Guest guest Posted April 9, 2003 Report Share Posted April 9, 2003 my four year old son is autistic and very likely has celiac disease. (strong family history). I started him on enzymes four or so months ago and fabulous things happened. He began socializing, talking in longer sentences, understanding humor and laughing appropriately, gross motor gains, sleeping through the night. BUT, he has become extremely aggressive at school. (He was never aggressive before) He pinches, hits other children to the point where I have been called in for conferences, etc. He also began to tantrum with transitions. I finally stopped the enzymes the day he pushed a child over in his chair entirely unprovoked. He is gf/cf and the enzymes he was taking were DPP1V, Allzyme (protease, amylase, lipase, cellulase). He also took betaine HCL with every meal and gets secretin shots. I don't want to lose the incredible gains he got with enzymes. Does anyone know if a different combination might help with the aggression side effect???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2003 Report Share Posted April 9, 2003 That is excellent about the improvements!!! But the other stuff needs work, eh?! First, is your son ever aggressive at home too? or just at school? do you think he might be getting too much sensory input at school and just can't deal with it? If he has perked up so much at home, then he might be very overwhelmed at school, and it is typical for pre-schoolers to act out when overwhelmed. My son was not very aggressive and never bothered other children, but when he went to public school, it was just too much with all the regulation and long days. He acted out, pushed furniture a few times, and needed to be taken out of the class until the teacher figured out how to give him 'down time' while in the class and throughout the day. She was very experienced and did this all on her own. She explained it later and said it wasn't any problem for her and she wanted my son in her class...but he just seemed to need many more breaks by himself than the other children. (I think she was hoping I wouldn't see it as a punishment) He might need some instruction on how he should behave appropriately around other children. The other thing I am thinking about is do you think that this may be caused by the secretin? Secretin affects some kids very badly. Are you giving any other supplements? Like high B vitamins for example? Those might be discontinued now. Very common not to need that with enzymes. My other standard suggestion would be magnesium or epsom salts. Very common to be deficient in magnesium. Also, if you are GFCF you loose prime sources of magnesium in dairy and whole grains. One more...is he getting any snacks at school? Our school just can't seem to shovel enough treats filled with sugar, artificial colorings/flavorings and other junk into the kids. It certainly wasn't like that when I went to school. He might be very sensitive to the artificial stuff and that is setting him off. Here is some more info on this. www.enzymestuff.com/magnesium.htm www.enzymestuff.com/epsomsalts.htm www.enzymestuff.com/dietsfg.htm . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2003 Report Share Posted April 10, 2003 Thank you for responding to my message. I have been suspecting the secretin because we have been administering it differently lately, through injection as opposed to infusion. Also, thanks for the insight about the school situation. I think you're right about sensory overload. I hadn't thought about it. I appreciate it. > That is excellent about the improvements!!! > > But the other stuff needs work, eh?! > > First, is your son ever aggressive at home too? or just at school? > do you think he might be getting too much sensory input at school > and just can't deal with it? If he has perked up so much at home, > then he might be very overwhelmed at school, and it is typical for > pre-schoolers to act out when overwhelmed. My son was not very > aggressive and never bothered other children, but when he went to > public school, it was just too much with all the regulation and long > days. He acted out, pushed furniture a few times, and needed to be > taken out of the class until the teacher figured out how to give > him 'down time' while in the class and throughout the day. She was > very experienced and did this all on her own. She explained it later > and said it wasn't any problem for her and she wanted my son in her > class...but he just seemed to need many more breaks by himself than > the other children. (I think she was hoping I wouldn't see it as a > punishment) > > He might need some instruction on how he should behave appropriately > around other children. > > The other thing I am thinking about is do you think that this may be > caused by the secretin? Secretin affects some kids very badly. > > Are you giving any other supplements? Like high B vitamins for > example? Those might be discontinued now. Very common not to need > that with enzymes. > > My other standard suggestion would be magnesium or epsom salts. Very > common to be deficient in magnesium. Also, if you are GFCF you loose > prime sources of magnesium in dairy and whole grains. > > One more...is he getting any snacks at school? Our school just can't > seem to shovel enough treats filled with sugar, artificial > colorings/flavorings and other junk into the kids. It certainly > wasn't like that when I went to school. He might be very sensitive > to the artificial stuff and that is setting him off. Here is some > more info on this. > > www.enzymestuff.com/magnesium.htm > www.enzymestuff.com/epsomsalts.htm > www.enzymestuff.com/dietsfg.htm > > . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 Yeast flare ups tend to make ph more aggressive. GSE and Epsom salt baths and Epsom salt lotion work for us. enzymes and aggression my four year old son is autistic and very likely has celiac disease. (strong family history). I started him on enzymes four or so months ago and fabulous things happened. He began socializing, talking in longer sentences, understanding humor and laughing appropriately, gross motor gains, sleeping through the night. BUT, he has become extremely aggressive at school. (He was never aggressive before) He pinches, hits other children to the point where I have been called in for conferences, etc. He also began to tantrum with transitions. I finally stopped the enzymes the day he pushed a child over in his chair entirely unprovoked. He is gf/cf and the enzymes he was taking were DPP1V, Allzyme (protease, amylase, lipase, cellulase). He also took betaine HCL with every meal and gets secretin shots. I don't want to lose the incredible gains he got with enzymes. Does anyone know if a different combination might help with the aggression side effect???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 In a message dated 12/04/2003 14:24:17 GMT Daylight Time, qstrange@... writes: > You see changes and miracles you want to see > because you are expecting these. > I disgree and I don;t consider it a change unless somebody other than me can see it too. Glad your son is doing well:) Mandi in UK who loves the effects of enzymes and minerals! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 Look I am the father of an autistic child and refuse to give him secretin, enzymes, magnesium or anything else except some vitamin supplements occassionally and fresh foods. I feel terribly sorry for many of you trying to 'cure' autism with the magic of charlatons who write all sorts of scurilous thesis on the absence of this mineral and that and allude to all sorts of pseudo cures and develoopmental discoveries on autism. Sure we all care and are all suffering as a result. But for gods sake don't you realise that your anxiety is in itself the worst input to the childs already disturbed system? he or she can detect and sense the extreme anxiety and tensions you carry as a result of your worry for them. The spectrum is so wide that the panic to get to the bottom of it ends up like a chase to catch the rainbow. its there but becomes more and more elusive even though you do appear to be getting closer. Our son is now full time at a 'normal' school which has an integration programme. he used to attend the 'best' special school in our city but we found the change from 2 days at normal school too much for him to return to special school where he began to play up. His peers at 'normal' school are a better influence and the teahcer and aid are trained. he's learned to hum the national anthem after the first few lines in the inro. He loves assembly and does most things the others do (monkey see monkey do) and within his limits absorbs and analyses these events in his life. Today he wrote Pizza as we spoke of the idea of taking him for one. His specialist teachers and the psychologists told us in no uncertain terms he would not do this and it was not important. We persevered without the fuss. Keep away from your manufactured products to a certain degree. he does eat KFC and Maccas occaccionally. he is motivated by those vsists and responds. Not a great motivator but it is controlled. It has done him no harm. Balance is the key. Don't go enzyming and mineralising for chrriskes. Try all of htis in moderation and remember they all grow and change whether or not you give them these magical potions. You see changes and miracles you want to see because you are expecting these. Cheers Rama Krishnan >From: " jornmatt " <kjorn@...