Re: Supplement question or 2 or 3

[Guest guest]

Hi

> This is one of those " gee I don't know what to do " questions. I have been

> reading this board and others for a while and have see so many supplements

> that work for others that I just don't know which to use.

|>>>Well you are now a fully paid member of the confusion club LOL We've all

been there and some of us still are

So far is on ZP and Pep and it seems to be helping some, his BMs are

not

> little rabbit pellets anymore and he seems more aware (he started center

> based ABA at the same time).

>>>>Good choice!

He is on EFA grain based but I was told that fish based is better.

>>>>Do you mean Flax? Yes, fish oils (high quality no contamination with

heavy metals) are generallly preferred if your child can tolerate them and you

can

get him to take them. This is because it doesn't need help from the body to

convert in to useful form. Flax requires an enzyme (not one of Devins LOL)

produced by the body to convert it to EPA/DHA I can't remember which, and many

of

our kids can't make the conversion. I use Eye Q made in UK (tested clean)

which is a 4:1 balanced mix of fish and evening primrose oil. www.equazen.com.

Frequently recommended fish oils include Kirkman and Nordic brands.

The things I would

> like to try are:

> DMG or TMG ( I do not understand the difference)

>

>>>Basically, Trimethylglycine (TMG) is Dimethylglycine (DMG) with one more

methyl group. The chemical structure of TMG is therefore is actually a glycine

molecule holding onto three methyl groups, so like DMG, TMG is considered a

" methyl donor " or methyl " bank " . The additional methyl group actually makes TMG

a more active methyl donor than DMG which is a benefit in some individuals.

TMG can support the formation of methionine by methylating homocysteine. Some of

this methionine eventually is converted into SAMe (S-adenosylmthionine),

which can help maintain healthy seratonin levels in the body and support mood

and

well-being. As with DMG, TMG in the body, with the help of a coenzyme of

riboflavin, supplies methyl groups which attach to folic acid to form methylene

tetrahydrofolate, an important component of many biochemical processes in the

body including cellular perception and response. (Cut and paste from Kirkman

site)

Carnosine

>>>Haven't tried it (yet)

Super Nu

>>>Some find it helpful, Sam hated the taste and it made him hyper If you

decide to try this one I would recommend you get a sample size first. The HNI

enzymes will be helping your lad digest and absorb the nutrients in his food

so high dose supps like this one can be problematic, especially with those

sensitive to phenols.

Owiwiga Tea (spelling?)

>>>Ojibwa - I wasn't very good at brewing this Never got round to trying

it on Sam but I switched to the tincture and use it myself. I do feel better

since taking it but hard to describe. After a succession of coughs and colds I

haven't had one since I've been using the Tea. The tincture is not recommneded

for children due to the alcohol content. www.ojibwa.com

> GFSE

> >>>> Good strong stuff, works well, cheap, tastes YUK! Can be problematic

for those with phenol issues and can cause swift die off reaction. I use this

along with No Fenol WHEN we need it.

NP

> >>>>Unique, a must have in this house. Can be tricky when starting out,

> highly recommended. NP is an essential part of our on going yeast protocol

>

> Am I just looking for a cure?

>>>I don't know, I used to be, now I'm just looking to get my child HEALTHY

so he is able to function to best of his ability

Is it nuts to try to many things?

>>>Only if you try them all at once! Nearly 4 years now I been 'trying'

things and there is still more on the shopping list LOL. Would have saved heaps

of

dosh if HNI had been available back then.............

How do you know which things work?

>>>Observation mostly, trying things one at a time to ensure they are

tolerated and keeping a good journal of what happened and when. Might not seem

too

relevant when you write it down but could be that 'ah ha' moment a few weeks or

months later. Keep reading, other parents and carers are best source of info

on what reactions might occur, timings, combinations and syptoms. I am very

proud to announce that after nearly 4 years of confusion, I think I can spot

yeast v phenol reaction now LOL (at least in Sam).

What kind of

> data should I keep?

