New here and trying to figure this all out....

[Guest guest]

Hello My name is Leah and I have a 10 year old son diagnosed with

Asperger's Syndrome. He's been GFCF for 1 1/2 years and the doctor

recently did a IgG bloodprint and he has developed antibodies

against the following foods: wheat, cheese, bananas, cantaloupe,

kidney beans, lima beans, pinto beans, black and white pepper,

broccoli, cauliflower, cabbage, brussel sprouts, canola, soybean,

corn, green peppers, and rye.

When we were on the GFCF diet we would use enzymes from kirkman labs

to catch trace elements, but with so many allergies I am wondering

which foods enzymes will help with and which ones we need to be more

careful with. Also any ideas about what to feed him would be great

appreciated. The child hates meat and it's really hard to get him to

eat that. He does however like most fruits and vegtables though his

favorites are off the list for now. Also anyone have an idea of how I

can get extra potassium in him since he used to eat bananas to keep

his legs from cramping. Anyone made stirfry w/o soy? What spices did

you use? Anyone know of a margarine that has no corn, soy or dairy in

it? I found a safflour mayo and a palm oil shortening. Only one

potato chip I've found that does not contain corn oil and so far the

only soda I have found w/o corn syrup is Route 66 rootbeer. These

aren't a huge issue since he only has them occasionally, but the

school does have parties at times and wants to know what he can eat.

Any help anyone can give me would be a huge help. Thanks.

Also does anyone chat here? What times EST?

Thanks

Leah

[Guest guest]

I also forgot to mention that my son is currently taking cod liver

oil, magnesium, zinc, calcium, omega 3, and a multi vitamin w/o A & D.

The enzymes we have used to catch trace elements were Enzym Complete

with DPP-IV.

> Hello My name is Leah and I have a 10 year old son diagnosed with

> Asperger's Syndrome. He's been GFCF for 1 1/2 years and the doctor

> recently did a IgG bloodprint and he has developed antibodies

> against the following foods: wheat, cheese, bananas, cantaloupe,

> kidney beans, lima beans, pinto beans, black and white pepper,

> broccoli, cauliflower, cabbage, brussel sprouts, canola, soybean,

> corn, green peppers, and rye.

>

> When we were on the GFCF diet we would use enzymes from kirkman labs

> to catch trace elements, but with so many allergies I am wondering

> which foods enzymes will help with and which ones we need to be more

> careful with. Also any ideas about what to feed him would be great

> appreciated. The child hates meat and it's really hard to get him to

> eat that. He does however like most fruits and vegtables though his

> favorites are off the list for now. Also anyone have an idea of how I

> can get extra potassium in him since he used to eat bananas to keep

> his legs from cramping. Anyone made stirfry w/o soy? What spices did

> you use? Anyone know of a margarine that has no corn, soy or dairy in

> it? I found a safflour mayo and a palm oil shortening. Only one

> potato chip I've found that does not contain corn oil and so far the

> only soda I have found w/o corn syrup is Route 66 rootbeer. These

> aren't a huge issue since he only has them occasionally, but the

> school does have parties at times and wants to know what he can eat.

> Any help anyone can give me would be a huge help. Thanks.

>

> Also does anyone chat here? What times EST?

>

> Thanks

> Leah

[Guest guest]

Hi Leah

I use HNI from www.houstonni.com. They have worked out way cheaper thanthe

diet for us. In general less supps are needed are needed when you are

extablished on them because with proper digestion you get more nutrients from

the food. We have been off diet with HNI for 18 months now, we can use much

less enzyme now I beleive because of active gut healing. enzymes do way more

than just digest the food!

Good luck, keep askign questions!

HTH

Mandi in UK

> Enzymes are fairly new to me. As I metioned before, we had only used

> them to catch trace elements and from what I am reading.....he should

> be taking them with all meals??? How do you afford it? One bottle

> costs me over $50 and if he took them with all meals he'd need about a

> bottle a month. How do I know which are best and how do I know the

> best place to get them? It's all so confusing right now. Help!!

>

> Leah

>

>

[Guest guest]

Hi Leah

My son was off many foods, almost all the ones you listed and more.

We were able to add back most foods using Peptizyde, HN-Zyme Prime

and No-Fenol. I do find that corn syrup is best avoided - we buy

Blue Sky soda pop, which does not have corn syrup and little, if any,

coloring. He does okay with " regular " soda pop, but sometimes we

have behavior problems with it, so I avoid it as much as possible.

