ph update

[Guest guest]

Here we are, and isn't it a beautiful day? I can say that. I had a wonderful

night's sleep, a glorious experience at the beach yesterday with my son, and

even more answers for helping him get better. I'm not gloating, just sharing so

if your child is similar to mine perhaps this will help your child too. ph

has been on enzymes for approx. 5 1/2 mo. ph also drinks Ojibwa Tea, takes 1

DMG and was recently put on the antiviral Valtrex. We've tried several more

things, and I've researched hundreds more, but these are what applied to our

situation and what we've kept because they work.

The DMG started the talking we'd get 3-4 word utterances instead of grunts or

the one or two strung together incoherent to anyone but me words. The Ojibwa Tea

and probiotics gave us the social side of ph. Instead of being 3 1/2 and

still only playing side by side other children, he'd attempt to engage others

socially, talked socially, and would shyly momentarily glance at people's faces

( rather than ignore or hide).

Enzymes gave us increased functional concentration, gained weight, improved

immune function ( don't ask me how this is possible, but I know we went from

pale, at only 10% of normal on weight scale, year round antibiotics, not eating,

stimming, sleeplessness, chronic illness that lasted 3-4 weeks at a shot whereby

he'd lose 5-7 precious pounds, tantruming, some return of head banging, self

injury, irrational crying, unsocial, tip toe walking, arm flapping, etc.) To now

he weighs a wonderful 44 pounds at 4 years 9 mo. Has kicked 3 colds, a stomach

flu, and two ear infections all on his own without need of antibiotics. Stims

are almost all gone, I've let him continue the hair twirling (mine) because it

is socially acceptable and calms him, and some spinning ( I know this helps

regulate his central nervous system and lasts only minutes now). He has a

healthy color and is once again social.

I proceeded with the research because despite the improvements, we'd still get

irrational behavior/frustration periods, roller coaster with yeast overgrowth (

we'd treat with GSE) and I wanted the CAUSE. I felt my research pointed to a

viral or bacterial culprit. Took several months but we got into see Dr.

Goldberg. Although my experience with Doctors had not been pleasant up to this

point, I'd read enough about Dr. Goldberg to know that IF ph had a virus or

bacteria as a component to his problems, Dr. Goldberg could help. If not, well,

I'd get some labs done that I wanted, and we'd continue our two steps forward

one step back progress.

ph tests came back with remarkable results. His nutrition intake/absorption

was on the high end of normal, platelets and chem panels normal for the first

time ever. The virus's CMV and others I suspected negative, and Herpes 6 a 40.

Most people show a past exposure of 10-20. Since starting Valtrex (saw initial

adjustment problems, that we'd seen prior with GSE, enzymes, tea, etc.) we have

speech that is " more advanced than many neurotypical children of his age " said

our speech pathologist. The grammatical errors are not there. Socially he is

adapting beautifully. At the beach after the Doctor appt. ph and his father

chased the waves, they encountered some little girls doing the same, ph

approached them, they snubbed him, he shrugged his shoulders and came running

back to where we had originally been playing. We laughed, played tag, and when

it was time to go, after a 5 min. warning and a couple of " this is the last wave

Mommy " we left. No fits, nothing except " How about some Mcs " .

Doctor Goldberg addressed some questions or statements that had been posed by

this group. The first one was " Herpes is a virus that can lay dormant, but not

be killed " . Dr. Goldberg said this is the crux of the whole current

Autism/Gastrointestinal/Immune system issue. He says we've got a whole bunch of

Doctors telling us they don't know exactly what our children have, but that we

can't fix it. Literally writing off hundreds of children's lives. He said the

mentality that says we can't fix this is, comes from many educated

Scientists/Doctors, and so not to be upset when parents rightfully repeat what

they've been told. The problem is these doctors are operating off of knowledge

that is 40 or 50 years old. Not taking into account what is working. Enzymes are

working, anti fungal, and anti viral are working. We are on the cusp of getting

an agent that will fix this, but for right now we are treating in steps. For

ph that means the anti fungal is next, I believe it is called Nyziral. I

can't really read his handwriting, but I'll research this like I do everything

else before I give it to ph. Dr. Goldberg said if this doesn't work we'll

use Difulcan. Again I apologize for the spelling flubs.