> >Reply- > >Subject: Re: enzymes and aggression >Date: Thu, 10 Apr 2003 02:06:15 -0000 > >That is excellent about the improvements!!! > >But the other stuff needs work, eh?! > >First, is your son ever aggressive at home too? or just at school? >do you think he might be getting too much sensory input at school >and just can't deal with it? If he has perked up so much at home, >then he might be very overwhelmed at school, and it is typical for >pre-schoolers to act out when overwhelmed. My son was not very >aggressive and never bothered other children, but when he went to >public school, it was just too much with all the regulation and long >days. He acted out, pushed furniture a few times, and needed to be >taken out of the class until the teacher figured out how to give >him 'down time' while in the class and throughout the day. She was >very experienced and did this all on her own. She explained it later >and said it wasn't any problem for her and she wanted my son in her >class...but he just seemed to need many more breaks by himself than >the other children. (I think she was hoping I wouldn't see it as a >punishment) > >He might need some instruction on how he should behave appropriately >around other children. > >The other thing I am thinking about is do you think that this may be >caused by the secretin? Secretin affects some kids very badly. > >Are you giving any other supplements? Like high B vitamins for >example? Those might be discontinued now. Very common not to need >that with enzymes. > >My other standard suggestion would be magnesium or epsom salts. Very >common to be deficient in magnesium. Also, if you are GFCF you loose >prime sources of magnesium in dairy and whole grains. > >One more...is he getting any snacks at school? Our school just can't >seem to shovel enough treats filled with sugar, artificial >colorings/flavorings and other junk into the kids. It certainly >wasn't like that when I went to school. He might be very sensitive >to the artificial stuff and that is setting him off. Here is some >more info on this. > >www.enzymestuff.com/magnesium.htm >www.enzymestuff.com/epsomsalts.htm >www.enzymestuff.com/dietsfg.htm > >. > _________________________________________________________________ Hotmail now available on Australian mobile phones. Go to http://ninemsn.com.au/mobilecentral/hotmail_mobile.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 what vitamin supplements are you giving? geenrally when people sort of fly at something 'enzymes and mineralising' its saying they know they have to do work here but don't want to think about it perhaps you might like to talk about your child a bit more for more insight. are there any digestive issues or anything that might be indicative of phenol processing problems or intestinal yeast. > Look I am the father of an autistic child and refuse to give him secretin, > enzymes, magnesium or anything else except some vitamin supplements > occassionally and fresh foods. > > I feel terribly sorry for many of you trying to 'cure' autism with the magic > of charlatons who write all sorts of scurilous thesis on the absence of this > mineral and that and allude to all sorts of pseudo cures and develoopmental > discoveries on autism. > > Sure we all care and are all suffering as a result. But for gods sake don't > you realise that your anxiety is in itself the worst input to the childs > already disturbed system? he or she can detect and sense the extreme anxiety > and tensions you carry as a result of your worry for them. > > The spectrum is so wide that the panic to get to the bottom of it ends up > like a chase to catch the rainbow. its there but becomes more and more > elusive even though you do appear to be getting closer. > > Our son is now full time at a 'normal' school which has an integration > programme. he used to attend the 'best' special school in our city but we > found the change from 2 days at normal school too much for him to return to > special school where he began to play up. > > His peers at 'normal' school are a better influence and the teahcer and aid > are trained. he's learned to hum the national anthem after the first few > lines in the inro. He loves assembly and does most things the others do > (monkey see monkey do) and within his limits absorbs and analyses these > events in his life. > > Today he wrote Pizza as we spoke of the idea of taking him for one. His > specialist teachers and the psychologists told us in no uncertain terms he > would not do this and it was not important. We persevered without the fuss. > > Keep away from your manufactured products to a certain degree. he does eat > KFC and Maccas occaccionally. he is motivated by those vsists and responds. > Not a great motivator but it is controlled. It has done him no harm. Balance > is the key. > > Don't go enzyming and mineralising for chrriskes. Try all of htis in > moderation and remember they all grow and change whether or not you give > them these magical potions. You see changes and miracles you want to see > because you are expecting these. > > Cheers > > Rama Krishnan > > > > > > > > > >From: " jornmatt " <kjorn@t...