Need to get started-wisdom is appreciated

July 1, 2003

Hi everyone,

I have joined this group a few weeks back after meeting a parent that

had tremendous success with treating her son's gut issues and have

learned a tremendous amount from reading all of your postings.and also

absorbing all of the research I can late into the night. My son is 4.5

and I have been giving him the DMG with B12 & Folic Acid from Kirkmans,

Coromega from Kirkmans & Super Nu-Thera for quite a while. Not on any

diet as of yet.. He has a lot of sleep issues..and of course the b/m's

are always inconsistent...from constipation to runny.

He has expressive language-which I attribute to all of his hard work the

last 2 yrs in our home program. I want to take his therapy to the next

level-starting with enzymes sounds like the most logical thing to do.

My question to you all is where do I start-do I send off urine/bm's for

analysis? Do I find a DAN Dr. first? Questions, Questions! I am eager to

begin, but do not want to make mistakes and know your advise will be

from experience. Thank you in advance for any direction!

Shery

July 2, 2003

Hi, Shery

You can try enzymes without a DAN doctor's blessing and without any

testing. You should know within a month or two whether or not

enzymes will help your child. I was not directed to enzymes by any

medical doctor or DAN doctor or testing. I found out about enzymes

on my own, studied the information, talked to the inventor himself

and tried them. We had great success.

> Hi everyone,

>

> I have joined this group a few weeks back after meeting a parent

that

> had tremendous success with treating her son's gut issues and have

> learned a tremendous amount from reading all of your postings.and

also

> absorbing all of the research I can late into the night. My son is

4.5

> and I have been giving him the DMG with B12 & Folic Acid from

Kirkmans,

> Coromega from Kirkmans & Super Nu-Thera for quite a while. Not on

any

> diet as of yet.. He has a lot of sleep issues..and of course the

b/m's

> are always inconsistent...from constipation to runny.

>

> He has expressive language-which I attribute to all of his hard

work the

> last 2 yrs in our home program. I want to take his therapy to the

do.

>

> My question to you all is where do I start-do I send off urine/bm's

for

> analysis? Do I find a DAN Dr. first? Questions, Questions! I am

eager to

> begin, but do not want to make mistakes and know your advise will be

> from experience. Thank you in advance for any direction!

>

> Shery

>

July 2, 2003

The things that have benefitted my son most (diet, enzymes, zinc

etc.) were done against doctor's recommendations. It was only after

I went against them and they saw the results that I got their

blessing. I have never seen a DAN doctor but after reading posts on

this and other groups for 2 years, there are few out there that are

good. I feel just jumping into it and watching the results is better

that seeking the advise of a doctor that may not know what he is

talking about.

> Hi everyone,

>

> I have joined this group a few weeks back after meeting a parent

that

> had tremendous success with treating her son's gut issues and have

> learned a tremendous amount from reading all of your postings.and

also

> absorbing all of the research I can late into the night. My son is

4.5

> and I have been giving him the DMG with B12 & Folic Acid from

Kirkmans,

> Coromega from Kirkmans & Super Nu-Thera for quite a while. Not on

any

> diet as of yet.. He has a lot of sleep issues..and of course the

b/m's

> are always inconsistent...from constipation to runny.

>

> He has expressive language-which I attribute to all of his hard

work the

> last 2 yrs in our home program. I want to take his therapy to the

do.

>

> My question to you all is where do I start-do I send off urine/bm's

for

> analysis? Do I find a DAN Dr. first? Questions, Questions! I am

eager to

> begin, but do not want to make mistakes and know your advise will be

> from experience. Thank you in advance for any direction!

>

> Shery

>

July 2, 2003

Does someone actually have a primary doctor that has a clue? No one I know does.

Our specialist is excellent, but she is 4 states away..............-GA

Re: Need to get started-wisdom is appreciated

The things that have benefitted my son most (diet, enzymes, zinc

etc.) were done against doctor's recommendations. It was only after

I went against them and they saw the results that I got their

blessing. I have never seen a DAN doctor but after reading posts on

this and other groups for 2 years, there are few out there that are

good. I feel just jumping into it and watching the results is better

that seeking the advise of a doctor that may not know what he is

talking about.

> Hi everyone,

>

> I have joined this group a few weeks back after meeting a parent

that

> had tremendous success with treating her son's gut issues and have

> learned a tremendous amount from reading all of your postings.and

also

> absorbing all of the research I can late into the night. My son is

4.5

> and I have been giving him the DMG with B12 & Folic Acid from

Kirkmans,

> Coromega from Kirkmans & Super Nu-Thera for quite a while. Not on

any

> diet as of yet.. He has a lot of sleep issues..and of course the

b/m's

> are always inconsistent...from constipation to runny.

>

> He has expressive language-which I attribute to all of his hard

work the

> last 2 yrs in our home program. I want to take his therapy to the

do.

>

> My question to you all is where do I start-do I send off urine/bm's

for

> analysis? Do I find a DAN Dr. first? Questions, Questions! I am

eager to

> begin, but do not want to make mistakes and know your advise will be

> from experience. Thank you in advance for any direction!