>>>Any type you can rember to write in. I use computer file (don;t forget

regular backups). Foods, drinks, behaviours, bowels, sleep patterns is how I

started out, making a note of the time of day is useful in our case.

I know this is a lot of questions and I am not trying to start a debate, I

just value the

> input from this list.

>

>>>>Keep asking questions as much as you like, it won;t be long before you

can jump in and help others too

HTH

Mandi in UK

[Guest guest]

> DMG or TMG ( I do not understand the difference)

These help with behaviors and language for some kids. Some tolerate

one better than the other. My kids did not tolerate TMG, very nasty

reaction. I did not try DMG.

> Carnosine

Can help with language and focus issues. Helped my son with remaining

visual stims.

> Super Nu

Helpful for behaviors and focus. Generally not good if your child has

phenol problems.

> Owiwiga Tea (spelling?)

I think this can help with yeast.

> GFSE

Definitely helps with yeast. Can aggravate bad bacteria once yeast is

gone.

> NP

I don't know what this is.

>

> Am I just looking for a cure?

Aren't most of us looking for cure and/or something to HELP our kids?

>> Is it nuts to try to many things?

Yes, if you start them all at once. If you start them at low dose and

one at a time, not nuts.

>> How do you know which things work?

Watch your child.

>> What kind of data should I keep?

A journal is good. Write the supplement and dose, other things he ate

the same day, bms, behaviors, etc.

Dana

[Guest guest]

Dana,

Thanks for the great advise. I got a chance to read some of your website last

night, great information and uplifting stories!!

>>>>> NP

I don't know what this is.<<<<<

I meant No Phenol so NF, good thing I am an accountant and don't have to spell

too much LOL.

Again thanks

Re: Supplement question or 2 or 3

> DMG or TMG ( I do not understand the difference)

These help with behaviors and language for some kids. Some tolerate

one better than the other. My kids did not tolerate TMG, very nasty

reaction. I did not try DMG.

> Carnosine

Can help with language and focus issues. Helped my son with remaining

visual stims.

> Super Nu

Helpful for behaviors and focus. Generally not good if your child has

phenol problems.

> Owiwiga Tea (spelling?)

I think this can help with yeast.

> GFSE

Definitely helps with yeast. Can aggravate bad bacteria once yeast is

gone.

> NP

I don't know what this is.

>

> Am I just looking for a cure?

Aren't most of us looking for cure and/or something to HELP our kids?

>> Is it nuts to try to many things?

Yes, if you start them all at once. If you start them at low dose and

one at a time, not nuts.

>> How do you know which things work?

Watch your child.

>> What kind of data should I keep?

A journal is good. Write the supplement and dose, other things he ate

the same day, bms, behaviors, etc.

Dana

[Guest guest]

Mandi

WOW you know so much!! I can only hope to have so much knowledge on this

important topic! Thanks so much for taking the time to answer

>>Do you mean Flax<< Yes it is Flax and something else, the owner at the local

HFS recommend Comega (I think it is called) with fish oil but I haven't tried it

yet.

So it TMG basically an improvement over DMG?

I will start keeping a journal on the computer so it is easier to compile. I

have made some written notes but its not always easy to get a snapshot of the

situation.

Thanks for letting me be a member of the confused club!!

Warm Regards

Re: Supplement question or 2 or 3

Hi

> This is one of those " gee I don't know what to do " questions. I have been

> reading this board and others for a while and have see so many supplements

> that work for others that I just don't know which to use.

|>>>Well you are now a fully paid member of the confusion club LOL We've all

been there and some of us still are

So far is on ZP and Pep and it seems to be helping some, his BMs are

not

> little rabbit pellets anymore and he seems more aware (he started center

> based ABA at the same time).

>>>>Good choice!

He is on EFA grain based but I was told that fish based is better.

