Re: what's wrong?

April 19, 2003

i'm not a list mate but will offer an opinion anyway.

efa's adequate omega sixes?

to much calcium?

zinc not being absorbed

you have to go to the detail of the types and amounts of the

supplements given

what is the general skin conditon like? it doesn't sound like a

single cuase and probably a doctorsdata.com hair test would help.

> Hi listmates,

>

> I am thoroughly confused. My son has been taking enzymes for a

> couple of months. We started with Pep and Zyme, and then added NF.

> After we started NF, the rash that he had always had became worse.

I

> gave him a course of GSE thinking it was yeast, but after 10 days

of

> GSE the rash has not gotten much better (though the red ring around

> the anus is not there anymore). I have been giving him ProBioGold

> for a week and then Culturelle for several days thinking it was

> bacteria, but the rash is there and even worse, and besides his

skin

> started flaking around eyes. I thought it was a reaction to one of

> the enzymes and for one day stopped NF - no changes, then did not

> give him Pep for a day - no changes either. It is apparently

> something in his intestines because if I give him activated

charcoal

> the rash diminishes, but what in the world can it possibly be? He

is

> eating mostly vegetables (not green and not orange) like

> cauliflower, asparagus, yellow beans, cabbage, onions, romaine, and

> also some nuts (almonds, cashew, haselnuts), olive oil, goat

> yoghurt, sometimes fish and meat. His supplements are: vit.C,

> calcium-magnesium-zinc,cod liver oil, vit.E. But they are probably

> not the cause of the rash: once I stopped his vits for a week - no

> changes either, the rash did not become any better.

>

> Any advice is welcome! Thanks a lot in advance!

>

> Elena

April 19, 2003

I know Ojibwa Tea does a number on Parasite, bacterial and viral infections, but

I'd hate to see your child suffer any longer than he has to. It takes awhile to

order the tea, make it, etc. Maybe the tea would be something to consider after

this particular problem has been diagnosed. I know Jojo has not had a major

spell ( diarrhea, vomiting) for quite some time. But then again he's taking a

number of things besides the tea. I wish you lots of luck. There are a lot of

really helpful people on this list, but perhaps calling Great Plains Labs. and

asking which test they feel might appropriately diagnose you child's problem.

I've done that a couple of times. I had to take the results to my son's

gastroenterlogist, who insisted upon duplicating the tests, but I figured as

long as the bacterial problems were addressed it was alright.

what's wrong?

Hi listmates,

I am thoroughly confused. My son has been taking enzymes for a

couple of months. We started with Pep and Zyme, and then added NF.

After we started NF, the rash that he had always had became worse. I

gave him a course of GSE thinking it was yeast, but after 10 days of

GSE the rash has not gotten much better (though the red ring around

the anus is not there anymore). I have been giving him ProBioGold

for a week and then Culturelle for several days thinking it was

bacteria, but the rash is there and even worse, and besides his skin

started flaking around eyes. I thought it was a reaction to one of

the enzymes and for one day stopped NF - no changes, then did not

give him Pep for a day - no changes either. It is apparently

something in his intestines because if I give him activated charcoal

the rash diminishes, but what in the world can it possibly be? He is

eating mostly vegetables (not green and not orange) like

cauliflower, asparagus, yellow beans, cabbage, onions, romaine, and

also some nuts (almonds, cashew, haselnuts), olive oil, goat

yoghurt, sometimes fish and meat. His supplements are: vit.C,

calcium-magnesium-zinc,cod liver oil, vit.E. But they are probably

not the cause of the rash: once I stopped his vits for a week - no

changes either, the rash did not become any better.

Any advice is welcome! Thanks a lot in advance!

Elena

April 20, 2003

> Hi listmates,

>

> I am thoroughly confused. My son has been taking enzymes for a

> couple of months. We started with Pep and Zyme, and then added NF.

> After we started NF, the rash that he had always had became worse.

Where is the rash, what does it look like, and does it itch?

