Re: Many questions...Please help

[Guest guest]

Hi ,

I'm sure someone more knowledeable about enzymes will write back, with better

answers, but i was online and saw your post and thought I'd just start.

First, you should read the files section of .

that will answer most of what you are asking. There's now another site.

Is it enzymestuff.com? I think so. That's another place.

> 1. Has anyone used just enzymes and seen great results without ever trying

> GFCFSF?

> ...some people have. But you are going to have to expect a big

withdrawal early on when you first use the Zyme Prim and Peptizyde (both from

Houston Neutraceuticals) as they will change the way your sons' digest

certain proteins. This withdrawal is hard to distinguish from just plain

not tolerating the enzymes, and you will need to tell at what level the child

reacts. Start with 1/8 cap zyme prime and work up to 1 capsule/meal for

each boy. Record what happens. If at 1/8 cap the child is going bananas,

he may not tolerate the enzyme at all. if at 1/2 cap he's going a little

bananas, it may be withdrawal. It's kind of hard to explain.

> 2. How many enzymes would I need to order to keep up with both boys and how

> long will a bottle last?

>

Hard to say. But you are likely to go through 3 Zyme Primes and 3

Peptizydes per child per day once you are up and running. And there's 90 (I

think!) in the bottle. You may eventually try No Phenol, but that's later

and you use less.

> 3. Are the enzymes in pill ( capsule ) form...and if so...How do you get

> your little ones to take them?

>

Capsule form. Open it up and put on food or in drink.

> 4. Could someone please tell me exactly what I should be ordering? 

> Houston?  And do I need to get No -Fenol too?

>

I've got the wrong number because i'm in the UK, but you can go to

www.houstonni.com and find out. Order the Zyme Prime and Peptizyde.

> 5. How many of these will I need in a day? My kids do not really eat

> meals..they snack all day ....so I wonder how this will work? Can I expect

> to see illness as a result of die off?

>

You can put them in a cold drink which you keep in the fridge and get your

kids to keep taking sips. It would be better if you had mealtimes, even

small mealtimes. Die-off isn't exactly the right description, but you may

see withdrawal and it comes in many forms. Usually they either go spacey or

hyper.

> 6. For kids with Phenol problems should I then be looking at the AFP Pep

> instead of just peptizyde?

>

AFP is a safer option to start with anyway, in my opinion.

Be aware that not all children can eat regular food with enzymes, although

many can. You should not be giving your child any artificial colourings,

aspartame, msg, etc. I realise this is hard, but at least get rid of MSG.

Good luck. Many others will chime in with better answers.

marti

>

>

[Guest guest]

Thanks Marti,

i appreciate your reply!

They boys do not get any artificial colorings or flavorings and no MSg ...at

least none that i am aware of....so we are ahead of the game there...LOL They

seem to stim when they have colored juices ( well the one that takes juice

anyway!). So we have removed alot of the colored things from their diets....It

is hard.....sigh.

Ok I will check out the files section and i will look up the other site you

mentioned in you post....

Thansk so much for taking the time to answer me!

Hugs,

michelle

[Guest guest]

Hi

To answer your question

1. Has anyone used just enzymes and seen great results without ever

trying

GFCFSF?

Parents have reported significant improvements when they were not

already gfcf. Some do still need to do some food restrictions. My

son was gfcf, and off corn, soy, eggs, all but a few fruits, most

vegetables, and off many other foods. We did this diet for about a

year before enzymes. He did better with enzymes than the diet,

BETTER with capital letters. We find he should still avoid corn

syrup, whatever the heck is in the chocolate milk they serve at

school, Fritos, nitrates, and other artificial additives when

possible.

Marti had a helpful reply for you. I would start with the first

report in the Files section

www./group/ /files/. Please come back

if you have more questions.

Best wishes,

> Thanks Marti,

> i appreciate your reply!

> They boys do not get any artificial colorings or flavorings and no

MSg ...at least none that i am aware of....so we are ahead of the

game there...LOL They seem to stim when they have colored juices (

well the one that takes juice anyway!). So we have removed alot of

the colored things from their diets....It is hard.....sigh.