> > >Reply- > > > >Subject: Re: enzymes and aggression > >Date: Thu, 10 Apr 2003 02:06:15 -0000 > > > >That is excellent about the improvements!!! > > > >But the other stuff needs work, eh?! > > > >First, is your son ever aggressive at home too? or just at school? > >do you think he might be getting too much sensory input at school > >and just can't deal with it? If he has perked up so much at home, > >then he might be very overwhelmed at school, and it is typical for > >pre-schoolers to act out when overwhelmed. My son was not very > >aggressive and never bothered other children, but when he went to > >public school, it was just too much with all the regulation and long > >days. He acted out, pushed furniture a few times, and needed to be > >taken out of the class until the teacher figured out how to give > >him 'down time' while in the class and throughout the day. She was > >very experienced and did this all on her own. She explained it later > >and said it wasn't any problem for her and she wanted my son in her > >class...but he just seemed to need many more breaks by himself than > >the other children. (I think she was hoping I wouldn't see it as a > >punishment) > > > >He might need some instruction on how he should behave appropriately > >around other children. > > > >The other thing I am thinking about is do you think that this may be > >caused by the secretin? Secretin affects some kids very badly. > > > >Are you giving any other supplements? Like high B vitamins for > >example? Those might be discontinued now. Very common not to need > >that with enzymes. > > > >My other standard suggestion would be magnesium or epsom salts. Very > >common to be deficient in magnesium. Also, if you are GFCF you loose > >prime sources of magnesium in dairy and whole grains. > > > >One more...is he getting any snacks at school? Our school just can't > >seem to shovel enough treats filled with sugar, artificial > >colorings/flavorings and other junk into the kids. It certainly > >wasn't like that when I went to school. He might be very sensitive > >to the artificial stuff and that is setting him off. Here is some > >more info on this. > > > >www.enzymestuff.com/magnesium.htm > >www.enzymestuff.com/epsomsalts.htm > >www.enzymestuff.com/dietsfg.htm > > > >. > > > > _________________________________________________________________ > Hotmail now available on Australian mobile phones. Go to > http://ninemsn.com.au/mobilecentral/hotmail_mobile.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 Then why are you on this list? quintin strange wrote: > Look I am the father of an autistic child and refuse to give him secretin, > enzymes, magnesium or anything else except some vitamin supplements > occassionally and fresh foods. > > I feel terribly sorry for many of you trying to 'cure' autism with the magic > of charlatons who write all sorts of scurilous thesis on the absence of this > mineral and that and allude to all sorts of pseudo cures and develoopmental > discoveries on autism. > > Sure we all care and are all suffering as a result. But for gods sake don't > you realise that your anxiety is in itself the worst input to the childs > already disturbed system? he or she can detect and sense the extreme anxiety > and tensions you carry as a result of your worry for them. > > The spectrum is so wide that the panic to get to the bottom of it ends up > like a chase to catch the rainbow. its there but becomes more and more > elusive even though you do appear to be getting closer. > > Our son is now full time at a 'normal' school which has an integration > programme. he used to attend the 'best' special school in our city but we > found the change from 2 days at normal school too much for him to return to > special school where he began to play up. > > His peers at 'normal' school are a better influence and the teahcer and aid > are trained. he's learned to hum the national anthem after the first few > lines in the inro. He loves assembly and does most things the others do > (monkey see monkey do) and within his limits absorbs and analyses these > events in his life. > > Today he wrote Pizza as we spoke of the idea of taking him for one. His > specialist teachers and the psychologists told us in no uncertain terms he > would not do this and it was not important. We persevered without the fuss. > > Keep away from your manufactured products to a certain degree. he does eat > KFC and Maccas occaccionally. he is motivated by those vsists and responds. > Not a great motivator but it is controlled. It has done him no harm. Balance > is the key. > > Don't go enzyming and mineralising for chrriskes. Try all of htis in > moderation and remember they all grow and change whether or not you give > them these magical potions. You see changes and miracles you want to see > because you are expecting these. > > Cheers > > Rama Krishnan > > >From: " jornmatt " <kjorn@...