Re: Digest Number 2070

[Guest guest]

" I am thinking of starting the Pro Efa, and I needed to know if

> you should stop CLO when giving this?? Do you give both, or just

Pro

> Efa?? Any help is appreciated.--Tod'

I have used both these products for years with no problem for two boys. The

ProEfa has no vit. A or D, like the cod liver oil, so you do not need to

worry about overdosing on those if that is your concern. The cod liver oil

does have a small amt. of EFA, but if your need is to add in more EFA;s then

there should be no harm in using both. Does that make sense?

[Guest guest]

--Thanks for your reply. My concern was about the A

overdosing.I will continue the CLO as well then.

-- In , " randallwade "

<RANDALLWADE@p...> wrote:

> " I am thinking of starting the Pro Efa, and I needed to know if

> > you should stop CLO when giving this?? Do you give both, or just

> Pro

> > Efa?? Any help is appreciated.--Tod'

>

> I have used both these products for years with no problem for two

boys. The

> ProEfa has no vit. A or D, like the cod liver oil, so you do not

need to

> worry about overdosing on those if that is your concern. The cod

liver oil

> does have a small amt. of EFA, but if your need is to add in more

EFA;s then

> there should be no harm in using both. Does that make sense?

>

[Guest guest]

Sorry to hear the news re Gordon, I hope you get better soon Mate, we are

all thinking of you at this time of distress

Bloody PA !!Always kicking you in the B*******, just when things were

looking up for you.

[Guest guest]

In a message dated 3/31/2004 8:09:53 AM Eastern Standard Time,

writes:

Martha, I would feel much safer with her starting at 0.25 cc/kg/hr for

at least 15 minutes before going to 0.5. Here in the states, I believe

they start at around 10 ml/hour for the first 15 minutes - check all the

vital signs, ask about headache or dizziness, etc. then if that's okay

they increase slightly every 15 minutes doing the same re-check of

everything. Gradually they can work up to their maximum comfort rate.

Thanks for the advice Dale. I will certainly ask about this on Monday.

Martha (mom to Chrissy IgA ?pneumo anitbody def, etc)

[Guest guest]

In a message dated 3/31/2004 8:09:53 AM Eastern Standard Time,

writes:

HELLO MARTHA MY NAME IS DAWN AND MY SON IS 2 1/2YRS. MITCHELL. HE HAD AN

ANAPHYLASIS REACTION TO GAMMAGAURD. NOW NEXT WEEK WILL BE HIS SECOND TRY

AND THEY ARE ADMITTING HIM TO ICU FOR THIS INFUSION OF GAMUNEX. THEY WANT

TO KEEP A CLOSE ON ON HIM THIS TIME. HOPE THAT HELPS. I DON'T KNOW

ANYTHING ABOUT INFUSION RATE BUT MY SON RECEIVED 1CC OVER ABOUT TEN

Hi Dawn,

Thanks for the advice. It does argue for doing a slow rate on the first try.

I hope the second try in the ICU goes better for your son. Are they going

to do something special pre-medicaiton wise? Also have you discussed the

possiblity of sub-Q with your docs?

Martha (mom to IgA def, truncus arteriosis, ? polysaccharide coated

antibody def etc.)

[Guest guest]

In a message dated 3/31/2004 8:09:53 AM Eastern Standard Time,

writes:

Do they have Epinephrine right there where will receive her

IVIG??? That would be the only thing that would make me comfortable. When

she had

her anaphylaxis during surgery, did they ever determine what caused it??

Hi Sandi,

I am going to bring an epipen and benedryl (oral) just in case the nurses

get " busy " . They said they would be checking every 1/2 hour so I want to be

on the safe side. I know that they have drugs in the crash cart -- but it

could take a few minutes to get the appropriate drugs.

--Martha

[Guest guest]

In a message dated 3/31/2004 8:09:53 AM Eastern Standard Time,

writes:

I don't think her cardiac history will complicate the infusion or make her

possible reactions any worse.

Ursula

Thanks for the advice Ursula. This is reassuring.