I

> gave him a course of GSE thinking it was yeast, but after 10 days of

> GSE the rash has not gotten much better (though the red ring around

> the anus is not there anymore). I have been giving him ProBioGold

> for a week and then Culturelle for several days thinking it was

> bacteria, but the rash is there and even worse, and besides his skin

> started flaking around eyes. I thought it was a reaction to one of

> the enzymes and for one day stopped NF - no changes, then did not

> give him Pep for a day - no changes either.

Stopping for one day probably won't tell you much. You might want to

consider stopping [or reducing] the NF for a week.

It is apparently

> something in his intestines because if I give him activated charcoal

> the rash diminishes, but what in the world can it possibly be? He is

> eating mostly vegetables (not green and not orange) like

> cauliflower, asparagus, yellow beans, cabbage, onions, romaine,

Well, the asparagus, beans, cabbage, and romaine would appear to

qualify as green or orange [yellow]. You can consider removing all

these veggies for a few days, see if you notice changes.

Dana

April 20, 2003

Elena,

I had an almost identical reaction in my son when begining NF. It

took 5-6 days before it went away. I reduced the NF to 1/4-1/2 per

meal. Dr. Houston suggested they were toxins. Our rash looked like a

red slap, along with several red dots with tiny white heads. :'(

One thing I did consider(that I didnt need to try) was a different

yeast killer. For instance you may consider rotating GSE, Oil of

regano, and the Charcoal. This type of regimen seems to help people

that develop intolerances. I havnt been giving enzymes for that long,

(i.e- not a great deal of experience) but maybe its worth a try. The

other thing to consider: he has become intolerant to a food you have

always given him. It gets really frustrating!

Mom to le NT (5) and Devon ASD (3)

> Hi listmates,

>

> I am thoroughly confused. My son has been taking enzymes for a

> couple of months. We started with Pep and Zyme, and then added NF.

> After we started NF, the rash that he had always had became worse.

February 17, 2004

Hi Jenn - I still want to call you Izzie!

Thanx for replying, I just felt a bit fed up and not part of the group anymore.

There are some wonderful people on here from many walks of life and I enjoy

talking with them. I used to so enjoy Strength-L and made many friends there.

Does anybody know how the lady who ran it is getting on?

Sorry to hear your Valentines didn't go as planned, that's life eh? This is the

1st year I have ever done anything remotely romantic. Was a shock to the

system!

Sue

> Tufty -

>

> Sorry, I didn't respond because my Valentines Day was incredibly

> boring. I though my sister-in-law was going to watch my kids but she

> never ended up doing it. Ugh!

>

> --

> Jenn Malatesta

February 17, 2004

Hi

I'm sorry to hear of your loss *HUG*

How old was your mama? I'm glad that you feel peace now she is no longer

suffering and comfortable. My thoughts are with you.

Sue

> sorry too but didn't want to ruin everybody's nice valentines day. My mama

> passed away that morning so kinda just sat around with friends and talked to

> the family. It was excepted but hoping not that day. We are all at peace

that

> she is now comfortable, she's had alzheimers for 8 years. Hope everybody

> else's was great.

February 17, 2004

In a message dated 2/17/04 10:20:46 AM Central Standard Time,

sv014e6391@... writes:

> . I was really interested to hear what everybody's Valentines Day went but

> nobody answered.

>

Not much to tell if you don't have a bf/gf/spouse! Was just a typical

Saturday for me.

February 17, 2004

Hey, Sue, and everyone,

I also didn't respond b/c Valentine's Day was not a good day this year. One

of my college friends was killed on the Wednesday before, and his funeral

was the 14th, so I was pretty much in shock all day. Not to mention this

nice little sinus infection I've had since Friday....today is the second day

in a row I have missed work, which I *hate* having to do. I mean, here I

am, this wheelie-chick with a disease, so I have this feeling that people

think I am half ready to kick the proverbial bucket at any time anyway,

which of course is entirely not true...but I feel weird when I really *am*

sick and have to miss work. I guess I feel like I am trying to hold myself

to some self-imposed higher standard to prove that I can do this making a

living thing! Haha.... Oh well, it helps to be a part of a group of people

who understand.

