Re: Round 26 Update! & chelation question

[Guest guest]

Hi

Andy Cutler beleives that most, if not all, Heavy Metal Toxic kids may

benefit from chelation. Here in Uk we don't have Drs with this kind of

knowledge, DIY is the only way to go. Basing treatment on improvement or

otherwise, rather than expensive testing is his leaning in this situation.

We do manage to get basic blood monitoring on the NHS here and I have done

some testing which I pay (alot) for urine and stool metals, those tests are

done at Great Smokies (urine) and Doctors Data for Fecal metals both in the

US, we don't even have labs in the UK that do that type of testing!

His book is excellent place to start as are the extensive files sectiuon at

Autism Mercury group. Learning about chelation is WAY more tricky than

actually doing it but essential in my oprinion, Dr or no Dr. There are many

protocols out there, some down right dangerous:(

Andy answers lots of queries and questions, his answers are usually short and

sweet and if you have a willing but inexpereinced practitioner Andy Cutler

with do consults with your practitioner and personally review the notes and

stuff.

Starting with the files section at the group is a great place to start, the

DDI hair test - details in files section, will give you a good idea as to

whether this may be a problem for your child - be sure to understand that No

mercury on hair tests DOES NOT mean no mercury in the child. The hair test

looks for the PROBLEMS Mercury would cause. Good luck, keep asking questions,

my rule is if in doubt SHOUT!

MAndi in UK

> A question for those of you chelating and on Andy Cutler's listserv (I

> should just join but I have enough trouble keeping up with the emails on

> this list!)

>

> Does Andy believe or advise that chelation--even with his slower 4 hour

> protocol--should only be done under a dr's supervision? And are there

> those doing his protocol without the benefit of regular blood/urine testing

> and just looking for obvious improvements?

>

> thanks,

>

>

>

[Guest guest]

A question for those of you chelating and on Andy Cutler's listserv (I should

just join but I have enough trouble keeping up with the emails on this list!)

Does Andy believe or advise that chelation--even with his slower 4 hour

protocol--should only be done under a dr's supervision? And are there those

doing his protocol without the benefit of regular blood/urine testing and just

looking for obvious improvements?

thanks,

[Guest guest]

> Does Andy believe or advise that chelation--even with his slower 4 hour

protocol--should only be done under a dr's supervision?

No way!

Only if YOU don't feel confident, if you don't think you understand all the

things that you need to understand about chelation.

> And are there those doing his protocol without the benefit of regular

blood/urine testing and just looking for obvious improvements?

Many people do this.

I am one of them. Never tested. My son had LOTS of improvements. We chelated for

a year, without a doctor.

Valentina

[Guest guest]

>

> Does Andy believe or advise that chelation--even with his slower 4

hour protocol--should only be done under a dr's supervision?

He has said on multiple occasions that if the parent feels

comfortable, there are sufficient resources to obtain testing and the

DMSA without the aide of a doctor. The other thing that was brought

up, is that no matter how the process is administered, by doctor or

parent, someone must observe reactions and issues during the

chelation process.

And are there those doing his protocol without the benefit of

regular blood/urine testing and just looking for obvious improvements?

>

You can obtain urine/stool/hair testing without a doctor, but the

more remarkable thing is not what a test tells you, but what you see

with your heart. Your child slowly coming back to you from the land

of the lost. The person you knew before...returns. We do have

hair tests run, for documentation sake, but most people who know

Kolin before and see him now can tell the difference. The phrase I

hear most often is. " It's a miracle. " No, just hard work.

Thanks,

> thanks,

>

>

[Guest guest]

> A question for those of you chelating and on Andy Cutler's listserv

(I should just join but I have enough trouble keeping up with the

emails on this list!)

You can read the files and the message archives without joining.

Or you can join and just select web-only.

>

> Does Andy believe or advise that chelation--even with his slower 4

hour protocol--should only be done under a dr's supervision?

No, and in fact he sometimes advocates doing it without a doctor

because he does not agree with most doctors' protocols.

>>And are

there those doing his protocol without the benefit of regular

blood/urine testing and just looking for obvious improvements?

I am one of those. We have completed 51 rounds here and I have done

no testing and I have never discussed any of it with a doctor.

Good luck.

Dana

[Guest guest]

> valentina

did you use DMSA or ALA only?

Karyn

> From: Valentina Scharpf <val@...>

> Date: 2003/01/02 Thu AM 12:23:52 EST

>

> Subject: Re: Round 26 Update! & chelation question

>

>

[Guest guest]

Hi

We are using DMSA and ALA both at 25mg per dose, 3 hourly round the clock

3days on 11 off. Sam can handle 3 on 4 off but I can't LOL.

Andy Cutlers protocol (which I do) is 1/4 - 1/2 mg per pound of child per

dose, given every 3 hours with 4 hour space at night if you need it (if you

use ALA) or every 4 hours including at night for DMSA only. Low steady dosing

reduces risk of side effects and keep a steady blood level of the chelators.