Martha

[Guest guest]

I have had the same thing you are talking about. I used to hop up nad down to try and get rid of it. I also would try and eat more and drink more. I know this does not sound right but i would either regurg all the stuff our or get lucky and have it get pushed into my stomach. I hope you feel better soon.

in Suffolk

[Guest guest]

Dear Achalasians,

Do any of you have scattered esophageal spasms? I have just been sitting here, reading the posts, and my doggone E has been lumping up, staying "stuck" feeling, and then stops doing this tango. It annoys me. I haven't eaten for hours and that doggone esophagus of mine is feeling as if food is stuck down there. Geesh. I get this hard and nasty blocked feeling, then I feel as if I can't breathe quite right so I put my chin to my chest and wait it out (chin to chest seems to help a little bit, don't know why).

ANNOYING.

thanks for letting me crab, Deborah in Pac. Palisades, Ca

[Guest guest]

Deborah, are you able to regurgitate "on command" when you have those feelings? Some people can, some people can't. In my case, I would just go to a sink or toilet and bend over and do a little retch (kinda like trying to force a belch), and it would all come unstuck and I would feel better.

If for some reason I couldn't just regurgitate it, it was usually b/c it didn't feel like there was enough volume in my esophagus for my retching to be effective. I would drink a bunch of water to really fill up my esophagus and loosen up whatever was stuck in there, then my retching would bring up the water AND the food. I would also do this esophageal emptying period before every bedtime. Really cut down on the number of times I woke up coughing with food/saliva spilling into my lungs.

Debbi in Michigan

Re: Digest Number 2070

Dear Achalasians,

Do any of you have scattered esophageal spasms? I have just been sitting here, reading the posts, and my doggone E has been lumping up, staying "stuck" feeling, and then stops doing this tango. It annoys me. I haven't eaten for hours and that doggone esophagus of mine is feeling as if food is stuck down there. Geesh. I get this hard and nasty blocked feeling, then I feel as if I can't breathe quite right so I put my chin to my chest and wait it out (chin to chest seems to help a little bit, don't know why).

ANNOYING.

thanks for letting me crab, Deborah in Pac. Palisades, Ca

[Guest guest]

>

> Dear Achalasians,

>

> Do any of you have scattered esophageal spasms? I have

just been sitting here, reading the posts, and my doggone E has been

lumping up, staying " stuck " feeling, and then stops doing this

tango. It annoys me. I haven't eaten for hours and that doggone

esophagus of mine is feeling as if food is stuck down there. Geesh.

I get this hard and nasty blocked feeling, then I feel as if I can't

breathe quite right so I put my chin to my chest and wait it out

(chin to chest seems to help a little bit, don't know why).

>

> ANNOYING.

>

> thanks for letting me crab, Deborah in

Pac. Palisades, Ca

Hi Deborah - So much of this process is trial and error so let me

throw in my 2 cents. Have you tried warm/hot fluids? I personally

find that even after surgery I still feel kind of 'tight' sometimes,

especially if I'm stressed. We have to remember that even when our

LES opens for us, we don't have peristalsis to push our food down

like most people do; so for instance, I find salad difficult

sometimes not because my LES won't open but because it is 'light' so

gravity doesn't help as much as it does with say - meat. Does that

make sense? You know what's funny - I could try to explain this to

someone without A and they would probably look at me like I've got 2

heads but I'm guessing you guys know what I mean...

So you may have to try a variety of methods to help 'clean' your self

out. My most effective seems to be hot tea (herbal) - it feels like

the heat helps to relax the muscles. It's what I drink for spasms but

also I have some every night before bed to help clean out what may be

lurking in my E. Ginger helps also - just an all around good tonic

for GI stuff. Buy some in the spice aisle at the grocery store,

sprinkle some in a cup with a little sugar and some hot water - easy,

cheap and I find very effective.

Good luck and when you find something that works for you, let us know.

Happy Swallowing!

in Va.

[Guest guest]

Boy does this sound familiar.