Same with nitrates, Fritos, and some artificial additives. My son is

sensitive to phenols, so that's why we added the No-Fenol.

I've found my son is much more interested in different meats since

being on enzymes, and after we added No-Fenol, his general appetite

made a significant leap.

> I also forgot to mention that my son is currently taking cod liver

> oil, magnesium, zinc, calcium, omega 3, and a multi vitamin w/o

A & D.

> The enzymes we have used to catch trace elements were Enzym

Complete

> with DPP-IV.

>

[Guest guest]

In a message dated 1/1/03 11:04:42 pm, ianda67@... writes:

> IgG bloodprint and  he has developed antibodies

> > against the following foods:  wheat, cheese, bananas, cantaloupe,

> > kidney beans, lima beans, pinto beans, black and white pepper,

> > broccoli, cauliflower, cabbage, brussel sprouts, canola, soybean,

> > corn, green peppers, and rye.

>

I don't know anything about the HN enzymes, but isn't it possible that your

son will be able to eat these foods if you supplement with Zyme Prime or

other, similar, enzymes?

Okay, I know I may sound unhelpful here, and I don't mean to be, but

everything I've read about food makes me think that if I were you I'd be

avoiding the potato chips, root beer and margarine (which is probably going

to have hydrogenate fat in it, and anyway even if it were not hydrogenated

you can't heat the stuff without the oil oxidising and becoming, essentially,

rancid) and allow the bananas!

Magnesium might help with leg cramps but I see you are already giving that.

Probably soaked seeds/nuts would do the trick but I'd have to look up to see

which ones are high in potassium. You sound as though you are giving 2 sets

of Omega 3's: CLO and another supplement. It might be too high for him.

If you are going to give high Omega 3 you have to balance it with Omega 6.

I give my son organic, cold pressed sunflower oil off a spoon. The bottle

is kept in the fridge and never sees any light, if I can help it. These

polyunsaturated oils are very unstable, so you have to be careful. If you

want to heat a fat, you need to make sure it is a monosaturated or saturated

fat, like butter. If you can't use butter (sigh), they you can use coconut

oil and olive oil or ghee sometimes.

How nice that your son eats fruits and vegetables (another long sigh).

Marti

[Guest guest]

Enzymes are fairly new to me. As I metioned before, we had only used

them to catch trace elements and from what I am reading.....he should

be taking them with all meals??? How do you afford it? One bottle

costs me over $50 and if he took them with all meals he'd need about a

bottle a month. How do I know which are best and how do I know the

best place to get them? It's all so confusing right now. Help!!

Leah

> > I also forgot to mention that my son is currently taking cod liver

> > oil, magnesium, zinc, calcium, omega 3, and a multi vitamin w/o

> A & D.

> > The enzymes we have used to catch trace elements were Enzym

> Complete

> > with DPP-IV.

> >

[Guest guest]

> Enzymes are fairly new to me. As I metioned before, we had only

used

> them to catch trace elements and from what I am reading.....he

should

> be taking them with all meals???

Depends on which enzymes you use and why you are using them. But in

general, if your child is eating ANY foods which he does not tolerate,

then if you give enzymes with every meal and snack, you will see the

most improvement.

>>How do you afford it?

I use HNI enzymes, which are approximately $20 or so per bottle, or

$60 for bottles of the three enzymes I use. I give one capsule per

meal, divided as 1/2 capsule for #2 and 1/4 capsule for #3 and #4. So

I use one of each enzyme per meal, or 3 per day each. Each bottle

contains 90 capsules, so each bottle lasts me 30 days. So this equals

$60 per month, or about $2 per day.

If I only had one child using enzymes, this amount of money would be

dramatically reduced.

Conversely, one loaf of rice bread costs $4.15, and one loaf of the

bread I am now using costs $1.69. I use one loaf of bread every 2-3

days. So enzymes are approximately twice as much money as the

difference in the breads. If you factor in the cost of other things,

the cost is about even for my family.

But for me, the main reason I use enzymes is that my kids basically

tolerated NO foods without them. But as chelation is progressing,

they are tolerating more and more foods, with less and less enzyme,

and #4 now does not really need enzymes altho I still give her a

little most of the time.