>>>>Do you mean Flax? Yes, fish oils (high quality no contamination with

heavy metals) are generallly preferred if your child can tolerate them and you

can

get him to take them. This is because it doesn't need help from the body to

convert in to useful form. Flax requires an enzyme (not one of Devins LOL)

produced by the body to convert it to EPA/DHA I can't remember which, and many

of

our kids can't make the conversion. I use Eye Q made in UK (tested clean)

which is a 4:1 balanced mix of fish and evening primrose oil. www.equazen.com.

Frequently recommended fish oils include Kirkman and Nordic brands.

The things I would

> like to try are:

> DMG or TMG ( I do not understand the difference)

>

>>>Basically, Trimethylglycine (TMG) is Dimethylglycine (DMG) with one more

methyl group. The chemical structure of TMG is therefore is actually a glycine

molecule holding onto three methyl groups, so like DMG, TMG is considered a

" methyl donor " or methyl " bank " . The additional methyl group actually makes

TMG

a more active methyl donor than DMG which is a benefit in some individuals.

TMG can support the formation of methionine by methylating homocysteine. Some

of

this methionine eventually is converted into SAMe (S-adenosylmthionine),

which can help maintain healthy seratonin levels in the body and support mood

and

well-being. As with DMG, TMG in the body, with the help of a coenzyme of

riboflavin, supplies methyl groups which attach to folic acid to form

methylene

tetrahydrofolate, an important component of many biochemical processes in the

body including cellular perception and response. (Cut and paste from Kirkman

site)

Carnosine

>>>Haven't tried it (yet)

Super Nu

>>>Some find it helpful, Sam hated the taste and it made him hyper If you

decide to try this one I would recommend you get a sample size first. The HNI

enzymes will be helping your lad digest and absorb the nutrients in his food

so high dose supps like this one can be problematic, especially with those

sensitive to phenols.

Owiwiga Tea (spelling?)

>>>Ojibwa - I wasn't very good at brewing this Never got round to trying

it on Sam but I switched to the tincture and use it myself. I do feel better

since taking it but hard to describe. After a succession of coughs and colds I

haven't had one since I've been using the Tea. The tincture is not recommneded

for children due to the alcohol content. www.ojibwa.com

> GFSE

> >>>> Good strong stuff, works well, cheap, tastes YUK! Can be problematic

for those with phenol issues and can cause swift die off reaction. I use this

along with No Fenol WHEN we need it.

NP

> >>>>Unique, a must have in this house. Can be tricky when starting out,

> highly recommended. NP is an essential part of our on going yeast protocol

>

> Am I just looking for a cure?

>>>I don't know, I used to be, now I'm just looking to get my child HEALTHY

so he is able to function to best of his ability

Is it nuts to try to many things?

>>>Only if you try them all at once! Nearly 4 years now I been 'trying'

things and there is still more on the shopping list LOL. Would have saved

heaps of

dosh if HNI had been available back then.............

How do you know which things work?

>>>Observation mostly, trying things one at a time to ensure they are

tolerated and keeping a good journal of what happened and when. Might not seem

too

relevant when you write it down but could be that 'ah ha' moment a few weeks

or

months later. Keep reading, other parents and carers are best source of info

on what reactions might occur, timings, combinations and syptoms. I am very

proud to announce that after nearly 4 years of confusion, I think I can spot

yeast v phenol reaction now LOL (at least in Sam).

What kind of

> data should I keep?

>>>Any type you can rember to write in. I use computer file (don;t forget

regular backups). Foods, drinks, behaviours, bowels, sleep patterns is how I

started out, making a note of the time of day is useful in our case.

I know this is a lot of questions and I am not trying to start a debate, I

just value the

> input from this list.

>

>>>>Keep asking questions as much as you like, it won;t be long before you

can jump in and help others too

HTH

Mandi in UK

[Guest guest]

Hello ,

>>> see so many supplements that work for others that I just don't

know which to use.

Well, pretty much anything you pull off the shelf will help *some*

people...

The things that seem to go the farthest and help the most are the

epsom salts (which provides magnesium and sulfate), magnesium by

itself, and zinc, and perhaps EFAs.