I was very scared when we started, my hand was shaking like a leaf just

ordering the DMSA LOL but once the first round was over and done, I felt

better. Had some big dumps of Lead and Arsenic on the last 2 tests and saw

our first Mercury coming out - that makes it much easier to get up at night

HTH

Mandi in UK

Mandii, what is your protocol for your child? and how long have you been

>

> chelating?

> Cheers mary H

>

[Guest guest]

> did you use DMSA or ALA only?

I used ALA-only at the beginning, for about 5-6 months. After that I added

DMSA. Chelation seemed to go faster with both, but adding DMSA brought some

problems too, which I took care of, still without a doctor. My kid is doing

very well, and last night I checked again that ATEC list... He is DEFINITELY

not autistic anymore. He only has a language/communication problem now.

Good luck!

Valentina

[Guest guest]

He is DEFINITELY

not autistic anymore. He only has a language/communication problem now

That is wonderful, Valentina!!! Horray for you and for him!! Can I

just ask, though-most of what I read said DMSA first to rid metals

from body then ALA for brain. Why did you do it the other way? Thanks.

---

In , Valentina Scharpf <val@t...>

wrote:

> > did you use DMSA or ALA only?

>

> I used ALA-only at the beginning, for about 5-6 months. After that

I added

> DMSA. Chelation seemed to go faster with both, but adding DMSA

brought some

> problems too, which I took care of, still without a doctor. My kid

is doing

> very well, and last night I checked again that ATEC list... He is

DEFINITELY

> not autistic anymore. He only has a language/communication problem

now.

> Good luck!

>

>

> Valentina

[Guest guest]

Mandii, what is your protocol for your child? and how long have you been

chelating?

Cheers mary H

Re: Round 26 Update! & chelation question

> Hi

> Andy Cutler beleives that most, if not all, Heavy Metal Toxic kids may

> benefit from chelation. Here in Uk we don't have Drs with this kind of

> knowledge, DIY is the only way to go. Basing treatment on improvement or

> otherwise, rather than expensive testing is his leaning in this

situation.

> We do manage to get basic blood monitoring on the NHS here and I have done

> some testing which I pay (alot) for urine and stool metals, those tests

are

> done at Great Smokies (urine) and Doctors Data for Fecal metals both in

the

> US, we don't even have labs in the UK that do that type of testing!

>

> His book is excellent place to start as are the extensive files sectiuon

at

> Autism Mercury group. Learning about chelation is WAY more tricky than

> actually doing it but essential in my oprinion, Dr or no Dr. There are

many

> protocols out there, some down right dangerous:(

>

> Andy answers lots of queries and questions, his answers are usually short

and

> sweet and if you have a willing but inexpereinced practitioner Andy Cutler

> with do consults with your practitioner and personally review the notes

and

> stuff.

>

> Starting with the files section at the group is a great place to start,

the

> DDI hair test - details in files section, will give you a good idea as to

> whether this may be a problem for your child - be sure to understand that

No

> mercury on hair tests DOES NOT mean no mercury in the child. The hair test

> looks for the PROBLEMS Mercury would cause. Good luck, keep asking

questions,

> my rule is if in doubt SHOUT!

> MAndi in UK

>

> > A question for those of you chelating and on Andy Cutler's listserv (I

> > should just join but I have enough trouble keeping up with the emails on

> > this list!)

> >

> > Does Andy believe or advise that chelation--even with his slower 4 hour

> > protocol--should only be done under a dr's supervision? And are there

> > those doing his protocol without the benefit of regular blood/urine

testing

> > and just looking for obvious improvements?

> >

> > thanks,

> >

> >

> >

>

>

>

>

[Guest guest]

> Can I

> just ask, though-most of what I read said DMSA first to rid metals

> from body then ALA for brain. Why did you do it the other way? Thanks.

Hi ,

I hope you don't mind if I will just copy a message that I just wrote for

somebody else on the autism treatment list who (kind of) asked the same

question.

So here it is:

When I started, I had three reasons to start with ALA. First, I was really

scared about chelation, so my " theory " was (the usual one) that ALA is

natural, not a drug, our body is already producing it... blah blah blah... it

should be less dangerous.

Second, I didn't have a doctor to prescribe DMSA, and even if I had one, I

was

in a country where DMSA is non-existent

Third, when I first found out about chelation, after I read about it and knew

what I have to do, all I wanted to do was - chelate! I was desperate! I

didn't

want to lose one more minute. So I just got the ALA and started and worried

about DMSA later.

I am not sure, but it seems to me that people who start with ALA-only (not

too

many, but most of the ones who do) have less problems with yeast, later.

Oh! there was another reason ) DMSA was waaaaaaaay to expensive for me.

Valentina

Also, I want to add that ALA is not chelating metals *only* from the brain.

It does it actually much better than DMSA in the body too. So no problem. ALA

does seem to be " better " technically

Valentina