Re: [enzymes]

[Guest guest]

I suggest you go with your gut on this - take out those foods, my boys are the

same - I have been testing my 10 year old on different foods - and he has had a

couple of red jellies over that past several weeks - yesterday he had one was

really great - 10 minutes later he completely fell apart - crying, screaming,

honestly I did want to smack him too - but I know it would not help they need

boundaries of course but this was so obviously the red jelly - so 2 hours later

my swollen eyed little boy was back and the jellies are in the bin. Go with

your gut - go back to what you were doing when he was good - but be very aware

of bananas, and citrus and even the Nuthera some kids can't take it - maybe

introduce it again in a week or so once he is back to normal.

I know the hard thing with testing foods - is that they get a taste for it and

can't understand why they can't have more or even on a rotational basis - it

either on or off in this house because once they know they are in the cupboard

!!!!! it can be such a problem.

Take care

Terri NZ

Help. I really need help. Things have been going beautifully for such a long

spell that I am really upset and need to know what I am doing wrong. Bananas and

orange juice were really becoming issues back in November and December and I

recognized this because I was putting the vit. C in his orange juice and he was

craving bananas, and then we'd get tantrums, irrational crying, inability to

focus (for therapy). And mostly his cheeks were red. I thought I'd gotten the

whole yeast thing under control, thought perhaps it was just the phenols. He

adjusted to No-Fenol and so we were allowing small infractions (tomatoes,

lemonade, etc.) I just reintroduced orange juice on a regular basis and bananas

last week. He is a monster and his grandpa felt the need to spank him and did so

tonight due to his behavior. My in-laws feel with a lot more spanking that

ph will eventually behave ( on command) and my husband is agreeing. I

pointed out ph's cheeks and the whole irrationality aspect of his behavior

and they are of the mind that because he has improved developmentally that he is

ready to be disciplined like other children. Are they right? Am I being over

protective? I feel that his body is signaling me that something isn't right. I'm

going to remove the orange juice, bananas and for a few days regularly dose the

GSE ( I only do it every four days or so now). I'll let you know how it goes. I

should also mention that the new vitamins I ordered haven't arrived yet and so I

reintroduced the Super Nu Thera at 1/8 tsp. daily. But that was only within the

last week. I am also slightly a basket case, my brother is in Iraq. Perhaps

ph is picking up on my stress? I really need to emphasize the red cheeks

though. Any advice would be appreciated. Thanks.

[Guest guest]

,

They are so wrong for spanking your son.A child does not need to be

spanked....ever!!!!!!!Do you think it is alright if someone hits you for doing

something wrong?You're a person and your son is a little person.It is not

alright,it is abuse.Plain and simple and tell your inlaws to mind their business

,he is your son .It is obvious they know nothing about autism. The red cheeks is

due to a pst problem. This is a problem digesting phenols and transferring them.

Your son needs love and lots of it. Keep your cool because you are caught in the

middle but the adults will listen if you know what you are talking about.

R

[Guest guest]

Thanks for the support. Actually they don't listen. My best times are when they

have limited contact with ph. I was able to convince Mike that socially and

verbally ph is about 2 1/2 (that's where the UCLA Autism Eval. clinic put

him last December). Mike and I make a great team, but you know how the parent

" pull " is. ph is just about back to normal. It was a hellacious 4 days, but

no more oranges or bananas. Not even with No Fenol. We go see Dr. Goldberg, so

perhaps there is a parasite or different type of yeast issue that we're missing.

Thank you again for the support. Re:

,

They are so wrong for spanking your son.A child does not need to be

spanked....ever!!!!!!!Do you think it is alright if someone hits you for doing

something wrong?You're a person and your son is a little person.It is not

alright,it is abuse.Plain and simple and tell your inlaws to mind their business

,he is your son .It is obvious they know nothing about autism. The red cheeks is

due to a pst problem. This is a problem digesting phenols and transferring them.

Your son needs love and lots of it. Keep your cool because you are caught in the

middle but the adults will listen if you know what you are talking about.

R

[Guest guest]

Going on vacation for a week down to Ocean City land and need to set to

no mail.

