the instructions of your medical

team but if you feel that you'd like to try them together, you might

mention it to the audiologist. I know how hard it is to give up the

security that the hearing aid is giving you but I am very sure that

the CI will overpower the hearing aid eventually.

I'm going to step in and answer for ( - I hope you don't

mind). She is low vision in addition to being deaf. The addition of

sound to both sides should assist in recognizing direction of sound

although I'm not sure it's helping from some of her messages. Her

needs do differ from those of us who have just lost one sense so I'm

sure that is considered.

Alice

>

> Hey ...I didn't realize you were using both your CI and your

hearing aid since your implant. My audiologist doesn't want me to use

my HA for about 4 weeks after the implant. I have also been told that

when someone does that, it makes hearing with the CI take longer for

the brain to adapt to. Deborah >

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Hi Deborah,

My audi recommended that I use my CI and hearing aid together right from the

start for two reasons: 1.) to prevent atrophy in my right (nonimplanted ear)

and 2.) to allow my brain time to merge the two different sound signals

together. I've tried listening to speech with my CI alone, but it sounds

just as garbled as it does when I use my hearing aid. Since I've been

wearing my CI and HA since my activation, this week I plan to work more on

listening exercises with my CI alone to see if that helps improve my speech

understanding.

Something interesting that I noticed during my mapping today was that I had

an easier time setting my C levels when I wore my CI and hearing aid

together. Because I had some auditory input to compare with my CI, I found

it easier to determine what was comfortable for me. Sounds are now more

balanced and I'm having an easier time distinguishing between the letters I

mentioned in previous posts.

I'll most likely continue to use my CI and hearing aid together. One thing I

like about this combination is how the CI picks up high frequencies while

the hearing aid picks up low frequencies. At least for me, I find that this

gives me the best of both worlds.

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

" Surviving a loss and letting go is only half of the story. The other half

is the secret belief that we will find, in one form or another, what we have

lost. And it is that potential, shimmery as a star on a clear night, that

helps us survive. " -- Chambers

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Alice,

Not a problem in answering the question for me. However, I just wanted to

make a slight correction. I'm totally blind and do not have any residual

vision. While I normally don't nitpick about the differences in visual

acuity, I do think that a CI user who has low vision has an advantage over

those of us who are totally blind because they have some visual input that

they can use in conjunction with the auditory input of their CI.

Sound localization: Until today's mapping, the sound of my hearing aid

overpowered my CI making it difficult to concentrate on both sound signals.

Now that I'm getting (what seems to me) more balanced sound from my CI and

hearing aid, it should be easier for me to determine where a sound or voice

is coming from. I plan to work on that tomorrow to find out what kind of a

difference it makes.

My audi and I also plan to address these issues during my weekly A/V

sessions which will be scheduled after my 2 week follow-up appointment.

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

" Surviving a loss and letting go is only half of the story. The other half

is the secret belief that we will find, in one form or another, what we have

lost. And it is that potential, shimmery as a star on a clear night, that

helps us survive. " -- Chambers

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Wearing a CI and HA together for me is also a matter of safety. Being able

to hear unilaterally (whether it be from a CI or hearing aid) can pose

serious safety issues for me not only while traveling outdoors , but also

while conducting daily living tasks here at home.

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

" Surviving a loss and letting go is only half of the story. The other half

is the secret belief that we will find, in one form or another, what we have

lost. And it is that potential, shimmery as a star on a clear night, that

helps us survive. " -- Chambers

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,

I guess I was just trying to be careful with my wording. I know you are

totally blind. I’m sorry if I worded it wrong. I hope I didn’t offend.

I’m just glad you are now hearing because of the CI.

Alice

_____

Alice,

Not a problem in answering the question for me. However, I just wanted to

make a slight correction. I'm totally blind and do not have any residual

vision. While I normally don't nitpick about the differences in visual

acuity, I do think that a CI user who has low vision has an advantage over

those of us who are totally blind because they have some visual input that

they can use in conjunction with the auditory input of their CI.

--

No virus found in this incoming message.

Checked by AVG Anti-Virus.

Version: 7.0.300 / Virus Database: 265.7.2 - Release Date: 1/21/2005

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No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.300 / Virus Database: 265.7.2 - Release Date: 1/21/2005

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Alice,

Thank you for being considerate -- no offense taken! <smile>

I'm also glad I can hear again with a CI. Although my primary goal is to

understand speech, being able to hear environmental sounds is just

phenomenal!! :)

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

" Surviving a loss and letting go is only half of the story. The other half

is the secret belief that we will find, in one form or another, what we have

lost. And it is that potential, shimmery as a star on a clear night, that

helps us survive. " -- Chambers

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My 2 cents' worth:

For what it is worth, I used my HA on the first day when I was using

my CI. I had never heard high frequencies before, so I needed the

" bridge " of the HA to orient myself to the sounds that I was hearing

with the CI. I think it made for a quicker transition, and on the

second day, I found that my HA was interfering with the CI in that I

was getting two wholly different stimuli at both ears (the HA is a

frequency transposing one) and it was making my head spin, so I took

off the HA and went solo with the CI since then.

I've put on the HA since then, a few days, in the seven weeks since

activation 12/8, and found the sounds far too distorting, and I

haven't worn it since. Geez.

I don't think I could ever go back to wearing an HA, and if someone

tells me to " keep using the hearing aid to keep the auditory nerve

stimulated till I get a second CI in the future " -- no thank you.

Like what someone (Jackie, you have a wonderful way with words, you

should write jokes and take ny Carson's place on late night

television!) said earlier, why flog a dead horse?

activated 12/8, 4th MAPping tomorrow anticipated

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As a totally blind person, I need all the hearing I can get (distorted or

not) since I can't rely on visual clues. I think that part of the basis

behind my audi's suggestion that I continue wearing my HA. Of course, the

final decision is up to me but so far my experience has been positive.

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

" Surviving a loss and letting go is only half of the story. The other half

is the secret belief that we will find, in one form or another, what we have

lost. And it is that potential, shimmery as a star on a clear night, that

helps us survive. " -- Chambers

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