Re: Day 17 update -- sorry, kinda long

[Guest guest]

, I'm only brand new to enzymes but I thought that I'd throw in my

opinion anyway. Would it be possible to give him 1/4 capsule and if he eats

a large amount give him a further 1/4 capsule?

Debbie

Day 17 update -- sorry, kinda long

Just thought I'd drop a quick line and let you know our progress and

challenges since we started AFP Pep 17 days ago.

Progress: DS SPOKE HIS FIRST NEW WORD IN 16 MONTHS -- " down. " He

learned two new body parts, mouth and ears. He learned to

sign " more " during ABA on Thursday. He sits and colors and reads,

quietly, contentedly. He holds my hand while we walk across parking

lots to ice-cream parlors, parks, grocery stores. He rode for the

first time in one of those little car-carts at the grocery store (he

has NEVER entered an enclosed space). Two days ago his ABA

programmer asked if we had started him " on that dairy- and wheat-free

diet, " she thought he was doing so well during his sessions. When we

visited our new ped. shortly after beginning AFP, the nurse commented

on how much more calm and happy he seemed since his first visit.

Often poos are more formed and more brown that bright orange or

yellow. DH remains amazed.

Challenges: Has anyone had this happen??? He is rejecting almost

all food! DS is a big 28-month-old -- off the charts in height and

almost 34 lbs. Eating has NEVER been a problem, though his diet has

consisted of 12 foods for the past 14 months. I've never really

worried cuz they range from banana and yogurt to oatmeal and chicken

and pizza... Now all he wants is toast, pretzels, cheese crackers.

Tonight he even rejected french fries! I wrote about this before,

but he almost seems mad at his food. He'll squeeze it angrily before

throwing it across the room. (Oh yeah -- he's also learned to

throw!) I've noticed that if I give him his 1/2 cap but then he

doesn't really eat, it's bad news. He's moody and only wants to

watch TV. If he eats a lot after the AFP, he's fine.

The second problem is HEAD-BANGING. It's really increased, despite

the progress. It almost seems opposite of what should be happening.

It happens the most during those times that he gets the AFP but

doesn't eat much. Really not sure how to handle this -- and it

happens to be happening right this instant.

Thanks everyone for your continued guidance and support.

[Guest guest]

> Would it be possible to give him 1/4 capsule and if he eats

> a large amount give him a further 1/4 capsule?

> Debbie

Yes, certainly. You'd think I'd have tried that by now, wouldn't

you!? I'll start at breakfast tomorrow. Thanks for that idea.

[Guest guest]

You are most welcome

Debbie

Re: Day 17 update -- sorry, kinda long

> Would it be possible to give him 1/4 capsule and if he eats

> a large amount give him a further 1/4 capsule?

> Debbie

Yes, certainly. You'd think I'd have tried that by now, wouldn't

you!? I'll start at breakfast tomorrow. Thanks for that idea.

[Guest guest]

>

> Challenges: Has anyone had this happen??? He is rejecting almost

> all food! .... (snipped) Now all he wants is toast, pretzels,

cheese crackers.

> Tonight he even rejected french fries! I wrote about this before,

> but he almost seems mad at his food. He'll squeeze it angrily

before

> throwing it across the room. (Oh yeah -- he's also learned to

> throw!)

it seems that he is intuitively understanding what he is " missing " ...

the morphine-like effect the gluten was giving him. he knows which

foods are 'supposed " to give him this, but (to him) for some strange

reason its not working anymore...

ofcourse he is angry at those crackers and toast... )

day 17... you are close to the " end " of the typical withdrawl

period.... seems people speak of approx. 3 weeks being the timeframe.

maybe see what happens in another two weeks... if this continues.

sorry, dont know what to tell you about the headbanging. hopefully

some of the more experienced/creative members here will post soon.

minna

[Guest guest]

The good news is great!

About the headbanging, it could be withdrawal, but I am also

wondering if he is on anything with B6 vitamins? If so, consider

reducing or dropping the B vitamins because now that he is getting B

vitamins from increased absorption of food, adding more on top of

that can be too much.

If the headbanging continues, I would call Devin. I'm wondering if

there is an intolerance to something in the enzymes. Even if it is

withdrawal, I would NOT want to wait that out and would consider

reducing the enzyme dose for awhile before building back up slowly.