Thanks,

[Guest guest]

it sure is-I have of course over s lifetime met other

parents thru school and support groups but their children were never

quite like him and I was the only one who tried all the " off the wall

treatments " It is refreshing to know someone that has gone thru the

same things. I am sure thru our postings we will find more and more

in common with our kids and maybe we'll be able to find the right

combinations to help them a great deal, although your daughter sounds

like she is doing great. Eileen

-- In , " Blackmon "

<blackmon@a...> wrote:

> My daughter and your son have so much in common. My child used to

love to be outside at night. This was from the time she was small. I

remember one night she led me outside. We were both in our pajamas

just spinning around and around in the yard. I told her we were

dancing with the fairies. That was before we knew she was autistic.

> I said that someday I am going to write a book and call it Dancing

with the Fairies: Adventures in the Land of Autism.

> She always cried in the car when she was small if the sun got in

her eyes. She used to love to swim too, but doesn't do that much

anymore. Oh, she wanted to swim at dark.

> She doesn't go out a lot now either. Surprised me by wanting to go

out last night while her Daddy was outside. She wanted to swing on

her tire swing. She will go out on weekends to ride the golf cart

with her Dad, but other than that, she pretty much stays inside.

Unless we are going shopping.

> Isn't it interesting how much they are alike.

>

> Re: /Light Sensitivity

>

>

>

> That's funny too because my son prefers nightime over daytime.

This

> started many years ago. I used to make a joke of it, my

Nocturnal

> Son, I would call him. He wont wear sunglasses. I have tried

the

> prisms and the other tinted lenses. He used to sit on our lawn

at

> night and just look up at the stars and giggle his head off. He

also

> has an attachment to a small Yankee Blanket, which he has wrapped

> around his head while sitting down or in bed. Not in school tho-

> broke that one, took a long time tho. I tried hats also. He used

to

> love to swim in our pool but got to a point he would go in around

> dusk AHHHH this is making so much sense. Now what to do about

it

> is quite another story. When we go to bar-b-ques he always wants

to

> be inside the pesons house even if they have a pool. I thought

of

> that as withdrawing from all the noise of the little kids (which

> probably still has something to do with it). My son is pretty

> verbal, wont sit and have a conversation with you but can tell me

> when something hurts and he never mentioned this. Im sure that

this

> has been going on all of his life and he doesnt know any

different so

> cant verbalize these pains. My son doesnt want to go out of the

> house after dark anymore, once he is home he doesnt want to go

back

> out. Unless of course it's to go out to dinner. LOL Eileen

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

Taurine - a calming amino acid has been helpful for many, as has B6 and

Magensium. I give all three to my son daily since he had one gramd mal seizure

back in March last year - he has only had one very short absence seizure since

then. My pediatrician was intrigued and took diligent notes LOL

Mandi in UK

I was wondering if anyone tired any alternative medicine to help control

seizures? I have been reading thru all the links but there are so many. We are

going to consider the Keto Diet for my son.

[Guest guest]

Hi

I was wondering if anyone tired any alternative medicine to help control

seizures? I have been reading thru all the links but there are so many. We are

going to consider the Keto Diet for my son.

Thanks for the help

Lori

[Guest guest]

Sometimes I just don't have the words so I just say " I'm having a bad day,

please can you carry it for me? " They're the days when something amazing in the

recovery way happens, large or small, happens. Without prayer though I'd never

have survived the past year.

I agree with this wholeheartedly!!

Today, not just coincidence, the man upstairs was stage managing it all as

usual, somebody called me whose son did well with biomedical interventions - he

said keep battling, its just ignorance, you know what you're doing is right.

What's the worst that could happen? OK things don't go according to dream (and

we've all got dreams for our kids and what's that to be ashamed of?) but at

least we can say we did everything we could, we knew about, we made sacrifices,

we tried. The idea of crushing disappointment is a bit scary but I've kind have

been through that one...

I told God I would take a baby anyway he saw fit to give it to me. I guess I

should have been more careful with my words! He does have a plan and I do find

comfort in that. I do push forward so I can say I did everything I could. That

is the best we can do, to try.