> > >Reply- > > > >Subject: Re: enzymes and aggression > >Date: Thu, 10 Apr 2003 02:06:15 -0000 > > > >That is excellent about the improvements!!! > > > >But the other stuff needs work, eh?! > > > >First, is your son ever aggressive at home too? or just at school? > >do you think he might be getting too much sensory input at school > >and just can't deal with it? If he has perked up so much at home, > >then he might be very overwhelmed at school, and it is typical for > >pre-schoolers to act out when overwhelmed. My son was not very > >aggressive and never bothered other children, but when he went to > >public school, it was just too much with all the regulation and long > >days. He acted out, pushed furniture a few times, and needed to be > >taken out of the class until the teacher figured out how to give > >him 'down time' while in the class and throughout the day. She was > >very experienced and did this all on her own. She explained it later > >and said it wasn't any problem for her and she wanted my son in her > >class...but he just seemed to need many more breaks by himself than > >the other children. (I think she was hoping I wouldn't see it as a > >punishment) > > > >He might need some instruction on how he should behave appropriately > >around other children. > > > >The other thing I am thinking about is do you think that this may be > >caused by the secretin? Secretin affects some kids very badly. > > > >Are you giving any other supplements? Like high B vitamins for > >example? Those might be discontinued now. Very common not to need > >that with enzymes. > > > >My other standard suggestion would be magnesium or epsom salts. Very > >common to be deficient in magnesium. Also, if you are GFCF you loose > >prime sources of magnesium in dairy and whole grains. > > > >One more...is he getting any snacks at school? Our school just can't > >seem to shovel enough treats filled with sugar, artificial > >colorings/flavorings and other junk into the kids. It certainly > >wasn't like that when I went to school. He might be very sensitive > >to the artificial stuff and that is setting him off. Here is some > >more info on this. > > > >www.enzymestuff.com/magnesium.htm > >www.enzymestuff.com/epsomsalts.htm > >www.enzymestuff.com/dietsfg.htm > > > >. > > > > _________________________________________________________________ > Hotmail now available on Australian mobile phones. Go to > http://ninemsn.com.au/mobilecentral/hotmail_mobile.asp > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 This post reflects the email handle: quite strange, Your message has contradictions, and the hostile tone reflects there may be more amiss that you want to let on. >>>> Look I am the father of an autistic child and refuse to give him secretin, enzymes, magnesium or anything else except some vitamin supplements occassionally and fresh foods. Great! I hope you are happy with your choice that you feel is best for your son. You don't sound happy with it, but I'm not going to base everything on just one message. Actually, you didn't say you were happy with that decision, you just said you made that decision. At any rate, that wouldn't work for my sons and I am happy that I pursued the measures that were best for them. >>>> I feel terribly sorry for many of you trying to 'cure' autism with the magic of charlatons who write all sorts of scurilous thesis on the absence of this mineral and that and allude to all sorts of pseudo cures and develoopmental discoveries on autism. There is a lot of 'fraud' running around and people trying to make lots of money on families problems. Seems to me about 85% of it is bunk. That leaves 15-10% that is worthwhile. That is still something to sift through. A saying I read is that a needle in a haystack is better to some than not even having a haystack to look through. Another version went 'would you rather have to dig through ten square miles of garbage dump for one gold coin, or would you rather not have the pile of garbage containing one gold coin at all?' [answers can vary] >>>>> don't you realise that your anxiety is in itself the worst input to the childs already disturbed system? it may or may not be the worse, but there are studies showing that worrying over health problems can cause more health problems in itself. Sometimes far worse health problems that what you are worrying over. Fear is powerful. >>>His specialist teachers and the psychologists told us in no uncertain terms he would not do this and it was not important. We persevered without the fuss. EXACTLY! You are preservering in spite of negative advice that there was not hope and you found a better way. But it seems now you want to dispense 'no hope' to others. People presevere in different ways. People need to lessen or stop their preservering as they feel is appropriate. Glad you son is doing well in school. >>>> Balance is the key. EXACTLY! But saying 'don't go enzyming and mineralising' is quite unbalanced and a sweeping generalization. So now we have a big contradiction. >>>Try all of htis in moderation and remember they all grow and change whether or not you give them these magical potions. OH, good. We are back to balance and moderation again. So the one sentence that does not fit the rest of the message is the one that reads 'don't go enzyming and mineralising.' >>>>You see changes and miracles you want to see because you are expecting these. Oh drat. Now we are unbalanced, not in moderation and criticising in a sweeping way again. I do better with consistency. Does this mean that your son did not really improve in the 'normal' school because you just wanted to see him as improving there? or is he really doing better? If it is just what you want to see, how do you know the difference? I don't need a specific answer...this is really more of a 'food for thought' type question. I think the take-home message that you are TRYING to get across is: - not to get really fanatical and extreme about things - be realistic with any therapy or treatment - don't go running around trying all sorts of fad diets, supplements, therapies, etc because there are many charlatans running around - keep a balanced approach - don't overlook obvious things that may help (like copying peers in a healthy way) all of these points, I fundamentally agree with. The delivery needs work, but not to fear. I have trouble with my delivery many times. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 I can appreciate your point of view. However, it is apparent you cannot appreciate mine. I don't come to this message board to read the nonsense you have to write. Don't criticize me, I've had enough from Doctors, family, friends, therapists and strangers. My son is healthy. Everything I give him is completely safe, I've researched to no end. The fact that specialists had him down to 32 pounds at 4 years of age and his medical prognosis was getting dramatically worse ( impaired poly sacchri responsiveness). Yes, they had medicated him to the point he wasn't even responding to the medication any more, lost the language he had acquired through ABA, was no longer sleeping through the night, had to wear pull ups for the diarrhea, despite being potty trained for 2 years. ON NATURAL PRODUCTS ONLY I have him at 43 pounds at 4 years of age and he is progressing so well developmentally that he almost progressed himself right out of qualifying for services from our school district. I only give advice to those that ask for it, I did not ask for your opinion. In the future I will simply delete when I see that the message is from you. Re: enzymes and aggression >Date: Thu, 10 Apr 2003 02:06:15 -0000 > >That is excellent about the improvements!!! > >But the other stuff needs work, eh?! > >First, is your son ever aggressive at home too? or just at school? >do you think he might be getting too much sensory input at school >and just can't deal with it? If he has perked up so much at home, >then he might be very overwhelmed at school, and it is typical for >pre-schoolers to act out when overwhelmed. My son was not very >aggressive and never bothered other children, but when he went to >public school, it was just too much with all the regulation and long >days. He acted out, pushed furniture a few times, and needed to be >taken out of the class until the teacher figured out how to give >him 'down time' while in the class and throughout the day. She was >very experienced and did this all on her own. She explained it later >and said it wasn't any problem for her and she wanted my son in her >class...but he just seemed to need many more breaks by himself than >the other children. (I think she was hoping I wouldn't see it as a >punishment) > >He might need some instruction on how he should behave appropriately >around other children. > >The other thing I am thinking about is do you think that this may be >caused by the secretin? Secretin affects some kids very badly. > >Are you giving any other supplements? Like high B vitamins for >example? Those might be discontinued now. Very common not to need >that with enzymes. > >My other standard suggestion would be magnesium or epsom salts. Very >common to be deficient in magnesium. Also, if you are GFCF you loose >prime sources of magnesium in dairy and whole grains. > >One more...is he getting any snacks at school? Our school just can't >seem to shovel enough treats filled with sugar, artificial >colorings/flavorings and other junk into the kids. It certainly >wasn't like that when I went to school. He might be very sensitive >to the artificial stuff and that is setting him off. Here is some >more info on this. > >www.enzymestuff.com/magnesium.htm >www.enzymestuff.com/epsomsalts.htm >www.enzymestuff.com/dietsfg.htm > >. > _________________________________________________________________ Hotmail now available on Australian mobile phones. Go to http://ninemsn.com.au/mobilecentral/hotmail_mobile.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 > Don't go enzyming and mineralising for chrriskes. Try all of htis in > moderation and remember they all grow and change whether or not you give > them these magical potions. You see changes and miracles you want to see > because you are expecting these. -- Hmmm. That's interesting. I saw regular solid bowel movements for the first time in months because I was expecting to see them, not because of the enzymes. The mind is a powerful thing... Actually, you'll find parents often get results they don't expect from enzymes. This can include regressions or huge improvements. They also sometimes have to try several brands of enzymes before finding the one that is right for their child. Also, other people outside the family often notice improvements without having been told the child was on enzymes. Mass delusion, you say Quentin? Quote Link to comment Share on other sites More sharing options...
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