> Just thought I'd drop a quick line and let you know our progress

and

> challenges since we started AFP Pep 17 days ago.

>

> Progress: DS SPOKE HIS FIRST NEW WORD IN 16 MONTHS -- " down. " He

> learned two new body parts, mouth and ears. He learned to

[Guest guest]

Progress: DS SPOKE HIS FIRST NEW WORD IN 16 MONTHS -- " down. " He

learned two new body parts, mouth and ears. He learned to

sign " more " during ABA on Thursday. He sits and colors and reads,

quietly, contentedly. He holds my hand while we walk across parking

lots to ice-cream parlors, parks, grocery stores. He rode for the

first time in one of those little car-carts at the grocery store (he

has NEVER entered an enclosed space). Two days ago his ABA

programmer asked if we had started him " on that dairy- and wheat-free

diet, " she thought he was doing so well during his sessions. When we

visited our new ped. shortly after beginning AFP, the nurse commented

on how much more calm and happy he seemed since his first visit.

Often poos are more formed and more brown that bright orange or

yellow. DH remains amazed.

This is wonderful. I am so happy for you.

Challenges: Has anyone had this happen??? He is rejecting almost

all food! DS is a big 28-month-old -- off the charts in height and

almost 34 lbs. Eating has NEVER been a problem,

Did you read happen to read 's book? If you are underweight you seem to

gain weight on the enzymes, if you are over you lose weight and if you are right

on you stay.

Now all he wants is toast, pretzels, cheese crackers.

Tonight he even rejected french fries!

Did you happen to notice these are all the same types of foods,

starches/flours/casein?

I wrote about this before,

but he almost seems mad at his food. He'll squeeze it angrily before

throwing it across the room. (Oh yeah -- he's also learned to

throw!) I've noticed that if I give him his 1/2 cap but then he

doesn't really eat, it's bad news. He's moody and only wants to

watch TV. If he eats a lot after the AFP, he's fine.

Sounds like he is having a hard time with die-off, could be bacterial or yeast

or viral maybe?

The second problem is HEAD-BANGING.

This is kind of scary for us. I don't ever want to see the head banging

return. Dr. Goldberg said it means it is a viral problem.

The Ojibwa Tea seemed to benefit my son with the die-off. No more head

banging. Even if Dr. Goldberg is correct with the " viral " theory the Ojibwa Tea

still makes sense because it is a gentle slow killer of viral and bacterial

bugs.

[Guest guest]

> Did you read happen to read 's book? If you are underweight

you seem to gain weight on the enzymes, if you are over you lose

weight and if you are right on you stay.

Yeah, I understand that, but geez, can he really be eating so

little? I know my friends' kids sometimes exist on air it seems, I'm

just not used to dealing with it...

> Now all he wants is toast, pretzels, cheese crackers.

> Tonight he even rejected french fries!

>

> Did you happen to notice these are all the same types of foods,

starches/flours/casein?

Yes, I have. What does that mean? Is he trying to feed the yeast,

maybe? Increase his chances of of having the opoid reaction? (I

realize you may not be able to answer that...)

> The second problem is HEAD-BANGING.

>

> This is kind of scary for us. I don't ever want to see the head

banging return. Dr. Goldberg said it means it is a viral problem.

>

> The Ojibwa Tea seemed to benefit my son with the die-off. No

more head banging. Even if Dr. Goldberg is correct with the " viral "

theory the Ojibwa Tea still makes sense because it is a gentle slow

killer of viral and bacterial bugs.

Thanks. I still have the phone number you provided for Ojibwa Tea.

Will call on Tuesday. Sorry I can't remember -- did you see any side

effects from the tea?

[Guest guest]

>I am also

> wondering if he is on anything with B6 vitamins? If so, consider

> reducing or dropping the B vitamins because now that he is getting

B

> vitamins from increased absorption of food, adding more on top of

> that can be too much.

No B's here.

> If the headbanging continues, I would call Devin. I'm wondering if

> there is an intolerance to something in the enzymes. Even if it is

> withdrawal, I would NOT want to wait that out and would consider

> reducing the enzyme dose for awhile before building back up slowly.

Thanks, . I think I will.

[Guest guest]

> it seems that he is intuitively understanding what he

is " missing " ...

