Guest guest Posted April 9, 2003 Report Share Posted April 9, 2003 Well, we have approached the end of the 3 week period on AFP Peptizyde, and have not had very good results. What happened? Garrett is SID, age 3, and at the beginning, he increased in urine output, which I thought was a good sign. Actually, though, that's been the only good sign. We are basically just trying to get him back to the behavior he had before going on the enzyme. He's hyperactive, screaming, saying naughty words, picking at the baby at daycare, and non-attentive in his early childhood classroom. All of his daycare people want me to stop, and I guess I don't really have a reason to continue. I read in 's book that if there is no improvement by the third week, to possibly discontinue use. But I don't want to give up!! I can't believe this is not going to work for us. Is there something I'm doing wrong or some reason I should keep going? I thought about giving him the No-Fenol (I have it already but was told to wait the 3 weeks for the AFP), or ordering the Zyme Prime. What to do, what to do. I'm making myself crazy. Thanks for any input. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2003 Report Share Posted April 9, 2003 Could you list what else he is taking? Anything with B vitamins? > Well, we have approached the end of the 3 week period on AFP Peptizyde, > and have not had very good results. What happened? Garrett is SID, age > 3, and at the beginning, he increased in urine output, which I thought > was a good sign. Actually, though, that's been the only good sign. We > are basically just trying to get him back to the behavior he had before > going on the enzyme. He's hyperactive, screaming, saying naughty words, > picking at the baby at daycare, and non-attentive in his early childhood > classroom. All of his daycare people want me to stop, and I guess I > don't really have a reason to continue. I read in 's book that if > there is no improvement by the third week, to possibly discontinue use. > But I don't want to give up!! I can't believe this is not going to work > for us. Is there something I'm doing wrong or some reason I should keep > going? I thought about giving him the No-Fenol (I have it already but > was told to wait the 3 weeks for the AFP), or ordering the Zyme Prime. > What to do, what to do. I'm making myself crazy. Thanks for any input. > Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2003 Report Share Posted April 9, 2003 > Well, we have approached the end of the 3 week period on AFP Peptizyde, > and have not had very good results. What happened? Garrett is SID, age > 3, and at the beginning, he increased in urine output, which I thought > was a good sign. Actually, though, that's been the only good sign. We > are basically just trying to get him back to the behavior he had before > going on the enzyme. He's hyperactive, screaming, saying naughty words, > picking at the baby at daycare, and non-attentive in his early childhood > classroom. All of his daycare people want me to stop, and I guess I > don't really have a reason to continue. I read in 's book that if > there is no improvement by the third week, to possibly discontinue use. > But I don't want to give up!! I can't believe this is not going to work > for us. Is there something I'm doing wrong or some reason I should keep > going? I thought about giving him the No-Fenol (I have it already but > was told to wait the 3 weeks for the AFP), or ordering the Zyme Prime. > What to do, what to do. I'm making myself crazy. Thanks for any input. > Amy Hi, Amy, I know exactly how you feel!! My son has only been on enzymes for about 2 months. The first few weeks that he was on them, his progress was very inconsistent. He was very hyper, so I removed the Super NuThera vitamin, which has a lot of B vitamins. That helped. Then I used GSE and a probiotic to treat him for yeast, and that was when I noticed a HUGE improvement. Better language, less stimmming, sleeping better, etc. I now give him a liquid vitamin supplement, much lower in Bs. We just finished a nightmare week because we ran out of enzymes about two weeks ago, got them again last week, and now I am FINALLY seeing the benefits again. When I started treating him for yeast, I increased his enzyme dose to 2 AFPs, 1 ZP and now about 1/2 a NF w/ every meal and snack (5 times/day). I try to limit wheat and dairy products, but I want him to eat, so we compromise. I have greatly limited sugars and fruit/fruit juices to help w/ the yeast, and I think that has really helped. Hope this helps you! It really is a big frustrating puzzle. : / e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2003 Report Share Posted April 9, 2003 the order to try them might be zyme, then the ordinary pep then no fenol. but bascially you should be bedded in with zyme and pep before no fenol and start thinking about controlling