Re: OT: Does anybody out there have a Fragile X dx?

May 6, 2003

Hi -- just wanted to say that yes, IMO, these types of things

can help lots of children who are identified with " syndrome's " --

remember, a syndrome is a cluster of symptoms/behaviors and so if it

includes some of the same things that are in the autism spectrum,

then I would think that some of the treatments would help. And just

to try to reassure you a bit-- docs will OFTEN test for Fragile X not

because they have a strong suspicion that it IS FraX, but because

they feel they need to rule it out. I've worked with countless kids

who were tested for FraX and it came back negative. So try not to

worry...

W

> We just drew blood today to check for Fragile X

> Syndrome. Do all the biomedical things still work if

> the underlying cause of autism is Fragile X Syndrome?

> So far, enzymes, probiotics, epsom salts, and ProEFA

> oil seem to really help us.

May 7, 2003

Hi ...

I just wanted to add that I worked with a child (boy) who had FraX

and as an elementary aged child, he was very hyper/impulsive. In

knowing what I know now, I would bet that he would have been helped

by these treatments for autism, because now as an adult, I see him

working at the mall in the food court area, and he's very much in

control of himself. Kind of like the ADHD kids growing up and being

OK for the most part-- my thought is either their intestines do some

natural healing as they get older and/or their diet is focused less

on the artificial foods... Anyway, just wanted to share that

observation with you. Even if it comes back positive for Noah then

at least you have all of this knowledge to help you help HIM as he

grows.

W

> Well, I have looked into the website and Noah does

> HAVE a lot of those characteristics in his face, ears,

> feet, eyes.. so I have a suspesion that it will come

> back positive

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