>

> Shery

>

July 2, 2003

>>> Does someone actually have a primary doctor that has a clue? No

one I know does.

We had an excellent traditional neurologist that pretty had it

together. We saw her first about 4 years ago and she 'retired' 2

years ago. It will depend on the individual person more than the

specialty though, but they are out there (or course we burned

through our fair share of not-very-helpful alternative and

traditional docs, too). Here is an basic outline below to help put

the 'therapy options' into a coherent manner. It is how I see it.

But really, you will need to put in a fair amount of effort on your

own learning and trying things. Even many of the " autism therpies "

are bogged down in their own business interests promoting whatever

it is they sell over helping your child.

We found a combination of meds, minerals, enzymes, and behavior

therapy worked the best. But what worked for one of my sons was not

the same as the other needed, although some things crossed over. For

enzymes you don't need a doctor (not even a dan dr) because they are

considered an over the counter 'food'. Doctors are usually not

opposed to enzymes at all (even if they are to restrictive diets),

but they may not bring it up themselves. There is much information

in the Files section of this group, or alternately at

www.enzymestuff.com because some people can't access the files.

.

-------------------------

Here is an outline or organization scheme for all the possible

therapies:

1. Some type of one-on-one interacting with child

(this would include academics and socializing skills)

-Floortime

-Son-rise

-ABA, VBA, DTT

-Faciliated Communication

2. Some type of Sensory Integration Therapy

-Sensory Integration (SI) therapy/Occupational Therapy

-Physical therapy/hippotherapy/sports if needed

-Hearing therapy/AIT/Listening program if needed

-Irlen lenses/special glasses if needed

-Speech therapy/language training if needed

-PECS - picture exchange system/sign language if needed

3. Some type of biological measures, if needed only

(this order is what I think is most efficient as a guide)

-Enzymes (primary)

-Probiotics (primary, in yogurt or supplements)

-Medications if necessary or helpful

-Extra measures to heal gut (zinc, oatmeal)

-Reduce toxins (Feingold diet, general detox, reduce chemical load)

-Extra supplements if necessary (magnesium, selenium, calcium,

multivitamin, EFAs)

-Remove other problematic foods if necessary

-Yeast/bacteria treatment if necessary

-Viral treatment if necessary

-Special detox or chelation if necessary

Digestive enzymes up front. The reason is that they are efficient,

often eliminate the need for special diets and a bucketfuls of

supplements. You may still want to take a few selected supplements

or remove a few foods, but not the exasperating and expensive

amounts sometimes given. Good results often come quickly and

inexpensively with enzymes and most people see improvement of some

kind within the first 3-4 weeks, which is very encouraging.

Probiotics are very good is assisting healing a gut and proper

intestinal function.

Check for yeast/bacteria problems, or even viruses. Treat those up

front because that is at the root of many problems and often you can

see rapid improvement.

Remove artificial chemicals/additives/colorings and consider epsoms

salts. This seems to improve behavior relatively quickly for the

majority of those sensitive to it, and it is something you can do

right away and is CHEAP!

After all this, if you need to still remove some foods or add some

supplements, do that.

Then any additional special detoxification protocols. Some of these

can be done concurrently and some not, so they should be research

thoroughly.

July 2, 2003

whanm you go into a group practice and see the pressure the gp's and

pediatricans are under to turn patients over to get the income and

how hopelessly fragmented in terms of what they treat .............

the gp and peditrican system is hopeless and what they see is too

different to make them give reasonable advice so they just pop the

drugs as the easy choice.........

even specialists i notice still have trouble with to many different

types of illness, but they are a hug improvement, only i have found

that spending huge amounts of time researching on the net can put you

well ahead of them which you need to be if you want to keep out of

the medical and into the premedical area.........

bascially the gp system like the school system has collapsed and will

slowly limp away over the next decades as change in these areas seems

inordinantly slow.

dr. shaw in kansas seems ok for autism with medical conditions,

bearing in mind amost or a lot of autism is actually pre-medical

which is different.

the usa is in for a lot of changes, one of which is the workforce

will no longer be able to support your hugely expensive and except

for things like cancer and surgery, not very effective medical health

insurance system.

companies sending information technology work to india, its already

happening.

the pre medical advice area like enzymes. this board and karens book

will eventually get very big.

> > Hi everyone,

> >

> > I have joined this group a few weeks back after meeting a

parent

> that

> > had tremendous success with treating her son's gut issues and

have

> > learned a tremendous amount from reading all of your

postings.and

> also

> > absorbing all of the research I can late into the night. My son

is

> 4.5

> > and I have been giving him the DMG with B12 & Folic Acid from

> Kirkmans,

> > Coromega from Kirkmans & Super Nu-Thera for quite a while. Not

on

> any

> > diet as of yet.. He has a lot of sleep issues..and of course

the

> b/m's

> > are always inconsistent...from constipation to runny.