intestinal yeasts why did you start with afp pep. also enzymes need to be sprinkled on food for max effect just possibly vitamin a (twinlab allergy a retinyl acetate) may help as it seems to do something for vaccine damage and the immune system. > > Well, we have approached the end of the 3 week period on AFP > Peptizyde, > > and have not had very good results. What happened? Garrett is > SID, age > > 3, and at the beginning, he increased in urine output, which I > thought > > was a good sign. Actually, though, that's been the only good > sign. We > > are basically just trying to get him back to the behavior he had > before > > going on the enzyme. He's hyperactive, screaming, saying naughty > words, > > picking at the baby at daycare, and non-attentive in his early > childhood > > classroom. All of his daycare people want me to stop, and I guess > I > > don't really have a reason to continue. I read in 's book > that if > > there is no improvement by the third week, to possibly discontinue > use. > > But I don't want to give up!! I can't believe this is not going > to work > > for us. Is there something I'm doing wrong or some reason I > should keep > > going? I thought about giving him the No-Fenol (I have it already > but > > was told to wait the 3 weeks for the AFP), or ordering the Zyme > Prime. > > What to do, what to do. I'm making myself crazy. Thanks for any > input. > > Amy > > Hi, Amy, > I know exactly how you feel!! My son has only been on enzymes for > about 2 months. The first few weeks that he was on them, his > progress was very inconsistent. He was very hyper, so I removed the > Super NuThera vitamin, which has a lot of B vitamins. That helped. > Then I used GSE and a probiotic to treat him for yeast, and that was > when I noticed a HUGE improvement. Better language, less stimmming, > sleeping better, etc. I now give him a liquid vitamin supplement, > much lower in Bs. We just finished a nightmare week because we ran > out of enzymes about two weeks ago, got them again last week, and > now I am FINALLY seeing the benefits again. When I started treating > him for yeast, I increased his enzyme dose to 2 AFPs, 1 ZP and now > about 1/2 a NF w/ every meal and snack (5 times/day). I try to limit > wheat and dairy products, but I want him to eat, so we compromise. I > have greatly limited sugars and fruit/fruit juices to help w/ the > yeast, and I think that has really helped. > Hope this helps you! It really is a big frustrating puzzle. : / > e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2003 Report Share Posted April 9, 2003 What is GSE and how can you tell if your child has a yeast problem? Thanks ---- Original Message ----- From: tracyerandolph Sent: Wednesday, April 09, 2003 5:25 PM Subject: Re: Discouraged about Enzymes > Well, we have approached the end of the 3 week period on AFP Peptizyde, > and have not had very good results. What happened? Garrett is SID, age > 3, and at the beginning, he increased in urine output, which I thought > was a good sign. Actually, though, that's been the only good sign. We > are basically just trying to get him back to the behavior he had before > going on the enzyme. He's hyperactive, screaming, saying naughty words, > picking at the baby at daycare, and non-attentive in his early childhood > classroom. All of his daycare people want me to stop, and I guess I > don't really have a reason to continue. I read in 's book that if > there is no improvement by the third week, to possibly discontinue use. > But I don't want to give up!! I can't believe this is not going to work > for us. Is there something I'm doing wrong or some reason I should keep > going? I thought about giving him the No-Fenol (I have it already but > was told to wait the 3 weeks for the AFP), or ordering the Zyme Prime. > What to do, what to do. I'm making myself crazy. Thanks for any input. > Amy Hi, Amy, I know exactly how you feel!! My son has only been on enzymes for about 2 months. The first few weeks that he was on them, his progress was very inconsistent. He was very hyper, so I removed the Super NuThera vitamin, which has a lot of B vitamins. That helped. Then I used GSE and a probiotic to treat him for yeast, and that was when I noticed a HUGE improvement. Better language, less stimmming, sleeping better, etc. I now give him a liquid vitamin supplement, much lower in Bs. We just finished a nightmare week because we ran out of enzymes about two weeks ago, got them again last week, and now I am FINALLY seeing the benefits again. When I started treating him for yeast, I increased his enzyme dose to 2 AFPs, 1 ZP and now about 1/2 a NF w/ every meal and snack (5 times/day). I try to limit wheat and dairy products, but I want him to eat, so we compromise. I have greatly limited sugars and fruit/fruit juices to help w/ the yeast, and I think that has really helped. Hope this