> Deborah, are you able to regurgitate " on command " when you have those

feelings? Some people can, some people can't. In my case, I would just go to

a sink or toilet and bend over and do a little retch (kinda like trying to force

a

belch), and it would all come unstuck and I would feel better.

>

> If for some reason I couldn't just regurgitate it, it was usually b/c it

didn't feel

like there was enough volume in my esophagus for my retching to be

effective. I would drink a bunch of water to really fill up my esophagus and

loosen up whatever was stuck in there, then my retching would bring up the

water AND the food. I would also do this esophageal emptying period

before every bedtime. Really cut down on the number of times I woke up

coughing with food/saliva spilling into my lungs.

>

> Debbi in Michigan

> Re: Digest Number 2070

>

>

> Dear Achalasians,

>

> Do any of you have scattered esophageal spasms? I have just been

sitting here, reading the posts, and my doggone E has been lumping up,

staying " stuck " feeling, and then stops doing this tango. It annoys me. I

haven't eaten for hours and that doggone esophagus of mine is feeling as if

food is stuck down there. Geesh. I get this hard and nasty blocked feeling,

then I feel as if I can't breathe quite right so I put my chin to my chest and

wait

it out (chin to chest seems to help a little bit, don't know why).

>

> ANNOYING.

>

> thanks for letting me crab, Deborah in Pac.

Palisades, Ca

[Guest guest]

Hey..that is sooo weird because that happened to me a few months ago.

I didn't feel like anything was stuck but I felt like my neck

postition was " off " or something like I couldn't breathe right. So I

kept sitting up straight and repositioning myself to breathe better.

That has happened twice. I really can't remember if I felt like

anything was stuck...but its possible. I don't pay attention anymore.

Dawn in Ohio

> >

> > Dear Achalasians,

> >

> > Do any of you have scattered esophageal spasms? I have

> just been sitting here, reading the posts, and my doggone E has

been

> lumping up, staying " stuck " feeling, and then stops doing this

> tango. It annoys me. I haven't eaten for hours and that doggone

> esophagus of mine is feeling as if food is stuck down there.

Geesh.

> I get this hard and nasty blocked feeling, then I feel as if I

can't

> breathe quite right so I put my chin to my chest and wait it out

> (chin to chest seems to help a little bit, don't know why).

> >

> > ANNOYING.

> >

> > thanks for letting me crab, Deborah

in

> Pac. Palisades, Ca

>

> Hi Deborah - So much of this process is trial and error so let me

> throw in my 2 cents. Have you tried warm/hot fluids? I personally

> find that even after surgery I still feel kind of 'tight'

sometimes,

> especially if I'm stressed. We have to remember that even when our

> LES opens for us, we don't have peristalsis to push our food down

> like most people do; so for instance, I find salad difficult

> sometimes not because my LES won't open but because it is 'light'

so

> gravity doesn't help as much as it does with say - meat. Does that

> make sense? You know what's funny - I could try to explain this to

> someone without A and they would probably look at me like I've got

2

> heads but I'm guessing you guys know what I mean...

> So you may have to try a variety of methods to help 'clean' your

self

> out. My most effective seems to be hot tea (herbal) - it feels like

> the heat helps to relax the muscles. It's what I drink for spasms

but

> also I have some every night before bed to help clean out what may

be

> lurking in my E. Ginger helps also - just an all around good tonic

> for GI stuff. Buy some in the spice aisle at the grocery store,

> sprinkle some in a cup with a little sugar and some hot water -

easy,

> cheap and I find very effective.

> Good luck and when you find something that works for you, let us

know.

>

> Happy Swallowing!

> in Va.

[Guest guest]

Shalom,

What did you do with the cucumber and apple? Did they

have to juiced too before combining with beet juice,

lemon and olive oil?

Thanks.

>

> have you tried a liver cleanse? i just found a

juice to drink that

you make from dr barton. sounds nasty but if it

works...

> 1 beet or 1/3c beet juice

> 1 peeled cucumber

> 1 lemon ( peel and run through juicer or squeeze

by hand- man this

sounds sour!)

> 1 apple with peel

> 2 T olive oil ( add last)