Re: What to do next: more vitamins or enzymes... long

[Guest guest]

Read this paper at cbcutah.com Understanding Autism by Jepson

MD It is a overview and suggestions It is really helpful

> Hi all! I post here once a month or so, as I dabble in various

> treatments for my 9yr old HFA 86 lb ds. We have been moving ahead

> very slowly in what we try, and it's time to decide what to try

next.

> I have an order of all three HNI products waiting to try. But am

not

> sure which one to try or whether I should go with more supps

first.

> Here is the background.

>

> We have had the Comprehensive stool test, OAT, Urinary peptides,

DDI

> hair, spectracell, and IGG tests.

>

> The stool and OAT showed no yeast. The OAT & Urinary peptides

showed

> no gluten / casein issues. There were no gut bugs, but low good

> bacteria. There were some undigested fibers in the stool. The DDI

> hair did not conclusively show mercury. The spectracell nutrient

> profile wasn't bad: low B2, B12, choline, glutathione. But the low

> wasn't horribly low. One of the other tests showed C deficiency.

The

> IGG had only one 3+ reaction to pears, a 2+ reaction to corn and a

1+

> reaction to tomatoes and grapefruit.

>

> So, at this time we are NOT GFCF and we are supplementing with:

750

> mg Vit C (1000 mg gives loose stools), pro-biotics, L-glutathione,

> 1/4 tsp spectrum complete. We tried SNT 1/8 tsp but got a little

> hyper & dark circles. I backed down to the spectrum complete, and

> still have improvements less dark circles. Epsom salt baths seem

to

> help the black eye look.

>

> Sitting on my shelf to try are NAC, selenemethionine, DMG, TMG,

> lecithin (choline), B12 dots and the enzymes. We will be running

out

> of the l-glutathione soon, so I believe the next to try on that

front

> is the NAC or selemethionine.

>

> What would you recommend trying next? If enzymes, which ones? If

the

> other supps - which ones?

>

> I am sorry to go on & on. Thank you in advance for your help. --

> Cheryl

[Guest guest]

Cheryl,

It sounds like you should just buy stock in supplements. Just kidding It

sounds like phenol issues are present from all the info. I'm no expert but I

think the enzymes are really important and they are not like supplements in

that they just digest the foods they are geared towards and do nothing else.

Side effects we noticed were more from adjustment than from my son's system

not tolerating them (as with most supplements we tried). I would recommend

starting with the basic Zyme Prime and then maybe trying no-fenol a little

later. I would start slow and work up, with just 1/4 capsule and then move up

to more gradually. I think you may see die-off stuff because there were

digestion issues indicated. Again, I am no expert but am fast becoming a

major advocate of enzymes. We have seen remarkable changes and it is

very logical. The enzymes do their job and then leave. They are like ideal

employees and family and friends. Good luck. It sounds like you are

working very hard. It's nice to see that. One last thing, don't forget to let

go

from time to time. You sound a lot like me.

Best,

-LN

[Guest guest]

> So, at this time we are NOT GFCF and we are supplementing with: 750

> mg Vit C (1000 mg gives loose stools), pro-biotics, L-glutathione,

> 1/4 tsp spectrum complete. We tried SNT 1/8 tsp but got a little

> hyper & dark circles. I backed down to the spectrum complete, and

> still have improvements less dark circles. Epsom salt baths seem to

> help the black eye look.

This is a phenol intolerance response. So you might want to consider

No-Fenol enzyme first.

http://www.danasview.net/phenol.htm

> What would you recommend trying next? If enzymes, which ones? If the

> other supps - which ones?

I would consider enzymes first, because many times, using enzymes

allows your child to get the required nutrients from food, making

other supplements unnecessary.

Dana

[Guest guest]

Hi Cheryl,

I agree that enzymes are good start because they may eliminate the

need for several other supplements and food eliminations. After we

started enzymes, I saw a jump in improvement plus I did not see any

additional improvement afterwards trying other things...except for

magnesium. That one is noticeable.

The tests sound rather good overall. Tests only show certain things.

What improvements do you see with the L-glutathione?

I would suggest start with the Zyme Prime, then at Peptizyde, then

No-Fenol (or the No-fenol before the Peptizyde because it sounds

like you have a little problem with phenols). THEN, try the other

stuff if you feel it is necessary. My choice would be DMG/TMG

because you might see improvement or negatives right away (my son

went bonkers on DMG). Then B12, then the other stuff.

.

P.S >>>The enzymes do their job and then leave. They are like ideal

employees and family and friends.

I love this line!

[Guest guest]

Thank you for your supportive response. I do have quite a little

vitamin shoppe going, don't I? I have bought trial bottles of a

number of these things when I hear about what they may do. But, I

keep reading and learning more about the integrated system our body

is - and rather than just 'try stuff', I am being cautious - trying

to really understand what something will do & why. I obviously don't

want to cause harm,I want to try what could help my particluar child

and I want to be able to go slow enough to see what helps and what

doesn't. But there is so much to read/learn and so much to try!

I have no idea how everyone gets it all in their kids. That might be

one of my motivations in trying to pick the next best thing. My kid

is starting to get resistant to taking more supps, there is only so

much I can get in him - so I want the biggest bang for the buck.

Don't we all?

Let go from time to time.... My husband would laugh at that

concept.

Thank you again - your advice looks good to me, Cheryl

>

> Cheryl,

> It sounds like you should just buy stock in supplements. Just

kidding It

> sounds like phenol issues are present from all the info. I'm no

expert but I

> think the enzymes are really important and they are not like

supplements in

> that they just digest the foods they are geared towards and do

nothing else.