Sue, and all the others who do have Valentines now, I am really honestly

happy for you. And to the rest of you, I wish you the best in finding

yours. I'm still hoping and praying for my man too. :-)

Here's to life! As us Suthuhnuhs would say, as we rock on the front porch

and drink our mint juleps, I deee-clare, I do be thinkin' we's a-gonna make

it, after all!

Blessings,

Holly

February 17, 2004

Hi Jenn

Thank you for that, HUG FOR YOU TOO

Sue

> Well, I for one am glad you are on this list! *hug*

February 17, 2004

Hi Joy

I think spending time with the person you love can be romantic no matter what

you're doing. I'm glad you enjoyed yourselves.

My Valentines started on Friday, Rob brought me red roses and a teddybear. Then

on the Saturday he gave me a lovely card, another teddybear and a box of

chocolates. We went out for a walk and had a meal, then we had a takeaway in

the evening, while watching Friday 13th V - a lovely romantic film

Sue

> My V. day was rather fun. hubby and I went to the

> desert, hiking, taking pics and filming. Maybe not

> what ppl call romantic, but we had a wonderful time

> together, out in nature which we love!

>

> Tell us about your day Sue!!

February 17, 2004

Hi

I'm glad you got to say bye, that must make it slightly easier.

My thoughts are with you

Sue

> she was 87 and lived a full life. I had said my good byes ong ago before she

> had gotten worse.

February 17, 2004

Hi Kendra

You sound like my sister's bf, he really doesn't " do " Valentines either, he

thinks it's a money making scam. I can understand why people think that way

because we shouldn't need to be told when to show our loved ones how much we

think of them, but I'm a hopeless romantic and love the whole hearts and flowers

stuff. With our relationship being so new it was perfect timing for us.

Glad you had a good Saturday anyway.

Sue

> I don't really think valentine's day is a 'holiday' or anything

> special. It's a bunch of capitalistic bull-stuff, imo. Love is not

> something that is obligatory. Valentines day makes it that way. Love

> is not something that is suitable to be shown and expressed through

> gifts, and definitely not once/year. Valentines days says it is.

> Btw...what IS valentines day? A day we celebrate the murder of a

> priest. How nice...

>

> It was just another normal Saturday around here. Studied a bit, talked

> to my friends, and caught up on some relaxation time!

>

> ~Kendra

February 17, 2004

Hi

Thank you I think you have seen me growing up (I hope, lol) and my life

changing over the yrs we've known each other and I have always respected you and

your views.

I heard bits about your house, it sounds amazing! Post loadsa photos when

you're in and settled, I love seeing how other people decorate their houses.

Have you met any of the neighbours yet? I hope they're all friendly.

Thank you for what you said about mine and Rob's photos, we are very happy.

It's still our Honeymoon period.

Sue

> Hi Sue!

>

> You most definitely haven't offended me, never could happen, you're

> just too cool

>

> I haven't been as active on the list lately because life has just

> been super busy. I don't know if you already knew this but,

> and I just bought our first house, and it's in Las Vegas We've

> been bouncing off the walls for the last 9 months or so (OK, longer,

> but bouncing more than usual lol) trying to pull it all together.

> The house began construction in early January (although we signed the

> papers for it in October) and it is due to be finished around the

> first part of April. We are hoping to move by May 1st

>

> Anyway, we're nervous, it's going to be a huge transition for us

> lifelong apartment dwellers, but we are also very excited.

>

> Valentine's day for us was pretty much like any Saturday We did

> exchange cards (I always like to make my own cards) and gave

> me a big Hershey bar (a running joke) and we went to Wal-Mart.

> Exciting, eh?

>

> I often wonder how Tracey (who ran the Strength-L list) is doing

> these days, but I haven't heard anything from or about her. Hope she

> is doing OK.

