Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 an ama complaint will just drag your attention away from were it is needed. theres no protecting the vulnerable. the thing about the immune system is it is a function like any other and is very demanding in terms of dragging on the bodies resources to do something. r the basics in place? metals transport, retinyl a's , vitamin d etc................................................... autism is a bit of a depressing business, there is no complete recovery and you are working for improvement in function and if the hopes are not so high then they are more realistic. if you go to a doctor then you are in the medical area and a system of tradeoffs where total body health is compromised for specfic aims. low amounts of tyrptophan do help with serotonin but its also a question of b vitmains as turkey is very high in b vitmains(niacin) and only moderately high in tryptophan, but the combination gives very good avalablity. when i say autism is unforgiving of intermediates am i posting zombie talk or something? a doctor is an intermeadiate.............. autism doesn't have the background resilience for medicine to work. you can't put anyone between you and the problem to be solved. for viral improvement, sunlight on the skin from a high sun(within 15 degrees of the center of the sky).in shortish whole body exsposures so there is never any sign of going pink vitamin a is more complex in that you need adequate iodine, seleniums for conversion of carotenes and utilisation of vitmain a out of the liver, but the natures way dry a and d, and twinlabs allergy a and allergy a and d seem to work well in combination if the minerals as discussed are in place germanium is think is anti viral...... i don't think you are dependent of goldbergs drugs you got a real insight when you opposed him that response was not the mark of a man in touch with reality. > > > > > > Hi Everyone. ph had an appt. with Dr. Goldberg yesterday. > > > An irrelevant but painful side note is we had planned on having > > another child next year. We thought, if ph's issues were gone, > and > > I'd taken this medication to also get rid of this virus, we'd be > able > > to have more children. I'm just so angry right now. Any advice > would be > > appreciated. Thank you. > > > > I know this is hard for you but you are right to question things. I > also feel > > especially remembering your excitement after your first meeting > that you have > > a right to be angry. I was describing your experience to my AS > husband and he > > reccommends that you go to the American Medical Association and > complain, > > especially if you were lied to, deceived, or did not get the full > disclosure > > about these alternative and experimental procedures. Complain about > being led > > on. If this man is doing this to others and has such a good > reputation you want > > to have some complaints to counterbalance that. > > > > -- > > Ganger sganger@t... > > www.teawithstephanie.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 Thank You again. These things you suggest, is there any point where the body is able to self regulate without needing this supplementation, or is this a chronic state because our dietary choices don't provide the nutrition they should? Re: ph Update/alicia an ama complaint will just drag your attention away from were it is needed. theres no protecting the vulnerable. the thing about the immune system is it is a function like any other and is very demanding in terms of dragging on the bodies resources to do something. r the basics in place? metals transport, retinyl a's , vitamin d etc................................................... autism is a bit of a depressing business, there is no complete recovery and you are working for improvement in function and if the hopes are not so high then they are more realistic. if you go to a doctor then you are in the medical area and a system of tradeoffs where total body health is compromised for specfic aims. low amounts of tyrptophan do help with serotonin but its also a question of b vitmains as turkey is very high in b vitmains(niacin) and only moderately high in tryptophan, but the combination gives very good avalablity. when i say autism is unforgiving of intermediates am i posting zombie talk or something? a doctor is an intermeadiate.............. autism doesn't have the background resilience for medicine to work. you can't put anyone between you and the problem to be solved. for viral improvement, sunlight on the skin from a high sun(within 15 degrees of the center of the sky).in shortish whole body exsposures so there is never any sign of going pink vitamin a is more complex in that you need adequate iodine, seleniums for conversion of carotenes and utilisation of vitmain a out of the liver, but the natures way dry a and d, and twinlabs allergy a and allergy a and d seem to work well in combination if the minerals as discussed are in place germanium is think is anti viral...... i don't think you are dependent of goldbergs drugs you got a real insight when you opposed him that response was not the mark of a man in touch with reality. > > > > > > Hi Everyone. ph had an appt. with Dr. Goldberg yesterday. > > > An irrelevant but painful side note is we had planned on having > > another child next year. We thought, if ph's issues were gone, > and > > I'd taken this medication to also get rid of this virus, we'd be > able > > to have more children. I'm just so angry right now. Any advice > would be > > appreciated. Thank you. > > > > I know this is hard for you but you are right to question things. I > also feel > > especially remembering your excitement after your first meeting > that you have > > a right to be angry. I was describing your experience to my AS > husband and he > > reccommends that you go to the American Medical Association and > complain, > > especially if you were lied to, deceived, or did not get the full > disclosure > > about these alternative and experimental procedures. Complain about > being led > > on. If this man is doing this to others and has such a good > reputation you want > > to have some complaints to counterbalance that. > > > > -- > > Ganger sganger@t... > > www.teawithstephanie.