> Ok I will check out the files section and i will look up the other

site you mentioned in you post....

> Thansk so much for taking the time to answer me!

> Hugs,

> michelle

>

>

[Guest guest]

Thanks !

[Guest guest]

--Hi !

I too, am new to this board, but I will share what little I know.

My boys are doing the enzymes in lue of the CFGF diet. We tried, but

it was expensive and overwhelming. I still try to make healthy

choices for them ( watch the preservatives, dies, additives, ect...)

But for the most part, we are relying on the enzymes to do their

thing.

I started the boys on the AFP Peptizyde first. I gave one capsule

before each meal or snack. After about 2 weeks I added the Zyme-

Prime as well. So now they get 1 Pep and one Z-P before each

meal/snack. I am told that they have a 1 hour window in which to eat

before more enzymes need to be given.

I will do this for about 1 month and then I plan to add the No-Phenol

as well. I understand that you do mot need to give as much of that.

(a little goes a long way)

My boys can not swallow capsules or pills yet, so we open the

capsules up and mix them with something. They seem to like the Wild

Cherry syrup from Kirkman's. I put just enough to wet the enzymes,

mix it up, and use a syringe to get it in them. They chase it with a

drink of water. (We have also tried Sunny Delight and white grape

juice.)

Our newest way is to mix the enzymes witha little bit of chocolate

frosting. That is by far their favorite! Check out the mixing page

for more ideas and things others have tried successfully.

We have been very pleased thus far with the enzymes. I have not seen

anything that I would consider to be a negative. My guys seem to be

feeling and doing better! I am excited by their progress and hope

that things will only get better!

This board is a wonderful source of information and the people here

are very helpful.

Best of luck to you, whatever you decide.

Sarita

- In , " Crooks "

<crooksbums@r...> wrote:

> Hi all,

> A belated Happy valentines to you!

> I am fairly new here...I have been researching and reading till my

eyes are bugging out of my head...We have identical twin boys aged

3....former preemies who were diagnosed ASD about 3 months ago. I

have been researching GFCFSF.....as well as enzymes etc. for the past

month. I have collected much information and still I feel lost in a

whirl of multiple choices...LOL

>

> We tried to go GFCFSF for the last little while and found much to

our dismay that we could not get the products we needed in the very

small Northern Ontario town that we live in...That in itself could be

solved if I had a car and could make a trip to the nearest city...But

I don't have access to a car...and hubby is working insane hours to

help pay for the costs of ABA etc. sigh...so we have been very

unsuccessful at the diet..LOL Purchasing online has also not been

possible as we do not have a credit card...soooooooooo

> We seem to be at a standstill. And I am frustrated beyond all

belief.

>

> A little history...The boys were 28 weeker preemies....loaded with

antibiotics right from birth...as well as anti virals, and steroids,

surfactant etc....then they were given immunizations at approximately

4 pounds...( if I knew then what I know now...) Both were breastfed

for 6 months...and then switched to formula...At 2 they were switched

to milk....the oldest still refuses anything but milk in any way or

form...We tried soy with him as that is the only other option in our

grocery store and he threw it up immediately...ughk!

> The youngest drinks only juices...we have successfully gotten him

onto pear and white grape juice...whew!

> Both show symptoms of phenol intolerance....yeast issues...etc.

They eat alot of gluten products which is a huge red flag!

>

> So now we are wondering if we should go ahead and just do

enzymes...At least that way we could actually see some difference or

if there was any....My mother has offered the use of her credit card

( thank God for mothers) for the purpose of purchasing the

enzymes.....

>

> My questions are these.....

> 1. Has anyone used just enzymes and seen great results without ever

trying GFCFSF?

> 2. How many enzymes would I need to order to keep up with both boys

and how long will a bottle last?

> 3. Are the enzymes in pill ( capsule ) form...and if so...How do

you get your little ones to take them?

> 4. Could someone please tell me exactly what I should be ordering?

Houston? And do I need to get No -Fenol too?

> 5. How many of these will I need in a day? My kids do not really

eat meals..they snack all day ....so I wonder how this will work? Can

I expect to see illness as a result of die off?