> >

> > He has expressive language-which I attribute to all of his hard

> work the

> > last 2 yrs in our home program. I want to take his therapy to

the

> next

> > level-starting with enzymes sounds like the most logical thing

to

> do.

> >

> > My question to you all is where do I start-do I send off

urine/bm's

> for

> > analysis? Do I find a DAN Dr. first? Questions, Questions! I am

> eager to

> > begin, but do not want to make mistakes and know your advise

will be

> > from experience. Thank you in advance for any direction!

> >

> > Shery

> >

July 2, 2003

Thank you all for advice! Is there a certain brand (type) enzyme you

would recommend to start out with first? He has dark circles under his

eyes this week, dilated pupils at times, very fussy, & poor eye

contact-all has happened in last week. His eye contact had gotten to be

pretty consistent.until this last week.

Also I am starting to wean him from the dairy as well-any particular

favorite substitutes for milk anyone can suggest-he is a BIG mild

drinker-requests it all the time.

Thanks again for any suggestions to get us started-I just need to feel

that I am starting to do SOMETHING until I can get a handle on all of

the information.

Shery

Re: Re: Need to get started-wisdom is appreciated

Does someone actually have a primary doctor that has a clue? No one I

know does. Our specialist is excellent, but she is 4 states

away..............-GA

Re: Need to get started-wisdom is appreciated

The things that have benefitted my son most (diet, enzymes, zinc

etc.) were done against doctor's recommendations. It was only after

I went against them and they saw the results that I got their

blessing. I have never seen a DAN doctor but after reading posts on

this and other groups for 2 years, there are few out there that are

good. I feel just jumping into it and watching the results is better

that seeking the advise of a doctor that may not know what he is

talking about.

> Hi everyone,

>

> I have joined this group a few weeks back after meeting a parent

that

> had tremendous success with treating her son's gut issues and have

> learned a tremendous amount from reading all of your postings.and

also

> absorbing all of the research I can late into the night. My son is

4.5

> and I have been giving him the DMG with B12 & Folic Acid from

Kirkmans,

> Coromega from Kirkmans & Super Nu-Thera for quite a while. Not on

any

> diet as of yet.. He has a lot of sleep issues..and of course the

b/m's

> are always inconsistent...from constipation to runny.

>

> He has expressive language-which I attribute to all of his hard

work the

> last 2 yrs in our home program. I want to take his therapy to the

do.

>

> My question to you all is where do I start-do I send off urine/bm's

for

> analysis? Do I find a DAN Dr. first? Questions, Questions! I am

eager to

> begin, but do not want to make mistakes and know your advise will be

> from experience. Thank you in advance for any direction!

>

> Shery

>

July 2, 2003

Another idea is to see if there is a nutritionist in your area that

might be helpful.

.

July 2, 2003

>>>> Thank you all for advice! Is there a certain brand (type)

enzyme you would recommend to start out with first? He has dark

circles under his eyes this week, dilated pupils at times, very

fussy, & poor eye contact-all has happened in last week. His eye

contact had gotten to be pretty consistent.

What does he generally eat? That is a good way to look at enzymes

based on foods eaten. Also, does he have any known yeast or bacteria

problems? Do you know if milk is a problem or are you taking him off

because you want to? Do you know if any fruits are a problem? I ask

because if you know a certain food or problem is an issue, then you

can pick an enzyme product that works on that issue. Generally,

Houston enzymes are considered the very best www.houstonni.com and

are the only ones (the Peptizyde) recommended as effective enough

for use instead of a GFCF diet.

No-Fenol is very good on yeast or phenolic foods, if those are

issues. There tons of broad-spectrum enzyme products. Although Zyme

Prime is good too, Thropps has Ultra-Zyme Plus which is a good broad-

spectrum one that has more fiber digesting enzymes in it (nice price

too and gelatin capsules).

www.throppsnutrition.com

Lypo by Enzymedica is good if you need something for extra fats or a

high fat diet. Enzymedica makes a line without any fillers and

no 'fruity' proteases if you have certain restrictions.

www.enzymedica.com

You might want to run through the basic information on enzymes too.

Here is a link to a step-by-step guide:

http://www.enzymestuff.com/basicsstepbystep.htm

Also look on the left hand side for links to other basic information.

>>>> Also I am starting to wean him from the dairy as well-any

particular favorite substitutes for milk anyone can suggest-he is a

BIG mild drinker-requests it all the time.

If you don't want cow milk, you might do better with goat's milk. If

you are looking for something completely different, the only think

my boys liked was Almond Breeze almond milk chocolate. Some like

Dairy-free which is from potatoes but we didn't like it. Watered

down juice may do or trying to get him to drink just water.

Good luck!

.

July 2, 2003

Hi ,

I know I am going to show my ¡Èrookie¡É status by asking this-please

bear with me-Do you have to have a clinical test in order to determine

if there is a yeast and bacteria problem? OR can you determine by tell -

tell signs in your child?

I have not had a chance to read your book-I had to order on line and it

is enroute by mail-hopefully I will conquer this learning curve much

quicker!