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Just to add to what I think you already figured out~Don't go back to this doctor. I have not heard one good thing about him except from a personal friend of his that tried to convince me to take my son to him. I had been pre-warned. See a real DAN doctor or pediatritian to get the meds you need. My son is on Nystatin forever! We get it compounded and the RX came from a Nurologist in Los Angeles, Dr. Naparko (I might of spelled her name wrong). I use the DAN protocol for our supplements, I've done DMSA/ALA chelation, and my son is going good (almost normal!). I decide what to do/give my son, not any doctor. I attend every conference and meeting avail to learn and prepare my next step. If you want to see our story from the last two years, email me at bluerus@... and I'll be glad to send it. I help lots of parents who don't know where to turn next. We are all in the same boat. But, you can't trust everyone, that is just a fact of life. That doctor is out for the cash, or he wouldn't use the same protocol for every child. DebbieG > > > > > > > > Hi Everyone. ph had an appt. with Dr. Goldberg yesterday. > > > > An irrelevant but painful side note is we had planned on > having > > > another child next year. We thought, if ph's issues were > gone, > > and > > > I'd taken this medication to also get rid of this virus, we'd > be > > able > > > to have more children. I'm just so angry right now. Any advice > > would be > > > appreciated. Thank you. > > > > > > I know this is hard for you but you are right to question > things. I > > also feel > > > especially remembering your excitement after your first meeting > > that you have > > > a right to be angry. I was describing your experience to my AS > > husband and he > > > reccommends that you go to the American Medical Association and > > complain, > > > especially if you were lied to, deceived, or did not get the > full > > disclosure > > > about these alternative and experimental procedures. Complain > about > > being led > > > on. If this man is doing this to others and has such a good > > reputation you want > > > to have some complaints to counterbalance that. > > > > > > -- > > > Ganger sganger@t... > > > www.teawithstephanie.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2003 Report Share Posted August 15, 2003 i think you ar being unfair to goldberg, his interest comes from his wife having ms and having gone down the viral route there. also he has done sone work with spect? scanning and brain blood flow. its just a very medical paradigm and it sounds like other doctors in that the treatment and meds never stop. is there an alternative? if you supplement to boost body functions then i think you can keep out of the medical arena. nystain forever implies some reworking imo. > > > > > > > > > > Hi Everyone. ph had an appt. with Dr. Goldberg > yesterday. > > > > > An irrelevant but painful side note is we had planned on > > having > > > > another child next year. We thought, if ph's issues > were > > gone, > > > and > > > > I'd taken this medication to also get rid of this virus, > we'd > > be > > > able > > > > to have more children. I'm just so angry right now. Any > advice > > > would be > > > > appreciated. Thank you. > > > > > > > > I know this is hard for you but you are right to question > > things. I > > > also feel > > > > especially remembering your excitement after your first > meeting > > > that you have > > > > a right to be angry. I was describing your experience to my > AS > > > husband and he > > > > reccommends that you go to the American Medical Association > and > > > complain, > > > > especially if you were lied to, deceived, or did not get > the > > full > > > disclosure > > > > about these alternative and experimental procedures. > Complain > > about > > > being led > > > > on. If this man is doing this to others and has such a good > > > reputation you want > > > > to have some complaints to counterbalance that. > > > > > > > > -- > > > > Ganger sganger@t... > > > > www.teawithstephanie.com > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2003 Report Share Posted August 15, 2003 In a message dated 8/15/03 4:58:14 PM, amattson@... writes: << He was very blunt in our first meeting that he could only help us if the etiology of ph's issue was immune/viral related. That's perhaps why his protocol seems to treat every child the same, but he only takes on patients that have this as the heart of their problem. >> I don't know if you've read Mitzi Waltz's " Autism Spectrum Disorders: Understanding the Diagnosis and Getting Help " but Dr, Goldberg is mentioned favorably in it and there's some explanation of how the SSRIs fit into his protocol. It's a great book. Doesn't go into anything in tremendous detail but gives information of possible avenues to pursue, what testing might be useful, etc. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2003 Report Share Posted August 15, 2003 Thank you so much for your reply. I'd have to respectfully disagree with regards to his " using the same protocol for every child " . He was very blunt in our first meeting that he could only help us if the etiology of ph's issue was immune/viral related. That's perhaps why his protocol seems to treat every child the same, but he only takes on patients that have this as the heart of their problem. He tested ph initially for all metals, and ph's blood work came back very low to non-existent for all metals. Even many virus's that I suspected like CMV and others turned out to be non-issues, Thanks be to God. However, Herpes 6 was an issue for ph, and the way ph's situation unfolded, well, I went to Dr. Goldberg, sort of already knowing there was a fungal/bacterial/viral issue at the heart of his autism. I'm very interested in, and keep printing all the natural antivirals people on this board are posting. I had hoped St. 