>> One bottle

> costs me over $50 and if he took them with all meals he'd need about

a

> bottle a month.

Do you need to give an entire capsule with each meal? He might do

okay with 1/2 capsule. Which enzymes are these?

> How do I know which are best and how do I know the

> best place to get them?

Here are the two main suppliers.

http://www.houstonni.com/

http://www.kirkmanlabs.com/

Dana

[Guest guest]

My son has been taking the Enzym Complete with DPP-IV from kirkman

labs. These were the ones his doctor recogmended. Are they complete

enough for the foods he is sensitive to?

I am also considering starting my 7 year old daughter on them since

she too shows signs of having a leaky gut. She is by no means as

severe as my son, but she had a milk allergy from milk she was

receiving through breast milk and was failure to thrive at 4 months

because of this (weighing in at 8 lbs 13 oz) She is 7 now and weighs

only 43 pounds. She has never had any dairy, but I do notice her

becoming overheated and irrational when she has wheat. This combined

with some of the school issues ...very high in reading, but failing

math has me a little concerned. Also she has similar speech issues as

my son though her frontal s lisp is not as pronounced as his, she does

still substitute f for th and of coarse there is nothing the schools

will do about this because it is considered developmetally approrpiate

until 8 years old. One more year to wait. Another thing to nore with

my daughter is that when we moved to a new house 4 hours away 2 years

ago she went through a huge depression for 2 years and became very

clingy. She did not come out of it until we moved back to our old

house which we mainly did because my son had a much better experience

with the schools here. The other schools had given him school phobia

in the matter of 2 years. I wonder if I need to have an IgG test for

her or just start her on enzymes.

Leah

> > Enzymes are fairly new to me. As I metioned before, we had only

> used

> > them to catch trace elements and from what I am reading.....he

> should

> > be taking them with all meals???

>

>

> Depends on which enzymes you use and why you are using them. But in

> general, if your child is eating ANY foods which he does not tolerate,

> then if you give enzymes with every meal and snack, you will see the

> most improvement.

>

>

> >>How do you afford it?

>

>

> I use HNI enzymes, which are approximately $20 or so per bottle, or

> $60 for bottles of the three enzymes I use. I give one capsule per

> meal, divided as 1/2 capsule for #2 and 1/4 capsule for #3 and #4. So

> I use one of each enzyme per meal, or 3 per day each. Each bottle

> contains 90 capsules, so each bottle lasts me 30 days. So this equals

> $60 per month, or about $2 per day.

>

> If I only had one child using enzymes, this amount of money would be

> dramatically reduced.

>

> Conversely, one loaf of rice bread costs $4.15, and one loaf of the

> bread I am now using costs $1.69. I use one loaf of bread every 2-3

> days. So enzymes are approximately twice as much money as the

> difference in the breads. If you factor in the cost of other things,

> the cost is about even for my family.

>

> But for me, the main reason I use enzymes is that my kids basically

> tolerated NO foods without them. But as chelation is progressing,

> they are tolerating more and more foods, with less and less enzyme,

> and #4 now does not really need enzymes altho I still give her a

> little most of the time.

>

>

> >> One bottle

> > costs me over $50 and if he took them with all meals he'd need about

> a

> > bottle a month.

>

>

> Do you need to give an entire capsule with each meal? He might do

> okay with 1/2 capsule. Which enzymes are these?

>

>

> > How do I know which are best and how do I know the

> > best place to get them?

>

>

> Here are the two main suppliers.

>

> http://www.houstonni.com/

>

> http://www.kirkmanlabs.com/

>

> Dana

[Guest guest]

OK I suppose I wasn't clear enough. My son rarely eats things like

potato chips and soda. The school however request list of things that

he can have if they have parties and such. He has been a pretty

health eater for the most part all on his own. The genetics test

shows that he should not eat a lot of red meat and he hates it. It

also shows that things like brussel sprouts and broccoli would be

beneficial for him and these are also among his favorite, but now we

have antibodies against those. He wants bananas and he is prone to

getting leg cramps. The hemoglobin test showed that his immune system

is compromised and he also has a lot of the same size blood cells ..

The doctor said that this only means that he could be prone to amenia,

but right now his iron and protien levels are good, but then again he

got a lot of his protien from beans and they are a food he is now

sensitive to.