I live on endless bars of chocolate, cans of Coke, Marlboro Lights and studies

about Autism! I am next!

Switched to coffee, less chemicals(I think!) Did you hear about the new

nicotine vaccine???!!! Just kidding!

in Cocoa

__________________________________________________

[Guest guest]

,

my daughter's appetite is very low--which Houston enzyme improved your

daughter's appetite?

Thanks,

Loss of Appetite-Long

Hi All,

I am new to this group. So first a big hello to all of you and

thanks for the dedication and support from each parent. I hope at

some point i would be able to help with answers but currently am

overwhelmed with all the information that i have more questions than

any answers !!

To give a background, i have a 2yr 4mon old Autistic son . We are

starting all the traditional therapies in combination with the bio-

med route. To summarize we are seeing steady gains everyday and are

very encouraged but the stumbling blocks are always there and the

loss of appetite is the biggest one now.

My son was never a big eater to start with and was picky about meals

but always ate his meals even after the GFCF diet started

Sequence of events :

1. GFCF diet -- no issues - Appetite was fine

2. Added Cod Liver oil from Nordic naturals - no issues - Appetite

was fine

3. Added BrainChild Vitamins and Minerals - tried it for few days ..

no reactions -- Appetite was okay but teething issues were

preventing him from having regular meals

4. Add Zinc methionine --- no reactions. Appetite okay-decreasing

5. Lactobacillus sporenges -- no reactions.

6. Clay bath twice a week -- no reactions - Appetite poor

Now though there was no big reactions to any of the stuff above i

found his appetite decreasing. He had teething in between and loose

stools so i kept watching out.. Now he is consistently skipping 2-3

meals a day (some days all he drinks is couple of glasses of

rice/almond milk and some pear juice). Suprisingly, he is active and

happy all the time (as long as he doesnt see food).

Should i cut back things one by one and see which one is the

culprit. The loss of appetite was gradual and he is already a skinny

boy. I dont know how much i can let go off him like this. Any

suggestions is appreciated.

Btw, i found this product (also recommended by some parents). Any

personal experience with this protein powder.

Ultra Protein Plus Chocolate Almond - 948g provided by

Laboratories® provides protein from yellow peas, a low allergenic

source of protein that is GMO, pesticide, lactose, casein and gluten

free. This formula provides a rich source of all essential amino

acids as well as important vitamins and minerals.

The reason am mailing this list is i am yet to introduce digestive

enzymes and wanted to know if thats something i should do or backoff

and find the culprit.

Btw, the enzyme suggested by my DAN doctor is from Kirkman

" EnZym-Complete/ DPP-IV

Is this the one commonly used ? Has it helped the appetite issue in

any of your cases ?

Thanks for all your time.

Kavitha

[Guest guest]

Did you start each supplement one at a time? If you start all those at the

same time You can't tell which one is causing the problems. If they were all

started last week at the same time...stop them all for a week. Then start by

giving each one for one week before adding a new one. Keep a journal to record

how

he responds to each one. This way you will be able to know which one is

causing these behaviors. I

HTH

Rhonda in CA

[Guest guest]

Joe,

Yes, it sure could be. My son went from weighing 42 pounds last May to over

60 by September. His current doctor at the time did not seem concerned. If

a 200lb man gained 100 lbs in 6 months, without any changes in diet, people

would sure be scrambling to find out. But anyway, I have a couple of

hypotheses which I'm happy to share in case they may be of some help to you.

One - we had started hbot that May - so one train of thought was that he was

digesting his food better, therefore the weight gain. I bought into this

for a while, but something seems missing with this scenario. We never saw

undigested pieces of food in his stool before hbot and he wasn't on enzymes,

no behavior changes when eating any particular foods, etc. and the quantity

that he ate did not change at all.

Two - perhaps using the hbot has allowed my son to digest gluten better than

before. Gluten can cause problems for your thyroid (as can heavy metal

poisoning). After doing a ton of research on what the real reference ranges

on labs associated with hypothyroidism are (and not just what it says on the

lab's results) - his symptoms and labs all fit for being hypothyroid.

