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Re: Digest Number 1660

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How do we hear Lyme Talk please?

Has anyone had good luck with alternatives to antibiotics? They destroy my

stomach- even IV Rocephin.

I just found out after 5 years of chronic fatugue syndrome that I have lyme

l-form, erlichia, and babesia!

Thanks,

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  • 1 year later...

Donna, As sad as it may be, you are correct about " Money, Money,

Money " , The AF is about fund-raising for research. Since I have been

out of touch with the AF for a few years it looks like a few policy

changes have occured.

When I called I expected to be greeted with a hardy " Welcome, what

can we do to help? " , however I was greeted by a young person that

seemed to have better things to do than discuss a support group for

young adults. Considering I am located in the third, or forth largest

metro area in the country you would think they would be eager to help

out.

I am in the process of spreading the word about

http://www.jraadults.com via the web, but was hoping to get involved

with the local AF chapter in an effort to bring a AJAO conference to

our area sometime in the future.

Seems like a portion of the foundation should be set aside for " Here

and Now " issues and I don't mean the printing of a brochure that they

send you in the mail. Even the on going programs they do have such as

the Aquatics program seems to be really lacking in AF backing.

I may do as you mentioned and start a group on my own without AF

support...aL

> hey there Al! Just wanted to pitch in my 2 cents on the AF and

support

> groups. The AF has a mission statement that would indicate support

groups are

> available. From what I have seen different Chapters offer different

things,

> however it has saddened me to see how few good support groups

exist. Money,

> money and money is the core focus of the AF and research has become

a

> priority. Now dont get me wrong..research is great and will most

likely help

> many folks in the future but most of our concerns are in the here

and now. It

> seems they (groups)don't fall into the hands of the AF,

unfortunately they

> recruit individuals who may do these support groups but then do

little to

> help the group leaders out. I do hope someone in the group can

offer kinder

> words regarding this matter. I started FACES with only an idea. I

did partner

> with the AF but due to various " issues " FACES is now a solo

venture.....Why

> dont you start a group? If I can be of any help just let me

know......Donna

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  • 5 months later...

<<Does he tend to express any type of a histamine reaction: body parts

turning red, runny nose, coughing, etc. Just wondering if he

has 'higher' overall histamine.>>

What would you do for this? This describes both my kids perfectly when they

eat the wrong foods.

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> <<Does he tend to express any type of a histamine reaction: body

parts

> turning red, runny nose, coughing, etc. Just wondering if he

> has 'higher' overall histamine.>>

>

> What would you do for this? This describes both my kids perfectly

when they

> eat the wrong foods.

>

I use Primatene for this. Tablets for systemic, mist for lungs only

altho it also helps with sinuses.

Dana

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  • 1 year later...

In a message dated 11/10/04 1:10:31 PM Eastern Standard Time,

writes:

> Message: 14

> Date: Wed, 10 Nov 2004 09:15:38 -0800 (PST)

> From: Grace <foxyfoxgrace@...>

> Subject: Re: Mark or MJH

>

> Mark or MJH,

>

> If I give who's 14yo 135 lbs and is 5'1 600mg Calcium and 250mg

> magnesium twice a day is this the right ratio? Thanks for answering as I

would

> hate do do anything that would harm her now or later on.

>

> Grace

>

..

..

>>> Grace

NO, it is NOT the right ratio.

The ratio is 2 Calcium to 1 Magnesium up to 1 Calcium to 1 Magnesium.

If there is a Mg imbalance to begin with, additional Mg may be needed short

term to bring the Ca and Mg into balance.

mjh

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In a message dated 11/10/04 1:10:31 PM Eastern Standard Time,

writes:

> Date: Wed, 10 Nov 2004 09:20:15 -0800 (PST)

> From: Grace <foxyfoxgrace@...>

> Subject: Re: MJH

>

> MJH,

>

> My endo doc does not prescribe Armour thyroid and I called a couple of

> others and they also do not. They'll prescribe another synthetic med but not

> Armour thyroid because as they said, they don't know what's in it. I want her

> off of the Synthroid, but I don't know what else I can do. I will check that

> site but just the coconut virgin oil is not going to do it, is it?

>

> Grace

>

..

..

>>> Grace

My doctor recommended Amour thyroid writes the prescriptions and that's what

I take. There can be some serious side effects with Synthroid.

Virgin coconut oil has helped many improve thyroid function. Go read the

website I posted earlier.

I am on my way back to the hospital.......... 7 weeks today. Home once.

mjh

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