My point of the update was to share. Most Doctors sneer at enzymes and

homeopathic remedies that most of us use to get by day to day. I've found a

Doctor who not only is on the same page, but I see, really SEE ph getting

better. I keep asking my husband " am I really seeing this, or what? " . Right now

I can see ph running around in his pajamas with a blanket draped over his

shoulders. He's yelling we've got to find those kittens (he's watching

Aristocats). I asked him if wanted breakfast yet, and he said " not yet " . Thanks

to enzymes and the weight he has gained I don't have to worry about when or how

much he eats. I know that if I go in the kitchen after I'm done on the computer

and make pancakes, he'll wash his hands so he can eat. Like I wrote before, it's

a beautiful day.

[Guest guest]

Thanks for the update!! I am so happy for you and your family! Wonderful news!!

God Bless!,

ph update

Here we are, and isn't it a beautiful day? I can say that. I had a wonderful

night's sleep, a glorious experience at the beach yesterday with my son, and

even more answers for helping him get better. I'm not gloating, just sharing so

if your child is similar to mine perhaps this will help your child too. ph

has been on enzymes for approx. 5 1/2 mo. ph also drinks Ojibwa Tea, takes 1

DMG and was recently put on the antiviral Valtrex. We've tried several more

things, and I've researched hundreds more, but these are what applied to our

situation and what we've kept because they work.

The DMG started the talking we'd get 3-4 word utterances instead of grunts or

the one or two strung together incoherent to anyone but me words. The Ojibwa Tea

and probiotics gave us the social side of ph. Instead of being 3 1/2 and

still only playing side by side other children, he'd attempt to engage others

socially, talked socially, and would shyly momentarily glance at people's faces

( rather than ignore or hide).

Enzymes gave us increased functional concentration, gained weight, improved

immune function ( don't ask me how this is possible, but I know we went from

pale, at only 10% of normal on weight scale, year round antibiotics, not eating,

stimming, sleeplessness, chronic illness that lasted 3-4 weeks at a shot whereby

he'd lose 5-7 precious pounds, tantruming, some return of head banging, self

injury, irrational crying, unsocial, tip toe walking, arm flapping, etc.) To now

he weighs a wonderful 44 pounds at 4 years 9 mo. Has kicked 3 colds, a stomach

flu, and two ear infections all on his own without need of antibiotics. Stims

are almost all gone, I've let him continue the hair twirling (mine) because it

is socially acceptable and calms him, and some spinning ( I know this helps

regulate his central nervous system and lasts only minutes now). He has a

healthy color and is once again social.

I proceeded with the research because despite the improvements, we'd still get

irrational behavior/frustration periods, roller coaster with yeast overgrowth (

we'd treat with GSE) and I wanted the CAUSE. I felt my research pointed to a

viral or bacterial culprit. Took several months but we got into see Dr.

Goldberg. Although my experience with Doctors had not been pleasant up to this

point, I'd read enough about Dr. Goldberg to know that IF ph had a virus or

bacteria as a component to his problems, Dr. Goldberg could help. If not, well,

I'd get some labs done that I wanted, and we'd continue our two steps forward

one step back progress.

ph tests came back with remarkable results. His nutrition intake/absorption

was on the high end of normal, platelets and chem panels normal for the first

time ever. The virus's CMV and others I suspected negative, and Herpes 6 a 40.

Most people show a past exposure of 10-20. Since starting Valtrex (saw initial

adjustment problems, that we'd seen prior with GSE, enzymes, tea, etc.) we have

speech that is " more advanced than many neurotypical children of his age " said

our speech pathologist. The grammatical errors are not there. Socially he is

adapting beautifully. At the beach after the Doctor appt. ph and his father

chased the waves, they encountered some little girls doing the same, ph

approached them, they snubbed him, he shrugged his shoulders and came running

back to where we had originally been playing. We laughed, played tag, and when

it was time to go, after a 5 min. warning and a couple of " this is the last wave

Mommy " we left. No fits, nothing except " How about some Mcs " .