I am in no way worried about the soda or chips because like I said

they are not something we keep in the house. My daughter would drink

nothing but soda if she had it around though my son doesn't care for

it much at all. I would like to find a margarine mostly because my

husband insists on having it in the house and if it's going to be here

then I would rather have one that is better as opposed to worse.

Before the IgG testing we were using Earth Balance because it was free

from polysaturate fats. I am not sure about heating it since we never

had to do that. My husband would add it on foods like mashed potatoes

and since it melts at room temperature, we never had to heat it. For

cooking, I usually use olive oil and have occasionally used sunflower,

peanut or sesame oil.

We started my son on cod liver oil last April. His doctor just

recently added in the Omega 3 because of his dry skin. He has OCD

hand washing behaviors and will wash his hands for 5 minutes straight.

His wrists and fingers had sores on them and they have gotten better

on the Omega 3. I will also note that when we started the cod liver

oil, he improved tremendously and teachers started asking what I had

done. Grades jusmped from C's and D's to A's and B's. And the speech

teacher asks, " What have you done? When presented with a question he

did not know the answer to, instead of running out of the room and

trying to jump off the banister, he simply says, 'Would you go on to

someone else while I take a minute to think about that.' "

My biggest goal at this moment is to get his gut healed. His doctor

has not mentioned chelation to me as of yet, but my friend who sees

the same doctor says that she will not chelate til the gut is healed.

She has however put him on glutathione cream since his genetics test

showed that 2 of the genes that produce glutathione are damaged. She

was afraid to give it to him in capsule form because of his digestive

tract being all messed up.

So where to from here? I cannot remember if I mentioned that he is

also on probiotics. What else do I need to do to heal his gut?

Thanks in advance,

Leah

>

> In a message dated 1/1/03 11:04:42 pm, ianda67@y... writes:

>

>

> > IgG bloodprint and he has developed antibodies

> > > against the following foods: wheat, cheese, bananas, cantaloupe,

> > > kidney beans, lima beans, pinto beans, black and white pepper,

> > > broccoli, cauliflower, cabbage, brussel sprouts, canola, soybean,

> > > corn, green peppers, and rye.

> >

>

> I don't know anything about the HN enzymes, but isn't it possible

that your

> son will be able to eat these foods if you supplement with Zyme

Prime or

> other, similar, enzymes?

>

> Okay, I know I may sound unhelpful here, and I don't mean to be, but

> everything I've read about food makes me think that if I were you

I'd be

> avoiding the potato chips, root beer and margarine (which is

probably going

> to have hydrogenate fat in it, and anyway even if it were not

hydrogenated

> you can't heat the stuff without the oil oxidising and becoming,

essentially,

> rancid) and allow the bananas!

>

> Magnesium might help with leg cramps but I see you are already

giving that.

> Probably soaked seeds/nuts would do the trick but I'd have to look

up to see

> which ones are high in potassium. You sound as though you are

giving 2 sets

> of Omega 3's: CLO and another supplement. It might be too high

for him.

> If you are going to give high Omega 3 you have to balance it with

Omega 6.

> I give my son organic, cold pressed sunflower oil off a spoon. The

bottle

> is kept in the fridge and never sees any light, if I can help it.

These

> polyunsaturated oils are very unstable, so you have to be careful.

If you

> want to heat a fat, you need to make sure it is a monosaturated or

saturated

> fat, like butter. If you can't use butter (sigh), they you can use

coconut

> oil and olive oil or ghee sometimes.

>

> How nice that your son eats fruits and vegetables (another long

sigh).

>

> Marti

>

>

>

[Guest guest]

> My son has been taking the Enzym Complete with DPP-IV from kirkman

> labs. These were the ones his doctor recogmended. Are they

complete

> enough for the foods he is sensitive to?

You might still need to restrict or eliminate certain foods, depending

on your child. But those enzymes should NOT cost you $50 per bottle,

unless you are buying the economy size [200 capsules for $60]. On the

Kirkman site, it costs $39 for a bottle of 120 or $20 for a bottle of

60.

http://www.kirkmanlabs.com/products/enzymes/enzym_dppiv/Enzym_Complete

_w_DPP_IV_C_60_234.html

>>I wonder if I need to have an IgG test for

> her or just start her on enzymes.

You don't *need* the test, but you can do it if you want.

Dana