> 6. For kids with Phenol problems should I then be looking at the

AFP Pep instead of just peptizyde?

>

> I am trying to learn as fast as I can...LOL....But sometimes when I

think I have it figured out..I see something new,,,,,and I am again

lost...It just seems there is sooo much to worry about...I have no

idea about chelation or anything....I desperately need some great

advice from someone who may have been there....I feel immense guilt

that we are unable to get the foods and ingredients here....The

nearest HFS is about 45 minutes away...and same for the larger

grocers...

> Please send Help!

> Loads of Hugs,

>

>

>

> ~:~~:~

> ~Twinmom To Aidan and Devlin~

> Sigtag By Graphic Garden

> crooksbums@r...

>

>

>

[Guest guest]

Hi Sarita,

i would love to stay in touch....Thank you so much for sharing your story with

me....LOL

It has been a hard thing for us to decide to do.....but we have decided to go

for it! I ordered the AFP Zyme Prime and No fenol today...i onl;y ordered one

bottle of each.....but at least that will give me an idea of what we need and

how the boys react to them ( the enzymes I mean).

We were having a great amount of trouble getting to a place that had

GFCFSF.....Nothing around here does have and the local grocery store told us

that there would have to be more than one person requesting these things in

order for them to do it...ughk!

I am sooo looking forward to seeing some changes....

Again than you so much!

-Mom to Aidan and Devlin

~:~~:~

~Twinmom To Aidan and Devlin~ Sigtag By Graphic Garden

crooksbums@...

[Guest guest]

,

I would highly reccommend 's book - " Enzymes for Autism and other

Neurological conditions " by DeFelice.

It is extremely informative and made me feel at ease with using the

enzymes.

Also, I'm sure you probably already know this, but the Peptizyde

works on the casein and gluten, and the Zyme Prime works on the

proteins and everything else. The No-Phenol of course, works on the

phenols, although the Zyme Prime might be all you need to handle

those. Just depends on your kids...

If you call the phone number for Houston Pharmacuticals, you can

actually speak with Devin Houston. He is very nice and extremely

helpful.

Let me know how it goes!

Take care,

Sarita

Mom to Talan & Trevan

-- In , " Crooks "

<crooksbums@r...> wrote:

> Hi Sarita,

> i would love to stay in touch....Thank you so much for sharing your

story with me....LOL

> It has been a hard thing for us to decide to do.....but we have

decided to go for it! I ordered the AFP Zyme Prime and No fenol

today...i onl;y ordered one bottle of each.....but at least that will

give me an idea of what we need and how the boys react to them ( the

enzymes I mean).

> We were having a great amount of trouble getting to a place that

had GFCFSF.....Nothing around here does have and the local grocery

store told us that there would have to be more than one person

requesting these things in order for them to do it...ughk!

> I am sooo looking forward to seeing some changes....

> Again than you so much!

> -Mom to Aidan and Devlin

>

> ~:~~:~

> ~Twinmom To Aidan and Devlin~ Sigtag By Graphic Garden

> crooksbums@r...

>

>

>

[Guest guest]

> If you call the phone number for Houston Pharmacuticals, you can

> actually speak with Devin Houston. He is very nice and extremely

> helpful.

> Let me know how it goes!

> Take care,

> Sarita

> Mom to Talan & Trevan

>

>

> Heck I want to call Devin and talk to him!! Care to fly over for

some coffee? :0)

[Guest guest]

>

>> >

> Houston? And do I need to get No -Fenol too?

>

if your boys have phenol issues definately get nf and the afp. Logan

is highly reactive to phenols and is having problems with regular

pep. Also though you should start low with the nf I had to go to a

whole one before even a snack because Logan is so reactive. So if you

are not seeing results with the nf up the dose(slowly). I was too

chicken to go past half and was getting frustrated at no results.

Once I upped it to a whole one I got much better results.

> 5. How many of these will I need in a day? My kids do not really

> eat meals..they snack all day ....so I wonder how this will work?

Can

> I expect to see illness as a result of die off?

Logan snacks a lot too. I give him less for snacks than meals.