helps you! It really is a big frustrating puzzle. : / e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2003 Report Share Posted April 9, 2003 Hi Amy, I'm so sorry you're going through such a difficult time right now...it will get better. In time, you'll discover the RIGHT combination of what works BEST for your child. For us, it was removing all vitamin supplements, removing apples, removing Soy and Corn products, artificial colors/flavors and most of all ADDING No- Fenol and then AFP Peptizyde...at one time, I tried giving our 5 yr old daughter just Peptizyde by itself because of a stuttering problem that came about when we started the No-Fenol, but since her behavior got worse (or back to normal before enzymes), we readded No- Fenol raising the amount up to 1/2 capsule with each meal along with 1 capsule AFP Peptizyde with great results...and for some reason, the stuttering didn't come back....it's only been a few days since we went up in everything, so time will tell whether this great behavior with no stuttering lasts...I hope so. I hope this will encourage you....just a side thought for you to consider....Zyme Prime would not be a good choice for our daughter as recommended on this site, so it may or may not work well for your child either....every child is different and unique and, in time, you'll discover the right combination of things for your little one. Best wishes, Gretchen > Well, we have approached the end of the 3 week period on AFP Peptizyde, > and have not had very good results. What happened? Garrett is SID, age > 3, and at the beginning, he increased in urine output, which I thought > was a good sign. Actually, though, that's been the only good sign. We > are basically just trying to get him back to the behavior he had before > going on the enzyme. He's hyperactive, screaming, saying naughty words, > picking at the baby at daycare, and non-attentive in his early childhood > classroom. All of his daycare people want me to stop, and I guess I > don't really have a reason to continue. I read in 's book that if > there is no improvement by the third week, to possibly discontinue use. > But I don't want to give up!! I can't believe this is not going to work > for us. Is there something I'm doing wrong or some reason I should keep > going? I thought about giving him the No-Fenol (I have it already but > was told to wait the 3 weeks for the AFP), or ordering the Zyme Prime. > What to do, what to do. I'm making myself crazy. Thanks for any input. > Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2003 Report Share Posted April 9, 2003 Amy, I'm new to all this, but is there a possibility for celiac's disease? I just finished reading that part in 's book, that people w/celiac's shouldn't be on enzymes, isn't that right? Others here will have great advice for you. I'm sure you'll find things that work. Good luck. > Well, we have approached the end of the 3 week period on AFP Peptizyde, > and have not had very good results. What happened? Garrett is SID, age > 3, and at the beginning, he increased in urine output, which I thought > was a good sign. Actually, though, that's been the only good sign. We > are basically just trying to get him back to the behavior he had before > going on the enzyme. He's hyperactive, screaming, saying naughty words, > picking at the baby at daycare, and non-attentive in his early childhood > classroom. All of his daycare people want me to stop, and I guess I > don't really have a reason to continue. I read in 's book that if > there is no improvement by the third week, to possibly discontinue use. > But I don't want to give up!! I can't believe this is not going to work > for us. Is there something I'm doing wrong or some reason I should keep > going? I thought about giving him the No-Fenol (I have it already but > was told to wait the 3 weeks for the AFP), or ordering the Zyme Prime. > What to do, what to do. I'm making myself crazy. Thanks for any input. > Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2003 Report Share Posted April 9, 2003 Sorry it has been a rough few weeks, but it may still work out because there is a negative reaction (as opposed to no reaction at all). Here are some suggestions. As suggested, if you are giving any high B supps, drop or really reduce that first. Are you eliminating artificial colorings/flavorings and such? That can have a pronounced effect with SID folks. Also, epsom salts are an easy and cheap thing to try that often bring big benefits. www.enzymestuff.com/epsomsalts.htm I was thinking of the yeast also. Do you think there is a yeast problem? Sometimes this isn't very obvious. But the Peptizyde could be causeing die-off and that contributes to the awlful behavior you described. The epsom salts might help with this too. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2003 Report Share Posted April 10, 2003 > Well, we have approached the end of the 3 week period on AFP Peptizyde, > and have not had very good results. What happened? Garrett is SID, From what I have read by other parents, most SID kids do well with phenol restrictions. You might want to try No-Fenol enzyme, or reduce phenol foods http://www.danasview.net/phenol.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2003 Report Share Posted April 10, 2003 > What is GSE and how can you tell if your child has a yeast problem? My page http://www.danasview.net/yeast.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 Perhaps your son is now finally exhibiting obvious problems to other foods. AFP only helps with certain types of food. My son exhibited problems with numerous foods. We didn't have enzymes at first and so just removing a type of food gave us improvement ( after the withdrawal which was horrific). But we got down to plain chicken and pork chops and white rice and plain potatoes. Thank goodness for enzymes, although we recently discovered orange juice and bananas are still a problem. Discouraged about Enzymes Well, we have approached the end of the 3 week period on AFP Peptizyde, and have not had very good results. What happened? Garrett is SID, age 3, and at the beginning, he increased in urine output, which I thought was a good sign. Actually, though, that's been the only good sign. We are basically just trying to get him back to the behavior he had before going on the enzyme. He's hyperactive, screaming, saying naughty words, picking at the baby at daycare, and non-attentive in his early childhood classroom. All of his daycare people want me to stop, and I guess I don't really have a reason to continue. I read in 's book that if there is no improvement by the third week, to possibly discontinue use. But I don't want to give up!! I can't believe this is not going to work for us. Is there something I'm doing wrong or some reason I should keep going? I thought about giving him the No-Fenol (I have it already but was told to wait the 3 weeks for the AFP), or ordering the Zyme Prime. What to do, what to do. I'm making myself crazy. Thanks for any input. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 GSE is grapefruit seed extract. We had a gastroenterologist perform numerous urine and stool tests to check for yeast overgrowth. He assured us ph had no problems. I treated with GSE and saw an awful die off. Now all I do is look at his tongue ( gets patchy white) or his stomach (bloated) or behavior ( stimming or aggressive) and treat with GSE. You can buy it at a health food store. Re: Discouraged about Enzymes > Well, we have approached the end of the 3 week period on AFP Peptizyde, > and have not had very good results. What happened? Garrett is SID, age > 3, and at the beginning, he increased in urine output, which I thought > was a good sign. Actually, though, that's been the only good sign. We > are basically just trying to get him back to the behavior he had before > going on the enzyme. He's hyperactive, screaming, saying naughty words, > picking at the baby at daycare, and non-attentive in his early childhood > classroom. All of his daycare people want me to stop, and I guess I > don't really have a reason to continue. I read in 's book that if > there is no improvement by the third week, to possibly discontinue use. > But I don't want to give up!! I can't believe this is not going to work > for us. Is there something I'm doing wrong or some reason I should keep > going? I thought about giving him the No-Fenol (I have it already but > was told to wait the 3 weeks for the AFP), or ordering the Zyme Prime. > What to do, what to do. I'm making myself crazy. Thanks for any input. > Amy Hi, Amy, I know exactly how you feel!! My son has only been on enzymes for about 2 months. The first few weeks that he was on them, his progress was very inconsistent. He was very hyper, so I removed the Super NuThera vitamin, which has a lot of B vitamins. That helped. Then I used GSE and a probiotic to treat him for yeast, and that was when I noticed a HUGE improvement. Better language, less stimmming, sleeping better, etc. I now give him a liquid vitamin supplement, much lower in Bs. We just finished a nightmare week because we ran out of enzymes about two weeks ago, got them again last week, and now I am FINALLY seeing the benefits again. When I started treating him for yeast, I increased his enzyme dose to 2 AFPs, 1 ZP and now about 1/2 a NF w/ every meal and snack (5 times/day). I try to limit wheat and dairy products, but I want him to eat, so we compromise. I have greatly limited sugars and fruit/fruit juices to help w/ the yeast, and I think that has really helped. Hope this helps you! It really is a big frustrating puzzle. : / e Quote Link to comment Share on other sites More sharing options...
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