Luckily, we have a doctor who was willing to Rx armour thyroid for him.

Before we started the armour, I had a hair test run which pointed to thyroid

- but in the past, his hair test also pointed to adrenal fatigue. Since

adding the armour and adrenal cortex, I have noticed positive things about

my son's demeanor in general - - he was always happy, but now he seems

HAPPY. So, I'm hoping it's because he feels better. He's been on the

armour a few weeks - and I haven't seen any changes in weight as of yet, so

nothing to report there.

Hope this helps,

http://www.recoveringnicholas.com

http://www.facebook.com/profile.php?id=1566597819 & ref=profile

From:

[mailto: ] On Behalf Of Joe O'Farrell

Sent: Tuesday, April 28, 2009 9:17 AM

Subject:

Hi,

Thanks to all for keeping this great information service going. I was an

avid reader for a couple of years, scouring this logs for all the little

pieces of information which help us keep a successful enzyme program in

place for our son. Then he had a very successful recovery from some

digestive health and speech delay issues as a result of following an enzymes

and fish oil diet under a doctor's supervision. The doctor then suggested we

wean him off the enzymes, which we did slowly and successfully (i.e. he did

not regress on either the digestive or speech issues).

However he gradually began to increase his weight, to the point that he is

now -- almost 3 years later -- in the 98th percentile, and his pediatrician

is suggesting a nutritionist. He eats a good diet and participates in many

sports, and basically never sits down.

I'm wondering if this weight increase could be related somehow to how he is

digesting his foods?

Any suggestions would be appreciated.

Thanks

__________________________________________________________

Rediscover HotmailR: Now available on your iPhone or BlackBerry

http://windowslive.com/RediscoverHotmail?ocid=TXT_TAGLM_WL_HM_Rediscover_Mob

ile2_042009

[Guest guest]

Carla,

Someone has gotten a hold of your msn.com email password. They keep sending

a lot of spam from it. You can stop this by simply changing your password.

I know, because I had this happen to my gmail.com email.

Thanks

Ed

On Sun, Sep 5, 2010 at 8:19 AM, Carla Dexter <cdexter0325@...> wrote:

>

>

> http://www.awi0.medxdrugx.com

>

>

>

[Guest guest]

Yes,PLEASE PLEASE stop sending those emails thanks

,

Todd(pdd-nos)

Praying for recovery:)

>

> >

> >

> > http://www.awi0.medxdrugx.com

> >

> >

> >

[Guest guest]

It depends on your child, but you can go to www.txoptions.com

adult dose is always 4 tablets under tongue, kids is 1/2 that.. if you

get it in a 2 dram viile, it is about $7.00 yes, $7.00 for 250 tablets.

Very inexpensive....Remember it is not immediate, but cumulative. Another

good one is oxypowder, many of our member also use that here.

As for understanding it more, there is an awesome book for families and

like it because it has a remedy index. Find your illness or symptom and it

helps you find your best remedy based on your feelings.

I am not a doctor, but found wonderful help in this, over 2 years now, and

our kids just are never sick anymore, no more colds and if they get a

little stuffy or sore throat I give them tablets for a day, and it is gone.

Here is a link to the book I love, it is awesome for beginners..and oldies

alike...you can get it used on amazon real cheap....Has done wonders for

our family... everything from shingles, aches and pains, fever reducers,

flu, diahrrea, and we are talking massive 5 day flus that shut down my

husbands work for 2 weeks, everyone was deathly ill, he got it at 3pm

tues, and after one bout in the bathroom, I gave him belladonna and

chamomilla, and he went to bed and the next day was as good as gold.

Everyone else was sick the rest of the week. Boy did he get stuff done

around the house that week, since the place was closed. It works fast

and helps your body heal much faster....

http://www.amazon.com/Family-Guide-Homeopathy-Symptoms-Solutions/dp/06717677

12/ref=sr_1_6?s=books & ie=UTF8 & qid=1290212405 & sr=1-6

Nux Vomica

I would like to try this for constipation (as nothing else has helped).

Wondering what the strongest dose I can get (I don't understand homeopathy)

and where do you buy it at? Thanks

------------------------------------