Logan has had behavioral problems due to yeast I believe and possible

due to the opiate effect leaving. Nothing like sickness...just

behavioral like tantrumming.

> > 6. For kids with Phenol problems should I then be looking at the

> AFP Pep instead of just peptizyde?

Yes Yes and Yes!! I wish I had done this first.

> >

> > I am trying to learn as fast as I can...LOL....But sometimes when

I

> think I have it figured out..I see something new,,,,,and I am again

> lost...It just seems there is sooo much to worry about...I have no

> idea about chelation or anything....I desperately need some great

> advice from someone who may have been there....I feel immense guilt

> that we are unable to get the foods and ingredients here....The

> nearest HFS is about 45 minutes away...and same for the larger

> grocers...

> > Please send Help!

> > Loads of Hugs,

> >

> >

> >

> > Loads of hugs to you too!! I spent tons of money on gf/cf for

only having him on it 10 days!! I had to order all mine online. If

you want to go that route email me and I will send you my food

links. but I would try the enzymes first. Do not feel guilty about

anything. You are doing your best and that is all you can do. Also

you might check if there is a celiac foundation close to you.....they

may have resources for you to access food. more hugs!! hang in

there!! I am new to this too and it can be so overwhelming.

mom to my own 34 week premie

[Guest guest]

Thanks !!!!

I appreciate the support and the experience of everyone here....Lord i would be

lost in la-la land without the guidance I find in these groups!

We decided to try enzymes first just to see if there were any significant

changes...LOL

I have oprdered all of the ones we need....and we shall soon see how it goes...

Oh thats the other question I have...i almost forgot!

Devlin ( oldest twin) drinks only milk...I know, I know...we only have soy milk

and Rice Cream in our grocery store...and he throws the soy milk up...So once we

start with the ezymes how can i make certain that he is indeed benefiting from

them with the amount of milk that he drinks...We have just ordered a sample of

Vances Dari Free...so hopefully he will take that...LOL

Thanks again!

~:~~:~

~Twinmom To Aidan and Devlin~ Sigtag By Graphic Garden

crooksbums@...

[Guest guest]

,

Vance's Dari Free is actually a pretty good tasting milk substitue!

(It is actually potato milk) My boys really like the chocolate

flavor! I've been known to drink a glass or two myself! LOL

Sarita

Mom to Talan & Trevan

> Thanks !!!!

> I appreciate the support and the experience of everyone

here....Lord i would be lost in la-la land without the guidance I

find in these groups!

>

> We decided to try enzymes first just to see if there were any

significant changes...LOL

> I have oprdered all of the ones we need....and we shall soon see

how it goes...

> Oh thats the other question I have...i almost forgot!

> Devlin ( oldest twin) drinks only milk...I know, I know...we only

have soy milk and Rice Cream in our grocery store...and he throws the

soy milk up...So once we start with the ezymes how can i make certain

that he is indeed benefiting from them with the amount of milk that

he drinks...We have just ordered a sample of Vances Dari Free...so

hopefully he will take that...LOL

> Thanks again!

>

>

> ~:~~:~

> ~Twinmom To Aidan and Devlin~ Sigtag By Graphic Garden

> crooksbums@r...

>

>

>

[Guest guest]

Hi ,

thought to say hi, and introduce self.

since seen that you live in northern ontario, and thus, are the only

other person on this list that can recall being from northern ontario.

(live outside of sudbury).

welcome, and am happy to see another resident of the under-serviced-

north here.... )

intro:

am minna.

mom to mika and michelle.

we are all on spectrum.

(have a dx of high functioning autism, and one for aspergers, and

now, one also for PDD-NOS... what will it be... enee, minee, mo.. )

kids-aspergers.

am a single mom. 36 yrs old.

we have been taking houstons enzymes for a little over a year now.

these enzymes have made the biggest difference over any other therapy

that we have tried.

understand the difficulty in getting products up here.

we get rice milk from YIG grocery stores, and it is reasonable price,

and taste. although, with peptizyde, son is able to tolerate milk

completely with no ill effects.

the best health food store around that have seen in the north, is in

north bay. (have lived in north bay, thunder bay, and sudbury areas

in northern ontario).

minna