's Wort, along with the Ojibwa Tea, might be a way to go, unfortunately, dosage and purity are such issues with the St. 's Wort, it's almost as bad as the meds. The full spectrum lights are something we will be buying this weekend, for every room in the house. I finally e-mailed Dr. Goldberg's office. He called me back. Turns out, the Nizoral may be doing exactly what he wants, but, the illness in the beginning and the illness the week before we went in, his food allergies coming back high, all those things may have been interfering with my ability to judge how well ph is responding. He does not want us to give ph the SSRI right now, in fact, he said we could discuss it further after some more labs next visit. Right now he just wants to continue with the antiviral and antifungal. Which is what I wanted. His philosophy he said, is to do the least with the meds. necessary to get the body doing what it should be doing naturally. I can agree to that. ph, being on the diet for so long, and using the ABA therapy for so long, depends on whether his immune system can develop it's own antibodies to the herpes, having been helped by the Valtrex, and having the fungal issue taken out of the equation. I could give ph an antifungal forever, if I had to, but I'd sure like his body to not need it. Thank you again for your response. I admire your educating yourself, and then generously sharing your knowledge with others. It's amazing how lonely it can feel, when you have to make these decisions, and the wrong decision has the potential to injure your child.--- Original Message ----- From: bluerus2001 Sent: Thursday, August 14, 2003 10:12 PM Subject: Re: ph Update/alicia Just to add to what I think you already figured out~Don't go back to this doctor. I have not heard one good thing about him except from a personal friend of his that tried to convince me to take my son to him. I had been pre-warned. See a real DAN doctor or pediatritian to get the meds you need. My son is on Nystatin forever! We get it compounded and the RX came from a Nurologist in Los Angeles, Dr. Naparko (I might of spelled her name wrong). I use the DAN protocol for our supplements, I've done DMSA/ALA chelation, and my son is going good (almost normal!). I decide what to do/give my son, not any doctor. I attend every conference and meeting avail to learn and prepare my next step. If you want to see our story from the last two years, email me at bluerus@... and I'll be glad to send it. I help lots of parents who don't know where to turn next. We are all in the same boat. But, you can't trust everyone, that is just a fact of life. That doctor is out for the cash, or he wouldn't use the same protocol for every child. DebbieG > > > > > > > > Hi Everyone. ph had an appt. with Dr. Goldberg yesterday. > > > > An irrelevant but painful side note is we had planned on > having > > > another child next year. We thought, if ph's issues were > gone, > > and > > > I'd taken this medication to also get rid of this virus, we'd > be > > able > > > to have more children. I'm just so angry right now. Any advice > > would be > > > appreciated. Thank you. > > > > > > I know this is hard for you but you are right to question > things. I > > also feel > > > especially remembering your excitement after your first meeting > > that you have > > > a right to be angry. I was describing your experience to my AS > > husband and he > > > reccommends that you go to the American Medical Association and > > complain, > > > especially if you were lied to, deceived, or did not get the > full > > disclosure > > > about these alternative and experimental procedures. Complain > about > > being led > > > on. If this man is doing this to others and has such a good > > reputation you want > > > to have some complaints to counterbalance that. > > > > > > -- > > > Ganger sganger@t... > > > www.teawithstephanie.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2003 Report Share Posted August 15, 2003 I hear you as I too am going through the whole anti-viral thing it is amazing how much you think you have learned only to be confronted with even more that you don't. The task of finding the " right " balance and treatment for your child can be a really kick in the teeth sometimes. The days go by so fast yet seem so slow when looking for the " cure " (so to speak). I always keep you in my mind as it is your story that puched me to find out more about all of this. Good luck and god bless you and your family. Dena >>It's amazing how lonely it can feel, when you have to make these decisions, and the wrong decision has the potential to injure your child Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2003 Report Share Posted August 16, 2003 Actually I'd like to get that book, can never have enough info. Another book that mentions him favorably and a Doctor who admires and recommended him to me is Dr. McCandeless. She wrote, Starving Brains. I'm actually in the process of re-reading it. Re: ph Update/alicia In a message dated 8/15/03 4:58:14 PM, amattson@... writes: << He was very blunt in our first meeting that he could only help us if the etiology of ph's issue was immune/viral related. That's perhaps why his protocol seems to treat every child the same, but he only takes on patients that have this as the heart of their problem. >> I don't know if you've read Mitzi Waltz's " Autism Spectrum Disorders: Understanding the Diagnosis and Getting Help " but Dr, Goldberg is mentioned favorably in it and there's some explanation of how the SSRIs fit into his protocol. It's a great book. Doesn't go into anything in tremendous detail but gives information of possible avenues to pursue, what testing might be useful, etc. Nell Quote Link to comment Share on other sites More sharing options...
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