> Side effects we noticed were more from adjustment than from my

son's system

> not tolerating them (as with most supplements we tried). I would

recommend

> starting with the basic Zyme Prime and then maybe trying no-fenol

a little

> later. I would start slow and work up, with just 1/4 capsule and

then move up

> to more gradually. I think you may see die-off stuff because

there were

> digestion issues indicated. Again, I am no expert but am fast

becoming a

> major advocate of enzymes. We have seen remarkable changes and it

is

> very logical. The enzymes do their job and then leave. They are

like ideal

> employees and family and friends. Good luck. It sounds like

you are

> working very hard. It's nice to see that. One last thing, don't

forget to let go

> from time to time. You sound a lot like me.

> Best,

> -LN

[Guest guest]

Thank you for your advice. My sons nutrient profile was not bad -

the DAN doc wasn't even convinced he needed more vitamins. We should

just fix up his diet -- (yeah right!)

Merci! -- Cheryl

>

> > So, at this time we are NOT GFCF and we are supplementing with:

750

> > mg Vit C (1000 mg gives loose stools), pro-biotics, L-

glutathione,

> > 1/4 tsp spectrum complete. We tried SNT 1/8 tsp but got a little

> > hyper & dark circles. I backed down to the spectrum complete,

and

> > still have improvements less dark circles. Epsom salt baths seem

to

> > help the black eye look.

>

>

> This is a phenol intolerance response. So you might want to

consider

> No-Fenol enzyme first.

>

> http://www.danasview.net/phenol.htm

>

>

> > What would you recommend trying next? If enzymes, which ones? If

the

> > other supps - which ones?

>

>

> I would consider enzymes first, because many times, using enzymes

> allows your child to get the required nutrients from food, making

> other supplements unnecessary.

>

> Dana

[Guest guest]

Thank you for your nice response. I added some comments below.

>

> The tests sound rather good overall. Tests only show certain

things.

That is true. I think told me a picture of a cloud is not a

cloud. I need to remember that:)

> What improvements do you see with the L-glutathione?

I can't be sure I saw much improvement with this or from Vitamin C.

I started both close to the same time. I only give him one L-

glutathione capsule a day. (can't remember the strength). I

understand it is not well absorbed by the gut anyway. [i have had

NAC & selenemethionine recommended as substitutes.] The results were

subtle but important - more communicative, more playful, more aware

of his body temperature, and way less argumentative.

>

> I would suggest start with the Zyme Prime, then at Peptizyde, then

> No-Fenol (or the No-fenol before the Peptizyde because it sounds

> like you have a little problem with phenols). THEN, try the other

> stuff if you feel it is necessary. My choice would be DMG/TMG

> because you might see improvement or negatives right away (my son

> went bonkers on DMG). Then B12, then the other stuff.

I'll give it a go, probably over the Christmas holidays when I am

home to monitor him all day. Then I have to trust the babysitter to

help out.

Thank you again! -- Cheryl

[Guest guest]

i would say that was way too much vitamin c

selenomethione can be started immeadiatly as it doesn't seem to

impact anything else and is supplying an essential nutrient, but i

wouldn't take too much, say 50 mcg. also it works synergisitcally

with vitamin c and you can cut vitamin c back.

suprisingly tmg and dmg are more different than i have been led to

believe, like tmg appears not to have a good effect but dmg is ok.

i think becuase i eat a lot of liver and will have a lot of b-12 from

that so i don't need the extra methylation of tmg, indeed if i take

tmg i will be overmethylting. dmg gives a lot of bang for buck for

some pople so it would be interesting to try, and if he did better on

tmg that would tend to mean he was severely metal toxic i think.

he would be a candidiate for no fenol i think

i do have a question mark about dmg/tmg but some certainly seem to do

well on them.

> Hi all! I post here once a month or so, as I dabble in various

> treatments for my 9yr old HFA 86 lb ds. We have been moving ahead

> very slowly in what we try, and it's time to decide what to try

next.

> I have an order of all three HNI products waiting to try. But am

not

> sure which one to try or whether I should go with more supps first.

> Here is the background.

>

> We have had the Comprehensive stool test, OAT, Urinary peptides,

DDI

> hair, spectracell, and IGG tests.

>

> The stool and OAT showed no yeast. The OAT & Urinary peptides

showed

> no gluten / casein issues. There were no gut bugs, but low good

> bacteria. There were some undigested fibers in the stool. The DDI

> hair did not conclusively show mercury. The spectracell nutrient

> profile wasn't bad: low B2, B12, choline, glutathione. But the low

> wasn't horribly low. One of the other tests showed C deficiency.

The

> IGG had only one 3+ reaction to pears, a 2+ reaction to corn and a

1+

> reaction to tomatoes and grapefruit.

>

> So, at this time we are NOT GFCF and we are supplementing with: 750

> mg Vit C (1000 mg gives loose stools), pro-biotics, L-glutathione,

> 1/4 tsp spectrum complete. We tried SNT 1/8 tsp but got a little

> hyper & dark circles. I backed down to the spectrum complete, and

> still have improvements less dark circles. Epsom salt baths seem to

> help the black eye look.

>

> Sitting on my shelf to try are NAC, selenemethionine, DMG, TMG,

> lecithin (choline), B12 dots and the enzymes. We will be running

out

> of the l-glutathione soon, so I believe the next to try on that

front

> is the NAC or selemethionine.

>

> What would you recommend trying next? If enzymes, which ones? If

the

> other supps - which ones?

>

> I am sorry to go on & on. Thank you in advance for your help. --

> Cheryl

[Guest guest]

It took me 3 months to figure out how to get supplements into my

son . I divide hard tablet into 3 or 4 pieces(his dose / 3 or 4)

put them in enough water to dissolve them add things that are powder

add a little honey and give with eyedropper. Ann

> > Best,

> > -LN