> the morphine-like effect the gluten was giving him. he knows which

> foods are 'supposed " to give him this, but (to him) for some

strange

> reason its not working anymore...

> ofcourse he is angry at those crackers and toast... )

This feels right to me.

>

> day 17... you are close to the " end " of the typical withdrawl

> period.... seems people speak of approx. 3 weeks being the

timeframe.

>

> maybe see what happens in another two weeks... if this continues.

Thanks for your help.

[Guest guest]

> Challenges: Has anyone had this happen??? He is rejecting almost

> all food!

My son never rejected ANY food item until he started tolerating foods.

Now he is a typical picky kids, won't eat his vegetables LOL. He was

also a very large toddler. Now he is very slender but VERY STRONG!

I've noticed that if I give him his 1/2 cap but then he

> doesn't really eat, it's bad news. He's moody and only wants to

> watch TV. If he eats a lot after the AFP, he's fine.

>

> The second problem is HEAD-BANGING. It's really increased, despite

> the progress. It almost seems opposite of what should be happening.

> It happens the most during those times that he gets the AFP but

> doesn't eat much.

A few people have reported that Peptizyde helps with yeast control.

Could he have a yeast issue?

I would recommend you reduce the dose to 1/4 capsule. Do you give it

with all meals and snacks?

Dana

[Guest guest]

I really can't speak to the bread issue, an old part of me believes the opiod

effect theory of food, especially because my son did act like he was on drugs

when he ate regular gluten foods, however another part of me thinks that the

bacterial/viral/yeast possibilities are too large to ignore. With the tea, all I

can remember are acne, for myself, chicken skin for my son and lots of peeing.

Body is processing a lot of toxins out. The acne and chicken skin went away

completely, but I had to read up on it and realize that the skin is the body's

first way of purging toxins. Dosing is really important on the tea, I started

with one tablespoon tea to 2 tablespoons water at first. Now he gets 2

tablespoons tea to 4 tablespoons water. I've heard some unhappy stories of

giving kids straight tea ( these kids are so tired of taking stuff that

sometimes they refuse anything they think is medicine). So be sure to mix with

water or even pear juice if you have to. Good luck.

Re: Day 17 update -- sorry, kinda long

> Did you read happen to read 's book? If you are underweight

you seem to gain weight on the enzymes, if you are over you lose

weight and if you are right on you stay.

Yeah, I understand that, but geez, can he really be eating so

little? I know my friends' kids sometimes exist on air it seems, I'm

just not used to dealing with it...

> Now all he wants is toast, pretzels, cheese crackers.

> Tonight he even rejected french fries!

>

> Did you happen to notice these are all the same types of foods,

starches/flours/casein?

Yes, I have. What does that mean? Is he trying to feed the yeast,

maybe? Increase his chances of of having the opoid reaction? (I

realize you may not be able to answer that...)

> The second problem is HEAD-BANGING.

>

> This is kind of scary for us. I don't ever want to see the head

banging return. Dr. Goldberg said it means it is a viral problem.

>

> The Ojibwa Tea seemed to benefit my son with the die-off. No

more head banging. Even if Dr. Goldberg is correct with the " viral "

theory the Ojibwa Tea still makes sense because it is a gentle slow

killer of viral and bacterial bugs.

Thanks. I still have the phone number you provided for Ojibwa Tea.

Will call on Tuesday. Sorry I can't remember -- did you see any side

effects from the tea?

[Guest guest]

Thanks.

> I really can't speak to the bread issue, an old part of me believes

the opiod effect theory of food, especially because my son did act

like he was on drugs when he ate regular gluten foods, however

another part of me thinks that the bacterial/viral/yeast

possibilities are too large to ignore. With the tea, all I can

remember are acne, for myself, chicken skin for my son and lots of

peeing. Body is processing a lot of toxins out. The acne and chicken

skin went away completely, but I had to read up on it and realize

that the skin is the body's first way of purging toxins. Dosing is

really important on the tea, I started with one tablespoon tea to 2

tablespoons water at first. Now he gets 2 tablespoons tea to 4

tablespoons water. I've heard some unhappy stories of giving kids

straight tea ( these kids are so tired of taking stuff that sometimes

they refuse anything they think is medicine). So be sure to mix with

water or even pear juice if you have to. Good luck.