>

> Hope you had a great Valentines day...I enjoyed checking out the pics

> you put up on the groups page, they were great! You guys look very

> happy

>

> Take care,

>

February 17, 2004

Hi Holly

Sorry to hear about your friend, that's terrible. I know it doesn't feel like

it now but time heals. I'm thinking about you

I hope your sinus infection clears up soon and stays off your chest. I know

exactly what you mean about feeling you need to try harder to make people think

you're just as good an employee as everybody else. I have done that many times

(for voluntary work, training courses etc.) when I really should have stayed at

home resting.

GET WELL SOON HOLLY!

Sue

> Hey, Sue, and everyone,

>

> I also didn't respond b/c Valentine's Day was not a good day this year. One

> of my college friends was killed on the Wednesday before, and his funeral

> was the 14th, so I was pretty much in shock all day. Not to mention this

> nice little sinus infection I've had since Friday....today is the second day

> in a row I have missed work, which I *hate* having to do. I mean, here I

> am, this wheelie-chick with a disease, so I have this feeling that people

> think I am half ready to kick the proverbial bucket at any time anyway,

> which of course is entirely not true...but I feel weird when I really *am*

> sick and have to miss work. I guess I feel like I am trying to hold myself

> to some self-imposed higher standard to prove that I can do this making a

> living thing! Haha.... Oh well, it helps to be a part of a group of people

> who understand.

>

> Sue, and all the others who do have Valentines now, I am really honestly

> happy for you. And to the rest of you, I wish you the best in finding

> yours. I'm still hoping and praying for my man too. :-)

>

> Here's to life! As us Suthuhnuhs would say, as we rock on the front porch

> and drink our mint juleps, I deee-clare, I do be thinkin' we's a-gonna make

> it, after all!

>

> Blessings,

> Holly

February 17, 2004

Sorry I didn't post, I am just so busy I don't post to anything. I had

a good valentines day with my husband, My kids stayed the night over at

grandmas so it was nice

Kenya

What's wrong?

Have I done something to offend anybody?

I stopped posting a while ago because I felt I was getting the cold

shoulder from people because whenever I sent anything I hardly got any

replies - only from the friends I had known a long time. I thought I'd

try again but only 1 reply. I was really interested to hear what

everybody's Valentines Day went but nobody answered.

Sue

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* The list members come from many backgrounds, ages and beliefs So all

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* Some adult language and topics (like sexual health, swearing..) may

occur occasionally in emails. Over use of inappropriate language will

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join the list.

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_____

February 17, 2004

>Have I done something to offend anybody?

No way!

>I was really interested to hear what everybody's Valentines Day went but

nobody answered.

Well, I didn't want to brag but ...*L* No, really...it was such a happy

day. We had lunch and fun little shopping trip with an old, dear friend

from college and then had dinner with several friends at one of our favorite

eateries. So, yet another beautiful day with my beloved. The time is have

together is so beautiful and we try to make the most it...even if it's

staying home and watching a movie together. is very " lovey " ...loves

to hold hands...winks at me when out at dinner or something...very cute.

......ok, probably too much info but you made me! ...heh.

So, what did ya'll do?

Lori

What's wrong?

Have I done something to offend anybody?

I stopped posting a while ago because I felt I was getting the cold shoulder

from people because whenever I sent anything I hardly got any replies - only

from the friends I had known a long time. I thought I'd try again but only

1 reply. I was really interested to hear what everybody's Valentines Day

went but nobody answered.

Sue

A FEW RULES

* The list members come from many backgrounds, ages and beliefs So all

members most be tolerant and respectful to all members.

* Some adult language and topics (like sexual health, swearing..) may

occur occasionally in emails. Over use of inappropriate language will

not be allowed. If your under 16 ask your parents/gaurdian before you

join the list.

* No SPAMMING or sending numerous emails unrelated to the topics of

spinal muscular atrophy, health, and the daily issues of the disabled.

Post message:

Subscribe: -subscribe

Unsubscribe: -unsubscribe

List manager: (Sexy Mature Artist) Email: Esma1999@...

oogroups.com

List manager: (Sexy Mature Artist) Email: Esma1999@...