My son had a bad reaction to DMG. We tried it twice. The Super Nu

Thera is a problem for many so you might want to just try a regular

multi-vitamin/mineral and whole-food based if possible.

>>Owiwiga Tea (spelling?)

This helps with detox and immune system in general I think.

The GFSE helps with yeast if that is a problem.

No-Fenol is cool for several different reasons. Particularly

phenolic foods and yeast. My helps if high ammonia and bacteria are

issue. Here is a link to more on No-Fenol:

www.enzymestuff.com/nofenolfile.htm

>>> Am I just looking for a cure?

So what if you are? Most everyone wants their kids to be healthier

whether they have 'special needs' or not. At least we want them to

be comfortable and not miserable.

>>How do you know which things work?

I agree with the other replies. I 'learned' my sons'. Look for some

indicator or behavior that your son may have. When Older Son feels

badly, he starts chewing everything first, then the irritable

whining begins, then the headbanging. With Younger Son, he usually

resumes being an extremely picky eater, says he is too 'tired' to do

anything, flops all over the furniture, and has elimination (stools)

problems of some sort. When I start to feel bad, I don't cook...or

everything gets burned. Each has particular patterns.

>>>What kind of data should I keep?

Whatever you find helpful. Some people do a food diary, but I

didn't. I would try one supplement each week so I only had one thing

to focus on. Usually I knew what was working or not by the third or

fourth day.

.

[Guest guest]

I don't know the difference between the DMG and TMG, usually people go to the

TMG when their children have a problem with the DMG, my son had no such problem

so we've been using the DMG since November 2002. The talking that followed was

wonderful. We introduced the Ojibwa Tea shortly after, saw some die-off issues,

but we've all done really well on the Ojibwa. Talking had less echolalia, and

more social aspects to it, and he seemed less overwhelmed by sensory issues.

Actually engaged other children at pre-school (initiating games) rather than

responding only to direct contact. Too many good things too list, don't want to

bore everyone else, I was looking at my prior posts, and they seem way too long.

I can e-mail you privately if you want. Super Nu Thera seems to present only

problems once the enzymes are started. It usually works for that pre-enzyme

period of your life. It would make sense, since the children are absorbing more

nutrients from their food, so they don't need the direct supplementation, also

their food choices seem to open up on the enzymes, so again vitamin deficiency

is less likely to be an issue. Good luck.

Supplement question or 2 or 3

Hi Everyone,

This is one of those " gee I don't know what to do " questions. I have been

reading this board and others for a while and have see so many supplements that

work for others that I just don't know which to use. So far is on ZP and

Pep and it seems to be helping some, his BMs are not little rabbit pellets

anymore and he seems more aware (he started center based ABA at the same time).

He is on EFA grain based but I was told that fish based is better. The things I

would like to try are:

DMG or TMG ( I do not understand the difference)

Carnosine

Super Nu

Owiwiga Tea (spelling?)

GFSE

NP

Am I just looking for a cure? Is it nuts to try to many things? How do you

know which things work? What kind of data should I keep? I know this is a lot of

questions and I am not trying to start a debate, I just value the input from

this list.

Thanks in advance!!

Warm Regards

Mom to ASD 11/25/00 In Maine

[Guest guest]

Hi

> Do you mean Flax<< Yes it is Flax and something else, the owner at the

> local HFS recommend Comega (I think it is called) with fish oil but I haven't

> tried it yet.

>

>>>We use a bit of Coromega along with the Eye Q, some find issues with the

flavours and stuff that make it smell so nice. My friends child was hyper on

it, turned out to be the orange. Poor little Sam thinks Coromega is a *treat*

> So it TMG basically an improvement over DMG?

>

>>>>Depends on what suits your child best. Kirkman have sample sizes so you

don't have too much to give them a try. Some kids react marvellously, others

have nasty reactions. I think TMG is helping Sam, our second try, the first was

3 years ago when I was throwing everything Kirkman sells at him with no luck!

> Thanks for letting me be a member of the confused club!!

>

>>>You are welcome, if you find the exit door let me know LOL

Mandi in UK