Doctor Goldberg addressed some questions or statements that had been posed by

this group. The first one was " Herpes is a virus that can lay dormant, but not

be killed " . Dr. Goldberg said this is the crux of the whole current

Autism/Gastrointestinal/Immune system issue. He says we've got a whole bunch of

Doctors telling us they don't know exactly what our children have, but that we

can't fix it. Literally writing off hundreds of children's lives. He said the

mentality that says we can't fix this is, comes from many educated

Scientists/Doctors, and so not to be upset when parents rightfully repeat what

they've been told. The problem is these doctors are operating off of knowledge

that is 40 or 50 years old. Not taking into account what is working. Enzymes are

working, anti fungal, and anti viral are working. We are on the cusp of getting

an agent that will fix this, but for right now we are treating in steps. For

ph that means the anti fungal is next, I believe it is called Nyziral. I

can't really read his handwriting, but I'll research this like I do everything

else before I give it to ph. Dr. Goldberg said if this doesn't work we'll

use Difulcan. Again I apologize for the spelling flubs.

My point of the update was to share. Most Doctors sneer at enzymes and

homeopathic remedies that most of us use to get by day to day. I've found a

Doctor who not only is on the same page, but I see, really SEE ph getting

better. I keep asking my husband " am I really seeing this, or what? " . Right now

I can see ph running around in his pajamas with a blanket draped over his

shoulders. He's yelling we've got to find those kittens (he's watching

Aristocats). I asked him if wanted breakfast yet, and he said " not yet " . Thanks

to enzymes and the weight he has gained I don't have to worry about when or how

much he eats. I know that if I go in the kitchen after I'm done on the computer

and make pancakes, he'll wash his hands so he can eat. Like I wrote before, it's

a beautiful day.

[Guest guest]

...this is GREAT NEWS!!! Great, great, GREAT!.

So just brag away. Bragging is good! I love this group because this

is where the tons 'o good news is at. The Good News Group. LOL.

Congratulations!

.

[Guest guest]

, I have been reading about your treatments and research for

ph for months now and have had my fingers crossed that Dr.

Goldberg would be able to help. I am just thrilled ph is

responding so well -- I remember early on with the Valtrex you were a

bit nervous about the die-off. This is just fabulous news. You are

doing a wonderful job for your son!

> Here we are, and isn't it a beautiful day?

[Guest guest]

In a message dated 8/12/03 4:57:35 PM Eastern Daylight Time,

amattson@... writes:

> then blisters in his mouth and fever, lethargy, lack of appetite and

> generally felt " sick

So sorry, . It's bad enough when your child is sick like that, so much

worse to lose faith in the doctor you thought was going to help.

Have you tried OTC antivirals? I just loaded up on all kinds of stuff, just

going through them one by one, hoping to beat away the yeast, but I suspect

some sort of virus too. We have the roller coaster thing going here too, so I

keep telling myself at least now we have the good periods.

You're working hard. You and ph will get there.

Nell

[Guest guest]

Thank You, what does OTC stand for?

Re: ph Update

In a message dated 8/12/03 4:57:35 PM Eastern Daylight Time,

amattson@... writes:

> then blisters in his mouth and fever, lethargy, lack of appetite and

> generally felt " sick

So sorry, . It's bad enough when your child is sick like that, so much

worse to lose faith in the doctor you thought was going to help.

Have you tried OTC antivirals? I just loaded up on all kinds of stuff, just

going through them one by one, hoping to beat away the yeast, but I suspect

some sort of virus too. We have the roller coaster thing going here too, so I

keep telling myself at least now we have the good periods.

You're working hard. You and ph will get there.

Nell

[Guest guest]

over the counter

Re: ph Update

In a message dated 8/12/03 4:57:35 PM Eastern Daylight Time,

amattson@... writes:

> then blisters in his mouth and fever, lethargy, lack of appetite and

> generally felt " sick

So sorry, . It's bad enough when your child is sick like that, so much

worse to lose faith in the doctor you thought was going to help.

Have you tried OTC antivirals? I just loaded up on all kinds of stuff, just

going through them one by one, hoping to beat away the yeast, but I suspect

some sort of virus too. We have the roller coaster thing going here too, so

I

keep telling myself at least now we have the good periods.

You're working hard. You and ph will get there.

Nell